Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 If a new group is formed PLEASE provide exact instructions on how to join. I am a bit technically challenged and my daughter signed me up for this group three years ago when my sister was diagnosed with cancer. My daughter now lives in NY so I don't have her help all the time. This discourse means so much to me and I don't want to lose contact. Thank you! Debbie In a message dated 3/17/2010 10:54:46 P.M. Eastern Daylight Time, cheri607@... writes: We must be missing the same thing LOL. I vote that I would like a private group if that will stop this Cheri > > > > Group, > > > > Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. > > > > The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. > > > > We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. > > > > If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. > > > > If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. > > > > The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: > > > > _http://health.http://healthhttp://heahttp://healthttp://healhttp://_ ( /surveys?id=2956462) > > > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 What about all the great information from the posts, that could be lost? Some very valuable posts !! And some were written by people who are no longer with us, but left the legacy of their wisdom. You mention that nothing can be done to save the information, so we would lose all this, right? Lillian BlackBerry de movistar, allí donde estés está tu oficin@ [ ] Re: Invasion of Privacy I get this when I click the link You are not a moderator of the group . Cheri > > Group, > > Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. > > The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. > > We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. > > If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. > > If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. > > The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: > > /surveys?id=2956462 > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 No one wants to lose the information available in this group. But some people don't want to talk about things that are personal knowing that their posts are being uploaded to a blogspot. Perhaps the answer is to maintain both groups. A new group that is private, and this group. I am sure that many people don't want the hassle of moving to a new group, but we've also lost members because of the lack of privacy. I run another group that is set up this way. We have the main group for all, and then a smaller group for those who needed something a bit different. ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 I don't see the Poll on the left side menu bar, can you help how to activate it? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 I did not see a survey at that link. > > Group, > > Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. > > The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. > > We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. > > If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. > > If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. > > The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: > > /surveys?id=2956462 > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 I followed the link at the bottom and got to the page. The message on the page was: " You are not the moderator of this group. " True but not helpful. I didn't find a " Poll " or the left side of the page. I vote yes on moving to a new better protected group. Beggs On Wed, Mar 17, 2010 at 6:35 PM, < -owner > wrote: > > > Group, > > Yet again, our posts were being uploaded to a blog for all to read. A quick > membership search revealed four email addresses that fed directly to a blog. > > > The moderators do not have the ability to change the settings of the group > which would help to cut down on this type of invasion. > > We wish to know what you think - so a poll has been created. We have the > ability to create a new group, which would allow us to change > the membership requirements so people need to ask permission to join. This > is the best way we have to make sure that the people joining the group are > real people. > > If you feel up to it, please post in the poll - Yes, you are interested in > moving to a new, better protected group. Or No, you aren't interested in > moving. > > If we do create a new group, all that would be required of you is to join > the new group. We would stop posting in this group. > > The poll is easy to find by going to the website and clicking on the poll > option located on the left of the screen. I think the link is: > > /surveys?id=2956462 > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 I second that. There is no link labeled " poll " ... please advise. Marji Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Greetings, On many lists, someone has stepped forward and created an alternative home for the archives. Do we have any volunteers on this list? Bright Blessings, Kim limos99@... wrote: > What about all the great information from the posts, that could be lost? Some very valuable posts !! And some were written by people who are no longer with us, but left the legacy of their wisdom. You mention that nothing can be done to save the information, so we would lose all this, right? > > Lillian > > BlackBerry de movistar, allí donde estés está tu oficin@ > > > > [ ] Re: Invasion of Privacy > > > > I get this when I click the link > > > > You are not a moderator of the group . > > > > Cheri > > > > > > > > >> Group, >> > > > > >> Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. >> > > > > >> The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. >> > > > > >> We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. >> > > > > >> If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. >> > > > > >> If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. >> > > > > >> The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: >> > > > > >> /surveys?id=2956462 >> > > > > >> Thanks. >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 that seems like a very good idea Arlyn! L 2010/3/18 arlynsg <arlynsg@...> > > > No one wants to lose the information available in this group. But some > people don't want to talk about things that are personal knowing that their > posts are being uploaded to a blogspot. > > Perhaps the answer is to maintain both groups. A new group that is private, > and this group. I am sure that many people don't want the hassle of moving > to a new group, but we've also lost members because of the lack of privacy. > > I run another group that is set up this way. We have the main group for > all, and then a smaller group for those who needed something a bit > different. > > ar > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 I may be missing something in the discussion. Please correct me if I am wrong. 1) Issue is that the group is accessible to unwanted outside interests. How will opening a new group stop that problem? I can't remember how I became a member. 