Leukemia

November 11, 1998

Re: Leukemia

> Janice, YES... there is something...it is reimburseable by Medicare /

> Medicaid for nutritional support....and has the side benefit of being the

> most potent immune support product I have ever seen on the market and yet

is

> natural....Don't ignore this product...it is being used in many hospitals

and

> clinics and is widely accepted by holistic practitioners and Medical

doctors

> alike.......Info follows:

>

> The purpose of this letter is to inform you of a product that you should

be

> very interested in knowing about. It is a whey protein isolate called

> Immunocal. It is manufactured by Immunotec Research in Quebec, Canada and

was

> originally developed as a pharmaceutical but is now available as a

> nutritional supplement in North America. It is backed by extensive

clinical

> research including phase II and III clinical trials and has 8 method of

use

> (pharmaceutical type) patents including two for use in TREATMENT of CANCER

in

> Australia and in the U.S.. In cancer it has several benefits. The first

> benefit is that it optimizes and sustains levels of GLUTATHIONE in the

cells

> and thus has the benefit of being the bodies most powerful antioxidant,

and

> also regulates the other antioxidants. The second benefit is as the

bodies

> major detoxifier. It binds with and eliminates carcinogens, toxic

metabolites

> and poisons from the body. The third major benefit is that glutathione is

an

> integral part of the immune response and as such increases counts and

> activity of the cancer killing NK cells. Research can be found on

Medline;

> search word: Immunocal. There are over 300 medical abstracts on Immunocal

and

> how it relates to HIV, Cancer and Aging. On March 30th, 1999 Immunocal

was

> granted a pharmaceutical type patent for Treatment of Cancer IN THE U.S.!

>

> In addition to the Clinical Trials, and Patents, Immunocal has also met

the

> criteria for Major Medical Reimbursement Coverage! If you would like more

> information concerning this " Miracle " product or would like to hear my

> personal testimony , check out our website at

> www.immuneresponse.net/go/paragon , then call me at 800-621-7225 or email

me

> at paragonws@.... Call me as soon as you can....time is of the

essence.

>

> Sincerely,

>

> Tony Luboff

>

> ------------------------------------------------------------------------

> A shopper's dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

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>

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>

> -- Talk to your group with your own voice!

> -- VoiceChatPage?listName=cures for cancer & m=1

>

November 11, 1998

Re: Leukemia

> Janice, YES... there is something...it is reimburseable by Medicare /

> Medicaid for nutritional support....and has the side benefit of being the

> most potent immune support product I have ever seen on the market and yet

is

> natural....Don't ignore this product...it is being used in many hospitals

and

> clinics and is widely accepted by holistic practitioners and Medical

doctors

> alike.......Info follows:

>

> The purpose of this letter is to inform you of a product that you should

be

> very interested in knowing about. It is a whey protein isolate called

> Immunocal. It is manufactured by Immunotec Research in Quebec, Canada and

was

> originally developed as a pharmaceutical but is now available as a

> nutritional supplement in North America. It is backed by extensive

clinical

> research including phase II and III clinical trials and has 8 method of

use

> (pharmaceutical type) patents including two for use in TREATMENT of CANCER

in

> Australia and in the U.S.. In cancer it has several benefits. The first

> benefit is that it optimizes and sustains levels of GLUTATHIONE in the

cells

> and thus has the benefit of being the bodies most powerful antioxidant,

and

> also regulates the other antioxidants. The second benefit is as the

bodies

> major detoxifier. It binds with and eliminates carcinogens, toxic

metabolites

> and poisons from the body. The third major benefit is that glutathione is

an

> integral part of the immune response and as such increases counts and

> activity of the cancer killing NK cells. Research can be found on

Medline;

> search word: Immunocal. There are over 300 medical abstracts on Immunocal

and

> how it relates to HIV, Cancer and Aging. On March 30th, 1999 Immunocal

was

> granted a pharmaceutical type patent for Treatment of Cancer IN THE U.S.!

