Re: ART coordination meeting in Cuttack, Orissa

[Guest guest]

Dear FORUM,

Re: /message/10108

Congratulations to the entire team. More number of such coordination meetings

would address and reduce the gap in servings the PLHIV even better.

Le me share our (SAATHII - Chennai) experience with the care and support in HIV

intervention program.

The Tamil Nadu Family Care Continuum program (TNFCC) is being implemented at

five Government medical colleges in equal partnership with three hospital based

NGOs and 10 field based NGOs/CBOs/Positive Networks.

The Children's Investment Fund Foundation (CIFF) has awarded funding to Tamil

Nadu AIDS Control Society (TANSACS) to expand antiretroviral treatment and care

and support services including nutrition support to HIV infected and affected

children to prevent children being orphaned in the State of Tamil Nadu.

 

As part of the program activity, the ART centre team organizes the NGO

coordination meeting with the objective such as:

To facilitate information sharing and coordination between facilities and

community component

This will enhance patient wise tracking in clinical aspects such as CD4 testing,

ART eligibility, Adherence to drugs etc.

Reduce Lost to Follow

Ensure patient access to hospital services.

Regular data updation

Technical update session

Sharing of field challenges

 

Keep the good works going

Regards

--

Nethaji

Program Officer

ARV - Technical Assistance Team

SAATHII - Chennai.

e-mail: <jnethaji@...>

[Guest guest]

Dear Forum members,

Re: /message/10108

 

Greetings from KALINGA NETWORK FOR PEOPLE LIVING WITH HIV/AIDS(KNP+),ORISSA..

 

It is very well that Utkal sevak Samaj(USS), belives that there are lot of

issues of PLHAs which should be focused by Coordination body of USS.

 

But in your coordination meeting you have not involve any PLHAs netwok

leaders/representatives. How are you indentifying there issues without involving

them meaningfully in the process?

 

Globaly, the responds to HIV has been marked by the direct involvement of

representatives of people living with HIV. In India too, the National response

has benefited from the meaningful and consistent involvement and participation

of PLHIV. It is a higly effective way to strengthen HIV prevention and support

scale of treatment and care programmes.

 

The national AIDS Control programme of India recognise that involving PLHA and

affected communities in the HIV/AIDS response makes a powerful contribution to

the pandemic by enabling individuals and communities who draw on their life

experience, thus contributing to reducing stigma and discriination and to

increasing the effectiveness and appropiateness of the HIV/AIDS responses.

 

You must be heard about the GIPA principle which aims to realize the rights and

responsibilities of people living with HIV, including their right to

self-determination and participation in decission making process that affect

their lives. GIPA or Greater involvement of peopkle Living with HIV is critical

to halting and reversing the epidemic.

 

PLHAs are equal partners and they are not only the service receivers but also

the service providers. We belive that the involvement of PLHAs in programme

development and implementation and olicy making will improve the relevance,

acceptibility and effectiveness of programmes.

 

Please don't take your step forward to meet the needs of PLHAs.  Nobody can

fulfil the needs of a human beings. Remember that PLHAs are all human beings.

 

It will be better if you will come forward to protect and promote their

fundamental rights such as Right to equality, Right to life and personal

liberity(Right to health,Right to live with diginity, Right to privacy and

confidentiality) and Right to educatin etc.

 

" According to us GIPA(Greater Involvement of People Living With HIV/AIDS) is the

heart and soul of the response to HIV/AIDS; without GIPA any response is

meaningless " .

 

People directly affected by AIDS have brought about some of the most important

advances in tackling the epidemic so far.

 

The first and still the most effective prevention strategy was created by People

directly affected by HIV i.e. " Safe Sex " .

 

It was also people living with HIV who lead the way to access to treatment.One

HIV positive person lead a movement of positive and negative people in the

Treatment Action campaign which fought to persuade the Government to provide ART

for every  one that needed it.

 

These are two important examples of the ways that people living with HIV have

consiscently been at the fore front of a sucessful response to AIDS.

 

Come together to Fight against AIDS. With Love and hope to fight AIDS.

 

Pravasini pradhan

President,

Kalinga Network for People Living with HIV/AIDS in Orissa

KNP+ & PC,DIC Project, KNP+ Family

E-mail: knpplusorissa@...

