Hi, I am new

[Guest guest]

Hi Ck,

I received your post, but I havent seen the original one that I

posted....strange.

Debbie - NY

[Guest guest]

Welcome Debbie, glad you found us.

Now you know it's not you, you're not doing anything wrong. This is brain

chemistry -- as everyone here will attest to.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

[Guest guest]

Hi Debbie and welcome.

Some days are pretty long, eh? We've certainly had to rearrange a lot of

our life to accommodate Andy, who is 12.

I have a couple of questions. But before I ask them, let me chime in with:

it's not *you*. It's something, but it's not *you*.

If school is having no problems and is an exemplary student, have you

asked them to teach you their techniques? To come and do a home assessment?

Part of the 1997 revisions for IDEA discusses the notion that if the

interventions are not successful outside of the classroom they're not an

effective outcome---thus training needs to occur to all those who are

workign with the child. heh heh. Put the responsibiliyt on them to share

their marvelous success (she says with a cynical grin).

Second, what do you do when things are tough? Are you using any visual

strategies or reward plans or or or? I'm sure you've run the gamut and

tried tons of things. But one thing I know is that this is an incredibly

creative and supportive group. No one will judge you, but they will toss

out all sorts of great ideas, stories, and empathetic moments.

Havey ou discovered the bookmarks and files on the webpage to this group

yet? There might be something there that seems novel to you and will be

interesting to everyone. Or maybe not. Maybe youall need a vacation from

each other! That's not unreasonable either. (Do you have some respite?)

Anyway. I hope you received the newsletter I sent. If not, it's on it's

way. Take advantage of this group---I'm pretty certain there's nothing you

can tell us that we've not already discussed and *someone* has lived that

day too. You're NOT alone.

hugs,

j

[Guest guest]

> Part of the 1997 revisions for IDEA discusses the notion that if the

> interventions are not successful outside of the classroom they're not an

> effective outcome---thus training needs to occur to all those who are

> workign with the child

Joan, please tell me you know exactly where in the revisions this occurs.

This is the very issue at stake in our battle with the CSE. Our CSE chair

thinks that as long as Ian's behavior in school is adequately supervised,

his behavior outside of school is not her responsibility.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

[Guest guest]

hi debbie nice to meet you, my nathan will be 10 this wednesday on the 8th of

august, getting ot be soo big. This is the place to be, everyone is very caring

and we all help eachother out. As for the store, it sounds like it may be

overwhelming for eric, too many sounds, too many people, unfamiliar maybe. Many

of our kids have horrible tantrums when not doing activity they prefer,

especially highly sensory ones. Nahtan use to not go anywhere with lots of

people too, the pool, a restaraunt, school, store, try to leave constantly or do

that wet noodle having to drag or carry him, occasional yelling but not much.

With behavior management, meds, and frequent exposure nathan has come to

tolerate most of these places well, even interacts according to environment.

Maybe for the store, you can make a social story about it for eric and read it

with him, then go to store, but start off small, maybe have eric help get a

gallon of milk or what ever, just one or two things then get reward of choice eg

home or pop whatever eric likes. And gradually increase the visits to store and

eventually eric will be able to go shopping no problem. Sometimes it just

requires a choice item in the store to go shopping. Like nathan is getting into

" toys " lately especially cars, with the final removal of shoestrings(selfstim)

through behavior management, now nathan plays with cars and trucks often,

lineing them up over and over, but playing appropriately some too. Or a video or

video game are always high on the list too for shopping. As for the hitting,

unsuccessful in nathan occasional bouts of hitting or biting, usually it means

he is depressed or stressed try to find the factor and eleminate if possible or

slow down some on goals, take a holiday. And if nathan hits or bites his little

brother he has to say he is sorry and hug nicholas (8yrs), and lately we either

make him sit on the stairs or go to his room for a timed period, but he use to

never be able to do this for of punishment, he has just gorwn developed enough

to understand this recently, before we would tell him NO! and do the hugging and

apologies and make nathan sit with us beside him no tv or vidoegames etc for a

short timeout, now our time outs range from at least 5min, when he has been

really bad he will go to his room lay on his bed, occasionally cry, or yell out,

but then either sleeps or comes down around 10-15min later, saying " whew, all,

better " ---(the talking has been developing over this last year, before he used

sign or pics) I dont know if this will help, this has been our experience, its

NOT YOU, maybe eric is going through an early puberty thing. Most of all try and

find a good behavior psychologist(they use methods not meds) and if really

needed and ok with you maybe even try a good psychiatrist for medicinal help.

