My story and your advice welcomed

[Guest guest]

My story...

I was dx 10/23/2009 w/stage 4 breast cancer (inflammatory).  No surgery because

it spread to my bones.  2 prior Pet Scans had me glowing boldly red on my

affected breast, my spine, pelvis and thigh bones.  I have also had 2 bone scans

since this dx and no damage is shown.  My breast definitely had active cancer

and it was visible.  My nipple basically disappeared and I have scar tissue

where it use to be.  I just dried up several skin mets with iodine tincture dabs

over a 2 week period.  I am in awe of my pink skin where black peas size nodules

use to be.  I do have some indentions left that are healing that may leave pox

type marks, but pink indentions are better than black cancerous nodules. 

I was treated with Taxol for 5 months and was off chemo for 7 months and then

treated 4 months with Doxil (got to keep my hair with that one).  I take

Tamoxifen when on chemo breaks and I am on it now.  I started Weight Watchers to

promote self controlled quality eating patterns and focus on whole foods...I

need the help of such a program... lol...  

My 3rd PET scan results relayed to me 4/1/11 show'no evidence of disease',

'negative scan'.  I am beside myself happy yet at the same time, I am aware that

such awesome results immediately after finishing a series of chemo may change. 

I had additional blood tests for my ONC that I will get results for in May.  I

never did have very high tumor markers... Always 42 and under.  I didn't do

anything non-traditional during my traditional medical therapy other than eat

better, drink green tea and avoid junk foods.  I don't smoke and I am not much

of a drinker, but will have a drink/beer with friends now and then.  I have no

other medical issues outside of the cancer.

I am in the process of pursuing Alternative Cancer Therapy.  I started LDN, 5mg

3/29/11 and had probably 2 dozen viles of blood taken and a cup of urine to test

for bromine I think.  I get those results and my protocol April 12th. 

I wanted an Alternative therapy professional to guide me as to which supplements

I need to be taking, including Iodine etc.... I was told that 5mg of LDN by

another list member was higher than recommended so I sent an email to the LDN

website contact to ask them directly for clarification.  It disturbs me that I

might have been prescribed the wrong dosage by my chosen Alternative Provider. 

Now I have some trust issues that I need to clarify for myself.  I am about 50

pounds too heavy, but was told that should affect my LDN dosage.  Any Comments?

My Alternative Provider also has mentioned the below supplement to me.  She said

that she can sell it to me at her cost of $80 a month... which she said is her

wholesale purchase price... but only if I want it.  She asked me to research it

myself and decide if it was something I wanted to start taking given the cost of

it along with the LDN.  All visits and meds with her are self pay.  I am paying

$38 a month for the LDN that I buy locally from a pharmacy who makes it for me. 

I am sure the other supplements she recommends are going to be roughly $100 a

month too based on my research of recommended supplements I gave her to review

for me.

Has anyone heard of this particular supplement?  SALVESTROL?  Is anyone taking

it?  Any comments/opinions are welcomed so I can make an educated decision.

http://www.salvestrol.ca/aboutsalvestrols.asp

Thank you... Joy of Tallahassee, FL

[Guest guest]

Although it looks interesting it also looks fab like and overpriced to me if she wants 80 bucks a month for it I think that is too much.  I would rather take the 80 bucks and buy oraganic fruits and greens and eat those, in general eat more healthily.  But that is me.

 

LDN - typical adult dose is 4.5 mg regardless of weight.  But there has been a range suggested from 3 mg to as high as 6 mg I think by some folks.  But everything I have read supports the 4.5 mg dose.  I know some folks have experimented with higher doses, some with twice a day dosing, some with lower doses even.  I have not seen enough information about any of those experiments to make me go out on a limb and shift from my very successful 4.5 mg a night dosing.

 

I would check with Skip's pharmacy.  I think you could get LDN from him for less than you are currently paying, people often do 3 months at once and get some sort of savings that way as well.

