Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 well - Dorothy the fun never ends!! I have lyme for a year now and am in constant pain in my neck and back and now my knees - i can barely turn my head - and i feel as though nothing helps. i am not able to work - and am scared to death about suporting myself - i had to stop working in April of this year. Two years ago i tore cartiledge in my rt knee - pain was incredible - it took a year before my dr. even believed i was in enough pain to have an mri. i am telling you this because if your knee is hurting please have an mri it could be more than just lyme arthritis And yes i walked with the limp also and it screwed up my lower back after the knee surgery arthroscopoc (i know i spelt that wrong) i felt so much better. two monts or so later i was bitten by a tick the rest is history- so it could be lyme but it could also be a knee problem or arthritis you could try glucosomine - it helps arthritis pain. rosanne dak1942@... wrote: > From: dak1942@... > > Hi - Just to say hello and to tell you a little > about my tough 3 years with lyme, joint pain, etc. > etc. Sometimes I think I'll go crazy. Anyway, I'm > just getting the idea or thought that all of my > problems are due to my lyme that hit me hard > in 9/97...I was hospitalized with severe neck pain, > was blacking out (they thought it was my heart), etc. > They did a lyme titer while I was in the hospital, > didn't get results for a week after I got out, and > Bell's Palsy was my next problem - all tied in > with lyme. Did the 30 day iv push antibiotics and > figured that was it! April 1998 was the first time > the knee pain started, have been to 3 drs and the > last 2 said I had osteoarthritis and would need > a knee replacement soon! Well after 55 years of > walking 3 miles a day, being in good health, I'm > told I would need a knee replacement! At this point > I'm ready to replace my knee & my brain with the > pain I've been enduring over the last year. My knee > but mostly now my back, which they say is because > I walk with a slight limp because of my leg..and > it goes on & on. Just got out the hospital with > internal bleeding because of naproxen..so I'm > off that - not that It helped a whole lot, but > it did help. Anyway I now only on tylenol (which does nothing) > except maybe take the edge off. I'm disabled haven't > been able to walk 2 blocks without pain. Bad back > I can't believe that my life has been so screwed up > over the last 2 years with no prior and I mean no > prior problems ever! Just now I'm beginning to > think and possibly believe that it's the lyme? > Could I have been so stupid? Never once through > all of my dr's, my primary, specialists did anyone > say hey maybe it's the lyme. I just had a titer > done last week and I've been told that this may > not tell the story that they can't tell from a > blood test? And I'm going to my first pain center > in Philadelphia in September because I'm really sick, > sick of this forever pain and depression that > I'm beginning to feel. I have been able to function > at my job and that's about it. I have been working > out, swimming, but it only lasts for a few weeks > and I'm in pain again, and again. > > Any help I can get - facts about chronic lyme > is that really true? Chronic lyme? All this > is new to me, but I will find out now! > > Dorothy > dak1942@... > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Hi Dorothy, Welcome to the list and sorry you have had such a tough time of it. In my opinion you have had Lyme since 1997, these spirochetes are tough little suckers and refuse to die. They hide in our cells, thus the unreliable blood testing. There are many research studies proving the persistence of Lyme disease, they can be found at this website: http://www.geocities.com/HotSprings/Oasis/6455/persistence-links.html Also try this site for lots of resources: http://www.geocities.com/HotSprings/Spa/6772/resources.html Good luck with the pain center in Philadelphia, I am in Southern NJ, if you tell me approximately where you live, I could provide you with the names of some good Lyme literate physicians. Take care, Marta NJ - >From: dak1942@... > >Hi - Just to say hello and to tell you a little >about my tough 3 years with lyme, joint pain, etc. >etc. Sometimes I think I'll go crazy. Anyway, I'm >just getting the idea or thought that all of my >problems are due to my lyme that hit me hard >in 9/97...I was hospitalized with severe neck pain, >was blacking out (they thought it was my heart), etc. >They did a lyme titer while I was in the hospital, >didn't get results for a week after I got out, and >Bell's Palsy was my next problem - all tied in >with lyme. Did the 30 day