WE use a combo of the two, which works for us, but all our kids react

differently to meds and bm. shawna, mom to nathan soon to be 10yrs w/ds, pdd,

add/hd, ocd and nicholas 8yrs, eager for wrestling camp to get here,lol.

Hi, i am new

Hello,

My name is Debbie, I am 44 y/o, I have 4 sons and 1 daughter. , 10 is my

4th son and he has D/S and I am noticing some autistic tendencies. I am

struggling with his behavior, he hits me and his little sister when he cant

have his way. If I have to go to the store to buy something, maybe just to

buy bread, he will sit on the sidwalk, pound the pavement with his feet and

scream, I want to go home. He has no behavior problems in school and I was

told his behavior is excellent. Ok so i guess it's me, im doing something

wrong at home. is such a sweet little boy, but has many frustrations,

and I dont know what to do anymore.

Thanks for listening,

Debbie - NY mom to 20, 17, Joeseph 13, ds 10, Melisa 6

Wife to Riza. ( this is my second marriage, my 4 sons are from my first

marriage).

[Guest guest]

In a message dated 8/4/2001 7:23:06 AM EST, ACER929@... writes:

<< He has no behavior problems in school and I was

told his behavior is excellent. Ok so i guess it's me, im doing something

wrong at home. is such a sweet little boy, but has many frustrations,

and I dont know what to do anymore.

>>

Debbie: I know exactly what you mean. Ray was just a sweet Down's

little boy with ADHD until 14-1/2. I could take him everywhere and be proud

of him. After that we experienced so much agitation and violence. It is

really hard to experience the change from a child with Down's (by the way I

love that personality so much it was my choice to adopt a Down's child when

we adopted). I never dreamed we'd be where puberty, a medication reaction,

several severe seizures and finally the Autism diagnosis have brought us.

Peggy

[Guest guest]

Dear Diane: Welcome to the group! I took Reglan a long time ago and it really

helped me. Give the medication a little time. Also, read back the old posts

and you will get alot of helpful information. Elena

[Guest guest]

Diane,

I am glad you found this group. You will find lots of information here and

a great support group.

I was diagnosed with Achalasia in 1976. I have been through all of the same

things you are going through. I finally had surgery and that pretty much

ended my problems. It is very hard to find a doctor who knows very much

about Achalasia. Most regular docs can go there entire practice without

seeing some one with Achalasia. Most GI's only see very few cases. I was

lucky to find a doctor in Kansas City who see's lots of Achalasia patients

and is well informed. I would keep asking questions if I were you. If the

GI you are going to is not helping you, ask for another opinion. Most

insurance's will allow that due to the rarity of Achalasia.

Also, let us know the state you are in. Chances are there are people in

this group who know of doctors or hospitals in your area.

I am glad you found this group, I hope they are as big a support to you as

they have been to me.

J.C.

Hi, I am new

> I am new, and thank you for letting me join.

> I have been having trouble with my throat since September

> It started out as if something was stuck in my throat constantly. I

> kept telling my doctor, but she was ignoring me

> I finally changed doctors, as it had gottent o the point where I was

> gagging mostly at night, and was throwing up food.I was sent to a GI

> doctor, who did an upper endo nad he had to dilate the esophogus, he

> also found hiatal hernia and said I had distol esopheagistis, and

> antral gastritis and gerd, and chronic inflammation

> anyhow he did the egd on November 8th, he put me on aciphex, and

> zantac. 3 days later I was feeling that something was stuck in my

> throat again, I called the Gi and he took me off aciphex and put me

> on protonix. any how I waited a week till I was throwing up the food

> again and I kept calling his office and his nurse kept saying it is

> impossibel that it is happening again

> I then had to see another gi doctor, and now I been on protonix , and

> also reglan .I been on reglan for a little over 2 weeks now

> I still have the lump in my throat and at times throw up my food.

> also have alot of chest pains

> to anyone who has this propblem does this ever get better ?

> Diane

>

>

>

>

>

>

>

[Guest guest]

Hi and thank you for your welcome

I am in New York State, Catskill area

I really can use the help locating a good doctor,this is the most

annoying medical problem i have ,I also have other problems besides

this one

but this is aweful

I am only able to eat jello and brothes

I am losing weight, that I really don`t want to lose

maybe 5 pounds,but not as much as i been losing here

any help would truly be appreciated

Diane

> Diane,

> I am glad you found this group. You will find lots of information

here and

> a great support group.

