Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Respectfully, I think it's the other way round: the sponsors must do open, sufficiently powered, and independently reviewed, research before promoting that an approach has merit as treatment. The governement does not restrict research, but it does mandate that there be clear and convincing evidence before a therapy can be marketed as a treatment for medical conditions. And I think if this was not the case we'd be in a state of chaos, and at the mercy of slick salesmen. However, IRBs (Institutional Review Boards) may restrict research because of ethical or safety concerns; and there are many examples of natural compounds that have been tested, and many, perhaps the majority, of cancer drugs are derived from natural compounds. See http://www.cancer.gov/newscenter/benchmarks-vol4-issue4/page2 Many times it's preclinical testing that form the basis for promoting herbal products - such as cell culture experiments (notorously LEF), which are very poor models for efficacy in humans as treatments, most often because test tube experiments cannot account for changes to tumor cells when taken from the body (often they die spontaneously when removed) and also bioavailability - the blood levels needed to have a clinical effect, and if there will be toxicity at those levels. All the best, ~ Karl GlycoNutrients > > > What about Glyco Nutrients? -- the eight essential sugars the body > requires in order to maintain proper cell to cell communication? I > read about these nutritional sugars all over the internet. They are > absolutely vital for optimal immune system function. > > It is helping my 85-year-old mother who was just diagnosed with a form > of acute leukemia. She is starting a program at Moffitt next week also. > > With a masters in nutrition from Penn State University, she and my > father have been extremely health conscious - fresh salads, salmon and > other fish, fresh vegetables, carbs, etc. etc. They've been on quality > vitamins for 30+ years. They've been in perfect health, until this. > My father is 84 and still in perfect health. > > She has always had allergies. Maybe it's the benzene that might be > used on the golf course on which they live. > > Any advice would be appreciated. Not medical advice, i.e. chemo or > radiation. Those are killers. I'm looking for nutritional advice only. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 My son tried them for about 1 month. At the time we were doing a lot of other supplements and he was already doing better. I didn't notice a great jump using glyconutrients. From what I have noticed, certain supplements work better for some kids depending on the kid's body and what his body needs to heal, whether the supplement is in a form that can be absorbed by the kids body, hits the right deficit in that body etc... Every child is different, what helps my child, might not help yours because his body might not be at the same stage of healing. What didn't help my child might help yours because his body needs it more etc.... I guess what I'm saying is it doesn't hurt (except in the wallet, it's not cheap) to try it. Nagla > > Hi all, > Has anyone tried Glyconutrients? I heard from a 14 year old child with > Autism that he thought these were very helpful to him so I want to give > it a try. Thanks. > Trina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 My son tried them for about 1 month. At the time we were doing a lot of other supplements and he was already doing better. I didn't notice a great jump using glyconutrients. From what I have noticed, certain supplements work better for some kids depending on the kid's body and what his body needs to heal, whether the supplement is in a form that can be absorbed by the kids body, hits the right deficit in that body etc... Every child is different, what helps my child, might not help yours because his body might not be at the same stage of healing. What didn't help my child might help yours because his body needs it more etc.... I guess what I'm saying is it doesn't hurt (except in the wallet, it's not cheap) to try it. Nagla > > Hi all, > Has anyone tried Glyconutrients? I heard from a 14 year old child with > Autism that he thought these were very helpful to him so I want to give > it a try. Thanks. > Trina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 My son is taking 1) amino acids 2) omega 3, 6 and 9's oil 3) transfer factor 4) barefoof coral calcium (helps maintain ph balance) 5) frequensea (helps alkalinize the body and loaded with vitamins and minerals) It also absorbs better since it's a liquid. 