New Symptoms

[Guest guest]

I don't know very much about Candida. I have taken lots of antibiotics

throughout my life, ever since I was a kid. Sometimes I have taken them for

one to two week periods two or three times in a year. When I was 15 I was

put on corticoids for some time (perhaps 10 days). Again when I was 21. My

first digestive problems (and frequent diarrhea bouts) date to the time when

I was 24. Then my younger brother passed away unexpectedly and I was in

distress for quite some time. That acted like a trigger for a worsening of

the symptoms. Every now and then the disorders have subsided only to

reappear later. Now I'm 39 and I'm sick of the situation. What's worse,

since I started the nearly vegetarian diet and began to take some herbal

remedies I have developed other symptoms, like the dry throat, a (false)

feeling that I can't take in air well, muscular discomfort, dizziness and a

foggy mind (well this is not new but it has gotten worse now).

----------

>From: " Ann " <ann.williams@...>

>candidiasisegroups

>Subject: Re: New to group

>Date: vier., 5 ener 2001 11:47

>

> Paco - that sounds like candida to me!! Do you have any idea what

> started it? Have you ever taken antibiotics or steroids of any sort?

>

> You're in the right place now - this group is a wealth of support and

> information!

>

> Best wishes,

> Ann

>

[Guest guest]

Thanks a lot for answering.

I don't know very much about Candida. I have taken lots of antibiotics

throughout my life, ever since I was a kid. Sometimes I have taken them for

one to two week periods two or three times in a year. When I was 15 I was

put on corticoids for some time (perhaps 10 days). Again when I was 21. My

first digestive problems (and frequent diarrhea bouts) date to the time when

I was 24. Then my younger brother passed away unexpectedly and I was in

distress for quite some time. That acted like a trigger for a worsening of

the symptoms. Every now and then the disorders have subsided only to

reappear later. Now I'm 39 and I'm sick of the situation. What's worse,

since I started the nearly vegetarian diet and began to take some herbal

remedies I have developed other symptoms, like the dry throat, a (false)

feeling that I can't take in air well, muscular discomfort, dizziness and a

foggy mind (well this is not new but it has gotten worse now). However,

there are days when I feel so much healthier than before. Does all this make

any sense? To me it's so weird! I am not myself any more.

----------

>From: " Ann " <ann.williams@...>

>candidiasisegroups

>Subject: Re: New to group

>Date: vier., 5 ener 2001 11:47

>

> Paco - that sounds like candida to me!! Do you have any idea what

> started it? Have you ever taken antibiotics or steroids of any sort?

>

> You're in the right place now - this group is a wealth of support and

> information!

>

> Best wishes,

> Ann

>

[Guest guest]

Sorry this message was duplicated. This is the full version. The first one

was accidentally clipped.

----------

>From: " Paco " <franruiz@...>

>candidiasisegroups

>Subject: Re: New symptoms

>Date: sáb., 6 ener 2001 01:38

>

> Thanks a lot for answering.

> I don't know very much about Candida. I have taken lots of antibiotics

> throughout my life, ever since I was a kid. Sometimes I have taken them for

> one to two week periods two or three times in a year. When I was 15 I was

> put on corticoids for some time (perhaps 10 days). Again when I was 21. My

> first digestive problems (and frequent diarrhea bouts) date to the time when

> I was 24. Then my younger brother passed away unexpectedly and I was in

> distress for quite some time. That acted like a trigger for a worsening of

> the symptoms. Every now and then the disorders have subsided only to

> reappear later. Now I'm 39 and I'm sick of the situation. What's worse,

> since I started the nearly vegetarian diet and began to take some herbal

> remedies I have developed other symptoms, like the dry throat, a (false)

> feeling that I can't take in air well, muscular discomfort, dizziness and a

> foggy mind (well this is not new but it has gotten worse now). However,

> there are days when I feel so much healthier than before. Does all this make

> any sense? To me it's so weird! I am not myself any more.

