Re: first endo visit in 24 hrs time

[Guest guest]

Hi -

If you have Diabetes Insipidus, you have my sympathies.

I've had pituitary D.I. since I was 7 yrs old (I'm 61, now.) The good

news is that they at least have medications for it now that they

didn't have when I was a kid. It was a pretty rare condition. Still

is. About two years ago, my Dr. put me on something called

Desmopressin and that cleared it up. I don't know how your Dr will

diagnose you, and I don't want to play Dr (I don't want the

responsibilty) but at least there are some options.

One thing I want to add; when you tell the Dr that you drink a lot of

water and urinate a lot, try to give him at least a rough idea of -

how much- water you're talking about. Its not enough to say " a lot " ,

thats too ambiguous. What they really need to know is how much in a

24hr period, and they would like a number where the intake is the

same as they output where everything evens out.

Before I started medication, I would average around 3 gallons of

water a day which is about 3 times normal (I probably drank twice

that when I was a kid.)

Anyway, good luck and let us know how it goes.

Rich

>

> ok this is thanks to info on here given i am beleiuving that yes

>

> hypogandism type 2

> Hypopituitarism

> Diabetes insipidus

>

> are what i bliev are my endo problems

>

>

> i have just looked into these a bit more,the last 2 and talk on

drinking lots of liquid[cold water/exessive urination plus the

hpyoglaceamic attacks i have point me all in those diagnosis

>

> again ongoing since early age,its only been last 6 months fofr

example that i found out most peiople dont urnate 3-8 times a

night,well i have for many years and still have several times a year

whne it leads to accidents.

>

> the times when my blood sugar level cause me to feel

faint/dizzy/slurry speech/pass out[as i use to driving fork lift

trucks and other situations] recently found that if i take someting

sugary i instantly orr quite quiclly feel better ,yet my fasting

blood sugars are sometimes only pre diabetic or lower,adn not

actually diabetic,yet i still get symtpoms in fact i need to take

sugarr as my sugar levels go down too fast too dramatically and make

me go as above which is dangerous

>

> so as pointed out on here i wiuld concur diabetes insipidus is

whats the root of that,and that too is caused by hypoituitarism and

so therefore hypogonadism as well.

>

>

> so i will ask endo to look at these issues when i see him wednesday

afternoon

>

>

> its takne a long time but i think i have a little understangin of

what is wrong ,trrouble is communciating that with endo,as i have

communcations issues and often go to people and say the things i did

not mean to say and not what i want too,some stuff i have printed off

by someone else as i dont have a printerr but my final ideas as found

in last few mins i dont have anything printed so will just write down

the 3 things i beleiven are at root of my lingstadning issues

>

>

> regards paul

>

[Guest guest]

Hi Rich do you know about this site.

Hypopituitary_Support/messages

It is a big help to me since I found out my problems of low T for the last 22

yrs. are not my Testis but I have a Hypopituitary problem from a bad head injury

in an auto accident some 22 yrs. ago. They talk about your problem a lot I am

not up on D.I. but just wanted to give you a heads up on the site.

Phil

Rich <caliconine@...> wrote: Hi -

If you have Diabetes Insipidus, you have my sympathies.

I've had pituitary D.I. since I was 7 yrs old (I'm 61, now.) The good

news is that they at least have medications for it now that they

didn't have when I was a kid. It was a pretty rare condition. Still

is. About two years ago, my Dr. put me on something called

Desmopressin and that cleared it up. I don't know how your Dr will

diagnose you, and I don't want to play Dr (I don't want the

responsibilty) but at least there are some options.

One thing I want to add; when you tell the Dr that you drink a lot of

water and urinate a lot, try to give him at least a rough idea of -

how much- water you're talking about. Its not enough to say " a lot " ,

thats too ambiguous. What they really need to know is how much in a

24hr period, and they would like a number where the intake is the

same as they output where everything evens out.

