Invasion of Privacy

[Guest guest]

If you make a new group please post a special notice to let us all know or send

us an invite (you can copy & paste 30 a day I think). Be sure there are enough

moderators so this won't happen again.

It would be great if you could post the emails publicly that go to the blog.

This problem is happening in another group I belong too. It's time these people

are exposed. It's a nightmare trying to get them to remove it. They're

well-hidden. Domain and hosting are different companies and they all blame it

on someone else and no one does anything in the long run. It's a disgrace.

They do it to increase their keywords and get hits to their blog to sell

advertising. Pure sleaze to expose others private information. Please report

them to .

Sharon

>

> Group,

>

> Yet again, our posts were being uploaded to a blog for all to read. A quick

membership search revealed four email addresses that fed directly to a blog.

>

> The moderators do not have the ability to change the settings of the group

which would help to cut down on this type of invasion.

>

> We wish to know what you think - so a poll has been created. We have the

ability to create a new group, which would allow us to change the

membership requirements so people need to ask permission to join. This is the

best way we have to make sure that the people joining the group are real people.

>

> If you feel up to it, please post in the poll - Yes, you are interested in

moving to a new, better protected group. Or No, you aren't interested in

moving.

>

> If we do create a new group, all that would be required of you is to join the

new group. We would stop posting in this group.

>

> The poll is easy to find by going to the website and clicking on the poll

option located on the left of the screen. I think the link is:

>

> /surveys?id=2956462

>

> Thanks.

>

[Guest guest]

Hi All,

I am convinced that the idea of protection of some imaginary copyright

is fundamentally wrong in this case.

1) The whole idea about groups like these is sharing of information for

free and freely. That is the only way to access as many people as

possible with information, which may hopefully help them out of their

misery, meaning getting them healthy again.

2) There is extremely little possibility that anyone can profit by

reprinting any information contained on this and similar groups for

personal gain. Even if so, I would consider it much more acceptable to

the peace of my soul, to help one person to survive cancer, than

preventing hundred other persons to profit from the information

submitted here and reprinted in whatever form elsewhere.

3) Very few persons on this group are even identifiable in the first

place. If the author is not identifiable, what copyrights?

4) Why would " VeraGumgum " or similar be worried about her condition

becoming public elsewhere, and not here? What are we even discussing

here? It is non issue. What privacy? I am one of the very few here and I

don't give a rats behind for my health condition being known, here or

elsewhere.

5) I will personally consider any move towards any restrictions on the

content of this, or any other self help health group, or an access to

them, as an attack on free flow of grass roots health information.

With kind regards, Slavek.

[Guest guest]

Here's the link to the latest blogspot:

http://cancertruthfacts.blogspot.com/

The uploads stopped after I deleted four suspect members.

To summarize:

There is concern about the loss of information that is archived here if we move

to a new group.

There is concern about maintaining two groups as people might not get the

support they need if they post in the wrong group.

There are those who would like a bit more privacy.

There are those that don't care.

And then there's Slavek who says, " I will personally consider any move towards

any restrictions on the

content of this, or any other self help health group, or an access to

them, as an attack on free flow of grass roots health information. " Even though

this is a moderated group and a moderator decides if his post his will go

through or not.

There are 3,500 members of . Many are spammers - the moderators

delete those posts. Some are people who are praying on cancer patients. Some

are bouncing. But there are a whole lot of people who only communicate through

private email because they don't feel safe posting in a large group such as

this.

I don't have any answers, but want to do what's best for the majority of people.

Unfortunately, since we can't respond to the poll, we won't be able to tell what

the majority thinks. But I have appreciated hearing people's thoughts on the

situation.

[Guest guest]

I HAD TO CHANGE MY ID AND NAME BECAUSE I FOUND POSTS I MADE TO WHEN

I GOOGLED MY NAME ON THE WEB..STOLEN INFORAMTION FROM .  I WAS SOO

ANGRY...I STILL AM!  STUPID ME, ACTUALLY USED MY REAL NAME WHEN I MADE MY

ACCT AND PROBABLY DIDNT UNDERSTAND IT ENUF....SOOOOOOO UPSETTING. GOOGLE UR

NAME AND SEE WHAT YOU FIND

From: denise cook

I don't understand what is going on there - were they just uploading ALL of the

posts here to that blog? That's what it looks like, just complete copies of

everything that was posted here. I can't read the owner's name, it looks

foreign. They even uploaded the Invasion of Privacy post - perhaps this person

does not even read English and doesn't realize that he uploaded an indictment of

his own blog?

I think we should submit a complaint to Blogger and demand that this blog be

taken down immediately. The content of the blog does not belong to him and he is

in violation of Blogger's TOA. I'm guessing this was their way of generating

content and possibly income by just stealing content and therefore getting

traffic to his blog.

We should also submit a complaint to Google Adsense, since I see he has ads for

them on that blog as well. They will withhold any payments belonging to him for

stolen content!

If we all do this, he will definitely be taken down and subjected to loss of

whatever money he has earned on this.

Now that I took a look at what you were referring to, I am very angry!

[Guest guest]

The email addresses were obvious because they actually were blogger.com. So,

what's to stop something this obvious from happening again? Easy, we don't

approve email addresses that are from blogger.com. But we can't control that in

this group because we can't change the settings of the group. It gets

frustrating.

>

> I wouldn't want to join if it wasn't a group just like this one.

> What would stop the information thief from joining the new group and still

> posting everything? Do you know who it is? I might have missed that piece of

> information. Even if you know who it is, they can join under an alias.

> It's very hard to control these things.

>

>

>

[Guest guest]

Hi All,

Welcome to internet.

With kind regards, Slavek.

M Dee wrote:

>

> I HAD TO CHANGE MY ID AND NAME BECAUSE I FOUND POSTS I MADE TO

> WHEN I GOOGLED MY NAME ON THE WEB..STOLEN INFORAMTION FROM

> . I WAS SOO ANGRY...I STILL AM! STUPID ME, ACTUALLY USED MY

> REAL NAME WHEN I MADE MY ACCT AND PROBABLY DIDNT UNDERSTAND IT

> ENUF....SOOOOOOO UPSETTING. GOOGLE UR NAME AND SEE WHAT YOU FIND