>

> I was diagnosed with Achalasia in 1976. I have been through all of

the same

> things you are going through. I finally had surgery and that

pretty much

> ended my problems. It is very hard to find a doctor who knows very

much

> about Achalasia. Most regular docs can go there entire practice

without

> seeing some one with Achalasia. Most GI's only see very few

cases. I was

> lucky to find a doctor in Kansas City who see's lots of Achalasia

patients

> and is well informed. I would keep asking questions if I were

you. If the

> GI you are going to is not helping you, ask for another opinion.

Most

> insurance's will allow that due to the rarity of Achalasia.

>

> Also, let us know the state you are in. Chances are there are

people in

> this group who know of doctors or hospitals in your area.

>

> I am glad you found this group, I hope they are as big a support to

you as

> they have been to me.

>

> J.C.

> Hi, I am new

>

>

> > I am new, and thank you for letting me join.

> > I have been having trouble with my throat since September

> > It started out as if something was stuck in my throat constantly.

I

> > kept telling my doctor, but she was ignoring me

> > I finally changed doctors, as it had gottent o the point where I

was

> > gagging mostly at night, and was throwing up food.I was sent to a

GI

> > doctor, who did an upper endo nad he had to dilate the esophogus,

he

> > also found hiatal hernia and said I had distol esopheagistis, and

> > antral gastritis and gerd, and chronic inflammation

> > anyhow he did the egd on November 8th, he put me on aciphex, and

> > zantac. 3 days later I was feeling that something was stuck in my

> > throat again, I called the Gi and he took me off aciphex and put

me

> > on protonix. any how I waited a week till I was throwing up the

food

> > again and I kept calling his office and his nurse kept saying it

is

> > impossibel that it is happening again

> > I then had to see another gi doctor, and now I been on protonix ,

and

> > also reglan .I been on reglan for a little over 2 weeks now

> > I still have the lump in my throat and at times throw up my food.

> > also have alot of chest pains

> > to anyone who has this propblem does this ever get better ?

> > Diane

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Diane,

Has any doctor given you a reasonable explanation for the chest pains?? Mine said that maybe if was from the trama due to the dilation and it should pass. It has been a week now and I have more extremely painful attacks that I had before this. The chest pains are awful. What do you do for them? I'm not sure but I don't think t he levsin is working and I end up taking pain killers.

JC Elder <jc_elder@...> wrote: Diane,I am glad you found this group. You will find lots of information here anda great support group.I was diagnosed with Achalasia in 1976. I have been through all of the samethings you are going through. I finally had surgery and that pretty muchended my problems. It is very hard to find a doctor who knows very muchabout Achalasia. Most regular docs can go there entire practice withoutseeing some one with Achalasia. Most GI's only see very few cases. I waslucky to find a doctor in Kansas City who see's lots of Achalasia patientsand is well informed. I would keep asking questions if I were you. If theGI you are going to is not helping you, ask for another opinion. Mostinsurance's will allow that due to the rarity of Achalasia.Also, let us know the state you are in. Chances are there are people inthis group who know of doctors or hospitals in your area.I am glad you found this group, I hope they are as big a support to you asthey have been to me.J.C. Hi, I am new> I am new, and thank you for letting me join.> I have been having trouble with my throat since September> It started out as if something was stuck in my throat constantly. I> kept telling my doctor, but she was ignoring me> I finally changed doctors, as it had gottent o the point where I was> gagging mostly at night, and was throwing up food.I was sent to a GI> doctor, who did an upper endo nad he had to dilate the esophogus, he> also found hiatal hernia and said I had distol esopheagistis, and> antral gastritis and gerd, and chronic inflammation> anyhow he did the egd on November 8th, he put me on aciphex, and> zantac. 3 days later I was feeling that something was stuck in my> throat again, I called the Gi and he took me off aciphex and put me> on protonix. any how I waited a week till I was throwing up the food> again and I kept calling his office and his nurse kept saying it is> impossibel that it is happening again> I then had to see another gi doctor, and now I been on protonix , and> also reglan .I been on reglan for a little over 2 weeks now> I still have the lump in my throat and at times throw up my food.> also have alot of chest pains> to anyone who has this propblem does this ever get better ?> Diane>>>>>>>

[Guest guest]

Hi Diane,

I live in NYC, but the gastroenterologist who diagnosed me with

achalasia and advised me to get the myotomy has an office in

Poughkeepsie. (I don't know how close that is to you.) His name is

Dr. Starpoli -- 845/471-1354.