>

> In addition to the Clinical Trials, and Patents, Immunocal has also met

the

> criteria for Major Medical Reimbursement Coverage! If you would like more

> information concerning this " Miracle " product or would like to hear my

> personal testimony , check out our website at

> www.immuneresponse.net/go/paragon , then call me at 800-621-7225 or email

me

> at paragonws@.... Call me as soon as you can....time is of the

essence.

>

> Sincerely,

>

> Tony Luboff

>

> ------------------------------------------------------------------------

> A shopper's dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> Visit http://cures for cancer.evangelist.net for cancer info or to unsubscribe

>

> -- Talk to your group with your own voice!

> -- VoiceChatPage?listName=cures for cancer & m=1

>

November 11, 1998

Tony, I read your letter to Janice about Immunocal and am interested in the

fact that you say it is reimbursible by Medicare. Are you positive about

that as I am fighting breast cancer return and I have medicare and would

take a product like this but cannot afford it. Are you saying I would have

to put out the money up front to order it and then try to convince them to

reimburse me and out of the total cost how much do they reimburse? These are

critical questions that I'd appreciate knowing the answers to if you in fact

know the answers. Thanks Judy

Re: Leukemia

> Janice, YES... there is something...it is reimburseable by Medicare /

> Medicaid for nutritional support....and has the side benefit of being the

> most potent immune support product I have ever seen on the market and yet

is

> natural....Don't ignore this product...it is being used in many hospitals

and

> clinics and is widely accepted by holistic practitioners and Medical

doctors

> alike.......Info follows:

>

> The purpose of this letter is to inform you of a product that you should

be

> very interested in knowing about. It is a whey protein isolate called

> Immunocal. It is manufactured by Immunotec Research in Quebec, Canada and

was

> originally developed as a pharmaceutical but is now available as a

> nutritional supplement in North America. It is backed by extensive

clinical

> research including phase II and III clinical trials and has 8 method of

use

> (pharmaceutical type) patents including two for use in TREATMENT of CANCER

in

> Australia and in the U.S.. In cancer it has several benefits. The first

> benefit is that it optimizes and sustains levels of GLUTATHIONE in the

cells

> and thus has the benefit of being the bodies most powerful antioxidant,

and

> also regulates the other antioxidants. The second benefit is as the

bodies

> major detoxifier. It binds with and eliminates carcinogens, toxic

metabolites

> and poisons from the body. The third major benefit is that glutathione is

an

> integral part of the immune response and as such increases counts and

> activity of the cancer killing NK cells. Research can be found on

Medline;

> search word: Immunocal. There are over 300 medical abstracts on Immunocal

and

> how it relates to HIV, Cancer and Aging. On March 30th, 1999 Immunocal

was

> granted a pharmaceutical type patent for Treatment of Cancer IN THE U.S.!

>

> In addition to the Clinical Trials, and Patents, Immunocal has also met

the

> criteria for Major Medical Reimbursement Coverage! If you would like more

> information concerning this " Miracle " product or would like to hear my

> personal testimony , check out our website at

> www.immuneresponse.net/go/paragon , then call me at 800-621-7225 or email

me

> at paragonws@.... Call me as soon as you can....time is of the

essence.

>

> Sincerely,

>

> Tony Luboff

>

> ------------------------------------------------------------------------

> A shopper's dream come true! Find practically anything on earth at eBay!

> Come and browse the more than 2 million items up for bid at any time.

> You never know what you might find at eBay!

> http://clickhere./click/1140

>

> Visit http://cures for cancer.evangelist.net for cancer info or to unsubscribe

>

> -- Talk to your group with your own voice!

