Re: Test results after years....

[Guest guest]

I am so sorry you have to go through this I just wish the best for you.

And I pray you get the help you need.

chis_az <chis_az@...> wrote: Testosterone 257ng/dl with

reference range given as 245ng/dl- 836ng/dl

Estradiol 64.6pg/ml with top of range given as 43.3pg/ml

This is ON treatment with Sustanon 100, which equates to 75mgs of

testosterone a week via a shot.

The result was from the morning of day 6 with the next shot coming at

mid-day of day 7.

So the testosterone result was a day and a half at least from its

lowest point and presumably the esradiol was at near its lowest point

of the week given the testosterone/E2 level and conversion would be

expected to be a great deal higher in the days after my shot.

This is where I still end up years after a gynecomastia operation and

four years post treatment having seen two private endos and about 5

NHS endos and despite being in touch with Dr Shippen and Dr

Carruthers.

And this is also with horrendous symptoms and untreated low Growth

Hormone.

Two of my endocrinologists have told the NHS PCT (patient care trust-

like US insurance companies- that pay for treatment) that I need GH

treatment due to a crumbling spine, by sending two letter requesting

treatment. They have had the letters for for several months and have

not even responded...I pass the US criteria for GH treatment.

No amount of knowledge, self awareness, pushing the NHS, trying to go

private etc has made any difference to my predicament after 4 years

plus of none stop trying. Not so much running to stand still as

running to find yourself much further behind your starting point and

with vastly inferior health and heavy debt.

Dealing with vast levels of ignorance and inflated egos, outdated

draconian protocols, very poor medications, a complete lack of

understanding on the required ancillary medications and dealing with

a head in the sand money comes first forget about the life saving

treatment you require in terms of allowing your spine to crumble....

Added to all this I live in a massive catch 22 situation whereby the

only way to attempt to show the NHS how ignorant they are is too

prove how ill I can be by continuing to allow them to mistreat me

with the alternative being to attempt to self treat with vastly

increasing debt, an inability to do so with any pathology assistence,

mocking from the system which would treat me etc.

I feel that I am being institutionally ignored and deprived of any

quality of life and slowly being put into a wheelchair by the very

system which claims to have my best interests at heart.....

I had cancer at 17 and had a 10 and a half hour operation to remove

several malignant tumors and had a very severe follow-up chemotherapy

regime which was thought to be as dangerous as the very cancer I

faced. I came through all that and the survival rate for living more

than 10 years, just for regular liver cancer was 12%, given my

advanced state it was supposed to be in low single digits.

I came through all that and survived a second primary cancer at the

age of 25 that was supposed to be entirely unreleated.

I have FAR less energy and hope now than I ever had at any point

during cancers or chemo. I have nowhere near the amount of energy

now as I had when I was 5 stone and you could see through my fingers,

no where near as much energy now as when I was on the worst of the

chemotherapy.

All that money was paid to keep me alive with the irony now being

that they do not give a toss about what is left behind.

The GH treatment would cost 4 thousand pounds a year in the UK, but

they do not think the cost is worth so much as a medical trial to se

if it helps me.

But if I was a drug addict I could be offered 15 thousand pounds a

year treatment programs with methadone, to put a false substance into

my own body, rather than be treated with GH a natural substance that

I am lacking.

In fact if I was to go and commit a crime they would pay 20 thousand

pounds a year minimum to keep me behind bars as that is the cost to

the UK tax payer to lock up criminals.

The US AACE GH guidlines consist of a couple of dozen pages of

detailed explanation of the medical need for its use in those who are

GH deficient. The document has been put into place via a significant

consultation process via the help of dozens of endocinr authorities

and doctors.

The UK has a 3 page guideline, 2 pages relate to cost benefit

analysis (whether they should pay or not) and one page relates to the

medical situation in brief.

In the UK they do not even recognise or treat Growth Hormone

deficency, rather they refer to the condition as severe growth

hormone deficiency and rule that only their abstract cut-off point

and only severe growth hormone deficiency should be treated.

That is the same as saying we should only treat severe heart disease

or severe diabetes or severe epilepse and etc but ignore the everyone

else irrespective of the consequences.

Another irony is that I cost the tax payer more money now through ill

health than I would if I was given GH treatment and correct treatment

for my hypogondism, but it is jam jar accountancy in that different

sources currently pay for my ill health as opposed just the NHS, so

the NHS has the attitude of not wishing to pay the cost that would

relate to it alone.

I cost the system about 11 thousand a year and treatment would be no

more than 5 thousand a year...

I am not only sailing against the prevaling tide, I am sailing across

an ocean of illogical urine on a boat made of ever dissolving

proportions.

P.S

I can't imagine anyone reaching the end of this scribble and in any

case like everything else nothing makes a difference to the

Intransigence and unmovably slow force of the system that opposes me

at every turn....

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

[Guest guest]

And some of the politicians want us to have this type health system

in the US.

I hope NOT!!!