>

> ----------

>>From: " Ann " <ann.williams@...>

>>candidiasisegroups

>>Subject: Re: New to group

>>Date: vier., 5 ener 2001 11:47

>>

>

>> Paco - that sounds like candida to me!! Do you have any idea what

>> started it? Have you ever taken antibiotics or steroids of any sort?

>>

>> You're in the right place now - this group is a wealth of support and

>> information!

>>

>> Best wishes,

>> Ann

>>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

> UNSUBSCRIBE !

>

[Guest guest]

The foggy mind is also known as " fibro fog " I owuld strigly suggest you

(meaning anyone reading this) look into Fibermyalgi as well, many doctors

belive and i belive have proeven that they 3 are the same basically. I have

been doinga lot of research on this. and it sounds to me more like fm all

the time.

-------

It's not that life's too short, it's that we're dead so long.

Re: New to group

>Date: vier., 5 ener 2001 11:47

>

> Paco - that sounds like candida to me!! Do you have any idea what

> started it? Have you ever taken antibiotics or steroids of any sort?

>

> You're in the right place now - this group is a wealth of support and

> information!

>

> Best wishes,

> Ann

>

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

Paco - you sound like a textbook recipe for 'how to get Candida'!

I'm sure this is your problem. The good news is that having

pinpointed your diagnosis is at least half the battle - now you can

get on and do something about it, with or without the help of your

doctor. I'd urge you to find a naturopathic doctor of some

description to help you along, if that's feasible.

Your new symptoms sound as if they could very well be die-off -

that's good news!! Horrible, yes, but it honestly means you're

getting better. Stick with it. Drink loads of filtered water - aim for 2

1/2 - 3 litres a day. That'll ease the die-off considerably by flushing

out the toxins from the dead guys. Effervescent vitamin C helps a

little as well.

Ann

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.willow-web.net Quality Web Design

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Fibromyalgia and candida are not the same thing. I have fibromyalgia, and

I've been treated for candida, and am currently testing candida free after a

year of intensive treatments. (Testing done by Great Smokies Lab,

kinesiology by my naturopath and blood tests) I've also spent a considerable

amount of time studying fibromyalgia and candida, and I'm on a dozen

different e-mail lists of knowledgeable people, and I've read too much

research information to conclude that candida and Fibromyalgia are the same

thing. " Fibro fog " and the brain fog that candida can cause are not

necessarily the same thing, either. Fibromyalgia can be caused by a number

of things OTHER than candida, including an intercellular viral infection,

exposure to toxins from pesticides and pollutants, autoimmune disorders and

genetics, among others. Based on your analysis, anyone with an autoimmune

disorder has " fibro fog " (because foggy mindedness accompanies just about

every autoimmune disorder) implying that anyone with foggy mindedness has

fibromyalgia, because foggy mindedness is associated with a host of

autoimmune disorders. The symptoms of fibromyalgia may have some overlap

with some of the autoimmune disorders, but heart burn and a heart attack may

have some overlapping symptoms, and it doesn't mean they are the same thing.

And although candida may be associated sometimes with autoimmune disorders,

many times it is not. Candida isn't the only cause of leaky gut, either. It

can also be caused by arsenic poisoning and other poisons (for example from

exposure to pressure treated wood sawdust), intercellular viral infections,

vaccine damage, and genetics, among others. Candida is an opportunistic

parasite that takes advantage of the altered conditions in the body, and

immune problems, and it can flourish when the body's conditions have been

altered. But it isn't always the cause of those conditions, nor is it always

present in significant amounts with someone with an autoimmune disorder. And

eliminating candida doesn't often eliminate the autoimmune disorders. It

certainly hasn't in my case. I think the sources you have for information

are not very accurate.

lindaj@...

Re: New to group

>Date: vier., 5 ener 2001 11:47

>

> Paco - that sounds like candida to me!! Do you have any idea what

> started it? Have you ever taken antibiotics or steroids of any sort?

>

> You're in the right place now - this group is a wealth of support and

> information!