> -- VoiceChatPage?listName=cures for cancer & m=1

>

November 10, 1999

Janice, YES... there is something...it is reimburseable by Medicare /

Medicaid for nutritional support....and has the side benefit of being the

most potent immune support product I have ever seen on the market and yet is

natural....Don't ignore this product...it is being used in many hospitals and

clinics and is widely accepted by holistic practitioners and Medical doctors

alike.......Info follows:

The purpose of this letter is to inform you of a product that you should be

very interested in knowing about. It is a whey protein isolate called

Immunocal. It is manufactured by Immunotec Research in Quebec, Canada and was

originally developed as a pharmaceutical but is now available as a

nutritional supplement in North America. It is backed by extensive clinical

research including phase II and III clinical trials and has 8 method of use

(pharmaceutical type) patents including two for use in TREATMENT of CANCER in

Australia and in the U.S.. In cancer it has several benefits. The first

benefit is that it optimizes and sustains levels of GLUTATHIONE in the cells

and thus has the benefit of being the bodies most powerful antioxidant, and

also regulates the other antioxidants. The second benefit is as the bodies

major detoxifier. It binds with and eliminates carcinogens, toxic metabolites

and poisons from the body. The third major benefit is that glutathione is an

integral part of the immune response and as such increases counts and

activity of the cancer killing NK cells. Research can be found on Medline;

search word: Immunocal. There are over 300 medical abstracts on Immunocal and

how it relates to HIV, Cancer and Aging. On March 30th, 1999 Immunocal was

granted a pharmaceutical type patent for Treatment of Cancer IN THE U.S.!

In addition to the Clinical Trials, and Patents, Immunocal has also met the

criteria for Major Medical Reimbursement Coverage! If you would like more

information concerning this " Miracle " product or would like to hear my

personal testimony , check out our website at

www.immuneresponse.net/go/paragon , then call me at 800-621-7225 or email me

at paragonws@.... Call me as soon as you can....time is of the essence.

Sincerely,

Tony Luboff

November 11, 1999

Judy

Tony tells no lies. This is re-imbursable by medeicare and medicade as

of January of this years. I live in Canada and we don't have that

option here, even though I do know of folks who have convinced the

insurance company that this would be worth there while. It really

depends on the type of coverage that you have and I have told people

this and the type of insurance they have with medicade doesn't cover

them. Hopefully your's does Judy, I am going to pray that you do. It is

definitly worth looking into

In my opinion and everything I have learned these last two year. Cancer

is BAD CELLS and the only way to correct the problem within the cells,

is to nurish them with a product called Immunocal. This protein in your

cells called glutathione is no less important then your DNA. They both

have their place and their job within our body. All these things that

we are able to do to try and help ourselves fight cancer are wonderful

tools, but if you don't correct what Science knows about this protein

called glutathione if you don't give the cells the necessary building

blocks, your bodies own built in protector glutathione cannot possibly

do what it is supposed to and disease and sickness is inevitable. This

I believe is why some people get well for awhile but the cancer keeps

coming back. Give your cells the opportunity to have the building

blocks for gluathione and you have the greatest fight going on. Your

own body at work trying to save you.

Debbie

" u-man " <uno-ma-@...> wrote:

original article:cures for cancer/?start=3625

> Tony, I read your letter to Janice about Immunocal and am interested

in the

> fact that you say it is reimbursible by Medicare. Are you positive

about

> that as I am fighting breast cancer return and I have medicare and

would

> take a product like this but cannot afford it. Are you saying I would

have

> to put out the money up front to order it and then try to convince

them to

> reimburse me and out of the total cost how much do they reimburse?

These are

> critical questions that I'd appreciate knowing the answers to if you

in fact

> know the answers. Thanks Judy

> Re: Leukemia

>

> > Janice, YES... there is something...it is reimburseable by Medicare

/

> > Medicaid for nutritional support....and has the side benefit of

being the

> > most potent immune support product I have ever seen on the market

and yet

> is

> > natural....Don't ignore this product...it is being used in many

hospitals

> and

> > clinics and is widely accepted by holistic practitioners and Medical

> doctors

> > alike.......Info follows:

