Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Sonya, Good-luck. I've heard most neuro doc's won't prescribe this treatment until there is cold hard clinical trial data for them to evaluate. I've been faxing my doc all pertinent LDN information I find in an effort to educate him prior to any clinical trial data (which he wants!) Are you or your Mom taking any other MS meds? [low dose naltrexone] New, wish me luck Hi, I am fairly new to the group. I joined to gather info because my 4 yo son has Autism and our DAN! rec'd LDN. While doing the research I found it was also helpful for MS which my Mom has progressive MS and I have relapsing remitting MS. I am going with my Mom tom. to her Neuro armed w/ the info from the LDN webpage, wish me luck as I am going to try to get him to prescribe it for her. I have not started my son on it yet as I am trying the all natural approach with him first. Right now I am doing really well with my health but I may try it myself as well.Thanks, Sonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Sonya, That-a-girl !!!!!!!!!!!!!!!!!!!!!! The more informed you are about LDN, the better. If your doc won't prescribe LDN, PLEASE keep trying or else try to find another prescribing doctor. Remember, it's your body and you are the one responsible for what goes in it. We'll be rooting for ya. Keep us updated :)JanetRRMS 1994LDN May '07PS. Sounds like your Mom may need LDN as the progressive forms of MS do not respond to the conventional therapies.From: Sonya O'Brien <frogfoot1969@...>Subject: [low dose naltrexone] New, wish me luckTo: low dose naltrexone Date: Sunday, September 28, 2008, 10:49 PMHi, I am fairly new to the group. I joined to gather info because my 4 yo son has Autism and our DAN! rec'd LDN. While doing the research I found it was also helpful for MS which my Mom has progressive MS and I have relapsing remitting MS. I am going with my Mom tom. to her Neuro armed w/ the info from the LDN webpage, wish me luck as I am going to try to get him to prescribe it for her. I have not started my son on it yet as I am trying the all natural approach with him first. Right now I am doing really well with my health but I may try it myself as well.Thanks, Sonya------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 Sonya, did you know that many MSer's have children with autism? Some feel autism is another autoimmune disease. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Yes, I agree there seems to be a high incidence of autoimmune dysfunction in parents of children w/ Autism. Which tends to agree with the theory that there is a genetic predisposition loading the gun and environment pulling the trigger. Sonya > > Sonya, did you know that many MSer's have children with autism? Some feel autism is another autoimmune disease. > > Beverly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Wow, I got no argument or disgusted looks from my Mom's neuro. He even asked me what dosage? lol. He did know more about it than I expected. I think he sees it as nothing to lose giving it a try. I found a compounding pharm. here in town that has compounded it before and use the powder to do so. My Mom is excited to try it and we are hopeful it will stop any further exaccerbations. My Mom is a bit concerned however that when she needs pain meds they won't work. How do you handle the pain situation? Thanks, Sonya > From: Sonya O'Brien <frogfoot1969@...> > Subject: [low dose naltrexone] New, wish me luck > low dose naltrexone > Date: Sunday, September 28, 2008, 10:49 PM > > Hi, I am fairly new to the group. I joined to gather info because my 4 > yo son has Autism and our DAN! rec'd LDN. While doing the research I > found it was also helpful for MS which my Mom has progressive MS and I > have relapsing remitting MS. I am going with my Mom tom. to her Neuro > armed w/ the info from the LDN webpage, wish me luck as I am going to > try to get him to prescribe it for her. I have not started my son on > it yet as I am trying the all natural approach with him first. Right > now I am doing really well with my health but I may try it myself as > well. > > Thanks, Sonya > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 I tried Copaxone for a year but had to many side effects. They wanted me to try Avonex but I declined. I have been waiting for a pill, lol. My Mom is not on any MS meds. They do steriods very often with her which I hate. In her case it is becoming very progressive so we are hoping the LDN will slow things down. I am sorry to hear your doc won't prescribe it, it is a shame. With as many people having positive results, are there any talks of doing a clinical trial? Sonya > > Sonya, > Good-luck. I've heard most neuro doc's won't prescribe this treatment until there is cold hard > clinical trial data for them to evaluate. I've been faxing my doc all pertinent LDN information I find > in an effort to educate him prior to any clinical trial data (which he wants!) > Are you or your Mom taking any other MS meds? > > > > > [low dose naltrexone] New, wish me luck > > > Hi, I am fairly new to the group. I joined to gather info because my 4 > yo son has Autism and our DAN! rec'd LDN. While doing the research I > found it was also helpful for MS which my Mom has progressive MS and I > have relapsing remitting MS. I am going with my Mom tom. to her Neuro > armed w/ the info from the LDN webpage, wish me luck as I am going to > try to get him to prescribe it for her. I have not started my son on > it yet as I am trying the all natural approach with him first. Right > now I am doing really well with my health but I may try it myself as > well. > > Thanks, Sonya > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Good for you Sonya! I agree with the Neurologist, it's worth a try. Good luck to your Mom. Let us know how she's doing! [low dose naltrexone] New, wish me luck> low dose naltrexone> Date: Sunday, September 28, 2008, 10:49 PM> > Hi, I am fairly new to the group. I joined to gather info because my 4 > yo son has Autism and our DAN! rec'd LDN. While doing the research I > found it was also helpful for MS which my Mom has progressive MS and I > have relapsing remitting MS. I am going with my Mom tom. to her Neuro > armed w/ the info from the LDN webpage, wish me luck as I am going to > try to get him to prescribe it for her. I have not started my son on > it yet as I am trying the all natural approach with him first. Right > now I am doing really well with my health but I may try it myself as > well.> > Thanks, Sonya> > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 Yes there are a few trials out there. From Jerry. Glick email: At the LDN conference next month, we'll be telling the attendees about several new clinical trials. Tell your neuro that the Sept. issue of the UK journal "Multiple Sclerosis" has a 6 month study by M. Gironi et al (if Milan, Italy) that shows almost 40 people with the "non-treatable" Primary Progressive MS showing NO progression during their time on LDN -- and statistically significant improvement as well in spasticity!!! And, the September MS meetings in Montreal showed a poster of Dr Bruce Cree's positive results of a brief clinical trial of LDN in MS (done at Univ. of Calif. in San Francisco).trail data on: www.ldninfo.org Chris [low dose naltrexone] New, wish me luck> > > Hi, I am fairly new to the group. I joined to gather info because my 4 > yo son has Autism and our DAN! rec'd LDN. While doing the research I > found it was also helpful for MS which my Mom has progressive MS and I > have relapsing remitting MS. I am going with my Mom tom. to her Neuro > armed w/ the info from the LDN webpage, wish me luck as I am going to > try to get him to prescribe it for her. I have not started my son on > it yet as I am trying the all natural approach with him first. Right > now I am doing really well with my health but I may try it myself as > well.> > Thanks, Sonya> Quote Link to comment Share on other sites More sharing options...
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