 

What wasn't clear to me in reading your story was whether or not you are taking iodine (this group) internally?  I believe there has been some excellent results for folks with breast cancer with both internal and external application combined.

 

Peace,

 

Jaxi

On Mon, Apr 4, 2011 at 10:07 AM, rainbowjoye <RainbowJoye@...> wrote:

 

My story...

I was dx 10/23/2009 w/stage 4 breast cancer (inflammatory).  No surgery because it spread to my bones.  2 prior Pet Scans had me glowing boldly red on my affected breast, my spine, pelvis and thigh bones.  I have also had 2 bone scans since this dx and no damage is shown.  My breast definitely had active cancer and it was visible.  My nipple basically disappeared and I have scar tissue where it use to be.  I just dried up several skin mets with iodine tincture dabs over a 2 week period.  I am in awe of my pink skin where black peas size nodules use to be.  I do have some indentions left that are healing that may leave pox type marks, but pink indentions are better than black cancerous nodules. 

 

I was treated with Taxol for 5 months and was off chemo for 7 months and then treated 4 months with Doxil (got to keep my hair with that one).  I take Tamoxifen when on chemo breaks and I am on it now.  I started Weight Watchers to promote self controlled quality eating patterns and focus on whole foods...I need the help of such a program... lol...  

 

My 3rd PET scan results relayed to me 4/1/11 show 'no evidence of disease', 'negative scan'.  I am beside myself happy yet at the same time, I am aware that such awesome results immediately after finishing a series of chemo may change.  I had additional blood tests for my ONC that I will get results for in May.  I never did have very high tumor markers... Always 42 and under and my ONC doesn't always trust them as good indicators.  I didn't do anything non-traditional during my traditional medical therapy other than eat better, drink green tea and avoid junk foods.  I don't smoke and I am not much of a drinker, but will have a drink/beer with friends now and then.  I have no other medical issues outside of the cancer.

 

I am in the process of pursuing Alternative Cancer Therapy.  I started LDN, 5mg 3/29/11 and had probably 2 dozen viles of blood taken and a cup of urine to test for bromine I think.  I get those results and my protocol April 12th. 

 

I wanted an Alternative therapy professional to guide me as to which supplements I need to be taking, including Iodine etc.... I was told that 5mg of LDN by another list member was higher than recommended so I sent an email to the LDN website contact to ask them directly for clarification.  It disturbs me that I might have been prescribed the wrong dosage by my chosen Alternative Provider.  Now I have some trust issues that I need to clarify for myself.  I am about 50 pounds too heavy, but was told that should affect my LDN dosage.  Any Comments?

 

My Alternative Provider also has mentioned the below supplement to me.  She said that she can sell it to me at her cost of $80 a month... which she said is her wholesale purchase price... but only if I want it.  She asked me to research it myself and decide if it was something I wanted to start taking given the cost of it along with the LDN.  All visits and meds with her are self pay.  I am paying $38 a month for the LDN that I buy locally from a pharmacy who makes it for me.  I am sure the other supplements she recommends are going to be roughly $100 a month too based on my research of recommended supplements I gave her to review for me.

 

Has anyone heard of this particular supplement?  SALVESTROL?  Is anyone taking it?  Any comments/opinions are welcomed so I can make an educated decision.

 

http://www.salvestrol.ca/aboutsalvestrols.asp

 

Thank you... Joy of Tallahassee, FL

 

Jesus said, " A new command I give you: Love one another. As I have loved you, so you must love one another. By this all men will know that you are my disciples, if you love one another. "

13:34-35  

What Good Are You Denying Yourself?

[Guest guest]

Kudos to you for doing the right thing for yourself!I can help with the amount of LDN. I take 4.5, which is suppose to be the max dose. I imagine 5 is going to hurt you none. Some take higher, some take lower. You won;t die from it that's for sure.Hang in there Joy and hopefully you'll get answers to your other questions. from IllinoisFrom: rainbowjoye <RainbowJoye@...>iodine Sent: Mon, April 4, 2011 10:07:53 AMSubject: My story and your advice welcomed

My story...