> >

> > The purpose of this letter is to inform you of a product that you

should

> be

> > very interested in knowing about. It is a whey protein isolate

called

> > Immunocal. It is manufactured by Immunotec Research in Quebec,

Canada and

> was

> > originally developed as a pharmaceutical but is now available as a

> > nutritional supplement in North America. It is backed by extensive

> clinical

> > research including phase II and III clinical trials and has 8

method of

> use

> > (pharmaceutical type) patents including two for use in TREATMENT of

CANCER

> in

> > Australia and in the U.S.. In cancer it has several benefits. The

first

> > benefit is that it optimizes and sustains levels of GLUTATHIONE in

the

> cells

> > and thus has the benefit of being the bodies most powerful

antioxidant,

> and

> > also regulates the other antioxidants. The second benefit is as the

> bodies

> > major detoxifier. It binds with and eliminates carcinogens, toxic

> metabolites

> > and poisons from the body. The third major benefit is that

glutathione is

> an

> > integral part of the immune response and as such increases counts

and

> > activity of the cancer killing NK cells. Research can be found on

> Medline;

> > search word: Immunocal. There are over 300 medical abstracts on

Immunocal

> and

> > how it relates to HIV, Cancer and Aging. On March 30th, 1999

Immunocal

> was

> > granted a pharmaceutical type patent for Treatment of Cancer IN THE

U.S.!

> >

> > In addition to the Clinical Trials, and Patents, Immunocal has also

met

> the

> > criteria for Major Medical Reimbursement Coverage! If you would

like more

> > information concerning this " Miracle " product or would like to hear

my

> > personal testimony , check out our website at

> > www.immuneresponse.net/go/paragon , then call me at 800-621-7225 or

email

> me

> > at paragonws@.... Call me as soon as you can....time is of the

> essence.

> >

> > Sincerely,

> >

> > Tony Luboff

> >

November 11, 1999

Thank you, Melinda Wiman--

Your postings are always a pleasure to read--accurate, precise, pertinent,

and to the point.

Rosy

November 11, 1999

Hello Janice, I have had friends treat their loved ones when they visited,

and do group prayer work for them(given Essiac Tea and etc). I donot

beleive most Hospitals would be open to it. Only the Doctor, if he is open

minded enough, could order specific therapies. I will add her to my prayer

list. Blessings to her and your family. Liz

At 02:06 AM 11/11/1999 EST, you wrote:

>A couple of days ago I wrote asking for suggestions with regard to my friend

>who was diagnosed with Acute Leukemia AML. She has been in the hospital for

>about the past one and one-half to two weeks, and I just heard from her

>husband that she has double pneumonia with little hope of overcoming this

due

>to low white blood cell counts plus Leukemic blast cells amounting to 90%

>plus. She is also unable to keep any food down, has no appetite, has

>vomiting and diarrhea. Are there any alternatives that a hospital would

>allow administered while she is there? Do you think there is any chance of

>Dr. Whitaker's program being accepted by the hospital? Any suggestions?

>

>If you have any answers, please let me know. Thanks.

>

>Janice

>

>------------------------------------------------------------------------

>Imagine a credit card with a 0% Intro APR and Instant Approval…

>It seems impossible, but it’s not. Visit GetSmart.com’s Credit Card

>Finder and click on instant approval cards right now at

>http://clickhere./click/1269

>

>Visit http://cures for cancer.evangelist.net for cancer info or to unsubscribe

>

>-- 20 megs of disk space in your eGroup's Document Vault

>-- docvault/cures for cancer/?m=1

>

November 11, 1999

See if Dr. Gold can help. Dr. Gold is well known for hydrazine sulfate,

which is something that doctors may want to consider. Go to:

http://www.wellweb.com/CANCER/Consultations/cancerconsult.htm for more info.

Melinda Wiman

www.cancure.org

Re: Leukemia

Hello Janice, I have had friends treat their loved ones when they visited,

and do group prayer work for them(given Essiac Tea and etc). I donot

beleive most Hospitals would be open to it. Only the Doctor, if he is open

minded enough, could order specific therapies. I will add her to my prayer

list. Blessings to her and your family. Liz

At 02:06 AM 11/11/1999 EST, you wrote:

>A couple of days ago I wrote asking for suggestions with regard to my

friend

>who was diagnosed with Acute Leukemia AML. She has been in the hospital

for

>about the past one and one-half to two weeks, and I just heard from her

>husband that she has double pneumonia with little hope of overcoming this

due

>to low white blood cell counts plus Leukemic blast cells amounting to 90%

>plus. She is also unable to keep any food down, has no appetite, has

>vomiting and diarrhea. Are there any alternatives that a hospital would

>allow administered while she is there? Do you think there is any chance of

>Dr. Whitaker's program being accepted by the hospital? Any suggestions?