>

> Best wishes,

> Ann

>

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

,

I too have Fibromyalgia and have to agree with you 100%! I think that candida

is just

another addition to the many things that people with FMS also suffer with. I

think its

only to be expected with the way the FMS attacks your immune system and I

honestly wish it

was as easy to control and cure and as Candida.

lindaj@... wrote:

> Fibromyalgia and candida are not the same thing. I have fibromyalgia, and

> I've been treated for candida, and am currently testing candida free after a

> year of intensive treatments. (Testing done by Great Smokies Lab,

> kinesiology by my naturopath and blood tests) I've also spent a considerable

> amount of time studying fibromyalgia and candida, and I'm on a dozen

> different e-mail lists of knowledgeable people, and I've read too much

> research information to conclude that candida and Fibromyalgia are the same

> thing. " Fibro fog " and the brain fog that candida can cause are not

> necessarily the same thing, either. Fibromyalgia can be caused by a number

> of things OTHER than candida, including an intercellular viral infection,

> exposure to toxins from pesticides and pollutants, autoimmune disorders and

> genetics, among others. Based on your analysis, anyone with an autoimmune

> disorder has " fibro fog " (because foggy mindedness accompanies just about

> every autoimmune disorder) implying that anyone with foggy mindedness has

> fibromyalgia, because foggy mindedness is associated with a host of

> autoimmune disorders. The symptoms of fibromyalgia may have some overlap

> with some of the autoimmune disorders, but heart burn and a heart attack may

> have some overlapping symptoms, and it doesn't mean they are the same thing.

> And although candida may be associated sometimes with autoimmune disorders,

> many times it is not. Candida isn't the only cause of leaky gut, either. It

> can also be caused by arsenic poisoning and other poisons (for example from

> exposure to pressure treated wood sawdust), intercellular viral infections,

> vaccine damage, and genetics, among others. Candida is an opportunistic

> parasite that takes advantage of the altered conditions in the body, and

> immune problems, and it can flourish when the body's conditions have been

> altered. But it isn't always the cause of those conditions, nor is it always

> present in significant amounts with someone with an autoimmune disorder. And

> eliminating candida doesn't often eliminate the autoimmune disorders. It

> certainly hasn't in my case. I think the sources you have for information

> are not very accurate.

>

>

> lindaj@...

>

> Re: New to group

> >Date: vier., 5 ener 2001 11:47

> >

>

> > Paco - that sounds like candida to me!! Do you have any idea what

> > started it? Have you ever taken antibiotics or steroids of any sort?

> >

> > You're in the right place now - this group is a wealth of support and

> > information!

> >

> > Best wishes,

> > Ann

> >

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

> UNSUBSCRIBE !

>

[Guest guest]

Good day Men,

   Can anyone tell me what the deep sweating 4 times a day is??? usually, 5-7

am, 2-3pm, 8-9,pm,  1-3 am.

    Also I have great nausea and disturbed bowel movement.  Likewise my hands

tremble and my handwriting quivers.

 In  Like manner sometimes my withered blossom gives me a 'presence of a

clitoris'  It is like I go from being male to female for a few minutes each

day.  This is a very weird feeling. 

 

Thank you!

 Justus Gent

[Guest guest]

Sweating, nausea, bowel upset, and hand tremor can be angina symptoms

also. Don't mean to freak you out with that, but something to consider.

I had those exact symptoms and was blown off by several doctors. Turned

out I had 100% blockage in my right coronary artery.

Have you had a thyroid and testosterone, estrogen levels checked, along

with basic labs? Had tremor can be thyroid as well.

Have you reported these symptoms to your doctor??

Neil

Verily Light wrote:

>

> Good day Men,

> Can anyone tell me what the deep sweating 4 times a day is???

> usually, 5-7 am, 2-3pm, 8-9,pm, 1-3 am.

> Also I have great nausea and disturbed bowel movement. Likewise

> my hands tremble and my handwriting quivers.