>

> Testosterone 257ng/dl with reference range given as 245ng/dl-

836ng/dl

>

> Estradiol 64.6pg/ml with top of range given as 43.3pg/ml

>

>

> This is ON treatment with Sustanon 100, which equates to 75mgs of

> testosterone a week via a shot.

>

> The result was from the morning of day 6 with the next shot coming

at

> mid-day of day 7.

>

> So the testosterone result was a day and a half at least from its

> lowest point and presumably the esradiol was at near its lowest

point

> of the week given the testosterone/E2 level and conversion would be

> expected to be a great deal higher in the days after my shot.

>

> This is where I still end up years after a gynecomastia operation

and

> four years post treatment having seen two private endos and about 5

> NHS endos and despite being in touch with Dr Shippen and Dr

> Carruthers.

>

> And this is also with horrendous symptoms and untreated low Growth

> Hormone.

>

> Two of my endocrinologists have told the NHS PCT (patient care

trust-

> like US insurance companies- that pay for treatment) that I need GH

> treatment due to a crumbling spine, by sending two letter

requesting

> treatment. They have had the letters for for several months and

have

> not even responded...I pass the US criteria for GH treatment.

>

> No amount of knowledge, self awareness, pushing the NHS, trying to

go

> private etc has made any difference to my predicament after 4 years

> plus of none stop trying. Not so much running to stand still as

> running to find yourself much further behind your starting point

and

> with vastly inferior health and heavy debt.

>

> Dealing with vast levels of ignorance and inflated egos, outdated

> draconian protocols, very poor medications, a complete lack of

> understanding on the required ancillary medications and dealing

with

> a head in the sand money comes first forget about the life saving

> treatment you require in terms of allowing your spine to crumble....

>

> Added to all this I live in a massive catch 22 situation whereby

the

> only way to attempt to show the NHS how ignorant they are is too

> prove how ill I can be by continuing to allow them to mistreat me

> with the alternative being to attempt to self treat with vastly

> increasing debt, an inability to do so with any pathology

assistence,

> mocking from the system which would treat me etc.

>

> I feel that I am being institutionally ignored and deprived of any

> quality of life and slowly being put into a wheelchair by the very

> system which claims to have my best interests at heart.....

>

> I had cancer at 17 and had a 10 and a half hour operation to remove

> several malignant tumors and had a very severe follow-up

chemotherapy

> regime which was thought to be as dangerous as the very cancer I

> faced. I came through all that and the survival rate for living

more

> than 10 years, just for regular liver cancer was 12%, given my

> advanced state it was supposed to be in low single digits.

>

> I came through all that and survived a second primary cancer at the

> age of 25 that was supposed to be entirely unreleated.

>

> I have FAR less energy and hope now than I ever had at any point

> during cancers or chemo. I have nowhere near the amount of energy

> now as I had when I was 5 stone and you could see through my

fingers,

> no where near as much energy now as when I was on the worst of the

> chemotherapy.

>

> All that money was paid to keep me alive with the irony now being

> that they do not give a toss about what is left behind.

>

> The GH treatment would cost 4 thousand pounds a year in the UK, but

> they do not think the cost is worth so much as a medical trial to

se

> if it helps me.

>

> But if I was a drug addict I could be offered 15 thousand pounds a

> year treatment programs with methadone, to put a false substance

into

> my own body, rather than be treated with GH a natural substance

that

> I am lacking.

>

> In fact if I was to go and commit a crime they would pay 20

thousand

> pounds a year minimum to keep me behind bars as that is the cost to

> the UK tax payer to lock up criminals.

>

> The US AACE GH guidlines consist of a couple of dozen pages of

> detailed explanation of the medical need for its use in those who

are

> GH deficient. The document has been put into place via a

significant

> consultation process via the help of dozens of endocinr authorities

> and doctors.

>

> The UK has a 3 page guideline, 2 pages relate to cost benefit

> analysis (whether they should pay or not) and one page relates to

the

> medical situation in brief.

>

> In the UK they do not even recognise or treat Growth Hormone

> deficency, rather they refer to the condition as severe growth

> hormone deficiency and rule that only their abstract cut-off point

> and only severe growth hormone deficiency should be treated.

>

> That is the same as saying we should only treat severe heart

disease

> or severe diabetes or severe epilepse and etc but ignore the

everyone

> else irrespective of the consequences.

>

> Another irony is that I cost the tax payer more money now through

ill

> health than I would if I was given GH treatment and correct

treatment

> for my hypogondism, but it is jam jar accountancy in that different

> sources currently pay for my ill health as opposed just the NHS, so

> the NHS has the attitude of not wishing to pay the cost that would

> relate to it alone.

>

> I cost the system about 11 thousand a year and treatment would be

no

> more than 5 thousand a year...

>

> I am not only sailing against the prevaling tide, I am sailing

across

> an ocean of illogical urine on a boat made of ever dissolving

> proportions.

>

> P.S

>

> I can't imagine anyone reaching the end of this scribble and in any

> case like everything else nothing makes a difference to the

> Intransigence and unmovably slow force of the system that opposes

me

> at every turn....

>