Hello...

[Guest guest]

Hi ,No we don't know every thing, but we do know what won't work OK...Having gone though all the sale pitches and all,,What we were doing was pointing out that herbal method are not going to cure the disease OK..That when it gets right down to the nity gritty A Medical Doctor is needed..But everybody is entitled to their own way of dealing with this OK..It is not condemnation, it is our right to express a opinion..Sorry if that bothers you, but somethimes it well feel like a whole herd of brothers and sister in your business..And I am glad you state your opinion...Thank you..Kathy b..emily34756 <emily34756@...> wrote: Hello all...I know I am new and just joined, but I want to get something off my chest here.Kathy Brunow

[Guest guest]

Welcome, Jodi. I'm sorry to hear you are having such a difficult time. My

now-10yo daughter was diagnosed just about exactly a year ago, so I remember

only too clearly how rough it can be (even if the details may differ). I can say

from experience that you will find a lot of understanding and support here.

P. in NJ

mamafaerie@... wrote:

My name is Jodi. My 5 year old was recently diagnosed and we are going

through a really tough time right now. I just saw the web site and needed to

know there are other parents who understand. Thank you!

[Guest guest]

I'm new too and my son is 6years old. It's tough. I am hoping that

getting it at a young age will greatly impact his outcome. Hang in

there!

> My name is Jodi. My 5 year old was recently diagnosed and we are

going

> through a really tough time right now. I just saw the web site and

needed to

> know there are other parents who understand. Thank you!

>

>

>

[Guest guest]

Hi:

I am new to the group as I just joined today. I am a stay at home mom with a

home-based business. I have been married for 18 years in Dec. and I have a

10 year old daughter. I have no diagnosis of yet but I have been concerned

with some behavior that my daughter has started during this month. She

washes her hands a lot but she just runs them under water and rubs her hands

together she doesn't use soap all of the time. She uses a lot of hand

sanitizer. She displays rituals of this especially at bedtime and the past

couple of nights it has interfered with her sleep. Last night she woke up

crying that she couldn't sleep because she kept touching germy things. If

her hand touches the wall she needs sanitizer. If she goes outside bare

footed she will come inside and get a wet paper towel and wash her feet.

I have read a little bit about OCD but would really like to learn more as I

don't know how to get her diagnosed or what I should do. I appreciate any

stories that anyone has. My daughter does display anger sometimes and says

she doesn't know how to control it.

Thank you for letting me join the group.

Hugs:o)

Jane

Re: Hello...

I'm new too and my son is 6years old. It's tough. I am hoping that

getting it at a young age will greatly impact his outcome. Hang in

there!

> My name is Jodi. My 5 year old was recently diagnosed and we are

going

> through a really tough time right now. I just saw the web site and

needed to

> know there are other parents who understand. Thank you!

>

>

>

[Guest guest]

Well welcome to the group,

My name is shelly and my daughter is 9 and was diagnosed almost 2 months ago.

She has the same rituals the bedtime thing, her pillow has to be in a certain

position, she also washes her hands compulsivly. We went through the hand

sanitizer thing, finally i had to throw it away. We are in treatment with a

psychologist and it is really helping, she knows she has ocd and is ok with it,

we address the behaviors as the ocd out in the open and talk through it

together. I would definately seek a doctor to get her diagnosed, dont wait, i

wish i would have taken her sooner, she started last year as i look back at the

behavior and wish i could have helped her then. I think your doing the right

thing by asking for help, and wish you all the luck.

Jane Northrop <jbones1961@...> wrote:

Hi:

I am new to the group as I just joined today. I am a stay at home mom with a

home-based business. I have been married for 18 years in Dec. and I have a

10 year old daughter. I have no diagnosis of yet but I have been concerned

with some behavior that my daughter has started during this month. She

washes her hands a lot but she just runs them under water and rubs her hands

together she doesn't use soap all of the time. She uses a lot of hand

sanitizer. She displays rituals of this especially at bedtime and the past

couple of nights it has interfered with her sleep. Last night she woke up

crying that she couldn't sleep because she kept touching germy things. If

her hand touches the wall she needs sanitizer. If she goes outside bare

footed she will come inside and get a wet paper towel and wash her feet.

