Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi Steve, I've only been on TRT for a couple months, but I was anemic before I started. Lately, I have iron levels too low to give blood. Yeah, they were chasing after me with one of those roto- rooter cameras, but I told them that I gave a lot of blood so I got a reprieve. The real culprit was B12 being way too low. I'm taking B12 shots, and sublingual B12/Folate/B6 to try and get that sorted out. Seeing the doc today, and having more blood tests. I'll post with the results and see if the B supplementation cleared it up. Oh, I also had very low levels of T. 222 L (225-1200) I think that low T can actually contribute to anemia as well. -Mike Steve wrote: > > I am 47xxy Klinefelter syndrome male and have been on testosterone replacement therapy for over 38 years. In March 2007 I developed a DVT (blood clot) in my leg and was off T for over 9 months. The clot resolved and starting in March 2008 I resumed T. > > During my last few doctor's visits with blood tests he has noticed that my hemoglobin levels seemed to be dropping along with the amount of iron in my blood. In June 2008 the hemoglobin level was 12.3 (which for a male any score below 13 is considered anemia). > > Since I am no longer on the blood thinners, (and I am not menstruating---a joke) the doctor feels that I am probably bleeding somewhere. I will be taking an upper endoscopy and colonoscopy in August to determine if there is any gastrointestinal bleeding. > > My question to the group - -based on the facts presented, has anyone else on testosterone replacement developed anemia? > > Thank you for any responses. > > Steve in NY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi Steve, When I first got sick with fatigue a Dr. told me I was suffering from Anemia put me on some strong Iron pills. After 6 months and my levels were not coming up fast enough he talked about Iron shots. My mother told me these are dangerous so I seen a blood Dr. I was told he was one of the best around. When I seen him his English was very bad and I could not understand most of what he said. He had me do more labs but did not tell me to stop the Iron pills for a week first. So when I seen him next he told me my iron levels were fine. Now 25 yrs later having a thyroid problem and not doing well on meds I was told at a forum to have my Ferritin levels tested and they came back below normal. So my Dr. tested my Iron levels and they were also on the low side. Your lucky your Dr. was good enough to catch this mine miss this for yrs. At the time I was still having bad fatigue and in the last 5 yrs my breathing was getting very bad. I also had bad heart burn and reflux. I was on meds for the breathing and reflux I started on Iron pills doing 212mgs of Elemental Iron taking 1 pill 2x's a day of this. http://tinyurl.com/3a5k6y In about 2 months I no longer needed the meds for breathing and reflux. My energy went way up and I am feeling much better. Still my levels are not up where they need to be after 8 months of Iron pills. I posted about this hear and at other sites and some of the men on TRT had there Ferritin and Iron levels tested and found they were also low. I can't say this has something to do with low T I have a pituitary problem and my Dr. is telling me I will need to be on iron pills and keep up labs on this for life. I am not bleeding anywhere did all them tests. Co-Moderator Phil > From: Steve <stevie_10583@...> > Subject: Anemia and Hypogonadism and TRT > > Date: Wednesday, July 30, 2008, 10:06 AM > I am 47xxy Klinefelter syndrome male and have been on > testosterone replacement therapy for over 38 years. In > March 2007 I developed a DVT (blood clot) in my leg and was > off T for over 9 months. The clot resolved and starting in > March 2008 I resumed T. > > During my last few doctor's visits with blood tests he > has noticed that my hemoglobin levels seemed to be dropping > along with the amount of iron in my blood. In June 2008 the > hemoglobin level was 12.3 (which for a male any score below > 13 is considered anemia). > > Since I am no longer on the blood thinners, (and I am not > menstruating---a joke) the doctor feels that I am probably > bleeding somewhere. I will be taking an upper endoscopy and > colonoscopy in August to determine if there is any > gastrointestinal bleeding. > > My question to the group - -based on the facts presented, > has anyone else on testosterone replacement developed > anemia? > > Thank you for any responses. > > Steve in NY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi - I have been on TRT for about 3 months now. My low testosterone numbers were discovered when I went to the urologist to talk about my sexual dyfunction. I have been using one of the three ED medications since the middle 90s. Then last there began mood change and then In the Fall I was having trouble getting it up even with the ED medications. Went to the urologist, discussed my problem and he suggested a blood test. It came back low and he suggested I use Testim gel 1%. Now it is 3 months later and my libido is seems to be improving. At least I get wood in the morning again. I also noticed that the fat around my middle has begun to disappear. Is there any one out there that also uses this stuff and was wondering what other changes I can expect. Old Guy > > I am 47xxy Klinefelter syndrome male and have been on testosterone replacement therapy for over 38 years. In March 2007 I developed a DVT (blood clot) in my leg and was off T for over 9 months. The clot resolved and starting in March 2008 I resumed T. > > During my last few doctor's visits with blood tests he has noticed that my hemoglobin levels seemed to be dropping along with the amount of iron in my blood. In June 2008 the hemoglobin level was 12.3 (which for a male any score below 13 is considered anemia). > > Since I am no longer on the blood thinners, (and I am not menstruating- --a joke) the doctor feels that I am probably bleeding somewhere. I will be taking an upper endoscopy and colonoscopy in August to determine if there is any gastrointestinal bleeding. > > My question to the group - -based on the facts presented, has anyone else on testosterone replacement developed anemia? > > Thank you for any responses. > > Steve in NY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 I feel everyone needs or should start out do the gels they are very good if they work for you. One thing you need to get your Total and Free Testosterone levels up into the upper 1/3 of your labs range for a young man. And you need to test Estradiol and keep it down around 20 pg/ml doing this is the best way to treat this. Some men don't do good on gels it does not get through there skin and they can't get good levels. After your levels get up there your body will start to undo any damage done by low T and little by little you will feel better. Here is a good link to read. http://www.griffinmedical.com/male_hormone_modulation_therapy.html Co-Moderator Phil > > > > I am 47xxy Klinefelter syndrome male and have been on > testosterone replacement > therapy for over 38 years. In March 2007 I developed a DVT > (blood clot) in my leg and was > off T for over 9 months. The clot resolved and starting in > March 2008 I resumed T. > > > > During my last few doctor's visits with blood > tests he has noticed that my hemoglobin > levels seemed to be dropping along with the amount of iron > in my blood. In June 2008 the > hemoglobin level was 12.3 (which for a male any score below > 13 is considered anemia). > > > > Since I am no longer on the blood thinners, (and I am > not menstruating- --a joke) the > doctor feels that I am probably bleeding somewhere. I will > be taking an upper endoscopy > and colonoscopy in August to determine if there is any > gastrointestinal bleeding. > > > > My question to the group - -based on the facts > presented, has anyone else on > testosterone replacement developed anemia? > > > > Thank you for any responses. > > > > Steve in NY > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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