Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hello everyone, I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me . I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN Thanks Erma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 I was on Copaxone, but had to stop due to hives...I am supposed to try Copaxone again this coming week to make sure it is not the meds or if my body finally decided to just accept it. I can not wait to get a prescription for LDN...I keep hearing such great things...How hard was it for you to get this prescription from your Doc? > > Hello everyone, > > I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me . > > I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN > > Thanks > Erma > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 At first I called him to ask if he would prescribe it, he said no, on my next appointment I told him I would like to try LDN as I had nothing to loose, I was ready to give him all the information I had gathered from the LDN site, but he got on his computer and went on the LDN site and within 5 minutes he gave me a prescription, he told me to keep take Copaxone, let him know if I had any problems and to come back and see him in about 2 months he also said that I was his first patient on LDN . I think, alot of Neuro don't know enough about LDN so they won't prescribe it. We need to educate them Good Luck! [low dose naltrexone] Re: Update- using LDN I was on Copaxone, but had to stop due to hives...I am supposed to try Copaxone again this coming week to make sure it is not the meds or if my body finally decided to just accept it. I can not wait to get a prescription for LDN...I keep hearing such great things...How hard was it for you to get this prescription from your Doc?>> Hello everyone,> > I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me .> > I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN> > Thanks> Erma> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 This is great info! This new nuero loves research, so hopefully it will not take much...can I ask, when did you get diagnosed and what were your symtoms? I was just diagnosed in Feb of this year, I have taken Avonex also, didn't work for me. My symptoms were supposedly mild. Just numb, tingly from the chest down, it effected my right leg more than anything else.... From: Erma Romani <ermaromani@...>Subject: Re: [low dose naltrexone] Re: Update- using LDNlow dose naltrexone Date: Saturday, September 20, 2008, 9:26 AM At first I called him to ask if he would prescribe it, he said no, on my next appointment I told him I would like to try LDN as I had nothing to loose, I was ready to give him all the information I had gathered from the LDN site, but he got on his computer and went on the LDN site and within 5 minutes he gave me a prescription, he told me to keep take Copaxone, let him know if I had any problems and to come back and see him in about 2 months he also said that I was his first patient on LDN . I think, alot of Neuro don't know enough about LDN so they won't prescribe it. We need to educate them Good Luck! [low dose naltrexone] Re: Update- using LDN I was on Copaxone, but had to stop due to hives...I am supposed to try Copaxone again this coming week to make sure it is not the meds or if my body finally decided to just accept it. I can not wait to get a prescription for LDN...I keep hearing such great things...How hard was it for you to get this prescription from your Doc?>> Hello everyone,> > I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me .> > I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN> > Thanks> Erma> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 I was officially diagnosed in March 2006, although in retrospect I think I had symptoms for about 10 years, originally I was diagnosed with trigeminal neuralgia (excruciating face pain) for witch I had surgery that took care of it, however, the surgeon thought that it might be due to MS, soon after the surgery I started getting more MS symptoms, fatigue, balance, leg weakness. I first took Rebif for over a year but had terrible depression and it did not seem to do anything else, then I went on Copaxone for about 9 months until I learned about LDN. I was also told that my MS was mild [low dose naltrexone] Re: Update- using LDN I was on Copaxone, but had to stop due to hives...I am supposed to try Copaxone again this coming week to make sure it is not the meds or if my body finally decided to just accept it. I can not wait to get a prescription for LDN...I keep hearing such great things...How hard was it for you to get this prescription from your Doc?>> Hello everyone,> > I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me .> > I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN> > Thanks> Erma> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Thank you for sharing...I get that face pain occasionally, very mild though and it doesn't last long. Hopefully it stays that way or goes away. I hope LDN works well for you and that you go symptom free for awhile. We just have to keep on thinking positive, staying as stress free as possible, aside from the normal day to day stresses, and follow a healthy diet. MS is different in everyone, which is why I believe a cure will be hard to find...but LDN sounds promising until the next med that doesn't harm the body...I can't wait till I am given the chance to try it too. From: Erma Romani <ermaromani (DOT) com>Subject: Re: [low dose naltrexone] Re: Update- using LDNlow dose naltrexoneDate: Saturday, September 20, 2008, 9:26 AM At first I called him to ask if he would prescribe it, he said no, on my next appointment I told him I would like to try LDN as I had nothing to loose, I was ready to give him all the information I had gathered from the LDN site, but he got on his computer and went on the LDN site and within 5 minutes he gave me a prescription, he told me to keep take Copaxone, let him know if I had any problems and to come back and see him in about 2 months he also said that I was his first patient on LDN . I think, alot of Neuro don't know enough about LDN so they won't prescribe it. We need to educate them Good Luck! [low dose naltrexone] Re: Update- using LDN I was on Copaxone, but had to stop due to hives...I am supposed to try Copaxone again this coming week to make sure it is not the meds or if my body finally decided to just accept it. I can not wait to get a prescription for LDN...I keep hearing such great things...How hard was it for you to get this prescription from your Doc?>> Hello everyone,> > I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me .> > I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN> > Thanks> Erma> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Hi,this is so great! MS patients often find LDN to stop progressions, when having improvements like yours your sure lucky. Glad you could stop your daily injections with a medication that didn't work at all. Friendly regards, :-)Ingrid [low dose naltrexone] Update- using LDN Hello everyone, I started taking LDN for MS on 8/15 while still on Copaxone, started with 1.5 mg few days later I decided to get off Copaxone (since it was not helping me) then I slowly went to 3mg and as of 9/11 I now take 4.5mg, I feel so much better, fatigue is no longer an issue don't have spasms which would wake me up every night , I can walk longer without my legs giving up, I still have balance issues and pray that with time it will get better, but if nothing else I am off the daily injections and that is enough for me . I am so glad my mother-in-law gave me an article about someone using LDN for MS otherwise I would never be where I am now with LDN Thanks Erma Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.