I was dx 10/23/2009 w/stage 4 breast cancer (inflammatory). No surgery because it spread to my bones. 2 prior Pet Scans had me glowing boldly red on my affected breast, my spine, pelvis and thigh bones. I have also had 2 bone scans since this dx and no damage is shown. My breast definitely had active cancer and it was visible. My nipple basically disappeared and I have scar tissue where it use to be. I just dried up several skin mets with iodine tincture dabs over a 2 week period. I am in awe of my pink skin where black peas size nodules use to be. I do have some indentions left that are healing that may leave pox type marks, but pink indentions are better than black cancerous nodules.

I was treated with Taxol for 5 months and was off chemo for 7 months and then treated 4 months with Doxil (got to keep my hair with that one). I take Tamoxifen when on chemo breaks and I am on it now. I started Weight Watchers to promote self controlled quality eating patterns and focus on whole foods...I need the help of such a program... lol...

My 3rd PET scan results relayed to me 4/1/11 show 'no evidence of disease', 'negative scan'. I am beside myself happy yet at the same time, I am aware that such awesome results immediately after finishing a series of chemo may change. I had additional blood tests for my ONC that I will get results for in May. I never did have very high tumor markers... Always 42 and under and my ONC doesn't always trust them as good indicators. I didn't do anything non-traditional during my traditional medical therapy other than eat better, drink green tea and avoid junk foods. I don't smoke and I am not much of a drinker, but will have a drink/beer with friends now and then. I have no other medical issues outside of the cancer.

I am in the process of pursuing Alternative Cancer Therapy. I started LDN, 5mg 3/29/11 and had probably 2 dozen viles of blood taken and a cup of urine to test for bromine I think. I get those results and my protocol April 12th.

I wanted an Alternative therapy professional to guide me as to which supplements I need to be taking, including Iodine etc.... I was told that 5mg of LDN by another list member was higher than recommended so I sent an email to the LDN website contact to ask them directly for clarification. It disturbs me that I might have been prescribed the wrong dosage by my chosen Alternative Provider. Now I have some trust issues that I need to clarify for myself. I am about 50 pounds too heavy, but was told that should affect my LDN dosage. Any Comments?

My Alternative Provider also has mentioned the below supplement to me. She said that she can sell it to me at her cost of $80 a month... which she said is her wholesale purchase price... but only if I want it. She asked me to research it myself and decide if it was something I wanted to start taking given the cost of it along with the LDN. All visits and meds with her are self pay. I am paying $38 a month for the LDN that I buy locally from a pharmacy who makes it for me. I am sure the other supplements she recommends are going to be roughly $100 a month too based on my research of recommended supplements I gave her to review for me.

Has anyone heard of this particular supplement? SALVESTROL? Is anyone taking it? Any comments/opinions are welcomed so I can make an educated decision.

http://www.salvestrol.ca/aboutsalvestrols.asp

Thank you... Joy of Tallahassee, FL

Jesus said,"A new command I give you: Love one another. As I have loved you, so you must love one another. By this all men will know that you are my disciples, if you love one another."

13:34-35

What Good Are You Denying Yourself?

[Guest guest]

Joy,

I have just read an interview by a researcher that runs Life

Extension- they do purely research on cutting edge wellness

medicine. It was really, really good.

He said that they have a free service of advice to anyone who is

going through any medical treatments- what is shown to work or not,

the best statistical evidence for what works, and they are not just

drug but alternative medicine...

http://www.lef.org/

For that matter, I was recommended a book I would never have picked

up, but it is a compilation of interviews with some of the top,

cutting edge doctors who believe that wellness treatment is

critical. It is "Breakthrough:...." by Suzanne Sommers. I have

been amazed at some of the interviews and it also tells you some

great doctors that could just be near you!!!

