Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi, . It's difficult for me when I hear about " cancer " in general, even " lymphoma " in general, to know just what to say, since the kind of cancer can make a real difference. For instance, if this young man was one of those rare male individuals who is diagnosed with breast cancer, I would say under no circumstances should he even begin to consider a bone marrow transplant because it has been shown that BMT's for breast cancer are of no therapeutic value. I am going to assume, in this case, that the person in question is diagnosed with lymphoma. He is still something of a rarity, as lymphoma affects more women than men, and generally people much older than their young twenties. I was 39 when I was diagnosed with low-grade lymphoma, and that was actually considered young. Here is my feeling about the matter, and I speak from having known several people who endured BMT's, and from having been " offered " such a procedure twice by doctors, and having turned down those offers, and having lived 8-10 years past the time official mainstream statistics say I should have been dead: If I had no other evidence to go on but what you have given thus far, I would say " AVOID the BMT at nearly ANY cost. " An official mainstream euphemism for a BMT or a SCT is " salvage treatment. " (!!!) Yes, medical personnel, oncologists and others, routinely use, or at least used to use, the phrases " salvage treatment " and " bone marrow transplant " interchangeably! Since our person in question is only 22 years old, and since, from the feeling I get from reading his message to you, it sounds as if he is still relatively quite healthy, WHAT NEED HAS HE for " salvage treatment " ?! The several people I knew who had BMT's all said, " If I knew what it was going to be like, I NEVER would have agreed to it! " And at least 1, if not 2 out of the 3 or 4 of them, DIED not terribly long after the BMT. It is a HORRIBLE, HORRIBLE PROCEDURE, in which EVERY LAST BIT of the person's bone marrow is DESTROYED by TREMENDOUSLY HIGH levels of chemotherapy and radiation. A person who has been through a BMT can undoubtedly be compared to someone who has been mustard-gassed and who has survived a nuclear bomb blast, only they will have survived such in a " supportive " hospital setting. Such a person will unavoidably have had his heart and other organs significantly weakened, and if he dies prematurely from a heart attack, his death certificate will not say " Death from Bone Marrow Transplant, " it will say " Death from Myocardial Infarction. " I have survived 8-10 years out from when low-grade lymphoma clients " officially " die BECAUSE I have UNDERTREATED with mainstream treatment. I have ONLY used it when NOTHING I was doing alternatively was working anymore, and when I felt I had run out of time to try anything new alternatively. And even then, I have gone with the LEAST possibly harmful treatment I could. It took me 17 YEARS before I finally decided to get low-grade radiation to my neck, where tumors had consistently grown back, and I did it because I was finally convinced the radiation could be delivered without it causing me significant, permanent injury. Looking back, months later after having had the radiation, I can say it was both successful and that it has not caused significant injury. Overtreating lymphoma is the very WORST way to treat it. I read, a year or so ago, a sad message from a man who had recently lost his wife to lymphoma. He wrote, " Every time we hit that dragon with something (mainstream), it hit back ten times harder. " So what was the answer? STOP HITTING THE DRAGON!!! I am fairly well convinced that had I not gotten myself involved in very high stress work in early 2001, that I would not have experienced a regrowth of the tumor in my neck, that the alternative stuff I was doing would have continued to keep me in remission. I have met 2 other people in my life who are also about 18 years out from being diagnosed with low-grade lymphoma, and they have each followed the same path I have---a regimen of alternative treatment, with, if and when necessary, the LEAST POSSIBLE, LEAST HARMFUL form of mainstream treatment so as to get the cancer back under control so that the alternative treatment regimen will work again. The WORST POSSIBLE WAY I have seen to treat low-grade lymphoma is to overtreat it/aggressively treat it with mainstream treatment. If this young man would like to contact me privately to talk some more about the kinds of things I have done over the years, please feel free to give him my email address, . Personally, I think he should switch oncologists, but quick. He is with a doctor who is too stupid to know that lymphoma does indeed " hit back " when struck with aggressive treatment. Best wishes, Elliot >I got an email from a young man trying to make a difficult decision > about a Bone Marrow Transplant using his own stem cells. Has anyone been through this that can advise him? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi again, . If you would, please also tell your young man the following: Again speaking as someone who has LIVED in very good health for 18 years subsequent to being diagnosed with low-grade lymphmoa, one of the VERY BEST pieces of advice ANYONE has EVER given me about ANYTHING, was when the oncology nurse with whom I just happened to be taking an adult college education class, looked me in the eye and said: " Elliot, if YOU don't take control of YOUR OWN treatment, the doctors will turn you into a PIECE OF MEAT. " I can't think of something much more capable of turning a generally healthy 22-year-old man into a piece of meat than a bone marrow transplant/ " salvage treatment. " Here is a link where your friend can see for himself how the mainstream cavalierly calls BMT " salvage treatment " : http://tinyurl.com/2n2qmo There was an English professor who wrote a book not long ago about how his sensitivity to the type of language used by mainstream cancer doctors alerted him to the danger he was headed into. He withdrew himself from their clutches and cured himself using alternative treatment. This young man, due, yes, to his very youthfulness, as the doctor is telling him, may well appear to