>

> Hi and thank you for your welcome

> I am in New York State, Catskill area

> I really can use the help locating a good doctor,this is the most

> annoying medical problem i have ,I also have other problems besides

> this one

> but this is aweful

> I am only able to eat jello and brothes

> I am losing weight, that I really don`t want to lose

> maybe 5 pounds,but not as much as i been losing here

> any help would truly be appreciated

> Diane

> > Diane,

> > I am glad you found this group. You will find lots of

information

> here and

> > a great support group.

> >

> > I was diagnosed with Achalasia in 1976. I have been through all

of

> the same

> > things you are going through. I finally had surgery and that

> pretty much

> > ended my problems. It is very hard to find a doctor who knows

very

> much

> > about Achalasia. Most regular docs can go there entire practice

> without

> > seeing some one with Achalasia. Most GI's only see very few

> cases. I was

> > lucky to find a doctor in Kansas City who see's lots of Achalasia

> patients

> > and is well informed. I would keep asking questions if I were

> you. If the

> > GI you are going to is not helping you, ask for another opinion.

> Most

> > insurance's will allow that due to the rarity of Achalasia.

> >

> > Also, let us know the state you are in. Chances are there are

> people in

> > this group who know of doctors or hospitals in your area.

> >

> > I am glad you found this group, I hope they are as big a support

to

> you as

> > they have been to me.

> >

> > J.C.

> > Hi, I am new

> >

> >

> > > I am new, and thank you for letting me join.

> > > I have been having trouble with my throat since September

> > > It started out as if something was stuck in my throat

constantly.

> I

> > > kept telling my doctor, but she was ignoring me

> > > I finally changed doctors, as it had gottent o the point where

I

> was

> > > gagging mostly at night, and was throwing up food.I was sent to

a

> GI

> > > doctor, who did an upper endo nad he had to dilate the

esophogus,

> he

> > > also found hiatal hernia and said I had distol esopheagistis,

and

> > > antral gastritis and gerd, and chronic inflammation

> > > anyhow he did the egd on November 8th, he put me on aciphex, and

> > > zantac. 3 days later I was feeling that something was stuck in

my

> > > throat again, I called the Gi and he took me off aciphex and

put

> me

> > > on protonix. any how I waited a week till I was throwing up the

> food

> > > again and I kept calling his office and his nurse kept saying

it

> is

> > > impossibel that it is happening again

> > > I then had to see another gi doctor, and now I been on

protonix ,

> and

> > > also reglan .I been on reglan for a little over 2 weeks now

> > > I still have the lump in my throat and at times throw up my

food.

> > > also have alot of chest pains

> > > to anyone who has this propblem does this ever get better ?

> > > Diane

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

oh thank you, I will call there

I live about 45 minutes from there

but it will be worht it,if the doctor knows what

he is doing

Diane

From: " lkactuary " <lkactuary@...>

Reply-achalasia

achalasia

Subject: Re: Hi, I am new

Date: Mon, 07 Jan 2002 19:51:16 -0000

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Hi Diane,

I live in NYC, but the gastroenterologist who diagnosed me with

achalasia and advised me to get the myotomy has an office in

Poughkeepsie. (I don't know how close that is to you.) His name is

Dr. Starpoli -- 845/471-1354.

>

> Hi and thank you for your welcome

> I am in New York State, Catskill area

> I really can use the help locating a good doctor,this is the most

> annoying medical problem i have ,I also have other problems besides

> this one

> but this is aweful

> I am only able to eat jello and brothes

> I am losing weight, that I really don`t want to lose

> maybe 5 pounds,but not as much as i been losing here

> any help would truly be appreciated

> Diane

> > Diane,

> > I am glad you found this group. You will find lots of

information

> here and

> > a great support group.

> >

> > I was diagnosed with Achalasia in 1976. I have been through all

of

> the same

> > things you are going through. I finally had surgery and that

> pretty much

> > ended my problems. It is very hard to find a doctor who knows

very

> much

> > about Achalasia. Most regular docs can go there entire practice

> without

> > seeing some one with Achalasia. Most GI's only see very few

> cases. I was

> > lucky to find a doctor in Kansas City who see's lots of Achalasia

> patients

> > and is well informed. I would keep asking questions if I were

> you. If the

> > GI you are going to is not helping you, ask for another opinion.