On 4/4/2011 8:07 AM, rainbowjoye wrote:

My story...

I was dx 10/23/2009 w/stage

4 breast cancer

(inflammatory). No surgery

because it spread to my

bones. 2 prior Pet Scans

had me glowing boldly red on

my affected breast, my

spine, pelvis and thigh

bones. I have also had 2

bone scans since this dx

and no damage is shown. My

breast definitely had active

cancer and it was visible.

My nipple basically

disappeared and I have scar

tissue where it use to be.

I just dried up several skin

mets with iodine tincture

dabs over a 2 week period.

I am in awe of my pink skin

where black peas size

nodules use to be. I do

have some indentions left

that are healing that may

leave pox type marks, but

pink indentions are better

than black cancerous

nodules.

I was treated with Taxol

for 5 months and was off

chemo for 7 months and then

treated 4 months with Doxil

(got to keep my hair with

that one). I take Tamoxifen

when on chemo breaks and I

am on it now. I started

Weight Watchers to promote

self controlled quality

eating patterns and focus on

whole foods...I need the

help of such a program...

lol...

My 3rd PET scan results

relayed to me 4/1/11 show

'no evidence of disease',

'negative scan'. I

am beside myself happy yet

at the same time, I am aware

that such awesome results

immediately after finishing

a series of chemo may

change. I had additional

blood tests for my ONC that

I will get results for in

May. I never did have very

high tumor markers... Always

42 and under and my ONC

doesn't always trust them as

good indicators. I didn't

do anything non-traditional

during my traditional

medical therapy other than

eat better, drink green tea

and avoid junk foods. I

don't smoke and I am not

much of a drinker, but will

have a drink/beer with

friends now and then. I

have no other medical issues

outside of the cancer.

I am in the process of

pursuing Alternative Cancer

Therapy. I started LDN, 5mg

3/29/11 and had probably 2

dozen viles of blood taken

and a cup of urine to test

for bromine I think. I get

those results and my

protocol April 12th.

I wanted an Alternative

therapy professional to

guide me as to which

supplements I need to be

taking, including Iodine

etc.... I was told that 5mg

of LDN by another list

member was higher than

recommended so I sent an

email to the LDN website

contact to ask them directly

for clarification. It

disturbs me that I might

have been prescribed the

wrong dosage by my chosen

Alternative Provider. Now I

have some trust issues that

I need to clarify for

myself. I am about 50

pounds too heavy, but was

told that should affect my

LDN dosage. Any Comments?

My Alternative Provider

also has mentioned the below

supplement to me. She said

that she can sell it to me

at her cost of $80 a

month... which she said is

her wholesale purchase

price... but only if I want

it. She asked me to

research it myself and

decide if it was something I

wanted to start taking given

the cost of it along with

the LDN. All visits and

meds with her are self pay.

I am paying $38 a month for

the LDN that I buy locally

from a pharmacy who makes it

for me. I am sure the other

supplements she recommends

are going to be roughly $100

a month too based on my

research of recommended

supplements I gave her to

review for me.

Has anyone heard of this

particular supplement? SALVESTROL?

Is anyone taking it? Any

comments/opinions are

welcomed so I can make an

educated decision.

http://www.salvestrol.ca/aboutsalvestrols.asp

Thank you... Joy of

Tallahassee, FL

Jesus said,"A

new command I

give you:

Love

one another.

As

I have loved

you, so

you must love

one another. By this all men will know that you are my disciples, if you love one another."

13:34-35

What

Good Are You

Denying

Yourself?

[Guest guest]

Joy,

Congratulations on your test results. God is good, isn't He?

When do you start iodine, when your bromine test comes back? You should take

higher doses of iodine with a cancer dx. Minimum 50mg but probably more. Be sure

to do the protocol, particularly the salting.

>

>

>

>

>

> My story...

