Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 , It does sound like your GI is having a little bit of an ego problem and can't tolerate being " wrong " . How does she explain her opinion that Mayo is wrong and she's right? From what I've seen on my own lab reports, AIH is diagnosed on some very specific factors, or at least, if certain factors exist, AIH almost certainly is the diagnosis. (And if they don't all exist, that doesn't rule it out.) Have you contacted your insurance company? They're under extreme pressure to allow second opinions by specialists who are not preferred providers. You have a rare disease, you have to see a Hepatologist and you have to be seen by a medical group that is experienced in diagnosing and treating the rare disease that Mayo has diagnosed. The fact that your GI doesn't have you on meds is very disturbing and I'd tell your insurance company that. Or, as suggested before, maybe someone needs a phone call or a letter from an attorney who specializes in medical and insurance company malpractice? AIH can progress rapidly, especially without treatment. In fact, the life expectancy from diagnosis until the " end " is only 10 years, for people who are not treated. How long do they want you to wait? Maybe they (your insurance company) needs to put this before their medical review board? Also, as a teaching hospital, University of Miami is legally obligated to take a certain number of patients without demanding full payment or in some cases, any payment. Especially since they can offer diagnosis and treatment that isn't available elsewhere because of a patient's finances. I'm not sure how you go about accessing that resource but maybe someone else does. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 Geri, Thanks for responding! I have just discovered that there is a Cleveland Clinic in Naples, Fl which is only 45 min from here! I looked up their site on the web and they don't actually say anything about treating AIH, but I'm gonna call on Monday. They just opened in 1/99, so I'm not sure if they are all set up yet. I hope so because that would be wonderful, and close. I think some of the others have been treated at the CC in Ohio. I may also do as you suggested and call the insurance co. I've been hesitant to get in touch with them since the divorce became final. Since I'm not his " spouse " anymore, I don't know what may happen, and I simply do not have the money for Cobra or my own insurance. My X said he will continue making the payments since I am so sick, for how long who knows. His insurance through his work is a S.C. based company, so all my claims are out of provider network. I'm scared to rock the boat... Also, I'm sure I probably can't get disability/medicare until my stupid doctors give a definitive diagnosis. The two GI's I've seen still say AIH doesn't cause these symptoms, (so it must be all in my head), see a shrink... So my immediate goal is to get into a major clinic and get a definitive diagnosis! I am learning to stay upbeat about all of this with the support from you all, and that helps me alot. My family has also come around for me too... That means so much to me... Thank you once again my friend. Love, (AIH) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 1999 Report Share Posted September 26, 1999 : Because my insurance plan did not have a hepatologist, they had to let me go out of network. However, I did have to pay $400 up front to UofM, which my insurance company reimbursed later. Still a hassle and horrible output of money upfront. I understand. Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 I didn't put the date on the first test: the first was June 9, 2005 the new one was Aug. 29, 2005 Bev > HI all, > These are my new test results. > > taking 30 mgs. armour > > TSH: 0.84 normal .34- 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 2.5 normal 2.4 - 4.2 > > taking 60 mgs. armour > Aug. > TSH: .01 normal .34 - 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 3.8 normal 2.4 - 4.2 > > > > I still have most symptoms.. > > Weight gain (57 lbs.) that will not go away no matter what I do (I > have always been thin (100-110 lbs.) up until 2000, gained the > weight from 2000-2004, have now stopped gaining, I have lost about > 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. > > rash on arms, chest, across shoulders & going down stomach ( the > rash is getting better, but had hoped it would go completely away > with 90 mg. of armour like it used to be. > > **Insomnia, can not sleep at all without medication > > **Weakness > > **Fatigue and exhaustion- I get wiped out very easy, a trip to the > doctor wipes me out and that's all I can do that day > > Excessive hunger, my hunger has been getting a little worse of late > > **Chronic pain, it's not as bad lately > > concentration problems, (still here big time) > > I have a hard time getting my thoughts together and acting on them > because I forget what they were before I can act (still here big > time) > > memory problems ( still here big time) > > forgetting complete thoughts that sometimes (still here big time) > > Episodes of temperature dropping to 96 and feeling like I > was just freezing & feeling really bad so I had to turn the furnace > up, turn my electric blanket