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Re: AIDS drives a family to commit suicide in Gujarat

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Dear Forum,

 

Re: /message/10081

Rama needs to be thanked for mooting the issue in the forum.

 

Most of these most unfortunate developments are a culmination of a series of

undercurrents of stigma and discrimination fuelled by the misconceptions which

are still prevalent after decades of the advent of the epidemic and resonable

responses from the different stakeholders.

 

The need is to rededicate ourselves in pursuits like positive speaker bureau

activities, strengthening of socio-psychological support for the PLHIV besides

working for strengthening the income generation activities and faciltating a

meaningful insurance scheme for them which may reduce the likelihood of such

cases.

 

Prevalent recession,retrenchments and rising dearness, however ,may worsen the

milieu predispossing the vulnerable irrespective of the serostatus to take such

drastic steps.

 

An active involvment of the networks and the GIPA coordinators (now in place in

most of the states) may tide over the situation which is emerging like a crrisis

at this time by the follwing suggested MAP model for them.

 

We must faciltate helplines and crisis management cells specially dedicated to

prevention of suicides through effective counselling and ensuring of linkages

for faciltation of services.

 

Early identification of danger signs which must be picked by by the counsellors,

network and civil society at large by increasing the outreach of regular

counselling and follow up services has to be ensured.It may sound difficult at

the moment because of several constraints but is definitely doable. Let us

reinvigorate our

endeavours accordingly.

______________

MAP approach for GIPA (Greater Involvement of People Living with HIV/AIDS)

 

GIP coordinators must ensure for themselves and the PLHIV

Meaningful Roles,

Active Participation in and

Proactive facilitation of the entire continuum of activities for prevention,

care, support and treatment under all the components of the National AIDS

Control Programme-Phase III including (but not limited to):-

Prevention of new infection (TIs, ICTC,STD clinics, Blood Safety etc.)through

effective counselling,adequate follow up and sustainabilty of changed behaviour 

Care, support and treatment (ART,OI, Psycho-social Support, legal support,

income generation programmes )

Surveillance, studies, Operations Research etc.

Monitoring and Evaluation/Strategic Information Management

Active contribution in Policy formulation/revision and all the planning

activities.

Zero tolerance for stigma and discrimination faced by the PLHIV and/or core

population

Facilitation of myriad activities in accordance with the NACO guidelines and

directives besided working for income generation activities and faciltating

insurance in liasion with the SACS.

 

Best wishes,

Dr.Rajesh Gopal.

Dr. Rajesh  Gopal,MD

Joint  Director,

Gujarat  State  AIDS  Control  Society (GSACS),

O/1 Block, New  Mental Hospital  Complex,

Meghaninagar, Ahmedabad, Gujarat.

PIN 380016 Phone (O) 079-22680211--12--13,22685210

Fax 079-22680214

e-mail: <dr_rajeshg@...>

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Dear Forum,

Re: /message/10081

 

I would reiterate my request for formation of suicide prevention cells,collating

the meta-analysis of identifiction of risk factors in suicides/parasuicides

(from AIIMS,PGI,NIMHANS etc.), roping in psychologista and psychiatrists along

with faciltation of ways of income generation and insurance for the PLHIV in the

troubled time of recession aggravating the troubles for all.

 

Would like to share the report about the cited incident as communicated by the

GSNP+.

Report (17th March)

 

Deepakbhai had been an active member of the AP+(Association of Person Living

with HIV/AIDS-Vadodara)  since 7th January, 2008 . The AP+ is the district

Network of GSNP+ (Gujarat State Network of People Living with HIV/AIDS. The

GSNP+ is state Level network of people living with HIV/AIDS of Gujarat and

working to advocate the issues of people living with HIV of Gujarat.

 

When Deepakbhai came in contact with AP+, he had some family problems.  His

wife, Pannaben was very sick and living with her parents. Her parents did not

want to send her to her husband and also did not want to start her on

treatment.  Deepakbhai shared all these things with the counsellor of AP+.

Counsellor of AP+ organized counselling session on 31st March and 1st February,

2009 with Pannaben and her family members.  After this counselling session her

family agreed to send her to her husbandâ's home and also started her treatment.