2) for some reason there is no member access to the polls feature. That is very curious, because member access is the default. Just before starting this post I started a new group specifically to see what control an administrator has over options. I may be wrong, but it appears to me (wasn't immediately obvious how to edit a group profile, none the less it is there) that all group profile options can be changed by the owner at any time. Thus all new applications can be reviewed before acceptance to group (if that is currently the case, then how did the bogus members get in?). I have to go to work now. I'll go into more detail if I receive any feedback. MikeM > > Group, > > Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. > > The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. > > We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. > > If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. > > If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. > > The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: > > /surveys?id=2956462 > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Kim, How is that done? ar > > Greetings, > On many lists, someone has stepped forward and created an alternative > home for the archives. Do we have any volunteers on this list? > Bright Blessings, > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Mike, A couple of things: 1. This group was created quite awhile ago. It was set up so anyone could join just by clicking on the join button. There is no longer an owner for this group. And before he left, he did not make anyone else an owner. Nor did he give the moderators a lot of power in the group. Now we have a group with no owner and moderators who have no way to make changes to the group settings. 2. A new group would allow there to be two owners and moderators with more abilities. The group would be set up so each person who wished to join the group would have to ask permission and wait for a moderator to approve them. This filters out the majority of spammers and also doesn't allow bogus emails to join. 3. No owner - no way to change the group settings. > > > > Group, > > > > Yet again, our posts were being uploaded to a blog for all to read. A quick membership search revealed four email addresses that fed directly to a blog. > > > > The moderators do not have the ability to change the settings of the group which would help to cut down on this type of invasion. > > > > We wish to know what you think - so a poll has been created. We have the ability to create a new group, which would allow us to change the membership requirements so people need to ask permission to join. This is the best way we have to make sure that the people joining the group are real people. > > > > If you feel up to it, please post in the poll - Yes, you are interested in moving to a new, better protected group. Or No, you aren't interested in moving. > > > > If we do create a new group, all that would be required of you is to join the new group. We would stop posting in this group. > > > > The poll is easy to find by going to the website and clicking on the poll option located on the left of the screen. I think the link is: > > > > /surveys?id=2956462 > > > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Greetings, We can run a poll the old fashioned way. Post it to the list, and I will keep track of the responses. If this is wanted, I would set a certain period of time for responses. email addresses must be in the body of the text to qualify, just to make it easier for me. Is this a help? Bright Blessings, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Before we get off on worrying about " Government being able to see it " , which is a current but unfounded fear, worry about any other reason because Corporate use, such as an insurer, is much more of a concern as regards health matters than Government knowing what you have or don't have. However, even an insurer knowing is not that big a deal because if you've ever been to a physician for cancer, trust me, it is in the MIB (Medical Information Bureau. Even if one has never been to a doctor, go put a claim in for an existing cancer and try to claim it is a 'new' diagnosis, and they will fight to the end to show it " should have been known " and that you did not put it on your application. I suspect most people with cancer, while not broadcasting it from the roof tops, have no problem with others knowing about it. It isn't exactly a Public Threat as is an H.I.V. issue. As stated before, anything on the Internet is subject to scrutiny by anyone so Inclined to dig deeply enough. The defense? Do not post anything you don't want known! Joe C. From: millardfillmore51 Sent: Friday, March 19, 2010 7:24 AM Subject: [ ] Re: Invasion of Privacy Personally anything I post online I expect the whole world to see. I have no issues with someone using what I say, not that they would. But on the otherhand if others have issues I would go along with the majority and support whatever everyone decides. When it comes to the internet no such thing as private, especially when it comes to Government being able to see it. To be honest at first I didnt realize this group was private, and posted something in another cancer group. After I found that out I removed it, and havent done it since. Let the majority decide, I will go with the flow! This group is to important to me. All the best, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Hi, moderator, -owner wrote: > There are those who would like a bit more privacy. That is fine. All they need to do is go from hotmail or such with a pseudonym. That is as far as it can be protected. I absolutely understand that lots of people have worries about all kinds of consequences from such information being publicly accessible. But it is publicly accessible as soon as it is sent anywhere on the blogs etc. unless by invitation only. It is also " privately " accessible as soon as it goes through the internet. The only way to protect it to some degree is anonymity, but even that is traceable to our masters and their organizations, and most likely hackers, if interested. There is no privacy on the internet, which is exactly why I personally do not even bother with masking my own identity. > There are those that don't care. > And then there's Slavek who says, " I will personally consider any move > towards any restrictions on the > content of this, or any other self help health group, or an access to > them, as an attack on free flow of grass roots health information. " Because it defies to a great degree the purpose. It is like standing on a gas and brake pedal at once. Most people here have enjoyed a free access to this group without the hindrance of special access and I am sure that for some, having the ready access to the information at least helped them to make crucial decisions and hopefully right ones. There are people out there who have difficulties mastering complexities of restricted access on sites and there are people assuming that restricted groups are for " experts " . There are a lot of people who are pressed for time and do not bother with restricted groups and information contained thereof. Those people will be shut off. > Even though this is a moderated group and a moderator decides if his > post will go through or not. That is more than fair. The group would go to weeds, if that were not done and at least most off us [i do] appreciate the time and effort you are putting into it. That is not a restriction to information, just the contrary, it makes it less of a pain to get to the substantial. > There are 3,500 members of . Many are spammers - the > moderators delete those posts. Some are people who are praying on > cancer patients. Some are bouncing. That is unavoidable. We all have to make our decisions how we handle information and others. As difficult as it may be to not grab at wrong straws while sinking, it is up to every individual to decide, which information and who may, or may not be indeed helpful. No one will do it for us and a restricted access will not do it either. > But there are a whole lot of > people who only communicate through private email because they don't > feel safe posting in a large group such as this. That is their choice. > I don't have any answers, but want to do what's best for the majority > of people. That is very appreciated but, is it the majority already in this boat, or is it the majority at large? With kind regards, Slavek. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 We have life saving information, lets our experience and hope benefit others. Marc AKA AKA Wellness Warrior AKA Kill your TV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 I wouldn't want to join if it wasn't a group just like this one. What would stop the information thief from joining the new group and still posting everything? Do you know who it is? I might have missed that piece of information. Even if you know who it is, they can join under an alias. It's very hard to control these things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 I don't understand what is going on there - were they just uploading ALL of the posts here to that blog? That's what it looks like, just complete copies of everything that was posted here. I can't read the owner's name, it looks foreign. They even uploaded the Invasion of Privacy post - perhaps this person does not even read English and doesn't realize that he uploaded an indictment of his own blog? I think we should submit a complaint to Blogger and demand that this blog be taken down immediately. The content of the blog does not belong to him and he is in violation of Blogger's TOA. I'm guessing this was their way of generating content and possibly income by just stealing content and therefore getting traffic to his blog. We should also submit a complaint to Google Adsense, since I see he has ads for them on that blog as well. They will withhold any payments belonging to him for stolen content! If we all do this, he will definitely be taken down and subjected to loss of whatever money he has earned on this. Now that I took a look at what you were referring to, I am very angry! > > Here's the link to the latest blogspot: > > http://cancertruthfacts.blogspot.com/ > > The uploads stopped after I deleted four suspect members. > > To summarize: > > There is concern about the loss of information that is archived here if we move to a new group. > > There is concern about maintaining two groups as people might not get the support they need if they post in the wrong group. > > There are those who would like a bit more privacy. > > There are those that don't care. > > And then there's Slavek who says, " I will personally consider any move towards any restrictions on the > content of this, or any other self help health group, or an access to > them, as an attack on free flow of grass roots health information. " Even though this is a moderated group and a moderator decides if his post his will go through or not. > > There are 3,500 members of . Many are spammers - the moderators delete those posts. Some are people who are praying on cancer patients. Some are bouncing. But there are a whole lot of people who only communicate through private email because they don't feel safe posting in a large group such as this. > > I don't have any answers, but want to do what's best for the majority of people. Unfortunately, since we can't respond to the poll, we won't be able to tell what the majority thinks. But I have appreciated hearing people's thoughts on the situation. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 LOL so true Cheri > > > > I HAD TO CHANGE MY ID AND NAME BECAUSE I FOUND POSTS I MADE TO > > WHEN I GOOGLED MY NAME ON THE WEB..STOLEN INFORAMTION FROM > > . I WAS SOO ANGRY...I STILL AM! STUPID ME, ACTUALLY USED MY > > REAL NAME WHEN I MADE MY ACCT AND PROBABLY DIDNT UNDERSTAND IT > > ENUF....SOOOOOOO UPSETTING. GOOGLE UR NAME AND SEE WHAT YOU FIND > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2010 Report Share Posted March 21, 2010 I've calmed down now, lol. I read a bit more and it appears that this person is using some type of " auto-blogging " software that automatically grabs our posts and uploads them to his blog. I found a few sites - mostly all from India - that offer this software and tout the features of it. That blog is most likely not monitored, but what happens is that he also gets to put Google ads on it and reap the rewards of the hits. I don't know how many he has, but he picked a popular topic, so over time he could earn a little money, especially if he has several of these types of auto blogs. Great catch on spotting him, it looks like people with Wordpress also have the capability to autoblog. Blogger has it setup so they're not liable for much of anything at all! They've hidden behind their TOS and I couldn't find anything that really addressed stealing this type of content. I searched their Help forums and found others complaining about the same thing, and they had to feel their way through it with no help from Blogger or Wordpress. They were able to get the ads stopped though. Our information is helpful to others, but now I need to change my username because it is my real name and I do not want it to be that accessible. So if we start a new group, I'll keep that in mind. Matter of fact, now I'm going to go back through all of my and change my username. What I resent is people using our information to make money, and that is what this guy is doing. He's not trying to share our information with the world to help anybody, he's doing it just for the ad revenue, its a lazy way to make money without having to write a word, just steal others information, slap some ads on it and make money from the traffic. That's what I resent. I vote for starting a new group so that we can have actual administrators, that's very important. Is there a way to lock this group from accepting new members but continue to let registered members come here to read as necessary? Quote Link to comment Share on other sites More sharing options...
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