I have read a little bit about OCD but would really like to learn more as I

don't know how to get her diagnosed or what I should do. I appreciate any

stories that anyone has. My daughter does display anger sometimes and says

she doesn't know how to control it.

Thank you for letting me join the group.

Hugs:o)

Jane

Re: Hello...

I'm new too and my son is 6years old. It's tough. I am hoping that

getting it at a young age will greatly impact his outcome. Hang in

there!

> My name is Jodi. My 5 year old was recently diagnosed and we are

going

> through a really tough time right now. I just saw the web site and

needed to

> know there are other parents who understand. Thank you!

>

>

>

[Guest guest]

I know this! lol My son is in the germy thing, just a little different about

it. It isn't so much about the hand sanitizer, but he can't stand for anyone,

other than me and my mom, to fix his food, touch his food, so on and so forth.

He takes his own cup to daycare, because everyone has touched the cups there,

if he drinks from them he will get sick...then he doesn't eat up there

because they can serve themselves and he can't bear to touch the spoon everyone

else

has. So luckily daycare is working with me and the lady that does the lunch

will fix his plate and have it ready when she takes the food back there and if

that doesn't help his doctor is writing a note stating he can bring in outside

food just do he will eat. I would get your daughter diagnosed as soon as you

can. Good luck!

[Guest guest]

Hi, have you ever heard of Inositol? I heard I has some good results but I

do not know how much to give him...Thanks!, Jodi

[Guest guest]

Hi Jane, As am trying to write to you my son is asking me the same

questions over and over again! He was diagnosed by a child psychiatrist only

by the

behaviors my husband and myself explained to the doctor. He hasn't actually

met my son yet. You might want to start out that way because it is easier

to talk to the doctor first without the child present. My son does not do any

of the hand washing. His problem is " bad thoughts " , but last year he went

through a time where he would not let anyone touch him, his food, or anything

if they were wearing nail polish. Now he is obsessed with constantly thinking

that he wishes I would die or that he would die. Some boys is his

Kindergarten class were telling him they were going to cut his head off!! so

it

completely freaked him out ad triggered all the problems we are having now. It

is

so frustrating sometimes. I started him on the supplement Inositol from the

Vitamin Shoppe but I do not really know how much I am supposed to be giving

him. We go to the Doctor this week so I hope they can give me more advise.

You can try telling her " This is not you, it is just your mind playing little

tricks on you " or " don't worry, it is just the worry bug making you do

this " . It has calmed my son down just knowing that it is not really him

wishing

bad things to happen. Good luck with everything!! Jodi

[Guest guest]

Hi :

Sorry for the delay in responding... I'm a little behind. Thank you for the

welcome. My daughter has seen the therapist twice now and she is suppose to

do a worry box but she won't do it but she keeps me up every night until

11:30 or so asking me questions and asking if things will be okay. The

therapist told me not to take the hand sanitizer away. I'm worried about

school as it starts on Monday. My daughter already knows she's going to

keep it in her desk and she will probably sneak it to the best of her

ability.

The therapist did diagnose her with generalized anxiety disorder with OCD

tendencies. I would like to go without medication if possible so we haven't

seen a psychiatrist yet.

Hugs:o)

Jane Northrop

www.youravon.com/jnorthrop

jane-theavonlady@...

Re: Hello...

I'm new too and my son is 6years old. It's tough. I am hoping that

getting it at a young age will greatly impact his outcome. Hang in

there!

> My name is Jodi. My 5 year old was recently diagnosed and we are

going

> through a really tough time right now. I just saw the web site and

needed to

> know there are other parents who understand. Thank you!

>

>

>

[Guest guest]

Thank you so much for the welcome and sorry for the delay in responding. I

have gotten my daughter diagnosed with generalized anxiety disorder with OCD

tendencies. School starts on Monday and I'm really nervous about this and

all the " meltdowns " this will create.

Hugs:o)

Jane Northrop

www.youravon.com/jnorthrop

jane-theavonlady@...

Re: Re: Hello...