>

> I was dx 10/23/2009 w/stage 4 breast cancer (inflammatory).  No surgery

because

> it spread to my bones.  2 prior Pet Scans had me glowing boldly red on my

> affected breast, my spine, pelvis and thigh bones.  I have also had 2 bone

scans

> since this dx and no damage is shown.  My breast definitely had active cancer

> and it was visible.  My nipple basically disappeared and I have scar tissue

> where it use to be.  I just dried up several skin mets with iodine tincture

dabs

> over a 2 week period.  I am in awe of my pink skin where black peas size

nodules

> use to be.  I do have some indentions left that are healing that may leave pox

> type marks, but pink indentions are better than black cancerous nodules. 

>

> I was treated with Taxol for 5 months and was off chemo for 7 months and then

> treated 4 months with Doxil (got to keep my hair with that one).  I take

> Tamoxifen when on chemo breaks and I am on it now.  I started Weight Watchers

to

> promote self controlled quality eating patterns and focus on whole foods...I

> need the help of such a program... lol...  

>

> My 3rd PET scan results relayed to me 4/1/11 show'no evidence of disease',

> 'negative scan'.  I am beside myself happy yet at the same time, I am aware

that

> such awesome results immediately after finishing a series of chemo may

change. 

> I had additional blood tests for my ONC that I will get results for in May.  I

> never did have very high tumor markers... Always 42 and under and my ONC

doesn't

> always trust them as good indicators.  I didn't do anything non-traditional

> during my traditional medical therapy other than eat better, drink green tea

and

> avoid junk foods.  I don't smoke and I am not much of a drinker, but will have

a

> drink/beer with friends now and then.  I have no other medical issues outside

of

> the cancer.

>

> I am in the process of pursuing Alternative Cancer Therapy.  I started LDN,

5mg

> 3/29/11 and had probably 2 dozen viles of blood taken and a cup of urine to

test

> for bromine I think.  I get those results and my protocol April 12th. 

>

>

> I wanted an Alternative therapy professional to guide me as to which

supplements

> I need to be taking, including Iodine etc.... I was told that 5mg of LDN by

> another list member was higher than recommended so I sent an email to the LDN

> website contact to ask them directly for clarification.  It disturbs me that I

> might have been prescribed the wrong dosage by my chosen Alternative

Provider. 

> Now I have some trust issues that I need to clarify for myself.  I am about 50

> pounds too heavy, but was told that should affect my LDN dosage.  Any

Comments?

>

> My Alternative Provider also has mentioned the below supplement to me.  She

said

> that she can sell it to me at her cost of $80 a month... which she said is her

> wholesale purchase price... but only if I want it.  She asked me to research

it

> myself and decide if it was something I wanted to start taking given the cost

of

> it along with the LDN.  All visits and meds with her are self pay.  I am

paying

> $38 a month for the LDN that I buy locally from a pharmacy who makes it for

me. 

> I am sure the other supplements she recommends are going to be roughly $100 a

> month too based on my research of recommended supplements I gave her to review

> for me.

>

> Has anyone heard of this particular supplement?  SALVESTROL?  Is anyone taking

> it?  Any comments/opinions are welcomed so I can make an educated decision.

>

> http://www.salvestrol.ca/aboutsalvestrols.asp

>

> Thank you... Joy of Tallahassee, FL

>

> Jesus said, " A new command I give you: Love one another. As I have loved you,

so

> you must love one another. By this all men will know that you are my

> disciples, if you love one another. "

>

> 13:34-35   What Good Are You Denying Yourself?

>

[Guest guest]

Hi Joy!

I just wanted to say hello. I graduated from FSU.

I'm at the opposite side of the breast cancer scale at stage 0. But I'm also

very interested in LDN. I look forward to sharing in what you learn and how

your treatment goes.

