Treated VERY badly through no fault of my own.

[Guest guest]

My prescription was put in the chemist last Friday.

The chemist explained they were having difficulty obtaining my testosterone;

Sustanon 100 injection.

I waited all weekend without treatment and nothing, then nothing come Monday.

Tuesday I get a phone call from the pharmacy saying that they cannot obtain the

drug from the pharmaceutical company as they have a stock problem.

The pharmacist says they have Sustanon 250 but that is probably not appropriate

for me; he is right.

The pharmacist says I should contact my consultant. I phone their secretary but

get an aswer phone. I phone the hospitals endocrine nurses and just get another

answer phone.

I contact my gp and ask for an alternative medication and tell him that the only

other injectable I have been on is Virormone and suggest going on that until the

Sustanon 100 can be obtained again.

My gp refuses to prescribe a licensed treatment similar to what I am on.

That I have been on in the past and been happy on.

At a dose I have been on in the past.

They offer me instead Sustanon 250, a drug I have never been on, at a dose two

and a half times as high and a drug I am not happy with and do not wish to take.

I explain to the gp that I do not want it and that it will make me ill.

The gp says I can draw up the equivalent of 100 from the 250 vial.

But the smartass Idiot doesn't know his ass from his elbow.

I explain to him that you can't do that as it isn't actually the same drug and

that Sustanon 250 contains different esters designed to release over two to

three weeks and not five days. He refuses to listen.

I contact the local patient advice and liason service PALs at my primary care

trust.

They contact the gp on my behalf, but the gp refuses to offer any alternative

medication.

By this stage pouring with sweat and nerves shot to pieces and with intense back

pain I contact an out of hours gp service to try get a script.

This gp agrees I should be able to get the script I want and it sounds

reasonable, but he refuses to help as he doesn't have my notes.

I end up driving at night to the hospital that treats me and walking into their

emergency department. I wait for three hours and explain what has happened (by

now I feel like crawling the walls).

The doctor says they do not have any testosterone in the hospital, but I can

wait to see a doctor who can write me a script for the late night chemist, but

the wait is another four hours.

I explain that by this time the chemist will be shut anyway and also explain

that I take strong pain meds for significant osteoporosis of my spine and that

they will run out in an hour and I have no more with me as I did not expect a

seven hour wait in emergency.

The doctor says they can give me pain meds when they write the testosterone

script when I see the doctor. But that is four hours away and I will be in

tremendous pain in two hours.....doctor says nothing they can do.

I say I will have to leave and ask the doctor if they can inform the hospital of

the incident tomorrow and the doctor says they can't as they are just emergency.

It is the next day pouring with sweat, agonising back pain, shot nerves and no

testosterone. I phoned the hospital again and this time got through to my

endocrinologists secretary and I explained everything. I am still waiting on a

phone call three hours later and I am now too unwell to leave the house.

Throughout all this I have been treated like a dubious drug addict with

psychological problems....like shit on people's shoes.

If I was a drug addict it would have been easier to get heroin substitute from

the hospital or the real thing off a street corner.

Why should we get treated like this???