Before I started medication, I would average around 3 gallons of

water a day which is about 3 times normal (I probably drank twice

that when I was a kid.)

Anyway, good luck and let us know how it goes.

Rich

>

> ok this is thanks to info on here given i am beleiuving that yes

>

> hypogandism type 2

> Hypopituitarism

> Diabetes insipidus

>

> are what i bliev are my endo problems

>

>

> i have just looked into these a bit more,the last 2 and talk on

drinking lots of liquid[cold water/exessive urination plus the

hpyoglaceamic attacks i have point me all in those diagnosis

>

> again ongoing since early age,its only been last 6 months fofr

example that i found out most peiople dont urnate 3-8 times a

night,well i have for many years and still have several times a year

whne it leads to accidents.

>

> the times when my blood sugar level cause me to feel

faint/dizzy/slurry speech/pass out[as i use to driving fork lift

trucks and other situations] recently found that if i take someting

sugary i instantly orr quite quiclly feel better ,yet my fasting

blood sugars are sometimes only pre diabetic or lower,adn not

actually diabetic,yet i still get symtpoms in fact i need to take

sugarr as my sugar levels go down too fast too dramatically and make

me go as above which is dangerous

>

> so as pointed out on here i wiuld concur diabetes insipidus is

whats the root of that,and that too is caused by hypoituitarism and

so therefore hypogonadism as well.

>

>

> so i will ask endo to look at these issues when i see him wednesday

afternoon

>

>

> its takne a long time but i think i have a little understangin of

what is wrong ,trrouble is communciating that with endo,as i have

communcations issues and often go to people and say the things i did

not mean to say and not what i want too,some stuff i have printed off

by someone else as i dont have a printerr but my final ideas as found

in last few mins i dont have anything printed so will just write down

the 3 things i beleiven are at root of my lingstadning issues

>

>

> regards paul

>

[Guest guest]

Hi Phil-

Thanks for the link. I do have it in one of my favorites folder but I

haven't been there in a couple of years. Last time, they didn't have

much, if any activity (well, the affliction -is- pretty rare.) I'll

have to check it it out. Thanks again.

Rich

> >

> > ok this is thanks to info on here given i am beleiuving that yes

> >

> > hypogandism type 2

> > Hypopituitarism

> > Diabetes insipidus

> >

> > are what i bliev are my endo problems

> >

> >

> > i have just looked into these a bit more,the last 2 and talk on

> drinking lots of liquid[cold water/exessive urination plus the

> hpyoglaceamic attacks i have point me all in those diagnosis

> >

> > again ongoing since early age,its only been last 6 months fofr

> example that i found out most peiople dont urnate 3-8 times a

> night,well i have for many years and still have several times a

year

> whne it leads to accidents.

> >

> > the times when my blood sugar level cause me to feel

> faint/dizzy/slurry speech/pass out[as i use to driving fork lift

> trucks and other situations] recently found that if i take someting

> sugary i instantly orr quite quiclly feel better ,yet my fasting

> blood sugars are sometimes only pre diabetic or lower,adn not

> actually diabetic,yet i still get symtpoms in fact i need to take

> sugarr as my sugar levels go down too fast too dramatically and

make

> me go as above which is dangerous

> >

> > so as pointed out on here i wiuld concur diabetes insipidus is

> whats the root of that,and that too is caused by hypoituitarism and

> so therefore hypogonadism as well.

> >

> >

> > so i will ask endo to look at these issues when i see him

wednesday

> afternoon

> >

> >

> > its takne a long time but i think i have a little understangin of

> what is wrong ,trrouble is communciating that with endo,as i have

> communcations issues and often go to people and say the things i

did

> not mean to say and not what i want too,some stuff i have printed

off

> by someone else as i dont have a printerr but my final ideas as

found

> in last few mins i dont have anything printed so will just write

down

> the 3 things i beleiven are at root of my lingstadning issues

> >

> >

> > regards paul

> >

>

>

>

>

>

>

>

>