> In Like manner sometimes my withered blossom gives me a 'presence of

> a clitoris' It is like I go from being male to female for a few

> minutes each day. This is a very weird feeling.

>

> Thank you!

> Justus Gent

>

>

[Guest guest]

Thanks,   Two Fold Response.

I have low testosterone and have only been doing TRT for about 2 weeks.  Had

tests done 4 times in the last 2-3 months with testosterone ranging from

137-188. I had a MRI about 6/25 with nothing conclusive for the pituitary.  Phil

recommended the saliva test which I am purchasing on Friday. My TRT dose just

increased a little. But am waiting to restest 7/15 to give it some time in my

system.

I have low but in range FSH,LH, Cortisol and Prolaction, T3 is only 3.0L on

scale of 6.8-21.5

Will test Estrogen, Thyroid panel, Antabodies, Ferritin & Ferritin stress,

reverse T#, CBC and every other test Phil recommended. 

As my TRT results will still be low- I want to get into the HCG early..  How

should I help my primary dose me on HCG??  Is this in addition to my Testim or

in place of it???

  Since my Primary will assist in whatever I believe best.  Is there a reference

guide for my primary to check things out???   My endo is old school and easily

offended. I will have to find another.

Any suggestions for the Atlanta Georgia Metro area??   

ANGINA-  I will call my doctor.  Is there any thing else that stuck out with

your symptoms.

Re: New Symptoms

Sweating, nausea, bowel upset, and hand tremor can be angina symptoms

also. Don't mean to freak you out with that, but something to consider.

I had those exact symptoms and was blown off by several doctors. Turned

out I had 100% blockage in my right coronary artery.

Have you had a thyroid and testosterone, estrogen levels checked, along

with basic labs? Had tremor can be thyroid as well.

Have you reported these symptoms to your doctor??

Neil

Verily Light wrote:

>

> Good day Men,

> Can anyone tell me what the deep sweating 4 times a day is???

> usually, 5-7 am, 2-3pm, 8-9,pm, 1-3 am.

> Also I have great nausea and disturbed bowel movement. Likewise

> my hands tremble and my handwriting quivers.

> In Like manner sometimes my withered blossom gives me a 'presence of

> a clitoris' It is like I go from being male to female for a few

> minutes each day. This is a very weird feeling.

>

> Thank you!

> Justus Gent

>

>

[Guest guest]

There are occasions when I vomit randomly. I may sweat a great deal on occasion

too. Cramps are no fun but they come and go. To the forum I am more of the

exception than the rule but if you read the right books you will find these

symptoms listed. I have learned to just deal with them.

From: Verily Light <verilylight@...>

Subject: New Symptoms

Date: Wednesday, July 9, 2008, 12:44 PM

Good day Men,

   Can anyone tell me what the deep sweating 4 times a day is??? usually, 5-7

am, 2-3pm, 8-9,pm,  1-3 am.

    Also I have great nausea and disturbed bowel movement.  Likewise my hands

tremble and my handwriting quivers.

 In  Like manner sometimes my withered blossom gives me a 'presence of a

clitoris'  It is like I go from being male to female for a few minutes each

day.  This is a very weird feeling. 

 

Thank you!

 Justus Gent

[Guest guest]

Hello Tory,I'm sorry you are having to put up with more symptoms. Keep track of them so you can relate them to the Dr. It helps him pinpoint some of the issues to fix. I had the arm falling asleep, and later the legs. I noticed it usually happened in certain positions. The lower hip/back pain started most of my down hill slide, I went very fast from there. From first pain to surgery, about nine months. Many of the women here go years before it gets worse. And often they are able to use pain management to stave off surgery. Keep yourself flexible, work to keep that core strong. Listen to Cam.Best wishes-DyannFrom: dzinr1101 <dzinr1101@...>Subject: [ ] new symptoms Date: Saturday, July 4, 2009, 11:54 AMI haven't been able to get an appt. scheduled yet (holiday weekend) but have a couple of new symptoms I'm wondering if anyone else has experienced? I usually sleep flat on my back but occasionally move to my right side. I slept part of the night on my right side last night and woke up at 3:00 a.m. with my LEFT arm completely numb! It was wierd! Took quite a while for the feeling to come back. Then-took the dog for a walk this morning and now have a stinging sensation in my lower right hip (rear). Just wondering if anyone else has experienced these symptoms.Blessings,Tory------------------------------------scoliosis veterans * flatback sufferers * revision candidates