on high & get in bed for about 4 to 6 > hours before I started feeling better > > depression > > **can't handle stress ( not at all, even good stress) > > cry easily (every day if not every other day) > > hair loss ( still falling out) > > **Allergies (just started in the past few years) > Starting in October my nose starts getting very stuffy, itchy nose, > a little eye watering, a little sneezing and maybe other symptoms > also until it goes into sinus infection and or colds that last all > winter. I can't do anything in the winter due to this. I can't get > out to the YMCA to swim or almost any kind of socializing at all. > > frequent bathroom trips > > Blurry vision sometimes > > Slow healing > > **Episodes of severe headaches, weakness, dizziness, nausea, > sometimes diarrhea, > > **Tanning on my elbows > > **What looks like a sunburn on my chest year round > > **Off Balanced > > haven't had a period since starting armour in June of this year. > That could be good, I'm not for sure. > > The only thing that I have noticed since taking the armour is I have > a little more energy, strength and stamina, but not much. > > > Can anybody tell me what's going on here? > > Why my Free T4 didn't move at all and TSH and Free T3 did? > > thanks > Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Bev, Have you spoken to your doctor about adrenal problems even possibly s. What clicked was when you said tan on the elbows and sunburn chest. http://www.niddk.nih.gov/health/endo/pubs/addison/addison.htm#symptoms Here are the symptoms. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Bev wrote: > > HI all, > These are my new test results. > > taking 30 mgs. armour > > TSH: 0.84 normal .34- 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 2.5 normal 2.4 - 4.2 > > taking 60 mgs. armour > Aug. > TSH: .01 normal .34 - 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 3.8 normal 2.4 - 4.2 > > > > I still have most symptoms.. This is a little tricky to untangle. The Free values, particular T3 with Armour, are sensitive to when the blood is drawn relative to your medication. This could make Free T3 on your test higher than it is on average. T4 changes more slowly; TSH slower still. I suspect you would feel better if you pushed the TSH a bit lower. Good luck getting your doctor to agree. Another 30 mgs might be too large a jump. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 HI Helena, Yes, I have. He said he didn't know anything about it and he would study it. He said he wouldn't do any tests until he has studied it. I'm on an addisons support group, so I get info from them and I gave the info to my doc. He also said, he didn't even know any docs. that would do the testing that I wanted done, unless some might do it if I paid out of pocket and of course that's out of the question.. so it's just a waiting game on that side of things.. thanks Bev HelenaBB41@... wrote: Bev, Have you spoken to your doctor about adrenal problems even possibly s. What clicked was when you said tan on the elbows and sunburn chest. http://www.niddk.nih.gov/health/endo/pubs/addison/addison.htm#symptoms Here are the symptoms. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi, thanks for responding. I felt so bad on the 30 mgs. But I do feel better on the 60 mgs. I only way I would go back down is if he would put me on a T3 only med. besides the 30 mg. armour. I've had sugar and the other testing and came up with nothing.. Nothing is showing up. I do have hypoglycemia symptoms sometimes too... but nothing on the test. thanks Bev Puneet kumar <kumarpuneet2004@...> wrote: Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 you need to find a doctor who understands hormones and adrenals. Or you need to figure it out for yourself--you are in dire circumstances and you need to become proactive or you will be in trouble. Constant testing is not the solution, treating to TSH is not the solution. Gracia > HI Helena, > Yes, I have. He said he didn't know anything about it and he would study it. He said he wouldn't do any tests until he has studied it. I'm on an addisons support group, so I get info from them and I gave the info to my doc. He also said, he didn't even know any docs. that would do the testing that I wanted done, unless some might do it if I paid out of pocket and of course that's out of the question.. so it's just a waiting game on that side of things.. > thanks > Bev > > HelenaBB41@... wrote: > Bev, > > Have you spoken to your doctor about adrenal problems even possibly s. > What clicked was when you said tan on the elbows and sunburn chest. > > http://www.niddk.nih.gov/health/endo/pubs/addison/addison.htm#symptoms > > Here are the symptoms. > > Helena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Puneet, TSH of .1 is just fine on Armour. There is lots more going on here besides the silly TSH. Unfortunately adrenals will always test normal until most function is gone. Gracia > Hi Bev, > I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. > > IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. > > Puneet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Puneet, actually I don't think that .1 is too low - with proper hormone treatment the TSH virtually drops to nothing - some people do not feel well until it is this low - mine is less than .5 Kerry Re: new test results Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Kerry, The reason I pointed this out was because of my own experience.With 112 mcg thyroxine my TSH was 0.137,so the doc reduced the dose to 100mcg.But even then the TSH rose only to 0.270.So now I'm on 75 mcg. Puneet. Kerry Ann Faithfull <kerry@...