>

>If you have any answers, please let me know. Thanks.

>

>Janice

>

>------------------------------------------------------------------------

>Imagine a credit card with a 0% Intro APR and Instant Approval…

>It seems impossible, but it’s not. Visit GetSmart.com’s Credit Card

>Finder and click on instant approval cards right now at

>http://clickhere./click/1269

>

>Visit http://cures for cancer.evangelist.net for cancer info or to unsubscribe

>

>-- 20 megs of disk space in your eGroup's Document Vault

>-- docvault/cures for cancer/?m=1

>

------------------------------------------------------------------------

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You never know what you might find at eBay!

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-- vote?listname=cures for cancer & m=1

September 18, 2000

I will post some evidence in several messages concerning Leukemia.

Of course, there are different kinds of Leukemia.

Hi,

I am reproducing Marie White's letter exactly as it was written to me.

What he does not say is that when they came out to visit us and talk about

the use of the Flaxseed Oil he was given less than two weeks to live at that

time. He was spending most of his time in a wheelchair.

Cliff

Mr. Beckwith, I am listing Eursal's " testimony " below. Feel free to cut any

portion that you may feel isn't worth repeating! I tend to become very

" chatty " when writing [or talking!]. Ha! Marie White

From Eursal white

I was diagnosed with Chronic Lymphocytic Leukemia in June, 1997. I was told

that CLL is the slowest acting form of Leukemia, but, unlike other forms, it

would never go into remission. I was also told to wait as long as possible

before starting chemotherapy simply because the more you take the more you

have to take and the chemo often kills you before the Leukemia does.

Unfortunately, I had to take my first chemotherapy treatment in November of

1997. I did really well for one year and then had to repeat it. The second

treatment in November, 1998 went against me. My body quit making blood. I

had blood transfusions about every two weeks until February when my own

blood developed anti-bodies that couldn't be matched. A bone marrow biopsy

that same month confirmed large tumors in the bone marrow showing very

little red blood. I was given a total of four units of unmatched blood on

February 19 & 20 and then started another regimen of a different chemo drug.

My doctor suggested 4-6 treatments of the new drug to be taken 3 weeks

apart.

During this time I had to get some work done on my car and the mechanic who

serviced it told ;me about flaxseed oil and cottage cheese. He put me in

touch with Cliff Beckwith who discussed in great detail the benefits of the

combination of flaxseed oil and cottage cheese. Mr. Beckwith then sent me

one of his tapes which was very interesting and informative.

My wife searched the Internet for information on Dr. Budwig and her winning

combination. After evaluating all the information we had gathered, we made

the decision to try the flaxseed oil. I added this to my diet following my

second chemo treatment. When I went for my third chemo treatment, my blood

work was looking better. When I went back for my fourth chemo treatment,

the blood work was really looking great. The doctor suggested at that point

we discontinue chemo for a while to which I heartily agreed.

I continue to take the flaxseed oil/cottage cheese daily. After nine

months, my white blood count remains under 20,000 and I feel great. I

praise God for sending Mr. Beckwith into my life and making me aware of Dr.

Johann Budwig's research. I tell everyone what this combination has done

for me and recommend it to everyone I meet, especially to cancer victims.

leukemia

Can anyone please tell me if they've had any experiences with leukemia, and

what they've found to work for this? I was also wondering if the flax-oil

cottage cheese mixture would work for this. Thanks for all of your help,

whenever I ask! We are so blessed to have so many wonderful people out

there to help us when in need. Thanks millions!!!!!!

your friend,

September 18, 2000

Thanks much, Cliff! You would not believe how this came to me at THEE

PERFECT time! If I can ever do anything for you, let me know! You are a

GOD-SEND!!!!

