Chemotherapy and radiation

[Guest guest]

At 08:57 PM 5/10/2010, wrote:

>

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>Could you please tell us what kind of chemo and raditation you were

>able to do without side affects?

>I appreciate all of your detailed information.

The chemo consisted of two rounds (one month separation) of 96-hour

pumped 5FU with IV push mitomycin C. This was concurrent with

fractionated radiation; I allowed additional sessions after the

normal completion.

I was able to control all symptoms from the chemo. There was no hair

loss, no affects on hands/feet/nails, no sores in alimentary

tract. I was nauseous at first but if I took Zofran in advance there

was no nausea. I controlled all the rest with Vit E succinate,

arginine, ornithine, a little glutamine, NAC, cysteine, and

dithiodinicotinic acid (which I made). My energy level was low a

couple of days and I could eat nothing more than buttered

saltines. All in all it was such a breeze that I refused to let them

remove the picc line from my arm. As my cancer is very extensive and

aggressive I assumed that I have tens of billions of transformed

cells that have not just rolled over to chemo and radiation. For

these I have a special surprise. I am working in my lab to make an

IV compound to " bayonet the wounded, " that is, any residual

cancer. I am also using CaPterin which I made. Unfortunately the

FDA recently disallowed us to distribute it as a nutriceutical, so we

are doing the testing requisite for pharmaceuticals. As I am still

working to regain lost weight I am doing virtually nothing else for

treatment -- I do not want to unwittingly interfere with natural

healing processes. This will change in a couple of weeks as I am

designing quite a protocol for myself.

The radiation was a different story. The first couple of weeks were

nothing. Because my cancer was so extensive throughout my pelvis I

was afraid that if I did anything to kick up the radiation I would

ulcerate and this would necessitate extremely radical surgery. I had

no control of any excretory functions, but I refused to let them

cut. The last three weeks of radiation were horrible inside and out,

but I refused to tamper with the process. Squamous cell carcinoma of

the rectum is considered to be " exquisitely sensitive " to

radiation. That sounded good to me. The inflammation was

nightmarish -- I couldn't even touch myself. I tried perhaps 20

preparations to treat skin pain and infections -- even the sprays

were too painful to apply. The only way I could keep myself clean

was to get on my hands and knees and back up to lukewarm water from

the bathtub faucet. I had to use 100 mg morphine BID (extended

release) plus Norco to deal with pain.

I healed extremely fast. Normal pelvic functions returned. Within a

month pain was gone, I could wear normal underwear, I feel great, and

I regained weight. I had gone from 172 lbs down to 142 lbs and now

I'm back up to 160 lbs. Four months ago at the height of the cancer

I could not even walk to the bathroom without a cane. I would walk

15 feet and have to sit on the floor from exhaustion. Sunday I hiked

(with my very-fit wife and 16 y/o son) four miles into a lagoon along

the Pacific Ocean. I feel as healthy as I have ever been, but I know

the story is not over, thus I am doing lab work now to make anything

I might need in the future. The radiologist says he saw a spot on my

lung. There is a definitional disconnect here: what they call

terminal I call nuisance. Anyhow, I am back to living a completely

normal life.

Please don't take this as a rubber stamp approval chemo and

radiation. They usually do more harm than good. For most people the

process is miserable, expensive, and for any benefit reduction in

mass there is a counter problem of multiple drug resistance, often

long term side effects, myelosuppression and immune

dysfunction. Most patients don't live longer nor do they have a

higher quality of life. On the other hand, for some people, in some

circumstances, they can be very useful if selectively and wisely used.

Part of the reason cancer survival statistics are so poor is that

both clinicians and patients tend to be lazy, tired, indoctrinated,

and willfully ignorant. No doctor is going to do your dying for you,

so you must take charge. You don't have to be a science shinola, but

you do have to think and act. One starting place might be to reflect

on my list of why so many alternative treatments fail. Many of these

reasons also are also true for conventional medicine. I continually

update the list so I will repost. I do welcome any suggestions for

improvements or additions.