6) ambrotose 7) Juice Plus gummies (this is not coming from the dr. but I'm still giving it to him since I'm a distributor and know the benefits) The other items are the homeopathy drops. We are on our 2nd phase. The first phase was to help detox the bad stuff from the vaccines. Now we are doing a heavy metal detox. I'm not sure what's next, but our dr. mentioned we'd do a yeast detox, plus much more. The protocol we are doing last for one year. We started in Feb. 08 and I'm pleased with the results so far. My son is doing amazing things. He's still non-verbal, but I will take that over behavior anytime. I forgot to mention his transitioning is awesome! Usually he would have tantrums by falling on the ground kicking (bruising my legs) and getting our of his car seat. He now understands " when it's time to go, it's time to go " . Like any other kid having fun, he'll whine, but that's it. Our dr. is Carley. Her website is www.drcarley.com My friend started the protocol on her son the same day as us. Her son was somewhat verbal at the time and now it talking a lot. My son is babbling more and almost sounds like he's singing. I hope this info. was helpful, but like I mentioned I don't know if all the credit goes to the glyconutrients because we are doing a combination of supplements. Oh, one more thing. He's not as obsessive compulsive like he used to be. Things are phasing out. An example is his portable dvd player. It HAD to go everywhere with him. (By the bathtub, in bed, in the car, outside to play, and while riding the 4 wheeler). Now he can walk away from it like no big deal. I only bring it out as a reinforcer or when he's bored, but he can let it go when it's time to do other things. Mirielle Glyconutrients Hi all, Has anyone tried Glyconutrients? I heard from a 14 year old child with Autism that he thought these were very helpful to him so I want to give it a try. Thanks. Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 My son is taking 1) amino acids 2) omega 3, 6 and 9's oil 3) transfer factor 4) barefoof coral calcium (helps maintain ph balance) 5) frequensea (helps alkalinize the body and loaded with vitamins and minerals) It also absorbs better since it's a liquid. 6) ambrotose 7) Juice Plus gummies (this is not coming from the dr. but I'm still giving it to him since I'm a distributor and know the benefits) The other items are the homeopathy drops. We are on our 2nd phase. The first phase was to help detox the bad stuff from the vaccines. Now we are doing a heavy metal detox. I'm not sure what's next, but our dr. mentioned we'd do a yeast detox, plus much more. The protocol we are doing last for one year. We started in Feb. 08 and I'm pleased with the results so far. My son is doing amazing things. He's still non-verbal, but I will take that over behavior anytime. I forgot to mention his transitioning is awesome! Usually he would have tantrums by falling on the ground kicking (bruising my legs) and getting our of his car seat. He now understands " when it's time to go, it's time to go " . Like any other kid having fun, he'll whine, but that's it. Our dr. is Carley. Her website is www.drcarley.com My friend started the protocol on her son the same day as us. Her son was somewhat verbal at the time and now it talking a lot. My son is babbling more and almost sounds like he's singing. I hope this info. was helpful, but like I mentioned I don't know if all the credit goes to the glyconutrients because we are doing a combination of supplements. Oh, one more thing. He's not as obsessive compulsive like he used to be. Things are phasing out. An example is his portable dvd player. It HAD to go everywhere with him. (By the bathtub, in bed, in the car, outside to play, and while riding the 4 wheeler). Now he can walk away from it like no big deal. I only bring it out as a reinforcer or when he's bored, but he can let it go when it's time to do other things. Mirielle Glyconutrients Hi all, Has anyone tried Glyconutrients? I heard from a 14 year old child with Autism that he thought these were very helpful to him so I want to give it a try. Thanks. Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 I forgot to mention two other supplements Silver Water which helps kill many bacteria and AT EZZ which is for calming. Mirielle Glyconutrients Hi all, Has anyone tried Glyconutrients? I heard from a 14 year old child with Autism that he thought these were very helpful to him so I want to give it a try. Thanks. Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 I forgot to mention two other supplements Silver Water which helps kill many bacteria and AT EZZ which is for calming. Mirielle Glyconutrients Hi all, Has anyone tried Glyconutrients? I heard from a 14 year old child with Autism that he thought these were very helpful to him so I want to give it a try. Thanks. Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Hi Mirielle, Is the AT EZZ purchased through Dr. Carley and is it part of her protocol or do you buy it elsewhere? CReece **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Yes, At Eez is part of the protocol. It's part of the healing process from all of the damaged caused from vaccines. Dr. Carley does not sell any products. She tells me where to buy the items. Email me at pinkie6@... and I'll give you the info. where it was purchased. (if you are interested). Mirielle Re: Glyconutrients Hi Mirielle, Is the AT EZZ purchased through Dr. Carley and is it part of her protocol or do you buy it elsewhere? CReece **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hi, Does anyone know of an affordable brand of glyconutrients? I take it with my LDN, but can no longer afford the brand I am taking. Does anyone else out there take glyconutrients with LDN? Thanks. karen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.