WOW!!! There is really something wrong here!!!! avoid sleep disturbance?

[Guest guest]

WOW........I am just shocked at all the problems over the sleep/dosing issue that has arisen - I am one of the original posters to this latest round of sleep disturbance questions and maybe even started all this latest go around with my response.........

There seems to be a lot of rigidness here - and when I did respond to the person who posed the question originally; I made it VERY, VERY clear that I DO NOT have MS and can ONLY speak for those of us with: Fibro, Joint pain AND sleep problems. I also am Hypo-thyroid and have a pituitary tumor, which LDN may or may not help with.

I am a WALKING success story - just in the fact that I am walking again, I still have hip joint pain, but prior to June I could not remotely have done what I have the past 3 months.......

Prior to June I could not walk from a parking lot and shop and make it back to the car again without excruciating pain.

I would not have been able to go visit my other half's mom in the hospital, I would have been in AGONY walking from the parking lot, thru the hospital and back again - let alone do it several times a day and throw in a few trips to the cafe on top of it........and then do it again when my daughter had a baby last week, or play with the other grandkids.........

I am still amazed that I am now able to do these things.

I also went thru shoulder surgery this August, on my right shoulder.........so obviously I could not sleep on that side - but prior to June I could not lie on my left side for more than 30 seconds or so.......

Now I sleep sometimes all night on my left side again!!!

Then there is the Fibro, also worse on my left side, the thigh felt like someone took a sledge hammer to me and left me all bruised - hurts to be touch more than lightly along with all those wonderful trigger points or should I say bruise spots???

No........I am not perfect, but I am able to do SOOOOOO much more AND have LESS pain to boot AND enjoy life........I cannot even begin to describe how painful and how much I paid for a few hours of yard work, shopping and go to Disney/Epcot/MGM???? those were some of my biggest nightmares.........NO FUN for me at all.......I am sure a day of walking around a theme park might still do me in...........but not in an hour like it use to.......

So..........all I can say is: don't judge - because I am living walking proof that LDN taken in the AM works........might it work better at night - I can only hope so..........as I MOST certainly will try for a 3rd time one of these days to switch back to nights again........but right now - I am having too many sleep and thyroid problems to do another round of no sleep at all.

Toni, you are better than me - right now I could not do 6 weeks, the most I can handle of complete no sleep is 2 weeks and like you I felt it wasn't safe for me to operate any further on that much sleep depravation.

I don't get why anyone one on here would deny someone the relief that I am experiencing just to say it HAS to be at night. I know how scared I felt when I moved to the morning, not sure of what would happen because the majority on here said that was such a NO NO........but thank goodness and bless each and everyone one of you who wrote to me in the forum or privately letting me know there are those out there who have succeeded with AM dosing.

I can certainly understand anyone saying the best times are:............but if you are one of those who absolutely cannot do the night time dosing then at least give AM a try.......would would anyone deny someone the ability to get better???

I just don't get it.............

PS yesterday...........I cut down a tree, lopped off the top of another one and cut it up and dragged it to the street for pick up.............took me 4 hours..........and I did hurt last night.........but NOT like before if I could even have done that before, today I am fine and this with surgery on my shoulder 6 weeks ago!!! I am just SO thrilled!!!!

SeaLady

Thanks for asking how long I tried nighttime dosing, Bev. I tried for six weeks and, as a few others have reported, got to the point where I didn't think it was safe for me to be so sleep deprived. I tried all the remedies that people suggest (melatonin to name but one in a dozen) and nothing helped. I also had nightmares that, according to Wikipedia's definition, would come under the heading of night terrors -- truly awful. Even taking LDN during the day, I still occasionally get a night terror. The difference is that now (after pacing the house for a half hour to let the stress subside) I sleep before and after the night terror. I know it's LDN related because I've never had them before. I like to think that it's a sign the LDN is doing its job.I know I might be benefiting more if I could take LDN at night and have thought about taking it at 3 a.m. to see if that would work. But I'm so sick already, that without sleep, I'm non-functional and so I just haven't had the "guts" to try it at nighttime again. Maybe someday soon.Toni

____________________________________________________________

Click here for free information on how to reduce your debt by filing for bankruptcy.

[Guest guest]

GREAT that it works for you. Whatever works, is wonderful. WHO is DENYING you anything? I just don't get it. People ASK for advice, others GIVE the advice THEY have to give. It doesn't DENY anyone ANYTHING. YOU don't like an answer you get, IGNORE IT. Who really cares? I don't. I'm asked a question, I GIVE MY ANSWER: NOT YOUR ANSWER, MINE. I really don't care what someone does with the answer, I know I gave the answer I'd give to anyone who asked the same question.

NOBODY IS CONTROLLING ANYONE or DENYING anyone by giving their opinion????

Your story is great, what's the PROBLEM?

[low dose naltrexone] WOW!!! There is really something wrong here!!!! avoid sleep disturbance?

I can certainly understand anyone saying the best times are:............but if you are one of those who absolutely cannot do the night time dosing then at least give AM a try.......would would anyone deny someone the ability to get better???

I just don't get it.............