Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 OH , Hang in there girl!! Man sometimes when it rains it pours. Hearing about your rash makes me feel for you. I am 35 weeks pregnant and also a Hep C positive thang. I am so tired and I have a rash to they call it PUPS. It itches like hell and I can take benadryl but I stay so dang tired all the time. They did get me a shot of solu medrol- steriod so that helped some but they say this will not end until after the delivery. I worry to death my little baby will get this shit. excuse my french but that is what I feel about it. What ever I feel I will not give up trying to survive. I pray for a cure or just to have real health insurance after I have the baby. I do have medicaid now because I can not work due to pregnancy complications but when I went to the gi- doc my ob doc sent me to he just pushed me out says come back in a year when your not pregnant. I refuse to go back to the old life style of drugging and drinking too because I dont want that hell anymore either. So surviving is the only option no matter how hard sometimes surviving feels. Rashes and all there is still something I can give to this crazy world. Just like you you give me hope to keep on keeping on. HUGS FROM TEXAS!!! Re: Great news!! Hey Gayle, gosh it seems like ages since we've talked. I'm so Happy for you, and I'm so glad you got a second opinion. When you first told me what was going on I felt so bad for you. Now you do know that just because everything gonna be ok does'nt mean you can go back to trying to use your husbands eye socket as an outlet! LOL! You be nice to that poor man. like I said I'm so glad you got a 2nd opinion, and your ok! Things arn't so well on this end. I've had so many problems with these side affects, I don't know what to do anymore. I'm tellin ya, it really sucks. It's 10 X worse than it was the last time I talked to you. And the worst part about it is that they can't do nothing for me! I'm covered in what looks just like the Chickenpox. It's all over my arms, back of my neck, hands, between my fingers, on my eyes & now starting to appear on my legs. I can't stop iching. And get this I'm allergic to Antihystamines. I swear, I don't know why I even bother trying to do these TX. I'm still nemic, my eyes are all F____ed up. Sometimes I can see sometimes I can't. My mouth is doing a little bit better, oh crap! I should'nt of said that! I'll damn jinks myself. I don't dare go into the mental & emotional effects & how much worse they've gotton. You know Gayle I just don't understand it, after I went to the Doc. I took that med. for my eyes & kept rinsing my mouth it seemed like I was feeling a little better for about 2 weeks, and than BOOM I woke up one morning & it's " Here we go again " ! I mean this shit will drive someone to Suicide, and thats no joke. It a no win situation for me. If I stop the treatments I'm gonna die. If I continue the sides are gonna kill me, and there is no guarentee that the TX will even work! I just feel real Hopeless & Helpless right now, very lost! Thanks for listening, & again I'm so happy for you! Bare with me I don't mean to complain I'm just real scared & un sure. Take Care, Hope to talk with you soon! Gayle <mollydamaula@...> wrote: I went in for that egd today and although I was pretty loopy still when I talked to Dr. Yummy, he says I don't have any varices in my esophagus and I DO NOT have cirrhosis of the liver!! The original diagnosis from the doctor who did the biopsy was that I had hcv and cirrhosis, BOTH in stage 4. If I wasn't a firm believer in second opinions before I sure am now by golly!! Anyway like I said I was totally stoned when I talked to him and didn't get any details on how he came to that conclusion, but I'll find out when I go in on the 26th to get the results on my labs. I'll find out my viral load and how well I'm responing to tx then too and hopefully that'll be good news as well. How's everyone doing lately? Gayle --------------------------------- Get easy, one-click access to your favorites. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hey Tammy...... i am - WAS genotype 1A with stage 4 grade 4 cirrohsis......started this round of TX at 3.6 million 13 weeks later was at 1476....first round I started at 13.6 million and after 5 months was at 900,00 something and Dr. discontiued me....waited 3 and a half years......just completed my second round of TX this 2nd time was with pegasys/ribiviran did it for 9 months..... and at last VL count I was at 1476 one and a half months ago....did a VL test Thusday past, and anxiously waiting for results hope i clear this time.....but never give it up.......the damm dragon CAN BE KILLED!! it may just take awhile....after I quit taking all the medications I have had alot of the sides go away......itching - gone - psoriasis was EVERYwhere on my body as a adverse reaction to the meds...according to the ROCHE - pharmacist....liver is how you......TENDER as hell but learning to deal with the pain one loritab at a time.... LOL Good Luck and God Bless ya on your recovery....keep us posted! Robet I went in for that egd today and although I was pretty loopy still when > I talked to Dr. Yummy, he says I don't have any varices in my esophagus > and I DO NOT have cirrhosis of the liver!! > The original diagnosis from the doctor who did the biopsy was that I > had hcv and cirrhosis, BOTH in stage 4. > If I wasn't a firm believer in second opinions before I sure am now by > golly!! > Anyway like I said I was totally stoned when I talked to him and didn't > get any details on how he came to that conclusion, but I'll find out > when I go in on the 26th to get the results on my labs. I'll find out > my viral load and how well I'm responing to tx then too and hopefully > that'll be good news as well. > How's everyone doing lately? > Gayle > > --------------------------------- > Get easy, one-click access to your favorites. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hey Tammy...... i am - WAS genotype 1A with stage 4 grade 4 cirrohsis......started this round of TX at 3.6 million 13 weeks later was at 1476....first round I started at 13.6 million and after 5 months was at 900,00 something and Dr. discontiued me....waited 3 and a half years......just completed my second round of TX this 2nd time was with pegasys/ribiviran did it for 9 months..... and at last VL count I was at 1476 one and a half months ago....did a VL test Thusday past, and anxiously waiting for results hope i clear this time.....but never give it up.......the damm dragon CAN BE KILLED!! it may just take awhile....after I quit taking all the medications I have had alot of the sides go away......itching - gone - psoriasis was EVERYwhere on my body as a adverse reaction to the meds...according to the ROCHE - pharmacist....liver is how you......TENDER as hell but learning to deal with the pain one loritab at a time.... LOL Good Luck and God Bless ya on your recovery....keep us posted! Robet I went in for that egd today and although I was pretty loopy still when > I talked to Dr. Yummy, he says I don't have any varices in my esophagus > and I DO NOT have cirrhosis of the liver!! > The original diagnosis from the doctor who did the biopsy was that I > had hcv and cirrhosis, BOTH in stage 4. > If I wasn't a firm believer in second opinions before I sure am now by > golly!! > Anyway like I said I was totally stoned when I talked to him and didn't > get any details on how he came to that conclusion, but I'll find out > when I go in on the 26th to get the results on my labs. I'll find out > my viral load and how well I'm responing to tx then too and hopefully > that'll be good news as well. > How's everyone doing lately? > Gayle > > --------------------------------- > Get easy, one-click access to your favorites. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hey Tammy...... i am - WAS genotype 1A with stage 4 grade 4 cirrohsis......started this round of TX at 3.6 million 13 weeks later was at 1476....first round I started at 13.6 million and after 5 months was at 900,00 something and Dr. discontiued me....waited 3 and a half years......just completed my second round of TX this 2nd time was with pegasys/ribiviran did it for 9 months..... and at last VL count I was at 1476 one and a half months ago....did a VL test Thusday past, and anxiously waiting for results hope i clear this time.....but never give it up.......the damm dragon CAN BE KILLED!! it may just take awhile....after I quit taking all the medications I have had alot of the sides go away......itching - gone - psoriasis was EVERYwhere on my body as a adverse reaction to the meds...according to the ROCHE - pharmacist....liver is how you......TENDER as hell but learning to deal with the pain one loritab at a time.... LOL Good Luck and God Bless ya on your recovery....keep us posted! Robet I went in for that egd today and although I was pretty loopy still when > I talked to Dr. Yummy, he says I don't have any varices in my esophagus > and I DO NOT have cirrhosis of the liver!! > The original diagnosis from the doctor who did the biopsy was that I > had hcv and cirrhosis, BOTH in stage 4. > If I wasn't a firm believer in second opinions before I sure am now by > golly!! > Anyway like I said I was totally stoned when I talked to him and didn't > get any details on how he came to that conclusion, but I'll find out > when I go in on the 26th to get the results on my labs. I'll find out > my viral load and how well I'm responing to tx then too and hopefully > that'll be good news as well. > How's everyone doing lately? > Gayle > > --------------------------------- > Get easy, one-click access to your favorites. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hey Tammy...... i am - WAS genotype 1A with stage 4 grade 4 cirrohsis......started this round of TX at 3.6 million 13 weeks later was at 1476....first round I started at 13.6 million and after 5 months was at 900,00 something and Dr. discontiued me....waited 3 and a half years......just completed my second round of TX this 2nd time was with pegasys/ribiviran did it for 9 months..... and at last VL count I was at 1476 one and a half months ago....did a VL test Thusday past, and anxiously waiting for results hope i clear this time.....but never give it up.......the damm dragon CAN BE KILLED!! it may just take awhile....after I quit taking all the medications I have had alot of the sides go away......itching - gone - psoriasis was EVERYwhere on my body as a adverse reaction to the meds...according to the ROCHE - pharmacist....liver is how you......TENDER as hell but learning to deal with the pain one loritab at a time.... LOL Good Luck and God Bless ya on your recovery....keep us posted! Robet I went in for that egd today and although I was pretty loopy still when > I talked to Dr. Yummy, he says I don't have any varices in my esophagus > and I DO NOT have cirrhosis of the liver!! > The original diagnosis from the doctor who did the biopsy was that I > had hcv and cirrhosis, BOTH in stage 4. > If I wasn't a firm believer in second opinions before I sure am now by > golly!! > Anyway like I said I was totally stoned when I talked to him and didn't > get any details on how he came to that conclusion, but I'll find out > when I go in on the 26th to get the results on my labs. I'll find out > my viral load and how well I'm responing to tx then too and hopefully > that'll be good news as well. > How's everyone doing lately? > Gayle > > --------------------------------- > Get easy, one-click access to your favorites. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 God Bless Oil of Oregano! I love the stuff. Keep it on hand for the upcoming flu season... Pam > > I took her off all of the supplements and she looked awful. Dopey me.... I forgot about a little yeast control. I just thought she would not race around the house from just the yeast, but perhaps after I did that round of DMSA weeks ago, it stirred things up. Well I have her a little Oil of Oregano, and I think she is back on track. So things look good again. Thank God!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 Pam, do you prefer oil of Oregano to Biotin/ GSE? I've been giving my son GSE (2 drops) and Biotin 400 mcg for 3 days. I think he got a bit better but his tongue is still white-coated, he still blinks pretty frequently... but I am sticking with it given that I understand it might take a few days and his diet is not conducive to fighting yeast. However, I did read that for some Oregano works even better than GSE? Thank you > > > > I took her off all of the supplements and she looked awful. Dopey me.... I forgot about a little yeast control. I just thought she would not race around the house from just the yeast, but perhaps after I did that round of DMSA weeks ago, it stirred things up. Well I have her a little Oil of Oregano, and I think she is back on track. So things look good again. Thank God!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 The thing I don't understand is for awhile, the yeast looked good and then it got bad again. I though it would judt keep getting better. On Jul 18, 2009, at 1:20 PM, lenakhais wrote: > Pam, do you prefer oil of Oregano to Biotin/ GSE? I've been giving > my son GSE (2 drops) and Biotin 400 mcg for 3 days. I think he got > a bit better but his tongue is still white-coated, he still blinks > pretty frequently... but I am sticking with it given that I > understand it might take a few days and his diet is not conducive > to fighting yeast. However, I did read that for some Oregano works > even better than GSE? > > Thank you > > > > > > > > I took her off all of the supplements and she looked awful. > Dopey me.... I forgot about a little yeast control. I just thought > she would not race around the house from just the yeast, but > perhaps after I did that round of DMSA weeks ago, it stirred things > up. Well I have her a little Oil of Oregano, and I think she is > back on track. So things look good again. Thank God!!! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2009 Report Share Posted July 19, 2009 You have to pay attention to foods and supplements. Any that aren't fully digested can cause yeast, this is why enzymes are so important and also avoiding supplements that aren't well tolerated. Sometimes it takes quite a few months to get candida under control. Changing your lifestyle to include only low-sweet foods and snacks is very helpful. We use Amla and Candidaise during rounds for yeast and Amla off-round for antioxidant. I would use biotin if I hadn't run out, but we just did a round with just the Amla and Candidaise and it was fine. > > > > > > > > I took her off all of the supplements and she looked awful. > > Dopey me.... I forgot about a little yeast control. I just thought > > she would not race around the house from just the yeast, but > > perhaps after I did that round of DMSA weeks ago, it stirred things > > up. Well I have her a little Oil of Oregano, and I think she is > > back on track. So things look good again. Thank God!!! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2009 Report Share Posted July 19, 2009 I have tried dozens of all different kinds of supp, enzymes etc... this is going on for 10 years. She is one of those kids that gets worse on EVERY THING. I know her trigger foods, and she does not get them. If we slip, I now know what did it. Things were going very well until I did one round of the DMSA, a month ago. All of a sudden she could not handle the few supplements that I had her on (lithium orotate, magnesium, ACE). I just feel it either stirred up tons of yeast or it sucked some minerals or something out of her that she needs really bad. I gave bioton in the morning yesterday, and she quickly camled down, but when i gave a second dose she gets worse. On Jul 19, 2009, at 1:33 AM, wrote: > You have to pay attention to foods and supplements. Any that aren't > fully digested can cause yeast, this is why enzymes are so > important and also avoiding supplements that aren't well tolerated. > > Sometimes it takes quite a few months to get candida under control. > Changing your lifestyle to include only low-sweet foods and snacks > is very helpful. > > We use Amla and Candidaise during rounds for yeast and Amla off- > round for antioxidant. I would use biotin if I hadn't run out, but > we just did a round with just the Amla and Candidaise and it was fine. > > > > > > > > > > > > I took her off all of the supplements and she looked awful. > > > Dopey me.... I forgot about a little yeast control. I just thought > > > she would not race around the house from just the yeast, but > > > perhaps after I did that round of DMSA weeks ago, it stirred > things > > > up. Well I have her a little Oil of Oregano, and I think she is > > > back on track. So things look good again. Thank God!!! > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2011 Report Share Posted March 27, 2011 Got my second Navarro number today and I'm happy to say that my numbers have gone down from 53 to 51.8!! Thrilled!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2011 Report Share Posted March 27, 2011 Joy, In cancer things are rarely as good as they seem and rarely as bad as they seem. Never let you emotions get whipsawed by a single indicator. Make a list of all objective indicators (imagery, size, blood tumor markers, etc.) and of all the subjective indicators (pain, appetite, dysautonomia, sleeplessness, etc.) for your cancer. Assess the quality of the information and then try to get a sense of general direction. You can have shrinkage of a primary while you have growth of metastatic sites. You can have a die-off rate that is a little faster or a little slower than growth rate. You can have necrosis of a primary eventuating into an epithelial-to-mesechymal transition. Usually urine tests make very poor quantitative tests and so we must be careful not to overread them. Results can vary widely depending on what you ate, took, drank, time of collection, and type of test. If your physician tells you that there is absolutely no evidence of cancer and it looks like a cure, your wisest response is: " Hmmmm. " If your physician tells you that the cancer is everywhere and you have only ten minutes left to live, your wisest response is: " Hmmmm. " Become a master of equanimity. _____ From: [mailto: ] On Behalf Of Joy Sent: Sunday, March 27, 2011 7:20 AM Subject: [ ] Great News!! Got my second Navarro number today and I'm happy to say that my numbers have gone down from 53 to 51.8!! Thrilled!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2011 Report Share Posted March 27, 2011 Hmmm... Sent via BlackBerry by AT & T RE: [ ] Great News!! Joy, In cancer things are rarely as good as they seem and rarely as bad as they seem. Never let you emotions get whipsawed by a single indicator. Make a list of all objective indicators (imagery, size, blood tumor markers, etc.) and of all the subjective indicators (pain, appetite, dysautonomia, sleeplessness, etc.) for your cancer. Assess the quality of the information and then try to get a sense of general direction. You can have shrinkage of a primary while you have growth of metastatic sites. You can have a die-off rate that is a little faster or a little slower than growth rate. You can have necrosis of a primary eventuating into an epithelial-to-mesechymal transition. Usually urine tests make very poor quantitative tests and so we must be careful not to overread them. Results can vary widely depending on what you ate, took, drank, time of collection, and type of test. If your physician tells you that there is absolutely no evidence of cancer and it looks like a cure, your wisest response is: " Hmmmm. " If your physician tells you that the cancer is everywhere and you have only ten minutes left to live, your wisest response is: " Hmmmm. " Become a master of equanimity. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2011 Report Share Posted August 5, 2011 YAY!!!!! Congrats Kate & Rita!!! Greenville rocks and so do you Rita...It takes a lot to go down this road and even to find the right ET road so props to you Rita!!! Pls consider sharing lil Kates ET journey someday on www.infantilescoliosis.org ? This is what its all about folks!!!!!!! Thanks for sharing your blessing... Great way to go into the wknd.. HRH > Kate had her check-up today in Greenville. She had an out of brace xray > done and Dr. P didn't even bother to measure because she looked so > straight! Kate started casting at 45 degrees and 21 months old. She had 15 > casts and has been in a brace since June 2010. Dr. P wants her to continue > wearing it at night and we'll have another xray in December. Thank you so > much , ISOP, Shriner's & God. I feel so blessed today~ > > Rita > > Quote Link to comment Share on other sites More sharing options...
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