> Most

> > insurance's will allow that due to the rarity of Achalasia.

> >

> > Also, let us know the state you are in. Chances are there are

> people in

> > this group who know of doctors or hospitals in your area.

> >

> > I am glad you found this group, I hope they are as big a support

to

> you as

> > they have been to me.

> >

> > J.C.

> > Hi, I am new

> >

> >

> > > I am new, and thank you for letting me join.

> > > I have been having trouble with my throat since September

> > > It started out as if something was stuck in my throat

constantly.

> I

> > > kept telling my doctor, but she was ignoring me

> > > I finally changed doctors, as it had gottent o the point where

I

> was

> > > gagging mostly at night, and was throwing up food.I was sent to

a

> GI

> > > doctor, who did an upper endo nad he had to dilate the

esophogus,

> he

> > > also found hiatal hernia and said I had distol esopheagistis,

and

> > > antral gastritis and gerd, and chronic inflammation

> > > anyhow he did the egd on November 8th, he put me on aciphex, and

> > > zantac. 3 days later I was feeling that something was stuck in

my

> > > throat again, I called the Gi and he took me off aciphex and

put

> me

> > > on protonix. any how I waited a week till I was throwing up the

> food

> > > again and I kept calling his office and his nurse kept saying

it

> is

> > > impossibel that it is happening again

> > > I then had to see another gi doctor, and now I been on

protonix ,

> and

> > > also reglan .I been on reglan for a little over 2 weeks now

> > > I still have the lump in my throat and at times throw up my

food.

> > > also have alot of chest pains

> > > to anyone who has this propblem does this ever get better ?

> > > Diane

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Glad to see all the new home schoolers join up. I'm not feeling so

lonely! LOL

Welcome to both of you, Vicki and Lora.

I'm a SAH/WAH home schooling, non-vaxxing mom to my 3 daughters. My

oldest had all of her vaxxes until 4yo, she developed Type 1 Diabetes at

7yo, I believe it was connected to her vaxxes. My middle had her vaxxes

up to about 18 months, don't think she got the MMR though. And my

youngest hasn't had any.

Ohio

)0(~~~)0(~~~)0(

Mom to Brittany, born 8/31/93, dx'd-IDDM 5/28/01; , born 6/28/97;

and Shayna, born 6/1/00.

Vaccine free since 1999! See our site and get more vaccine info at

http://users.adelphia.net/~tacousino/

Ask me how to help get the toxins out of your house. -

http://nomorechemicals.alturl.com

[Guest guest]

there are many of you here - you just don't know it

At 11:27 AM 12/17/2003 -0500, you wrote:

>Glad to see all the new home schoolers join up. I'm not feeling so

>lonely! LOL

>

>Welcome to both of you, Vicki and Lora.

>

>I'm a SAH/WAH home schooling, non-vaxxing mom to my 3 daughters. My

>oldest had all of her vaxxes until 4yo, she developed Type 1 Diabetes at

>7yo, I believe it was connected to her vaxxes. My middle had her vaxxes

>up to about 18 months, don't think she got the MMR though. And my

>youngest hasn't had any.

>

>Ohio

>)0(~~~)0(~~~)0(

>Mom to Brittany, born 8/31/93, dx'd-IDDM 5/28/01; , born 6/28/97;

>and Shayna, born 6/1/00.

>Vaccine free since 1999! See our site and get more vaccine info at

>http://users.adelphia.net/~tacousino/

>Ask me how to help get the toxins out of your house. -

>http://nomorechemicals.alturl.com

>

>

>

>

[Guest guest]

Hello Angie and welcome to this site !!! I have been on Lexapro for

8 months now. It has done me a world of good. I am still struggling

with daytime sleepiness but that is the only side effect that I still

have. My pdoc is putting me on a dual action antidepressant to help

balance out my mood, so we will see. My mood is still cycling.

Dana Rose

> hello,

> I am a 38 year old lady from Ga I have been married for 20 years

to a great guy. And have 2 children Adam and Deanna

> I also have a Doxie named Beenie weenie =)

> I think I have need something for along time. I have almost all the

signs of deppresion ( no energy, mood swings, hard to get to sleep

> at night. but tired during the day. a worry wart Etc. Etc.)