> wrote: Hi Puneet, actually I don't think that .1 is too low - with proper hormone treatment the TSH virtually drops to nothing - some people do not feel well until it is this low - mine is less than .5 Kerry Re: new test results Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 In a message dated 8/31/05 10:53:21 PM Eastern Daylight Time, bdowns45681@... writes: Yes, I have. He said he didn't know anything about it and he would study it. Bev, What kind of Doc is this? Sounds like he's way out of his league. It's not something you play with. This requires a specialist. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Puneet, You wrote: > ... The reason I pointed this out was because of my own experience.With > 112 mcg thyroxine my TSH was 0.137,so the doc reduced the dose to > 100mcg.But even then the TSH rose only to 0.270.So now I'm on 75 mcg. As Gracia pointed out, the appropriate range for TSH is different for Armour than for any of the synthetic T4s. My theory is that the Armour gives a T3 jolt that causes the TSH to drop. TSH responds to these peaks in T3. Your metabolism responds more to the average. With T4 only, TSH should be around 1-2, although some report feeling well at even lower levels. We don't have any studies to show whether spikes in T3 are harmful or not, but some doctors prefer T4 only replacement for this possibility. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Thanks for you insight, Chuck. take care Bev Chuck B <gumboyaya@...> wrote: Bev wrote: > > HI all, > These are my new test results. > > taking 30 mgs. armour > > TSH: 0.84 normal .34- 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 2.5 normal 2.4 - 4.2 > > taking 60 mgs. armour > Aug. > TSH: .01 normal .34 - 4.82 > Free T4: 1.78 normal .80 - 1.80 > Free T3: 3.8 normal 2.4 - 4.2 > > > > I still have most symptoms.. This is a little tricky to untangle. The Free values, particular T3 with Armour, are sensitive to when the blood is drawn relative to your medication. This could make Free T3 on your test higher than it is on average. T4 changes more slowly; TSH slower still. I suspect you would feel better if you pushed the TSH a bit lower. Good luck getting your doctor to agree. Another 30 mgs might be too large a jump. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Kerry, I think I might have typed it wrong.. My TSH level is .01 . So, I've decided to stay here at that level for another 6 weeks anyway, at least until I get back to my doc. thanks Bev Kerry Ann Faithfull <kerry@...> wrote: Hi Puneet, actually I don't think that .1 is too low - with proper hormone treatment the TSH virtually drops to nothing - some people do not feel well until it is this low - mine is less than .5 Kerry Re: new test results Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Helena, He is my osteopath manipulator, he manipulates my body. Right now he's just filling in for my regular doc. until I can get another doc. And believe it or not he's been better about this than any other doc. I 've seen for all of my problems.. He's a DO. The worst docs. I've seen were the endo's.. They didn't nothing, I mean nothing for me. So, I think I'll stick with him for a while longer.. thanks Bev HelenaBB41@... wrote: In a message dated 8/31/05 10:53:21 PM Eastern Daylight Time, bdowns45681@... writes: Yes, I have. He said he didn't know anything about it and he would study it. Bev, What kind of Doc is this? Sounds like he's way out of his league. It's not something you play with. This requires a specialist. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Bev, What scares me is that he knows nothing about the adrenals and I would hate to see full blown s. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 HI Helena, I don't know much about addisons but I don't think I have full blown addisons.. Thanks for being concerned though. I really don't know what full blown addisons is. Do you have any ideas? I can ask my addisons group.. thanks Bev HelenaBB41@... wrote: Bev, What scares me is that he knows nothing about the adrenals and I would hate to see full blown s. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Puneet, yes I know that the doctors will decrease your dose if your TSH drops too low - but my point is that a low TSH does not necessarily mean that you have too much hormone.......how are you feeling then as compared to now on a lower dose. My point is that docs do not know how to treat with thyroid hormone as a rule - using TSH is not a good idea - patients symptoms are much more accurate. Kerry Re: new test results Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Kerry, I agree that sympotms should be treated and not the lab numbers.But I guess its a tricky situation when the numbers dont match the symptoms .I've been on the low dose for only a week now,so cant quite say if i feel better..not much change from before I guess. Puneet Kerry Ann Faithfull <kerry@...