[Guest guest]

Cam-thanks again for the info. Went to some friends house for a July 4th bar-b-que and got in the pool-first real relief I've had in days! I didn't want to get out. Took all of the pressure off my back and it was wonderful! Hope you had a happy 4th.

Blessings,

Tory

From: cammaltby <cammaltby@...>Subject: [ ] Re: new symptoms Date: Saturday, July 4, 2009, 1:53 PM

Hi Tory,Not a fun way to wake up! I have had similar experiences before and after revision, and I have attributed the arm tingling or going to "sleep" and something getting compressed in the cervical area. It always came back after I changed position. It usually means I need a new pillow too!As to stinging in lower hip/buttock my guess would be that it could be the same thing. My agonizing sciatica started out kind of like you describe.... hopefully this won't progress like that for you. Turns out the nerve that runs through that area exits the spine at L5-S1...the one level I did not have fused prior to revision and the compression/ degeneration there just got top the point that I was symptomatic. Your milage may vary.In the links section there is an interesting anterior and posterior diagram which depicts which nerves usually affect which parts of the body, you might want to check it out:http://www.meddean. luc.edu/lumen/ MedEd/GrossAnato my/learnem/ dermat/main_ der.htmLet us know how things go tonight.Take Care, Cam

[Guest guest]

Tory: hi-i'm new to the group and live in tucson. i've seen dr jeong for 3/4

consults. i would love to connect with you, get togethrer if you'd like, to

compare notes. i've also had consults with dr.crandall in phx. feel free to call

me: 520-882-0012.

good luck!

donna s..

>

>

> From: Llweyn Friars <mad.monk@...>

> Subject: RE: [ ] Re: New Symptoms

>

> Date: Wednesday, July 8, 2009, 10:10 PM

>

>

>

>

>

>

>

>

>

> A friend of mine, who happens to be a chiropractor, explained that since the

muscle in the fused area of the spine does not get stretched or exercised as

much as the " average " person, that those muscles tend to shorten with dis-use.

To me that made a lot of sense, since I have lots of problems with my shoulder.

I should mention that he was not treating me but exchanging some information. I

believe those that are not fused, but still have scoliosis, would have this type

of problem though not to the same extent because the body would be fighting to

balance itself and some muscles may shorten over time. I'm sure that nerves

would get pinched in the process in both cases.

>  

> Some of my symptoms went away, after I had carpel tunnel surgery done, that I

was experiencing in my hands. I still have some problems with my shoulder, but

they have not found a reason for that, except for maybe fibromyalgia (but I

don't think it's entirely that).

>  

> Llweyn

>

>

>

> From: [mailto:Flatback_ Revised@gro

ups.com] On Behalf Of

> Sent: July 8, 2009 8:00 PM

>

> Subject: [ ] Re: New Symptoms

>

>

>

>

>

> Tory,

>   I just read your postings.  I have had this problem for years.  Sometimes

I wake up in the middle of the night with just the full, heavy, tingling feeling

in my arms and hands. Other times it is worse and my arms painfully ache until I

get up and shake down.  Sometimes it is my left side. Sometimes it is my right

side.

>   Because my spine has dramatically curved above my rod since my 1972

surgery, I thought it was due to that. However Dr. Lenke told me that had

nothing to do with it and that it was just the way I was sleeping. Basically he

told me to roll over and change my position at night.

