Re: Chemotherapy and radiation

[Guest guest]

Thanks for the very indebt description of all that you have completed so far.

You have a great attitude towards all of this and that goes a long way. I

would love to have you update your list and post them when you have time.

[ ] Chemotherapy and radiation

At 08:57 PM 5/10/2010, wrote:

>

>

>Could you please tell us what kind of chemo and raditation you were

>able to do without side affects?

>I appreciate all of your detailed information.

The chemo consisted of two rounds (one month separation) of 96-hour

pumped 5FU with IV push mitomycin C. This was concurrent with

fractionated radiation; I allowed additional sessions after the

normal completion.

I was able to control all symptoms from the chemo. There was no hair

loss, no affects on hands/feet/nails, no sores in alimentary

tract. I was nauseous at first but if I took Zofran in advance there

was no nausea. I controlled all the rest with Vit E succinate,

arginine, ornithine, a little glutamine, NAC, cysteine, and

dithiodinicotinic acid (which I made). My energy level was low a

couple of days and I could eat nothing more than buttered

saltines. All in all it was such a breeze that I refused to let them

remove the picc line from my arm. As my cancer is very extensive and

aggressive I assumed that I have tens of billions of transformed

cells that have not just rolled over to chemo and radiation. For

these I have a special surprise. I am working in my lab to make an

IV compound to " bayonet the wounded, " that is, any residual

cancer. I am also using CaPterin which I made. Unfortunately the

FDA recently disallowed us to distribute it as a nutriceutical, so we

are doing the testing requisite for pharmaceuticals. As I am still

working to regain lost weight I am doing virtually nothing else for

treatment -- I do not want to unwittingly interfere with natural

healing processes. This will change in a couple of weeks as I am

designing quite a protocol for myself.

The radiation was a different story. The first couple of weeks were

nothing. Because my cancer was so extensive throughout my pelvis I

was afraid that if I did anything to kick up the radiation I would

ulcerate and this would necessitate extremely radical surgery. I had

no control of any excretory functions, but I refused to let them

cut. The last three weeks of radiation were horrible inside and out,

but I refused to tamper with the process. Squamous cell carcinoma of

the rectum is considered to be " exquisitely sensitive " to

radiation. That sounded good to me. The inflammation was

nightmarish -- I couldn't even touch myself. I tried perhaps 20

preparations to treat skin pain and infections -- even the sprays

were too painful to apply. The only way I could keep myself clean

was to get on my hands and knees and back up to lukewarm water from

the bathtub faucet. I had to use 100 mg morphine BID (extended

release) plus Norco to deal with pain.

I healed extremely fast. Normal pelvic functions returned. Within a

month pain was gone, I could wear normal underwear, I feel great, and

I regained weight. I had gone from 172 lbs down to 142 lbs and now

I'm back up to 160 lbs. Four months ago at the height of the cancer

I could not even walk to the bathroom without a cane. I would walk

15 feet and have to sit on the floor from exhaustion. Sunday I hiked

(with my very-fit wife and 16 y/o son) four miles into a lagoon along

the Pacific Ocean. I feel as healthy as I have ever been, but I know

the story is not over, thus I am doing lab work now to make anything

I might need in the future. The radiologist says he saw a spot on my

lung. There is a definitional disconnect here: what they call

terminal I call nuisance. Anyhow, I am back to living a completely

normal life.

Please don't take this as a rubber stamp approval chemo and

radiation. They usually do more harm than good. For most people the

process is miserable, expensive, and for any benefit reduction in

mass there is a counter problem of multiple drug resistance, often

long term side effects, myelosuppression and immune

dysfunction. Most patients don't live longer nor do they have a

higher quality of life. On the other hand, for some people, in some

circumstances, they can be very useful if selectively and wisely used.

