Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 I live in Fla, moved dowm here fro Ohio about 1.5year ago with my wife. I probably shoild start treatment, just getting nervous about the side effects as the date approaches to srart treatment. Also the fact that docs give me know clear understanding of how fast it will continue to progress and if there are newer drugs coming soon that may be better. Thanks for the info and links Roy > Dear Roy, > So where are you from? I'm Teri and I live in Iowa.I have went through therapy twice now. Once on reg. combo therapy for 8mos, was a non-responder. The last time was the peg combo for a year and will be a year in Sept. that I have been off of it! I went undetectable through treatment but I relapsed. I' m a geno type 1a, which it and 1b are the > most common in the US!I had a biopsey in 98 which showed som scarring, they felt I was in early stages. > > With the damage that is done to your liver at this point I would say you should deffinately do therapy. No Im not a Dr. but have talked with a lot of people and you don't want the damage to get worse, which it will! > > I was a walking zombie on the firt treatment , but this time was a piece of cake compared to the first time! There are some exceptions to the rule where some people continue there lives on therapy as though nothing is different, but very few!! It maost likely will be tough. > > But I know even with the risks of treatment I will do therapy again. I feel better now than I have felt in a long time, more like the old me. It's great!!! The treatment did a lot of good for me, even though I relapsed and I'm ok with that I kept a positve attitude through out that year of treatment but also told myself to be prepared for the worse! > > I bought myself a lot of time and that's waht you want to do by doing treatment your liver won't be getting worse. I due for another biopsey. They will probably want to do it in Sept. (Happy Birthday to me) Sept. 15th. LOL Well it could be a very > good birthday present. > > Here are some good sites for check out: > > youhttp://www,diac.com/~ekwall2/hepchat/links.shtmlto > > http://www.hepcesn.net > > http://www.hepnet.com/hepc.html > > > http://www.pegintron.com/safety_combo.html > > I have more!!!! LOL I can't explain all about the Alt and AST they tell you how much virus is in your blood and they aren't near as important as the damage that is done to your liver and yes your viral load is low which is good. But the liver damage is why yo should do treatment! > > Hey if you need to talk I'm on here later afternoon or off and on all night I'm the night crew, so to speak! LOL So anytime, if I can't answer your questions will find someone who can! > Hope I got you started in the right direction! > > Love,Teri > > > newly diagnosed and Q's about biobsy results > > > Hi, > I just found out this month that I have hepc, maybe contracted it in > the service in early 80's from vaccine gun or dental work, but cant > really know for sure. > Need help on deciding on treatment and questions about test > results,Gastro doc seems to have little time to answer > questions.They want me to start combo therapy next month. > Test results: > genotype 1 > load 356000 > Biobsy grade 3 inflamation, stage 1 fibrosis > ALT was 450, but on blood test 3 months ago it was normal, they just > decided to check me for hep when this second blood test showed high > alt. > Grade 3 out of 4 inflamation has me nervous, can it fluctuate like > the alt levels can? I am not even clear on what they mean by > inflamation, I know fibrosis is scars that can lead to cirrhosis. > With level 3 inflamation am I on a quick course to cirrhosis? > They said my viral load is low but if it low why is the inflamation > so high? > Thanks for any input, > Roy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Hi Kat, I, too, had genotype 3a. If you HAVE to have hep c, that's probably the best type to have as it responds very well to the treatment. You have an 80% chance of beating this due to your genotype. I did the old 3x week combo treatment for 6 months. Mostly I was extremely fatigued and nauseous every day, lost about 20 pounds (a good thing), and used all my sick time up, but still managed to work with 3year olds with disabilities. My husband was a godsend; he was very supportive. When I got home each day I did nothing but sleep. Some days I would only move from the bed to the couch. But you body needs to rest as much as possible in order to do that difficult job of killing the virus. Your kids would have to help you a lot. I couldnt cook or clean and I had to put any home projects off till after I was done. It was worth it to me because the virus is gone and I have energy now and my quality of life is better than before treatment. Best wishes to you, > > Hi cindy thank you for responding my geno type is 3a > they want me to do a 6 month treatment. i had a biopsy > done already they said there was scarring my liver > isnt inflamed and i dont have cirrios thank god i > still dont know till this day how i got it. the only > thing i can think of is a tattoo i got years ago i > havent drank alcohol in like 20 years. i take very > good care of myself and feel great.i never used > needles and been with one man for 151/2 years. they > told me if i do decide to do it that it would lower my > viral load which is high and i am concerned with. so > you say you did the treatment can you tell me what to > expect i am concidering doing it and i want to know > what i am getting myself into and if i can handle it > alone my kids will be back in school when i do decide > to start it and i will be alone that is a concern for > me thinking something bad will happen like a reaction > or something well fill me in and get back to me talk > to you later and thanks for listening. kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Hey Roy, It was such a pleasure to talk with you. Thank you for telling us good bye. So often someone leaves the forum and we are left wondering what happened. You are smart to continue your therapy to stay healthy. Even if you don't have sex anymore, it is still good for you overall. Keep the faith brother - you are an inspiration to us all. We will miss you greatly - Arkansas Quote Link to comment Share on other sites More sharing options...
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