>   I left that appointment a little miffed thinking he was blowing me off. (I

really got scared sometimes when I'd wake up in the middle of the night and

couldn't feel my arm anymore!) However I recently presented the same complaint

to Dr. Bridwell who gave me the same answer; it was due to the position in which

I slept. So now I no longer get scared - just aggravated as hell!

>    I don't know if you will get the same answer as I did but if you do, at

least you will not feel alone. Good luck with it all.

>  

>

>

> --

> “Everyone is a house with 4 rooms †" a physical, a mental, an emotional and

a spiritual.  Most of us tend to live in one room most of the time.  However,

if we don’t go into every room, every day, even if only to keep it aired, we

are not a complete person††" Indian axiom

>

[Guest guest]

Hi Llwelyn,

You mentioned having shoulder problems. 3 out of the 12 of us at the

Retreat have had shoulder problems/surgery. I've had rotator cuff

surgery and Sharon, I think you've had shoulder issues, too. And I

think others in the Group have also mentioned having issues with their

shoulders. I'm beginning to wonder if there are more shoulder

problems among the scoli population than " normal " people.

Bonnie

[Guest guest]

Donna, thanks so much! I will definitely get in touch with you! Tory

From: Donna son <fototucson@...>Subject: [ ] Re: New Symptoms Date: Monday, July 13, 2009, 4:14 PM

Tory: hi-i'm new to the group and live in tucson. i've seen dr jeong for 3/4 consults. i would love to connect with you, get togethrer if you'd like, to compare notes. i've also had consults with dr.crandall in phx. feel free to call me: 520-882-0012.good luck!donna s..> > > From: Llweyn Friars <mad.monk@.. .>> Subject: RE: [ ] Re: New Symptoms> > Date: Wednesday, July 8, 2009, 10:10 PM> > > > > > > > > > A friend of mine, who happens to be a chiropractor, explained that since the muscle in the fused area of the spine does not get stretched or exercised as much as the "average" person, that those muscles tend to shorten with dis-use. To me that made a lot of sense, since I have lots of problems with my shoulder. I should mention that he was not treating me but exchanging some information. I believe those that are not fused, but still have scoliosis, would have this type of problem though not to the same extent because the body would be fighting to balance itself and some muscles may shorten over time. I'm sure that

nerves would get pinched in the process in both cases.>  > Some of my symptoms went away, after I had carpel tunnel surgery done, that I was experiencing in my hands. I still have some problems with my shoulder, but they have not found a reason for that, except for maybe fibromyalgia (but I don't think it's entirely that).>  > Llweyn> > > > From: [mailto:Flatback_ Revised@gro ups.com] On Behalf Of > Sent: July 8, 2009 8:00 PM> > Subject: [ ] Re: New Symptoms> > > > > > Tory,>  I just read your postings. I have had this problem for years. Sometimes I wake up in the middle of the night with just the full, heavy, tingling feeling in my arms and hands. Other times it is worse and my arms

painfully ache until I get up and shake down. Sometimes it is my left side. Sometimes it is my right side.>  Because my spine has dramatically curved above my rod since my 1972 surgery, I thought it was due to that. However Dr. Lenke told me that had nothing to do with it and that it was just the way I was sleeping. Basically he told me to roll over and change my position at night.>  I left that appointment a little miffed thinking he was blowing me off. (I really got scared sometimes when I'd wake up in the middle of the night and couldn't feel my arm anymore!) However I recently presented the same complaint to Dr. Bridwell who gave me the same answer; it was due to the position in which I slept. So now I no longer get scared - just aggravated as hell!>   I don't know if you will get the same answer as I did but if you do, at least you will not feel alone. Good luck with it all.>

 > > > -- > “Everyone is a house with 4 rooms â€" a physical, a mental, an emotional and a spiritual.  Most of us tend to live in one room most of the time.  However, if we don’t go into every room, every day, even if only to keep it aired, we are not a complete personâ€� â€" Indian axiom>

[Guest guest]

Donna, The website is: www.tucsonortho.com. Will let you know how things go with

him.