Your friend,

leukemia

>

> Can anyone please tell me if they've had any experiences with leukemia,

and

> what they've found to work for this? I was also wondering if the flax-oil

> cottage cheese mixture would work for this. Thanks for all of your help,

> whenever I ask! We are so blessed to have so many wonderful people out

> there to help us when in need. Thanks millions!!!!!!

> your friend,

>

> Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

January 12, 2002

One of the families in our local support group had a daughter with DS who

just before her 2nd Birthday was diagnosed with leukemia and she died just

this past June. She was just over 3. And she changed the hearts of many

people in a very short time. Her family is remarkable and I treasure their

friendship and I will always hold Riely in my heart. I do not know the exact

statistics but our kids with Ds have a higher chance of developing leukemia

and so 's Dr. has her screened once a year.

Laurie mom to 2yrs (DS) and four other girls 13,7,5,and 4

January 13, 2002

In a message dated 1/12/2002 9:59:39 PM Central Standard Time,

Laneville5@... writes:

> One of the families in our local support group had a daughter with DS who

> just before her 2nd Birthday was diagnosed with leukemia and she died just

> this past June. She was just over 3. And she changed the hearts of many

> people in a very short time. Her family is remarkable and I treasure their

> friendship and I will always hold Riely in my heart. I do not know the

> exact

> statistics but our kids with Ds have a higher chance of developing

> leukemia

> and so 's Dr. has her screened once a year.

> Laurie mom to 2yrs (DS) and four other girls 13,7,5,and 4

Hi Laurie

I don't know the stats for leukemia but I do know this was a fear I carried

for years...with Sara. Then at age 7 Sara was DX with epilepsy and my world

was upside down. I've always handled the DS good but uggg a medical DX was

scary. I used to read the obits daily until I read about kids dying from

seizures. Seizures scar the brain

Today we take one day at a time and I count my blessings.........even when

Sara calls me a " jerk face " heehee

Kathy mom to Sara 10.............Sara now tells me when I say " yes " to her

requests......... " I knew you loved me " ahhhhhhh

January 13, 2002

b4alltoday@... wrote:

>

> In a message dated 1/12/2002 9:59:39 PM Central Standard Time,

> Laneville5@... writes:

>

> Today we take one day at a time and I count my blessings.........even when

> Sara calls me a " jerk face " heehee

I am a worrier and one that always imagines the worst case scenerio and

then dwells on it until I'm convinced that this will happen to me. This

is not

a good way to live. I could scare myself so bad that after a while, I'd

be paralyzed with fear. Unfortuneately, we do live in a very stressful

and dangerous world, but the one day at a time and the count your

blessings works

very well for me...and a good sense of humor helps tremendously if you

can maintain one.

>

January 13, 2002

Here's an off the top of my head summary. First, there is an increasing

diagnosis of pre-leukemia in infants with down syndrome. This usually

clears up on its own, but sometimes leads to AML in young children. I

believe that the increase in diagnosis largely comes from looking

rather than any change in the frequency. AML seems about 20 times more

common in young children with down syndrome, but it also seems more

responsive to treatment than with similar aged children without

leukemia.

By about 10, the most common leukemia seems to be ALL and the frequency

is not so dramatically elevated.

My daughter, now 29, is undergoing treatment for AML. The doctors are

optimistic that she will achieve long term remission and we're hoping

that they are right. She has taken this disease as she did other

medical problems of the past 18 months as well as any human could.

She's been cheerful even when things were very bad.

That said, I have lost two good friends to leukemia. One had down

syndrome and died in her early 20's. The other was a NDA friend at work

who passed away in his mid fifties. I miss them both but have to relish

the times I had with them.

Rick dad to Jan

January 13, 2002

We have had quite a few children in our area come down with leukemia and I

have attended more funerals than I ever imagined I would.

One of our families was so appreciative of all that we did for them while

they were in the throes of dealing with the diagnosis, the treatment and

ultimately the death of their young one, that the mom remained active with

our support group as the hospitality chair, scheduling meal delivery to

families in need because their child was hospitalized.