respond " favorably " to the BMT. He very well may reach that coveted " 5-year survival " time subsequent to the BMT. But WHY, if there is ANYTHING ELSE he can possibly do, should he allow his entire immune system to be wiped out, and to have his brain and all his other organs terribly ravaged by the highest possible doses of chemotherapy and radiation? It's insanity. Other questions I almost forgot are: WHY did the chemotherapy fail? WHAT has chemotherapy done to the nature of the lymphoma? I am very aware that lymphoma very quickly becomes multi-drug resistant(one of the ways it " hits back.) WHAT are the chances the BMT won't even accomplish what the misinformed oncologist supposes it will? Only recently I have heard of a woman who suffered through a BMT and who, WELL before 5 years was up, discovered another tumor in her body---one that had apparently not been shrunk at all by the BMT. WHAT research has this young man done on the long-term effects of getting a BMT? Surely his doctor hasn't told him about these, and he may need to do some digging to find them. Bruce Guilmette was well aware of what can happen down the road subsequent to a BMT---organ failure, " chemo-brain, " severe neuropathy, etc, etc. All for now, Elliot > " Been busy with life and work and also the decision wether to go for BMT or not..The reason i am believing in my doctor is because it was chemotherapy which worked on me. My pet scan results were clear after chemo. I started BP after finishing my chemo. Now he is telling me to go for BMT because he thinks that as chemo worked well, so will BMT as my age is just 22. Would love to have your suggestion. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Elliot wrote: > If I had no other evidence to go on but what you have given thus far, I > would say " AVOID the BMT at nearly ANY cost. " An official mainstream > euphemism for a BMT or a SCT is " salvage treatment. " (!!!) Yes, medical > personnel, oncologists and others, routinely use, or at least used to > use, the phrases " salvage treatment " and " bone marrow transplant " > interchangeably! > Wow Elliott, I had a BMT/SCT 8 years ago for breast cancer and afterward they discovered the lack of therapeutic value. But please ... reading this post made me feel like there's no hope for me BECAUSE I did all that to myself, before I knew better. xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi, . I apologize for making it sound as if one who has had a BMT has no hope. That is not necessarily the case, and it is much more not necessarily the case for you because you have gotten wise to the mainstream and are learning all you can about how best to manage your own health and well-being. You might even do better, in the long run, than someone who has never had a BMT, but who never gets wise---who eats the SAD all her life, who is a couch potato and who depends on pharmaceutical drugs to help her along as she becomes sicker and sicker through the years. Let's look at the hypothetical case of someone who gets a BMT and who remains in the grasp of the mainstream doctors. If she relapses, what is left for her to do? Another BMT? There are people who get multiple BMT's, though I can't understand how they can bring themselves to do so. I know of one person, a pianist, who had 2 BMT's, and was STILL able to play the piano well. Given the probability of serious neuropathy from even 1 BMT's I don't understand that. But then he went in for his THIRD BMT, and subsequent to that, the doctors ACTUALLY COMMENTED that they " could not understand why he had so many things wrong with him " when they had finished. To the best of my knowledge, he never left the hospital after BMT #3. He died there from multo-multo-extremay-multo complications. Okay, still looking at the case of a woman who has had 1 BMT and who does not leave the mainstream. Let's say she relapses and she is not, thank her stars and garters, a candidate for a second transplant. What is open to her in the mainstream? Most likely some " experimental Phase I, II or III " treatment, or some less well-known drug her oncologist knows about. She will get something like that, and she will not have become aware of the fact that cancer is a degenerative dis-ease requiring re-generative health measures. She'll almost certainly just hobble along, having ups and downs on a generally downward drift, and, in a decade or less, she'll be dead. But YOU are not like her at all, , because YOU have the TREMENDOUS ADVANTAGE of starting and continuing the process of making yourself aware of the many, many different things you can do to improve and to maintain your health! I know you are doing such things, as I have read many of your messages. You might want to keep a watch on your heart, have it checked periodically with an EKG maybe(I am no doctor)and to maintain supplementation with CoQ10, Magnesium, Alphalypoic Acid, L-Carnitine and Vitamin C. Those will have far broader benefits than just nourishing your heart muscle. You might get the book " Eradicating Heart Disease " By Matthia Rath, MD. It's a great read. From reading his book I got the analogy of how putting a pace-maker into the chest of the average person with a sick heart is like trying to kick an exhausted man up a hill. Finally, I can tell you, , that I have also suffered significant damage at the hands of an ignorant oncologist, who administered to me 22 full-body CT Scans before I became aware of the fact that that equals more radiation than a person ought to get in 3 or 4 lifetimes. I am doing similarly to what I have suggested to you: taking the best care of my health that I can, building my body and my immune system, taking supplements and doing all the other stuff I can to keep myself in good condition. I expect to live out a normal lifespan, and you should take the same attitude. Best wishes and best of health to you, Elliot Wow Elliott, I had a BMT/SCT 8 years ago for breast cancer and afterward they discovered the lack of therapeutic value. But please ... reading this post made me feel like there's no hope for me BECAUSE I did all that to myself, before I knew better. > Quote Link to comment Share on other sites More sharing options...
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