Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 I would like any thoughts on my results with my Navarro test. I am trying to work out if this test did not work for me or not. To explain. I was diagnosed in Aug 09 with angiosarcoma. Had CT in Aug and then surgery. No mets showed up on scan. I did a Navarro test Sept 09 and my results were 54. I did another test 4 months later and it was 53. I did another 8 weeks later it was 53 (I started noticing a possible reoccurance) and another 6 weeks later at 53. I was getting increasingly worried that I had another sarcoma growing but my numbers were steady 53. Strange! Decided to have a CT scan to make sure there were no other tumours and doctors just told me that I have multiple tumours in my spleen and liver and two on my chest. Why did my Navarro number drop down one and then stay the same?? Is it because the type of cancer I have? Is it because the mets were already there when I did my first test and I have been just keeping it under control? There has definitely been growth though. It's so frustrating because sarcomas can't be tracked by your usual tumour markers ect. How do I track my disease to see how my new protocol is working if my Navarro numbers seem out of wack? And with out getting a CT done every 3 months. Ideas? Quote Link to comment Share on other sites More sharing options...
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