> I had a co wroker come up to me after she caught me crying for no

reason and after we talked for a few min. she told me to make an

> appointment with my docter and get on Lexapro. She has been on it

for 1 1/2 years and says it has made the biggest difference in her

> life. So after a huge stupid argument over a frying pan with my

hubby last night and a crying fit that lasted 3 hours afterwards i

> decided I couldnt live like this anymore and I called the Dr. I go

to him on the 10th ( lets all pray hubby makes it until then ha ha

J/K)

> Since I know little to nothing about lexapro could yall give me the

pros/cons to it. I really apreciate all the info =) and if you know

any

> other web sites to vist about it please let me have them

> Angie

[Guest guest]

THat has not been my experience.

With proper treatment, the FMS symptoms that I experienced are much improved.

I get older every day, whether I want to or not....

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Hi, I am new _

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group//message/100563)

Posted by: " lafitness32 " _lafitness32@... _

(mailto:lafitness32@...?Subject=Re: Hi,%20I%20am%20new) _lafitness32 _

(lafitness32)

Sat Jul 1, 2006 10:07 pm (PST)

One short question. Does anyone know if Fibromyalgia gets worse as

you get older?

[Guest guest]

I think the answer is both yes and no. It depends on so many things, but mainly

helping

yourself by finding out as much as you can about possible causes and treatments,

and

making lifestyle changes (very important). We have an older woman (mid sixties

I believe)

in our support group that 8 months ago was very sick, and just last week climbed

a 3,000

foot mountain.

She found out she has lyme, but has improved without even starting to treat the

lyme (with

pharmmaceuticals). I believe she is looking for a lyme expert.

But what helped her was changing her diet, getting off of certain foods

(especially gluten-

containing foods like wheat), and doing a four-day rotation diet to allow her

intestines to

heal from damage caused by the gluten.

So she's used a naturopathic/holistic approach, and I believe may be using an

allopathic

(M.D.) to treat the lyme. But her progress, just by changing her diet, has been

amazing.

Dan

>

> One short question. Does anyone know if Fibromyalgia gets worse as

> you get older?

>

[Guest guest]

mjh,

I'd like to keep positive for the new member asking

whether fibro gets worse with time or not-however, I

am one of the one's who has just gotten worse over the

years.

No matter how I try to rehab myself-my muscles just

get painful and stay painful unless I constantly rest

(I never rebuild muscle strength no matter how I try.)

Also, several treatments have been a failure for me.

I'm interested in what " proper " treatments have helped

your fibro-when u first got ill-how disabled did u

ever-if ever get? And, how long were u sick before u

tried your proper treatments to get improvement?

Thanks,

Gena

--- foxhillers@... wrote:

> THat has not been my experience.

>

> With proper treatment, the FMS symptoms that I

> experienced are much improved.

>

> I get older every day, whether I want to or not....

>

> mjh

> " The Basil Book "

> _http://foxhillfarm.us/FireBasil/_

> (http://foxhillfarm.us/FireBasil/)

>

>

> _Hi, I am new _

>

(http://us.lrd./_ylc=X3oDMTJxODM0YW01BF9TAzk3MzU5NzE1BGdycElkAzkxNTc0BG\

dycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDA1NjMEc2VjA2Rtc2cEc2xrA3

>

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> group//message/100563)

> Posted by: " lafitness32 " _lafitness32@... _

> (mailto:lafitness32@...?Subject=Re:

> Hi,%20I%20am%20new) _lafitness32 _

> (lafitness32)

> Sat Jul 1, 2006 10:07 pm (PST)

> One short question. Does anyone know if Fibromyalgia

> gets worse as

> you get older?

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

On Jul 2, 2006, at 2:25 PM, Gena Castanon wrote:

> mjh,

>

> I'd like to keep positive for the new member asking

> whether fibro gets worse with time or not-however, I

> am one of the one's who has just gotten worse over the

> years.

>

> No matter how I try to rehab myself-my muscles just

> get painful and stay painful unless I constantly rest

> (I never rebuild muscle strength no matter how I try.)

I was in this boat -- but did get better. It does happen.

My experience with getting my sleep apnea treated was that it made a

huge, dramatic improvement in my FM. I'd recommend this

investigation to *anybody* who had FM and even the slightest reason

(loud snoring, for one) to think they might have apnea. It knocked

about 60% of my FM in about two months' time.