Tory

>

>

> FOR Tory

>

> id love to knwo about your dr JEONG does he have a website i dont live far and

have flatback too thanks alot blessings donna

>

>

>

> Donna

>

>

>

>

>

>

>

>

> From: cammaltby@...

> Date: Sat, 11 Jul 2009 01:34:23 +0000

> Subject: [ ] Re: New Symptoms

>

>

>

>

>

>

>

> Tory,

>

> Great to hear you have an appt scheduled for a consult and I put you on the

calendar. I know everyone will be anxious to hear what he has to say, and how

you found the experience.

>

> Most of us have found that it is a good idea to actually write down your

questions before you go in to the appointment. There will be so many things

flying through your head, and there will be a lot of information to absorb...so

written questions will help you make sure you cover everything you hope to. Be

sure to find out if you can call back with more questions or email directly as

things come in to your head, which usually happens the second you walk out the

door.

>

> Also, often we find that it is useful to have someone else in the exam room

with you....just to hear everything that is said. As my husband says, this

appointment can kind of be like drinking water from a fire hose...so a second

set of ears will hear things that you don't. And of course it is nice to have

someone to hash it over with afterwards.

>

> I dont know who, if any, of our membership may have had surgery with DrJeong,

but I am sure he can set you on the right course as he trained with one of the

best. I found him to be quite comfortable to talk to.

>

> Take Care, Cam

>

[Guest guest]

Hi-

I'm relatively new, but haven't chimed in yet because I haven't been able to

work myself up to explaining my whole story again. (Short version: I need the

revision surgery, I consulted four surgeons in 2008, I've been stalling until I

get my homefront in order, and I'll be seeking the collective wisdom of this

group soon because I can't postpone the surgery much longer. I want to publicly

thank Llwelyn for bringing me here!) Well, I wanted to chime in on this

topic...

I've not only had shoulder problems but elbow and wrist problems too. I think

part of the reason is that we use the rest of our bodies more to compensate for

the lack of movement in our spines. Another possible reason is that whatever

caused our ligaments to deform our spines also affects ligaments in other areas

of the body. As a child - before being diagnosed with scoliosis- I sprained my

ankles a lot.

-Beth

>

> Hi Llwelyn,

>

> You mentioned having shoulder problems. 3 out of the 12 of us at the

> Retreat have had shoulder problems/surgery. I've had rotator cuff

> surgery and Sharon, I think you've had shoulder issues, too. And I

> think others in the Group have also mentioned having issues with their

> shoulders. I'm beginning to wonder if there are more shoulder

> problems among the scoli population than " normal " people.

>

> Bonnie

>

[Guest guest]

I have also been diagnosed with fibromyalgia, which does complicate the pain issue and more recently have been put on medication for high cholesterol, that has pain as one of its possible side effects. I know that in the last 6 weeks, I have developed pain in my feet so it makes what little walking I was able to do, difficult. I do know that fibromyalgia tends to develop as a secondary condition to another disease/condition, and in my case may be hereditary since my mother has fibromyalgia.

I think, like as many other possible causes/symptoms of scoliosis like hereditary, there seems to be a connection but they cannot prove it, as yet. Some of the symptoms that we are experiencing could be just a coincidence and not related directly to the disease.

Llweyn

From: [mailto: ] On Behalf Of Bonnie StoneSent: July 14, 2009 9:50 AM Subject: [ ] Re: New Symptoms

Hi Llwelyn,You mentioned having shoulder problems. 3 out of the 12 of us at the Retreat have had shoulder problems/surgery. I've had rotator cuff surgery and Sharon, I think you've had shoulder issues, too. And I think others in the Group have also mentioned having issues with their shoulders. I'm beginning to wonder if there are more shoulder problems among the scoli population than "normal" people.Bonnie

[Guest guest]