[Guest guest]

Dear Forum Members,

Re: /message/10108

Nice to hear about the co-ordination meeting. I would like to appreciate the

thinking of USS to share the meeting minutes with the fourm members.  But, I am

surprised that a meeting organized in Orissa which is conducted without any

PLHIV networks.  It would be a great pleasure if USS invites any PLHIV netowrks

in the co-ordination meeting through this same forum before conducting the

meeting.

I would like to discuss the following:

1.  Is the ART issue is only for the ICTC counselors, CBCI Cheif & Community

Care centres?

2.  I would like to know whether State GIPA co-ordinator was invited for the

meeting?

3. If not,I want to know from USS what do they mean by GIPA?

4.  No where it is mentioned the role of networks in tracing the LFU.  Does the

participants mean that PLHIV is only to receive services and can't deliver?

5.  If they mean this then I would like to suggest them to invite a positive

speaker in their respected organisations and as a PLHIV I am also ready to go

and do the positive speaking in all the organisations if they require.

K. SANTOSH KUMAR

09777503575

e-mail: <kumarpositive@...>

[Guest guest]

Dear Forum,

Re: / message/10108

 

Greetings.

 

Firstly, I would like to give thanks to USS for the details minutes of

co-ordination meeting.

 

Secondly, I am fully agree with Mr. Santosh. From the report we came to know

know that all the stake holder participated in that meeting except PLHIV

networks.It is very sad thing when PLHIV networks can play a majour role in

tracking the LFU.

Regarding this matter I just want to share with you in West Bengal situation our

State level network BNP+(An affiliated body of INP+) and it’s affiliated all

the 19 DLNs are playing major role in tracking the LFU. Because we are

discussing regarding the importance of adherence of ARV in our support group

meeting and also we are doing home-visit through our peer councillor.

Right now we have fully functional 4 ART centres are there in West Bengal also

we have 4 functional Link ART centres. Whenever any kind of co-ordination

meeting is happening in any ARD centre or any Link ARD centre we are being

invited for that meeting.

It is not by name sake for GIPA involvement but obviously it is MIPA

involvement. We should really keep in mind that whenever we are going to

organise such type of programme which is related with PLHIV we should involve

them that is not only for by name shake but also it will be meaningful.

Because end of the day;

PLHIV will get the quality services without any fail.

It can help the programme to give the best shape for the benefit of every PLHIV.

As per Mr. Santosh's comment we have Positive Speaker Bureau(PSB) in every PLHIV

Network. You can also involve it for the betterment of the programme,when we are

ready to go anywhere any time.

Please allow us to work heard when we are asking to do so, because we believe

work is our life. Please do not make us lazy.

Tarit Chakraborty.

Board Member INP+

Vice-President BNP+.

Secretary NHP+

State officer of Orissa in Concern Project of INP+.

E-Mail-tarit34@...//tarit34@....

Phone-09836813069

[Guest guest]

Dear Forum

ReL Re: /message/10108

This is in response to the posting of Mr Santhosh. I would like to share the

experience of Kerala SACS.

1) We convened the redressal committee for ART during March. We invited the

Presidents of three State level Positive networks for the meeting.

In Kerala there are three major state level networks: CPK+, KPWN+ and NNP+. 

Wherever we need to address the concerns of PLHIV, the inputs from the community

is a must.

In a meeting where there are Superindents of Medical College Hospitals, the

presence of PLHIV members will also help as an eye opener for those who have not

met PLHIVs so far. GIPA coordinator is also invited for this meeting.

2) In order to strengthen the GIPA activities, in Kerala we have initiated a

coordination committee for the PLHIV networks. This committee will meet every

quarter and understand the needs of the PLHIV in the State.  GIPA coordinator is

the convener of this committee.

The details can be had from our website www.ksacs.in

3) In order to develop a strategy for ensuring better service for PLHIV in the

State we conducted a one day workshop inviting the network representatives from

the districts and DiC staff. Inputs were taken from them to develop the

strategy.

The strategy envisages a three year action plan for KSACS to provide better

services for PLHIV community.

The report of the workshop and photographs are made available in the website

www.ksacs.in  The strategy will be made available soon.

Thanks and Regards

Ajai

--

S.Ajai Kumar

Joint Director IEC

Kerala SACS

Red Cross Road

Thiruvananthapuram - 35

Kerala, India

e-mail: <ajai.ksacs@...>