New to LDN

[Guest guest]

Hi everyone,

I am going to start LDN soon and wanted to say hello. I am very new

to this drug so I have been reading through the postings getting a

feel for it.... so far I'm pretty comfortable! I have the

following autoimmune diseases:

Hashimotos (thyroid)

s (adrenal)

Celiac

Pernicious Anemia (B12)

That's it so far... RA, Lupus, Fibro, Lyme all ruled out. My Dr is

wonderful and always open to trying new things so I return the favor

and do my homework. I'm going to keep reading through the postings

so I can speak semi-intelligently to him in a few weeks.

Thanks for being here!!

Cory

[Guest guest]

Good luck Cory and welcome!

Bev

-- In low dose naltrexone , " coryad " <coryad@...> wrote:

>

> Hi everyone,

> I am going to start LDN soon and wanted to say hello. I am very

new

> to this drug so I have been reading through the postings getting a

> feel for it.... so far I'm pretty comfortable! I have the

> following autoimmune diseases:

> Hashimotos (thyroid)

> s (adrenal)

> Celiac

> Pernicious Anemia (B12)

>

> That's it so far... RA, Lupus, Fibro, Lyme all ruled out. My Dr is

> wonderful and always open to trying new things so I return the

favor

> and do my homework. I'm going to keep reading through the postings

> so I can speak semi-intelligently to him in a few weeks.

>

> Thanks for being here!!

>

> Cory

>

[Guest guest]

Hi Cory,

welcome to this group, you're sure a lucky person having such a doctor. Hope you will find ldn as wonderful as I do, a year ago I had anemia, and despite a lot of iron meds it was too low. I know that p.anemia and anemia is not the same, but I hope ldn will help you with your kind as it did for mine.

I will copy and paste a saved experience on ldn and hashimotos, could be good to know:

(if you want, I have more saved mails, just tell me...)

Ingrid

"I have Hashi's and when I started LDN at the 4.5 dose I had animmediate response. Within two days on LDN I had such incredibleenergy...and this continued until day 19 when I finally realized thatwhat I was feeling was too much thyroid hormone -- I wasover-medicated. My heart rate jumped to 91, I had lost 10lbs in twoweeks...and I was just NOT tired...I couldn't sit still. It freaked meout -- mostly because I just wasn't prepared for that type ofimmediate response. I mean...I had JUST started LDN. If I had knownahead of time that there could be this type of response, I would havefigured out sooner that I needed to start reducing

my thyroid medsalmost immediately based on those symptoms. I know two women with the Grave's version of thyroid disease -- whowere in the hypo phase of the disease -- had a similar experience as Idid. One of these women has been on LDN for over 2 yrs now and shetold me that over a 6mo period she reduced her thyroid meds to whereshe no longer takes them. To manage your thyroid meds while taking LDN you have to monitor yourvitals -- ie; heart rate / blood pressure etc. --- then adjust(reduce) your thyroid meds. It's tricky to manage your thyroidlevels... but I can tell you being over-medicated like that is NOT apleasant feeling. Best

wishes..Jann."

Ingrid

[low dose naltrexone] Re: New to LDNGood luck Cory and welcome!Bev-- In low dose naltrexone , "coryad" <coryad@...> wrote:>> Hi everyone,> I am going to start LDN soon and wanted to say hello. I am very new > to this drug so I have been reading through the postings getting a > feel for it.... so far I'm pretty comfortable! I have the > following autoimmune diseases:> Hashimotos (thyroid)> s (adrenal)> Celiac> Pernicious Anemia (B12)>

> That's it so far... RA, Lupus, Fibro, Lyme all ruled out. My Dr is > wonderful and always open to trying new things so I return the favor > and do my homework. I'm going to keep reading through the postings > so I can speak semi-intelligently to him in a few weeks. > > Thanks for being here!!> > Cory>------------------------------------

[Guest guest]

Hi Tarra,

welcome to our group, certainly a great group "knowing" and getting advice from. I learn something new each time I am here to read. I have Crohns disease, and have improved a lot on LDN. I get my rx from my doctor and use ReVia (50 mg naltrexone). I put one pill in 50 ml boiled water (cold) and dissolve it from the morning to the night. Store it in the refridgerator. If you buy pills it's not necessary.

MS patients in here have this experience: some gets improvements on LDN. Some will only find that the disease is not being worse. All further symptoms is likely to not occur.

LDN is not a cure, and has to be taken the rest of our life. Every night sometimes between 10.00 and 02.00. For MS patients it's of great importance to take the pill at night. Even if LDN in the beginning (the first weeks) will give sleep disturbances as delayed sleep and/or vivid dreams.

This only happens to a few. It's LDN's most typical sideeffect and will go away within a couple of weeks if you get any at all.

Please ask Crystal where to find a doctor:

angelindisguise67@...

Read at Crystals pages to learn more:

http://crystalangel6267.webs.com/gazorpaldninfo.htm

to obtain ldn:

http://www.webspawner.com/users/howtoobtainldn/index.htmlHow to make your own LDN:

http://goodshape.net/HomemadeLDN.html

Good luck, please keep us updated how you're doing :-)Friendly regards Ingrid

[low dose naltrexone] New to LDNTo Erma Romani, Message # 71228:Thanks for the great information, Erma. I am new to LDN, also...in fact, still trying to obtain it! I first heard of it (indirectly) from SammyJo of ldners.org, who communicated with my niece here in Mexico. The subject of MS came up, and how much better I feel and do here. She told my niece about her good experiences with LDN and recommended she share her letter with me, which my niece did. After investigating thoroughly (which I do with everything), I decided I need to try it.I have suffered from MS since the late 1970's, but wasn't diagnosed until years later,

when I had a weird reaction to anesthetic while undergoing a hemithyroidectomy for a tumor. Three neurologists made a definitive diagnosis then of Relapsing Remitting Multiple Sclerosis, "retroactive" back to 1980 when my symptoms became more defined.In 2002, after an extremely stressful period and dramatic worsening of my symptoms, I was told by 2 neurologists in San , TX that the MS had "shifted gears" into Secondary Progressive. I was given a gloomy prognosis, but had already learned that no one knows my body as well as I do. I took my therapy, diet, etc., into my own hands and improved.In 2005, I moved back to Mexico (where I'd lived for many years earlier) to the Lake Chapala area (which I was new to). I experienced more rapid and impressive improvements.I've been on Copaxone injections since 2003, and am having difficulty with injections (not the Copaxone). Still, it has long been

a goal of mine to eventually get off the Copaxone. LDN seems to be my best hope. I have many of the same symptoms you described: extreme spasticity, pain, fatigue, weakness, poor balance (though I walk daily w/wo a cane, after almost 3 years in a wheelchair from 2002 to 2005), bladder control difficulty, sleep disturbances, etc.Your results sound very encouraging to me, and I know I need to begin at the lower dosage. My big problem now is obtaining naltrexone. I've learned that it's available without hassle here in Mexico, but I haven't a clue as to where to start looking. I stay in touch with my primary neurologist in Texas, but with his agreement (and trust in me) I pretty much manage my own meds, informing him of changes.CAN ANYONE HELP WITH LOCATING PHARMACIES IN THE GUADALAJARA AREA WHICH SELL NALTREXONE? You can e-mail me if you like at tmss16@.... I really appreciate the help (in advance), and thanks to you and all others who have shared tips on beginning and maintaining LDN therapy. I am liking this site more and more all the time. What an interesting and courageous (my kind) group of people you all are!Tarra in Mexico------------------------------------