I know this! lol My son is in the germy thing, just a little different about

it. It isn't so much about the hand sanitizer, but he can't stand for

anyone,

other than me and my mom, to fix his food, touch his food, so on and so

forth.

He takes his own cup to daycare, because everyone has touched the cups

there,

if he drinks from them he will get sick...then he doesn't eat up there

because they can serve themselves and he can't bear to touch the spoon

everyone else

has. So luckily daycare is working with me and the lady that does the lunch

will fix his plate and have it ready when she takes the food back there and

if

that doesn't help his doctor is writing a note stating he can bring in

outside

food just do he will eat. I would get your daughter diagnosed as soon as you

can. Good luck!

[Guest guest]

Kat Dunham

Forget about what type of Genotype you have and how you got it. First of all

you have to be determined and bold enough to face the disease. You know if you

will be able to eradicate VIRUS, YOUR lIVER WILL automatically be regeneratd.

Just start Interferon therapy with the consultation of your physician. There is

Grace, a member of Hep Wrrorier, who had Genotype 1, and succesfully treated. So

don't worry. Don't surrender to the disease. You will be all right. i wish and

pray for you. Trust me you will be completely treated.Best of luck. Saleem.

Kat Dunham <redkat420@...> wrote:

In 1982 I had a miscarriage It required 6liters of blood to save me.

In that blood was hepC bad blood. I was dignosed with the antibodies

in 94. Between 2003 and 2005 the antibodies became active with a

passion. I found out this on Jan20th. My viral load is over 32000. I

am genotype 1a. The liver biopsy showed that I am entering stage 4 of

damage. I have not yet started on medication.The doctor told me that

genotype 1a is rare and hard to treat. I am really scared. If there

is someone out there with the same genotype that can give me hope

please let me know.

[Guest guest]

HI Aimee,

Welcome to the group, this group is mainly for listing support groups and

events. If you want to post back and forth questions, you probably want

bandsters. But this is a great group for finding band related events. Also if

you want you can E-mail me privately and I would be happy to talk with ya.

mmdavidson0128@...

Aimee <plaimee@...> wrote:

New to the group. I wasn't sure if I needed to send

this to " activate " my membership or what...

Anyway, I'm gathering info. Hopefully, this will be a

fruitful endeavor.

Aimee

__________________________________________________

[Guest guest]

Hi Carol! I was beginning to lose hope with this group because NOBODY has

even acknowledged me until now. Well, I was banded on 9/14 and got my

" visitor " a week post-op. So I was already swollen, but that of course made

things even tighter and now I've got a little fluid on me. I've been

holding a steady 12 pound loss for 5 days now so I'm waiting for the fluid

to disipate. I go for my 2 week follow up appt on Thursday. I took 1 week

off from work and started back last Thursday. Every day has been better

than the last. My husband was also banded (5/18) and he's had 2 fills so

far. He's lost 32 pounds as of last Friday and he had a fill last week so

I'm sure he's lost a couple more by now. Looking forward to our journey

together! I'm also on obesityhelp.com if you want to see me there. My name

there is kyliesmomma.

Baltimore, land

_________________________________________________________________

Find a local pizza place, music store, museum and more…then map the best

route! http://local.live.com

[Guest guest]

Tuesday, September 26, 2006, 7:55:05 AM, you wrote:

> Hi Carol! I was beginning to lose hope with this group because NOBODY has

> even acknowledged me until now.

Have you posted before and not gotten a response?

> Well, I was banded on 9/14 and got my

> " visitor " a week post-op. So I was already swollen, but that of course made

> things even tighter and now I've got a little fluid on me. I've been

> holding a steady 12 pound loss for 5 days now so I'm waiting for the fluid

> to disipate.

All sounds pretty normal as far as what has happened.

> I go for my 2 week follow up appt on Thursday. I took 1 week

> off from work and started back last Thursday. Every day has been better

> than the last. My husband was also banded (5/18) and he's had 2 fills so

> far. He's lost 32 pounds as of last Friday and he had a fill last week so

> I'm sure he's lost a couple more by now. Looking forward to our journey

> together! I'm also on obesityhelp.com if you want to see me there. My name

> there is kyliesmomma.