iv push antibiotics and >figured that was it! April 1998 was the first time >the knee pain started, have been to 3 drs and the >last 2 said I had osteoarthritis and would need >a knee replacement soon! Well after 55 years of >walking 3 miles a day, being in good health, I'm >told I would need a knee replacement! At this point >I'm ready to replace my knee & my brain with the >pain I've been enduring over the last year. My knee >but mostly now my back, which they say is because >I walk with a slight limp because of my leg..and >it goes on & on. Just got out the hospital with >internal bleeding because of naproxen..so I'm >off that - not that It helped a whole lot, but >it did help. Anyway I now only on tylenol (which does nothing) >except maybe take the edge off. I'm disabled haven't >been able to walk 2 blocks without pain. Bad back >I can't believe that my life has been so screwed up >over the last 2 years with no prior and I mean no >prior problems ever! Just now I'm beginning to >think and possibly believe that it's the lyme? >Could I have been so stupid? Never once through >all of my dr's, my primary, specialists did anyone >say hey maybe it's the lyme. I just had a titer >done last week and I've been told that this may >not tell the story that they can't tell from a >blood test? And I'm going to my first pain center >in Philadelphia in September because I'm really sick, >sick of this forever pain and depression that >I'm beginning to feel. I have been able to function >at my job and that's about it. I have been working >out, swimming, but it only lasts for a few weeks >and I'm in pain again, and again. > >Any help I can get - facts about chronic lyme >is that really true? Chronic lyme? All this >is new to me, but I will find out now! > > >Dorothy >dak1942@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Hi Dorothy, Welcome to the list. You will find answers to most all your questions. This is a great bunch (bananas) LOL here. They are kind, and caring and will help with whatever we can. I have the same kind of joint and muscle problems and pain, could not walk for a long time without pain, took x-rays, nothing, it is lyme, as soon as I got the lyme under control the pain eased up and is much more tolerable. Welcome again, Connie, Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 Hi Ray, Welcome home........I know we haven't talked much in the past but I always got something out of your posts. I'm glad your here. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 Hiya Ray! Remember me? I believe, and correct me if I am wrong, this list is for all people that have HCV, their familes, friends, etc. no matter what treatment they are on, or even if they aren't on treatment (like me). I was just new at the old place we used to hang our hats, but I already feel at home. :::smile::: Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 thank you for the welcome. I am very glad to be here. We will talk more in the future I hope. I am still doing fine after 2 years pluss and a divorce. Now lets get out there and whip some dragon butt. SEE you around R.R. Norman Life should not be measured by the number of breaths you take, but rather, by the number of events that take your breath away." Toll free - 866-472-4552 ravensara [ravensara@...] http://www.hepatico-usa.com ICQ #105879970 -----Original Message-----From: VicLea227@... [mailto:VicLea227@...]Sent: Tuesday, July 03, 2001 3:50 PM Subject: Re: [ ] New to this listHi Ray, Welcome home........I know we haven't talked much in the past but I always got something out of your posts. I'm glad your here. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 Thanks for the welcome. I am just so used to being judged for what I have done in the past for my hep-c I think I worry too much. Now have a great day and thanks again for the welcome. R.R. Norman Life should not be measured by the number of breaths you take, but rather, by the number of events that take your breath away." Toll free - 866-472-4552 ravensara [ravensara@...] http://www.hepatico-usa.com ICQ #105879970 -----Original Message-----From: MrsDHANDSOME1@... [mailto:MrsDHANDSOME1@...]Sent: Tuesday, July 03, 2001 5:50 PM Subject: Re: [ ] New to this listHiya Ray! Remember me? I believe, and correct me if I am wrong, this list is for all people that have HCV, their familes, friends, etc. no matter what treatment they are on, or even if they aren't on treatment (like me). I was just new at the old place we used to hang our hats, but I already feel at home. :::smile::: Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Hi Ray Welcome to the group. Everyone is welcome here. Many people might want to look at the herbal aspect of treatment. Even I am considering supplementing my treatment with herbs. I don't believe it will interfere with the traditional treatment in any way, and it might do more good than just the combo. [ ] New to this list > I just wanted to say hi and let everyone that knows me I am here. I > am Ray norman. (Ray The hepatico guy) I hope because I do herbs I can > still be everyones friend. Were all in this togeather. Please let me > know how I can help if I can. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Hi Ray it is nice to hear from you. How have you been. I still remember our last talk. I really needed you to kick my butt the past few days and wake me up again. hahaha. It's ben real hard Ray. Bad thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Thank you robert. I am here to share all I know about Hepatico. I do sell it and although I feel great after two + years I am still positive. Hepatico is what I feel saved my life. I do know I was not able to fight a dragon or anything else before hepatico. Now I feel everyone should do what they want but we are also expected to share. God bless everyone and remember were all going to work togeather to get this dam dragon once and for all. R.R. Norman Life should not be measured by the number of breaths you take, but rather, by the number of events that take your breath away." Toll free - 866-472-4552 ravensara [ravensara@...] http://www.hepatico-usa.com ICQ #105879970 -----Original Message-----From: [mailto:ralexan@...]Sent: Wednesday, July 04, 2001 3:18 AM Subject: Re: [ ] New to this listHi RayWelcome to the group. Everyone is welcome here. Many people might want tolook at the herbal aspect of treatment. Even I am considering supplementingmy treatment with herbs. I don't believe it will interfere with thetraditional treatment in any way, and it might do more good than just thecombo. [ ] New to this list> I just wanted to say hi and let everyone that knows me I am here. I> am Ray norman. (Ray The hepatico guy) I hope because I do herbs I can> still be everyones friend. Were all in this togeather. Please let me> know how I can help if I can.>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Once in a while we all need a wake up call. Yes alot of baggage comes with having hep-c but its not the bagage we asked for. R.R. Norman Life should not be measured by the number of breaths you take, but rather, by the number of events that take your breath away." Toll free - 866-472-4552 ravensara [ravensara@...] http://www.hepatico-usa.com ICQ #105879970 -----Original Message-----From: Jannewilms42@... [mailto:Jannewilms42@...]Sent: Wednesday, July 04, 2001 12:38 PM Subject: Re: [ ] New to this listHi Ray it is nice to hear from you. How have you been. I still remember our last talk. I really needed you to kick my butt the past few days and wake me up again. hahaha. It's ben real hard Ray. Bad thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 Welcome, buddy. I don't think anybody here has a problem with any type of tx a person chooses. I like knowing of other options. The other group was growing intolerant of those of us on the combo. I don't know about anybody else, but I was unceremoniously dumped from the former group with no invitation to join another, until started this one. My take was that this site is for people with hepc and/or their loved ones, regardless of tx or non-tx. If traditional methods don't work, I, for one would be pleased to know of other options. Again, welcome aboard. -dz- --- ravensara@... wrote: > I just wanted to say hi and let everyone that knows > me I am here. I > am Ray norman. (Ray The hepatico guy) I hope because > I do herbs I can > still be everyones friend. Were all in this > togeather. Please let me > know how I can help if I can. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 Thanks for the welcome. I dont and cant do traditional meds but In the last couple of years I have ran into alot of people who can and do traditional meds. I have reaserched most options and will keep every one informed as to what I find and where I find it. I too was dumped from another list and dont know why we all were. I have just been taught to except some things. God bless you and I pray dailey for all of us. R.R. Norman Life should not be measured by the number of breaths you take, but rather, by the number of events that take your breath away." Toll free - 866-472-4552 ravensara [ravensara@...] http://www.hepatico-usa.com ICQ #105879970 -----Original Message-----From: imaganeer [mailto:imaganeer@...]Sent: Thursday, July 05, 2001 6:08 AM Subject: Re: [ ] New to this listWelcome, buddy. I don't think anybody here has aproblem with any type of tx a person chooses. I likeknowing of other options. The other group was growingintolerant of those of us on the combo. I don't knowabout anybody else, but I was unceremoniously dumpedfrom the former group with no invitation to joinanother, until started this one. My take wasthat this site is for people with hepc and/or theirloved ones, regardless of tx or non-tx. Iftraditional methods don't work, I, for one would bepleased to know of other options. Again, welcomeaboard. -dz---- ravensara@... wrote:> I just wanted to say hi and let everyone that knows> me I am here. I > am Ray norman. (Ray The hepatico guy) I hope because> I do herbs I can > still be everyones friend. Were all in this> togeather. Please let me > know how I can help if I can. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Well, these things out here in cyberspace are like clouds, sometimes they just disappear. We'll try to congeal into a planet revolving around our higher power. Still gotta watch out for meteorites, though!! -dz- --- ravensara <ravensara@...> wrote: > Thanks for the welcome. I dont and cant do > traditional meds but In the last > couple of years I have ran into alot of people who > can and do traditional > meds. I have reaserched most options and will keep > every one informed as to > what I find and where I find it. I too was dumped > from another list and dont > know why we all were. I have just been taught to > except some things. God > bless you and I pray dailey for all of us. > > R.R. Norman > Life should not be measured by the number of breaths > you take, but rather, > by the number of events that take your breath away. " > > Toll free - 866-472-4552 > ravensara [ravensara@...] > http://www.hepatico-usa.com > ICQ #105879970 > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 People are so judgmental, yet they are not impervious to this disease. How many of our compatriots have never snorted cocaine? How many of us have never had casual sex. I believe that most (or at least many of us) grew up in the 60's, when sex and marriage were not necessarily related. Yet it's only the unlucky ones who are paying the price for their indiscretions that are being judged. Whether it be sex or drug related disease. Yet many are just victims of poor blood hygeine in dr's offices & tatoo parlors, etc. Jesus said, let him who is without sin cast the first stone. -dz- --- ravensara <ravensara@...> wrote: > Thanks for the welcome. I am just so used to being > judged for what I have > done in the past for my hep-c > I think I worry too much. Now have a great day and > thanks again for the > welcome. > R.R. Norman > Life should not be measured by the number of breaths > you take, but rather, > by the number of events that take your breath away. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 hey dz, that is the best phrase I have heard in a long time.....non of us are perfect...We learn from our mistakes and take the consequences.... Doesn't matter how old we are.... I myself was married at 18 and had 2 kids by 19 and 3 at the age of 23....... I didn't have time to be a teenager.... Never did drugs but I do not look down on anyone who did.... God knows.... Look what I just went thru with my son!!!!! People who sit back and judge should take a long hard look in the mirror and remember their mistakes before they cast stones!!!!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Diane, Thank you. You show great understanding of substance problems for somebody who hasn't had them. We are often looked down on as weak people. Functioning addicts (still working, etc.) work extremely hard to keep up their using and still maintain a life resembling normalcy. It is, as we eventually find out, an impossible battle. The only way we can win is to surrender. It is such a relief to lay that burden down. In AA we were taught to admit that we were powerless over alcohol (or our addiction). The upside that I learned is that as long as I don't pick up that first drink, alcohol is also powerless over me. You have to grow up fast when you have kids at a young age. My wife had a child at 16. She became a closet drinker. Happily we are both in recovery now, we each have beautiful sons and another shot at happiness. -dz- --- diane214@... wrote: > hey dz, > that is the best phrase I have heard in a long > time.....non of us are > perfect...We learn from our mistakes and take the > consequences.... > Doesn't matter how old we are.... I myself was > married at 18 and had 2 > kids by 19 and 3 at the age of 23....... I didn't > have time to be a > teenager.... Never did drugs but I do not look down > on anyone who > did.... God knows.... Look what I just went thru > with my son!!!!! People > who sit back and judge should take a long hard look > in the