Part of the reason cancer survival statistics are so poor is that

both clinicians and patients tend to be lazy, tired, indoctrinated,

and willfully ignorant. No doctor is going to do your dying for you,

so you must take charge. You don't have to be a science shinola, but

you do have to think and act. One starting place might be to reflect

on my list of why so many alternative treatments fail. Many of these

reasons also are also true for conventional medicine. I continually

update the list so I will repost. I do welcome any suggestions for

improvements or additions.

[Guest guest]

Not a personal attack but because many people reading this list may not have

English as their first language and may rely on translators like Babelfish to

absorb the knowledge, why not try to write proper English and make their task

that much easier?!

[Guest guest]

,

Can you think of why you got cancer in the first place? I am wondering if you

were eating well, exercising, eating organic, getting the right oil, getting

proper rest, eating 'live' yogurt, etc. Were you toxic in anyway (from mercury,

lead, halides, i.e. common ways we are all toxic). And what were your earliest

symptoms? I am sure you have analyzed this already, and I know that sometimes

cancer happens even under the best of circumstances, but I thought you might

have suspected something that you might share with us. And this question is in

no way meant to sound like I think it's easy as pie to avoid cancer; I don't.

I'd just like to hear what you have concluded about your personal journey.

Thank you for sharing so much already.

Deborah

> >

> >

> >Could you please tell us what kind of chemo and raditation you were

> >able to do without side affects?

> >I appreciate all of your detailed information.

>

> The chemo consisted of two rounds (one month separation) of 96-hour

> pumped 5FU with IV push mitomycin C. This was concurrent with

> fractionated radiation; I allowed additional sessions after the

> normal completion.

>

> I was able to control all symptoms from the chemo. There was no ha

[Guest guest]

Deborah asks how I got cancer in the first place. There are several

contributing factors:

-- BRCA2 gene. It runs in my family. mother, sibs, aunts, cousins

all had cancer. My grandmother died of squamous cell cancer and that

is what I have.

-- The healthiness of my diet was probably in the top 20th

percentile. Of course it should have been better. My only defense

is that I was reared in the South where my diet was in the bottom

20th. I usually start my day with buttered grits and molasses. I

can and will do better, much better. I must say though that molasses

is extremely high in potassium, molasses-consuming sugar cane workers

almost never get cancer, and molasses in a great starting ingredient

for making calcium d-glucarate -- I might teach how to do this in a

seminar practicum. Butter (organic, of course) contains myristoleic

acid up to 2%. The easily made methyl ester can effectively treat

prostate and other cancers. Modern commercial corn is, I suspect,

largely Round-Up Ready or Bt corn. I don't see any organic grits on

the market.

-- a few years ago some chemistry grad students who worked for me had

a distillation accident and blew several liters of benzene all over

the lab. I hurriedly cleaned it up myself without adequate

protection. I knew it was a mistake and switched almost entirely to

aqueous chemistry.

-- I don't sleep very often. Too busy.

-- For years I overdid it with diet colas. I wanted to avoid sugar,

but I loved the bite of cold phosphoric acid.

-- Many miscellaneous and unknown factors. I've lead a busy, complex

life and I've probably been exposed to one too many occupational and

environmental toxins. I did not worry about cancer as I have had so

much success helping others with theirs. In retrospect I should have

been far more concerned.

At 10:53 AM 5/13/2010, you wrote:

>

>,

>

>Can you think of why you got cancer in the first place? I am

>wondering if you were eating well, exercising, eating organic,

>getting the right oil, getting proper rest, eating 'live' yogurt,

>etc. Were you toxic in anyway (from mercury, lead, halides, i.e.

>common ways we are all toxic). And what were your earliest symptoms?

>I am sure you have analyzed this already, and I know that sometimes

>cancer happens even under the best of circumstances, but I thought

>you might have suspected something that you might share with us. And

>this question is in no way meant to sound like I think it's easy as

>pie to avoid cancer; I don't. I'd just like to hear what you have

>concluded about your personal journey.

>

>Thank you for sharing so much already.

>

>Deborah