HI Beth,

Welcome to the group. I have had wrist and hand issues but they determined it

was DJD, degenerative joint disease, both in my hands, hips and feet though

mild. It doesn't feel mild sometimes. Major DJD must be horrible. Anyway, where

are you located? and did all those surgeons agree basically on the same plan of

action? Who will you pick for your surgeon? Everyone here is very supportive,

some pre surgery and some post surgery. Welcome again and post often, it helps

emotionally to have support. C

> >

> > Hi Llwelyn,

> >

> > You mentioned having shoulder problems. 3 out of the 12 of us at the

> > Retreat have had shoulder problems/surgery. I've had rotator cuff

> > surgery and Sharon, I think you've had shoulder issues, too. And I

> > think others in the Group have also mentioned having issues with their

> > shoulders. I'm beginning to wonder if there are more shoulder

> > problems among the scoli population than " normal " people.

> >

> > Bonnie

> >

>

[Guest guest]

I got a small tear in my rotator cuff a few weeks after revision surgery and had

to have about 8 months of physical therapy for it. It still hurts pretty badly

any time I do math homework.

>

> Hi Llwelyn,

>

> You mentioned having shoulder problems. 3 out of the 12 of us at the

> Retreat have had shoulder problems/surgery. I've had rotator cuff

> surgery and Sharon, I think you've had shoulder issues, too. And I

> think others in the Group have also mentioned having issues with their

> shoulders. I'm beginning to wonder if there are more shoulder

> problems among the scoli population than " normal " people.

>

> Bonnie

>

[Guest guest]

I sprained my ankles a lot too. My mom thought I was just trying to get out of

running in PE until the doctor xrayed one and thought it was broken, then he

xrayed the other one and it looked weird, too. No more running in PE!

> >

> > Hi Llwelyn,

> >

> > You mentioned having shoulder problems. 3 out of the 12 of us at the

> > Retreat have had shoulder problems/surgery. I've had rotator cuff

> > surgery and Sharon, I think you've had shoulder issues, too. And I

> > think others in the Group have also mentioned having issues with their

> > shoulders. I'm beginning to wonder if there are more shoulder

> > problems among the scoli population than " normal " people.

> >

> > Bonnie

> >

>

[Guest guest]

I wouldn't say that I sprained my ankle, but when I ran, my left ankle would feel a sudden snap. Years later, I discovered that the small bones in that ankle were fused together! I guess that's why I always had a problem in running, it wouldn't flex.

Llweyn

From: [mailto: ] On Behalf Of SBSent: July 15, 2009 5:56 PM Subject: [ ] Re: New Symptoms

I sprained my ankles a lot too. My mom thought I was just trying to get out of running in PE until the doctor xrayed one and thought it was broken, then he xrayed the other one and it looked weird, too. No more running in PE!> >> > Hi Llwelyn,> > > > You mentioned having shoulder problems. 3 out of the 12 of us at the > > Retreat have had shoulder problems/surgery. I've had rotator cuff > > surgery and Sharon, I think you've had shoulder issues, too. And I > > think others in the Group have also mentioned having issues with their > > shoulders. I'm beginning to wonder if there are more shoulder > > problems among the scoli population than "normal" people.> > > > Bonnie> >>

[Guest guest]

I can't believe this. I had my surgery in February and returned home

March 1st. Since being home, I have had shoulder pain and found out

last week that both shoulders have rotator cuff tears. I got a shot

in the left shoulder which took the pain away for a week so now it's

back with a vengeance. My neighbor who is a nurse suggested that

because we cannot use out upper bodies directly after surgery, we use

our arms and shoulders to compensate and apparently it is too much.

All I know is that both shoulders hurt and I don't have a clue what to

do about it. If I could get surgery which would fix it I would get it

but that doesnt seem to be the answer.

Avis Pitkow

theizzard@...

[Guest guest]

I have heard and have friends with our history of these surgeries that have done studies on this particular problem and was told that because of the way we are positioned on the table for so many hours during these particular surgeries that it also can cause this damage. Also, the higher up the surgery is, the more of an instance for this to occur. A Good Credit Score is 700 or Above. See yours in just 2 easy steps!