Another 25% went away when I found and resolved a food allergy (soy).

The rest is controlled with supplements (glucosamine, MSM, and

bromelian figure large here), and getting on GSH pretty much

eliminated the margin that was left after all that.

It did seem to start creeping back as I moved into my 40s, but

correcting my female hormones licked that, too.

Getting past FM has been probably the biggest, easiest part of my

success story so far. It's the damned malaise that's still the worst

part.

Sara

[Guest guest]

, I didnt new you were new to the group or I would have said Welcome to the the group in the last post. Again thanks for the advise and welcome to the group. God Bless and Keep You All ,Okc,Ok <lisakdelfavero@...> wrote: I wanted to introduce myself. My name is and I have three children: 11, Aspergers (ADHD, Dyspraxia, and Oppositional Disorder)Mark 9, PPD (ADHD, Madeline 6, ? (very strong willed - I am not in a hurry to find outif she has a diagnosis other than the ADHD which I suspect).My huband Steve (Aspergers) and myself (ADHD with symptoms ofAspergers) hope to offer our hope joy and experiences as well as gainsupport from the group. It has been a struggle, one I would not trade, however at times Ioften feel out of ideas. I have started working at a special education school. I have learneda great deal in the last several years. I work with a fourteen yearold boy with Autism. He has made so much progress since he has beenat our school. I work with an Awesome social worker who

guides medaily with regards to the student I work with. I need guidance withmy children and husband and self as well.I also work for a teacher who has Aspergers traits. He is young andinexperienced. He is struggling with the staff and his ownorganization skills. The social worker told him yesterday how herolls his eyes and argues with everything staff members tell him. Healso unermines everyone who works with him. He doesn't understand. Ireally feel for him. Although I admit I do not like working with him.I seem to have much more patience with children with Aspergerscharacteristics than the Adults with Aspergers symptoms in my life. I love a child with Aspergers Please, read, learn, and love KELLY

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[Guest guest]

Hi,

I have been feeling really bad lately, and found all my symptoms to

correspond with low test. I recently had blood work done, and also had

low thyroid, which I was given a prescription. My last work also

tested Test, per my request, and it is in the low range, along with

the Thyroid still. I have an appointment with my Dr next Friday. I

suspect he is going to give me prescriptions. I don't recall the Test

numbers, but I think it was 200 something. I left my notes at work

when I made the call for my results.

Anyway, I am curious what he might prescribe, and if there are any

generic options that are effective and not so costly that I may

suggest when I see him. Any comments welcome.

What about pills? Would I also need an estrogen inhibitor?

Carl

[Guest guest]

If you testosterone levels are this low I feel your Dr. needs to find out why

your low before you treat this once you start on testosterone meds it's dam hard

to figure out whats the cause of this.

As for treatment one of the best and lowest cost ways to treat this is a

compounded cream from a compounding Pharmacy. Or doing shots if you do them your

self.

As for thyroid most Dr.'s will give you Synthroid a T4 only thyroid med that to

me and others does not work well you need to be albe to convert the T4 into T3

most can't do this. I would ask for Armour to treat your low thyroid read this

link.

http://www.stopthethyroidmadness.com/

Just have your Dr. call this Pharmacy and they will make it for you and send it

in the mail.

http://www.collegepharmacy.com/menshealth/andropause.asp

Go to Dr. 's site at www.allthingsmale.com and read TRT: A Recipe for

Success and his HCG update in this are labs you would need and why.

Co-Moderator

Phil

> From: master_shake_supreme <mysterium777@...>

> Subject: Hi, I am new

>

> Date: Friday, November 7, 2008, 2:08 PM

> Hi,

>

> I have been feeling really bad lately, and found all my

> symptoms to

> correspond with low test. I recently had blood work done,

> and also had

> low thyroid, which I was given a prescription. My last work

> also

> tested Test, per my request, and it is in the low range,

> along with

> the Thyroid still. I have an appointment with my Dr next

> Friday. I

> suspect he is going to give me prescriptions. I don't

> recall the Test

> numbers, but I think it was 200 something. I left my notes

> at work

> when I made the call for my results.

>

> Anyway, I am curious what he might prescribe, and if there

> are any

> generic options that are effective and not so costly that I

> may

> suggest when I see him. Any comments welcome.

>

> What about pills? Would I also need an estrogen inhibitor?

>

> Carl

>

>

>

>

> ------------------------------------

>

>