AP+ advised Pannaben for registration at ART centre.  Doctor of ART centre

recommended for CD4 test and she got it done. Her CD4 count was 29 only and

doctor started her ART treatment. Deepakbhai attended every support Group

Meeting organized by AP+. 

GSNP+ conducted one paediatric medical camp with the support of Gujarat State

AIDS Control Society in all over Gujarat. AP+ informed to do the HIV testing of

his daughter in this camp.

Unfortunately both his daughters were found to be HIV positive.  When he knew

about HIV status of his children, he became nervous and depressed. AP+ did

registration of the both the daughters of Deepakbhai for CD4 count in this camp

and also explained Deepakbhai to get CD4 count done for his entire family and he

complied . (CD4 count of Deepakbhai 311, Pannaben 215, Divya (His elder

daughter) 744, Vaishnavi (His younger Daughter) 900)

Deepakbhai and her elder daughter started the ART from B.J. Medical College

Ahmedabad and transferred them to ART centre Vadodara on 26th February, 2009.

 

He was leading a happy life with his family till the time his factory workers

knew their HIV status as he disclosed HIV status of his family to his

colleagues. No workers were ready to work with him in his factory. It had a very

bad impact on his business. He shared this problem with AP+ and AP+ advised him

to give employment to uneducated HIV positive people and he did the same. He

worked actively again in his business.

 

But now he wanted to work for HIV positive people and he attended the interview

organized by District AIDS Prevention and control Unit (DAPCU) and he worked as

outreach worker in CHC, Por (Vadodara). He felt relaxed and got relieved from

his anxiety.

 

His wife never went outside alone but he came in the support group meeting alone

with her children. In this support group meeting AP+ distributed the gifts to

the children and AP+ also invited her children for children get to gather. She

and her children became very happy.

 

AP+ built the capacity of this family so that he joint in the job and her wife

came in support group meeting alone. AP+ supported them whenever need and guide

nicely and saw the path of positive Living.

 

GSNP+ and AP+ were not aware about this unfortunate incident.

A reporter of Indian Express informed Dr. Gaurang Jani (Professor, Sociology

Department, Gujarat University, Ahmedabad) and Dr. Jani informed Mr. Laxman

Meena (Vice President, GSNP+)

 

Mr. Meena got all the information from the Indian Express and verified the news

from AP+. AP+ sent one volunteer to know the truth about the incident and he

verified that this news is truth.

 

Bharatbhai (Volunteer of AP+) shared with Laxman Meena that he met Deepakbhai

before two days ago of his death. Deepakbhai shared that their another family

member wanted his property and every day they tormented him for his property.

Deepakbhai said Bharatbhai that he was not disheartened about his HIV status but

he was disappointed that if he died  then what would happen with his wife and

children.

 

AP+had  advised him to meets the lawyers(with whom GSNP= has signed memoranda

for provision of free legal services) and make a will for the children and write

your property and assets in  the name of his children.

 

On 19th March, AP+ conducted meeting of board members and staff and finalized

some strategy to reduce such  types of incidents.  AP+ organized meeting with

all the media partners of Vadodara and sensitized them for giving positive

messages and utilize appropriate terminology so that people living with HIV can

live long and healthy lives AP+ also decided that they will give more focus on

positive living in counselling session as well as in the support group meetings

so as to  reduce such incidents.

Whenever any HIV infected person thinks about or attempts suicide, we always

think about this as an impact of HIV/AIDS alone but we never think that HIV

positive person is also a common man and he has also lots of other problems like

any other common man. We should try to determine the reality and find solutions

rather than starting a blame game against each other.

 

Best wishes,

Rajesh Gopal.

Dr. Rajesh  Gopal,MD

Joint  Director,

Gujarat  State  AIDS  Control  Society (GSACS),

O/1 Block, New  Mental Hospital  Complex,

Meghaninagar,Ahmedabad, Gujarat.

PIN 380016 Phone (O) 079-22680211--12--13,22685210 Fax 079-22680214

e-mail: <dr_rajeshg@...>

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