I'm so glad you are double checking the supplements your practitioner

recommends. I think that's very important.

ar

[Guest guest]

I'm sorry that I don't know anything about this product. I get discouraged, because SOMETIMES these product names obfuscate the fact that they are selling a comparatively common product. Every manufacturer tries to convince you that his product is different & special & works better than every other, but that is often about marketing. On the other hand, sometimes the hype is true (or truish), & it is hard for us, as consumers, to know one from the other.I have read, however, that strontium supplementation is helpful when their are bone mets after breast cancer, & I thought I would bring that to your attention so you can research it further. Please note that allopaths sometimes use RADIOACTIVE strontium, but I am talking about the plain, safe, mineral supplement. (When you Google, you will find both protocols intermingled. I am not recommending the radioactive one.)AnneOn Apr 4, 2011, at 8:07 AM, rainbowjoye wrote: <--static--intheclouds_lt.gif>My story...I was dx 10/23/2009 w/stage 4 breast cancer (inflammatory). No surgery because it spread to my bones. 2 prior Pet Scans had me glowing boldly red on my affected breast, my spine, pelvis and thigh bones. I have also had 2 bone scans since this dx and no damage is shown. My breast definitely had active cancer and it was visible. My nipple basically disappeared and I have scar tissue where it use to be. I just dried up several skin mets with iodine tincture dabs over a 2 week period. I am in awe of my pink skin where black peas size nodules use to be. I do have some indentions left that are healing that may leave pox type marks, but pink indentions are better than black cancerous nodules. I was treated with Taxol for 5 months and was off chemo for 7 months and then treated 4 months with Doxil (got to keep my hair with that one). I take Tamoxifen when on chemo breaks and I am on it now. I started Weight Watchers to promote self controlled quality eating patterns and focus on whole foods...I need the help of such a program... lol... My 3rd PET scan results relayed to me 4/1/11 show 'no evidence of disease', 'negative scan'. I am beside myself happy yet at the same time, I am aware that such awesome results immediately after finishing a series of chemo may change. I had additional blood tests for my ONC that I will get results for in May. I never did have very high tumor markers... Always 42 and under and my ONC doesn't always trust them as good indicators. I didn't do anything non-traditional during my traditional medical therapy other than eat better, drink green tea and avoid junk foods. I don't smoke and I am not much of a drinker, but will have a drink/beer with friends now and then. I have no other medical issues outside of the cancer. I am in the process of pursuing Alternative Cancer Therapy. I started LDN, 5mg 3/29/11 and had probably 2 dozen viles of blood taken and a cup of urine to test for bromine I think. I get those results and my protocol April 12th. I wanted an Alternative therapy professional to guide me as to which supplements I need to be taking, including Iodine etc.... I was told that 5mg of LDN by another list member was higher than recommended so I sent an email to the LDN website contact to ask them directly for clarification. It disturbs me that I might have been prescribed the wrong dosage by my chosen Alternative Provider. Now I have some trust issues that I need to clarify for myself. I am about 50 pounds too heavy, but was told that should affect my LDN dosage. Any Comments? My Alternative Provider also has mentioned the below supplement to me. She said that she can sell it to me at her cost of $80 a month... which she said is her wholesale purchase price... but only if I want it. She asked me to research it myself and decide if it was something I wanted to start taking given the cost of it along with the LDN. All visits and meds with her are self pay. I am paying $38 a month for the LDN that I buy locally from a pharmacy who makes it for me. I am sure the other supplements she recommends are going to be roughly $100 a month too based on my research of recommended supplements I gave her to review for me. Has anyone heard of this particular supplement? SALVESTROL? Is anyone taking it? Any comments/opinions are welcomed so I can make an educated decision. http://www.salvestrol.ca/aboutsalvestrols.asp Thank you... Joy of Tallahassee, FL Jesus said,"A new command I give you: Love one another. As I have loved you, so you must love one another. By this all men will know that you are my disciples, if you love one another." 13:34-35 What Good Are You Denying Yourself?