mirror and > remember their mistakes before they cast stones!!!!! > > Diane > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Hi Ruth, I'm Ruth in the UK. Newly diagnosed as hypothyroid and still finding my way around the system. My(with a penchant for thryoidy types!) ex husband's new wife had a thyroidectomy a few years ago and had all the problems with fluttering eyes - even eyeballs in her case. Amongst my reading I came across a suggestion from a British Doctor that in cases of total thyroidectomy people often do far better on natural thyroid than on thyroxine alone. It contains T4, T3, plus, perhaps any other thyroid hormones as yet undiscovered. Other's probably can help far more, but maybe Armour is the answer? It doesn't sound to me like you are likely to lose weight if you reduce your thyroxine Ruth new to this list Hi, I am Ruth IN Australia.. I am 42, and Last year I underwent a total Thyroidectomy. My surgeon placed me on 300 micrograms of thyroxine, and I have not felt that fabulous, flittery eye lids is one thing that is driving me nuts..from a surgical point of view, I was fine, after a few hiccoughs. However, I went for TSH levels yesterday, and it has come back <.005, or basically unrecordable. MY GP has therefore taken me back today, to 200 micrograms. Since the surgery I have gained 25 pounds. I walk each evening(about 2 miles), and swim a few times a week. I follow a lowcarb diet, that involves numerous salads, lean meat, and I limit a lot of dairy . But, the weight gain is really upsetting me. My doc says that by bringing the TSH levels to normal, by reducing the thyroxine, I May lose some weight. Can anyone steer me in the direction of where I should be looking, or what I may have as alternatives? I have cut back my wine consumption(sad, really) and I have also given up smoking...that was rather easy, and I have not had the nibbles from that at all Thanks so Much Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 hello Ruth.. Not a very common name,LOL. I do not believe we can buy armour in Australia, which is a problem..I asked a few different pharmacies, and I felt I had asked where the local Heroin shooting up centre was! Other's probably can help far more, but maybe Armour is the answer? It doesn't sound to me like you are likely to lose weight if you reduce your thyroxine Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi Everyone, Some of you I recognize from other lists, but this is my first day on this list. I was dx w/breast cancer (lobular carcinoma) originally in '99, bilateral, 8 of 10 nodes positive. Last March, during a routine screening colonoscopy (family history of colon cancer), they found a large growth in the wall of my colon. Believe it or not, breast cancer mets to the colon. I was in total shock! I had my ascending colon removed in April, and they found peritoneal carcinomatosis throughout my abdomen (tiny tumors). That really took the wind out of my sails when I saw the bleak prognosis for this condition. Of course they wanted me to do chemo, which I did in tremendous amounts originally ... and rads to both sides of my chest. However, this time around, I know much better than that and declined. I've been doing Budwig since May '07 but have recently had an " inconclusive " MRI that showed a 5cm contrast enhancement. Because of this, I have added essiac, LDN, and proteolytic enzymes. Has anyone here healed of peritoneal carcinomatosis? Or does anyone know anyone who has??? xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Mike, what your naturopath probably missed was that the probiotic supplement has to be fed inulin to colonize properly in the gut. The North American diet is deficient by about 4/5 of optimal inulin. Duncan > > Hey all. > > I've been dealing with the 'light-headedness' and fogged in, kinda > 'out of it' thing for over five years now and medical doctors (at > least in this case - in my own experience) have proven next to useless. > > I was at my wits' end when finally I went to a Naturopathic doctor in > my city. After she interviewed/examined me she told me that it was > very likely I had a form of Candidiasis. She put me on a restrictive > diet and on supplements (pro-flora, etc.) > > I'm on week three of all of this, yet not feeling really much better > than before. I've been following the diet and taking the supplements > quite strictly. > > Can I ask those of you out there with similar experiences how long > the cleansing- good yeast/bacteria re-population takes? > > Maybe I'm just being impatient here. > > Thanks in advance. > > Mike > in vancouver > Quote Link to comment Share on other sites More sharing options...
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