> wrote: Hi Puneet, yes I know that the doctors will decrease your dose if your TSH drops too low - but my point is that a low TSH does not necessarily mean that you have too much hormone.......how are you feeling then as compared to now on a lower dose. My point is that docs do not know how to treat with thyroid hormone as a rule - using TSH is not a good idea - patients symptoms are much more accurate. Kerry Re: new test results Hi Bev, I think your test results on 30mgs armour are much better than those with 60 mgs.TSH of 0.1 is way too low. IMO you should get the screening done for adrenal fatigue.Also it would be a good idea to get tested for Blood sugar.And while u are at it,have a test for kidney function-Serum Creatinin and Blood Urea along with Serum Phoshphorus and Serum Calcium. Puneet Bev <bdowns45681@...> wrote: HI all, These are my new test results. test taking 30 mgs. armour TSH: 0.84 normal .34- 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 2.5 normal 2.4 - 4.2 taking 60 mgs. armour Aug. TSH: .01 normal .34 - 4.82 Free T4: 1.78 normal .80 - 1.80 Free T3: 3.8 normal 2.4 - 4.2 I still have most symptoms.. Weight gain (57 lbs.) that will not go away no matter what I do (I have always been thin (100-110 lbs.) up until 2000, gained the weight from 2000-2004, have now stopped gaining, I have lost about 10 lbs. but am stuck and can't lose any more. I'm at 156 lbs. now. rash on arms, chest, across shoulders & going down stomach ( the rash is getting better, but had hoped it would go completely away with 90 mg. of armour like it used to be. **Insomnia, can not sleep at all without medication **Weakness **Fatigue and exhaustion- I get wiped out very easy, a trip to the doctor wipes me out and that's all I can do that day Excessive hunger, my hunger has been getting a little worse of late **Chronic pain, it's not as bad lately concentration problems, (still here big time) I have a hard time getting my thoughts together and acting on them because I forget what they were before I can act (still here big time) memory problems ( still here big time) forgetting complete thoughts that sometimes (still here big time) Episodes of temperature dropping to 96 and feeling like I was just freezing & feeling really bad so I had to turn the furnace up, turn my electric blanket on high & get in bed for about 4 to 6 hours before I started feeling better depression **can't handle stress ( not at all, even good stress) cry easily (every day if not every other day) hair loss ( still falling out) **Allergies (just started in the past few years) Starting in October my nose starts getting very stuffy, itchy nose, a little eye watering, a little sneezing and maybe other symptoms also until it goes into sinus infection and or colds that last all winter. I can't do anything in the winter due to this. I can't get out to the YMCA to swim or almost any kind of socializing at all. frequent bathroom trips Blurry vision sometimes Slow healing **Episodes of severe headaches, weakness, dizziness, nausea, sometimes diarrhea, **Tanning on my elbows **What looks like a sunburn on my chest year round **Off Balanced haven't had a period since starting armour in June of this year. That could be good, I'm not for sure. The only thing that I have noticed since taking the armour is I have a little more energy, strength and stamina, but not much. Can anybody tell me what's going on here? Why my Free T4 didn't move at all and TSH and Free T3 did? thanks Bev __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 In a message dated 9/1/05 10:22:16 PM Eastern Daylight Time, bdowns45681@... writes: but I don't think I have full blown addisons I don't think so either Bev but you don't want to get to a point of total adrenal exhaustion. Do a google on it and you'll find tons of info. Helena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 huh? T3 is the feel good hormone, so if you feel good, you are probly OK. Gracia > > We don't have any studies to show whether spikes in T3 are harmful or > not, but some doctors prefer T4 only replacement for this possibility. > > Chuck > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Gracia, You wrote: > > huh? T3 is the feel good hormone, so if you feel good, you are probly OK. For most biochemicals, especially hormones, feeling good and being well are usually confined to a narrow range. It is not clear whether it is the average value of Free T3 that must be in the range, or whether the instantaneous value is also important. For an example of when feeling good can be problematic, look at glucose levels in diabetes. You " feel good " as long as serum glucose is above some minimum. However, if it regularly spikes too high, your organs suffer damage, your circulation fails, etc. You still feel " good " while this happens, which is why diabetics need blood tests to figure out how they are doing. My question is whether T3 might similarly have harmful effects if it has significant swings. The only investigations I am aware of show damage if the average is too high. But, no one knows what happens if the average is optimized but the moment to moment level spikes. Chuck Quote Link to comment Share on other sites More sharing options...
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