Glad you're here. Keep coming back. There is lots of experience,

strength, and hope here.

dan

--

Dan Lester, Boise, ID honu@... www.mylapband.tk

Dr. Ortiz, Tijuana, 4/28/03

323/209/199 Age 63 The road goes on forever.....

[Guest guest]

Dan,

Yes, I posted a first hello after signing up and said that I was new to the

group and recently banded on 9/14. It's okay. I think that it may not have

gotten through since I was newly added to the group.

_________________________________________________________________

Find a local pizza place, music store, museum and more…then map the best

route! http://local.live.com

[Guest guest]

Tam,

From what I've learned, this disease really doesn't have a predictable

shape that it grows in. As a result, we often have different symptoms.

If the ctoma leaves your semicircular canal alone, then you're likely

not to have the dizziness. So, personally for me that wasn't a

problem. My only symptoms were a loss of hearing, a metallic taste in

one side of my mouth, and an overall uncomfortable feeling in my ear (I

called it feeling like it was permanently 'popped'). I probably had the

stinky discharge too, but I didn't make a habit of testing that.

These things grow slowly, so as long as the doctors don't see an urgent

need to advance the operation, you shouldn't have much further damage.

What's damaged is damaged at this point. We'll just hope and pray that

the docs can put it all back together for you. They'll do their best.

Matt

bluetam8877 wrote:

>

> I'm new to this site, i woulf like to say hello to everyone.

> I'm from the UK

> I have ENT problems since the age of 4...35 now. with many ops behind

> me. I wear 2 hearing aids now.

> I now have C Toma in my left ear. My Doctor will not allow me to work

> due to dizzy spells or feeling slightly lightheaded. which is not all

> the time.( I spent most of the day driving). Having never spoken to

> others with this problem. Did you guys feel the same before your ops.

> Living in the uk i will be waiting 7mths before my op.

>

> Thanks

> Tam

>

>

--

[Guest guest]

Tam,

Was a CT scan done to confirm the ctoma? If not, you should have one

as soon as possible to be absolutely sure you have a ctoma and how

invasive it is. If a ctoma is confirmed and it is invasive, seven

months is too long to wait to have it removed. No one knows exactly

how fast or how slow a ctoma grows. If you have an already have an

invasive ctoma, waiting seven months can cause serious permanent

damage, even death if it gets to your brain. As far as symptoms go,

it seems like no two people have the same; however, dizziness is a

classic symptom. In my case, I had none of the classic symptoms what

so ever other than hearing loss; yet, my ctoma had eaten away my skull

exposing my brain. When my surgeon saw my CT scans, I was in surgery

in less than a week! Push for the CT scan to see exactly what's going on.

Rich

>

> I'm new to this site, i woulf like to say hello to everyone.

> I'm from the UK

> I have ENT problems since the age of 4...35 now. with many ops behind

> me. I wear 2 hearing aids now.

> I now have C Toma in my left ear. My Doctor will not allow me to work

> due to dizzy spells or feeling slightly lightheaded. which is not all

> the time.( I spent most of the day driving). Having never spoken to

> others with this problem. Did you guys feel the same before your ops.

> Living in the uk i will be waiting 7mths before my op.

>

> Thanks

> Tam

>

[Guest guest]

Have you tried asking your doctor or going to the pharmaceutical website? Also,

ask the pharmacist. For questions like these, it's probably best to get answers

from professionals, for you don't want any wrong answers when contemplating

having a baby.

Here's the Lexapro site:

http://www.lexapro.com/

Colleen

Angel <littleangel64@...> wrote:

Looking for answers to what these drugs do to a person what the long

term affects are and what about having a baby? what will they do to the

unborn baby? can anyone out there shead some light on this? thanks

[Guest guest]

Angel,

In my opinion, which basically falls in line with an earlier response to your

question, and, having been personally familiar with various SSRI's over the

years, it is always best to first consult your primary care doctor or

psychiatrist with questions, concerns, etc., as well as get input from a your

pharmacist. That's important throughout any treatment you receive, from initial

dosing, changes in dosing, to tapering off if and when you no longer need the

medication. The Lexapro website, I'm sure, gives answers to most questions a

patient may have in language they can understand. The more credible information

that you gather in general, the better your understanding of the role these

medications play in your biochemistry will be. It will also help to eleviate any

fear, mystery, etc. from the equation. I hope this helps! Take care -

S. Weston

ssrI'

s

Angel <littleangel64@...> wrote:

Looking for answers to what these drugs do to a person what the long

term affects are and what about having a baby? what will they do to the

unborn baby? can anyone out there shead some light on this? thanks

---------------------------------

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Travel to find your fit.