At her daughter's funeral, some people in the row in front of us ( a group of

local support group moms) said, (loud enough for us and the mom to hear)

" well this is all for the best. " (meaning the death of the child with DS)

The mom said she when she turned upon hearing that and saw our faces behind

the people, she knew great comfort in seeing all of us who were mourning for

the loss of her child and recognized the value of her life.

Cheryl in VA

January 17, 2002

In a message dated 1/17/2002 4:25:31 PM Eastern Standard Time,

Tubafour@... writes:

<< The thought of this is so terrifying to me. is the only natural

child out of 4 that I have left and there is no one who would match him for

transplant. We check his CBC and thyroid religiously. >>

I know what you mean Elaine. It's the same with Liam. He's my only child.

When he was 10 months old or so, both the pediatrician and I were very

nervous because he didn't seem to have an immune system at all. I'll never

forget waiting for those test results. For anyone who's curious it's a CBC

and a differential, I was told, that tests for it.

Kathy, Liam's mom (3 1/2)

January 17, 2002

Something really ironic ... I had Stefanie's yearly bloodwork include

leukemia tests since birth. WHen she turned 16 our doc said chances are so

slim, no need to continue test. Ok by me. Two months later one of our

neighbor's (age 16, non DS)

comes down with wicked leukemia, spends two years in and out of hospital

doing chemo etc ( in remission now)

Cheryl in VA

January 17, 2002

The thought of this is so terrifying to me. is the only natural

child out of 4 that I have left and there is no one who would match him for

transplant. We check his CBC and thyroid religiously.

Elaine

Re: leukemia

> We have had quite a few children in our area come down with leukemia and I

> have attended more funerals than I ever imagined I would.

> One of our families was so appreciative of all that we did for them while

> they were in the throes of dealing with the diagnosis, the treatment and

> ultimately the death of their young one, that the mom remained active with

> our support group as the hospitality chair, scheduling meal delivery to

> families in need because their child was hospitalized.

> At her daughter's funeral, some people in the row in front of us ( a group

of

> local support group moms) said, (loud enough for us and the mom to hear)

> " well this is all for the best. " (meaning the death of the child with DS)

> The mom said she when she turned upon hearing that and saw our faces

behind

> the people, she knew great comfort in seeing all of us who were mourning

for

> the loss of her child and recognized the value of her life.

> Cheryl in VA

>

June 13, 2002

Sue,

There is good news and there is bad news. The good news is the more

important.

There is a very significantly higher chance of leukemia with young

children with down syndrome. That said, the odds for survival are

significantly better for children with leukemia than for those without.

See, there is some health benefit to having down syndrome.

I'm on the other end dealing with leukemia in an adult. This is much

less common and even more frightening. At this point, Jan has been

declared to be in remission. We're calling it cured, although we know

that she is only back to the pre-leukemia stage and it certainly may

come back sometime.

If Jan stays healthy, I'm thinking about doing a fund-raiser for the

Leukemia Society next summer. Jan has said that she would like to go

back and climb Half Dome in Yosemite again. That was a pretty big feat,

but looking at how well she is doing, it may well be possible. I'm in

negotiation with the Leukemia and Lymphoma Society and it if all pans

out, I might come on-line and ask for a modest level of support for this

young woman. She will have a climbing support team consisting of family

and friends. If necessary, I'll work with the Park Service to ensure

that we can have adequate space for our high camp. They limit the

numbers there and it can be competitive to get the hike-in campground

space.

The Leukemia Society has a reasonable chance of getting the 'cure'. A

whole lot of progress has been made in recent years. Not so for down

syndrome where the 'cure' is to kill the child through abortion. Sigh!

People will never know what they have missed.

Rick

June 14, 2002

Our ped mentioned that because Tim had a severe leukemoid (sp?) reaction at

birth, his chances of developing leukemia are much higher than that of a child

with Down syndrome. I had understood that the risk lessened as he got older,

but the ped thinks not.

Any ideas?

re: leukemia