[Guest guest]

Hi ,

I have an 18 yr old nephew with autism. They live in rural WI and home-schooled

for a while then found I.Q Academy which worked well for him. It's an on-line

H.S. He graduated with honors (gold tassle) this spring.

S S

Hello...

Posted by: " " angel_red71@... angel_red71

Tue Aug 4, 2009 10:08 am (PDT)

Hello everyone. My name is . My son is Shane. He is 16 and autistic. We

live in Olathe Kansas. Shane loves to Draw, play PS2, Bowling and the arcade. We

home school cause the schools just could not do what needed to be done and there

was other problems.

Is there anyone on here who lives in Olathe?

I wanted to share my web site with everyone. I have a store with autism

awareness items on it, and other items too. I wanted to be able to help others

show their support for a great cause and to raise money for The Autism Society

Of America!

Red's Closet

http://www.redscloset.webs.com

------------------------------------------------------------

Senior Assisted Living

Put your loved ones in good hands with quality senior assisted living. Click

now!

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tkLqvDLC/

[Guest guest]

,

The Autism Alliance of Greater Kansas City supports activities for teens and young adults with ASD. Please visit our website at www.autismalliancekc.org or www.kcautismservices.com. You can contact Connie Lee at connie@... for more info about the social outings. Also, there is an ASA chapter in your area. Their website is www.asaheartland.org. There are support groups in the area for parents.

Robin

Robin G. Legal SecretarySonnenschein Nath Rosenthal LLPDirect: 816.460.2502Fax: 816.531.7545rrussell@...www.sonnenschein.com

4520 Main StreetSuite 1100Kansas City, MO 64111-7700

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Sent: Tuesday, August 04, 2009 12:07 PMAutism and Aspergers Treatment Subject: Hello...

Hello everyone. My name is . My son is Shane. He is 16 and autistic. We live in Olathe Kansas. Shane loves to Draw, play PS2, Bowling and the arcade. We home school cause the schools just could not do what needed to be done and there was other problems. Is there anyone on here who lives in Olathe?I wanted to share my web site with everyone. I have a store with autism awareness items on it, and other items too. I wanted to be able to help others show their support for a great cause and to raise money for The Autism Society Of America!Red's Closethttp://www.redscloset.webs.com'In God We Trust'

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[Guest guest]

Hi, my name is Cheryl and I'm new to this group. My husband (Dave - 55) was

diagnosed with an aggressive prostate cancer on the 9th of this month (December

2010). He has had a bone scan and it has not reached the bones as of yet. I do

however have a couple of major questions I need help with.

1st of all he had a nuclear bone scan on the 15th. He now has a bad rash under

his left armpit and some in the groin region. Is this normal? Has anyone else

had reactions to this kind of scan. If so we are looking for suggestions to get

rid of it. Could it be some kind of chemical or radiation burn?

2nd - how do you find out what stage of cancer you have? We've been searching

the internet for alternative treatments. Several say use this one if your stage

3 or stage 4. I have no idea what stage to look at. So we are sort of leaning

towards the Budwig-Cellect program.

which brings me to question #3 - Has anyone used the Budwig-Cellect protocol?

Thanks, Cheryl

[Guest guest]

Hi Cheryl,

You need to know that there really is no such thing as the " Budwig Cellect

protocol " This is something that was put together by the people at

cancertutor.com The person who makes Cellect never did nor does he now

recommend that it be combined with Budwig and the people who follow the

Budwig Protocol do not believe that you should combine it with anything

else. So it is not a therapy that someone specifically created. However,

there are many people who have used both Budwig by itself, Cellect by

itself, and both things together. Like any other alternative or traditional

treatment, for some people it works for others it does not. You need to do

exhaustive research before deciding how to proceed.

Good Luck and Best Wishes

Nili

On Tue, Dec 21, 2010 at 9:16 AM, nannae@... <

nannae@...> wrote:

>

>

> Hi, my name is Cheryl and I'm new to this group. My husband (Dave - 55) was

> diagnosed with an aggressive prostate cancer on the 9th of this month

> (December 2010). He has had a bone scan and it has not reached the bones as

> of yet. I do however have a couple of major questions I need help with.

>

> 1st of all he had a nuclear bone scan on the 15th. He now has a bad rash

> under his left armpit and some in the groin region. Is this normal? Has

> anyone else had reactions to this kind of scan. If so we are looking for

> suggestions to get rid of it. Could it be some kind of chemical or radiation

> burn?

>

> 2nd - how do you find out what stage of cancer you have? We've been

> searching the internet for alternative treatments. Several say use this one

> if your stage 3 or stage 4. I have no idea what stage to look at. So we are

> sort of leaning towards the Budwig-Cellect program.

>

> which brings me to question #3 - Has anyone used the Budwig-Cellect

> protocol?

>

> Thanks, Cheryl

>

>

>

[Guest guest]

I would strongly recommend to stay a way from doctors with their chemo and

radiation , there are many many natural cures to kill tumors. My prostate was so

bad 2 years ago that I could hardly pee. Today I am in the best shape of my

life,eating organic foods , meditating

trying to avoid EMF, exercise etc. I would see a Naturalpathic Doctor. Check out

Doctor Leonard Coldwells info on the internet. He cures 93% of his patients

If would like to call me , I would be glad to talk to you anytime at no cost.

Your Health Crusader

________________________________

From: " nannae@... " <nannae@...>

Sent: Tue, December 21, 2010 6:16:05 AM

Subject: [ ] Hello...

Hi, my name is Cheryl and I'm new to this group. My husband (Dave - 55) was

diagnosed with an aggressive prostate cancer on the 9th of this month (December

2010). He has had a bone scan and it has not reached the bones as of yet. I do

however have a couple of major questions I need help with.

1st of all he had a nuclear bone scan on the 15th. He now has a bad rash under

his left armpit and some in the groin region. Is this normal? Has anyone else

had reactions to this kind of scan. If so we are looking for suggestions to get

rid of it. Could it be some kind of chemical or radiation burn?

2nd - how do you find out what stage of cancer you have? We've been searching

the internet for alternative treatments. Several say use this one if your stage

3 or stage 4. I have no idea what stage to look at. So we are sort of leaning

towards the Budwig-Cellect program.

which brings me to question #3 - Has anyone used the Budwig-Cellect protocol?

Thanks, Cheryl

[Guest guest]

Cheryl,

The one thing I can offer is to Alkalize the body as much as possible.

Target a PH Level of 7.5 or higher.

This is only one source...check the internet for Acidic and Alkaline Foods.

http://health2k.h2origin.com/

Prayerfully Yours,

jim

On Tue, Dec 21, 2010 at 9:16 AM, nannae@... <

nannae@...> wrote:

>

>

> Hi, my name is Cheryl and I'm new to this group. My husband (Dave - 55) was

> diagnosed with an aggressive prostate cancer on the 9th of this month

> (December 2010). He has had a bone scan and it has not reached the bones as

> of yet. I do however have a couple of major questions I need help with.

>

> 1st of all he had a nuclear bone scan on the 15th. He now has a bad rash

> under his left armpit and some in the groin region. Is this normal? Has

> anyone else had reactions to this kind of scan. If so we are looking for

> suggestions to get rid of it. Could it be some kind of chemical or radiation

> burn?

>

> 2nd - how do you find out what stage of cancer you have? We've been

> searching the internet for alternative treatments. Several say use this one

> if your stage 3 or stage 4. I have no idea what stage to look at. So we are

> sort of leaning towards the Budwig-Cellect program.

>

> which brings me to question #3 - Has anyone used the Budwig-Cellect

> protocol?

>

> Thanks, Cheryl

>

>

>