Re: LDN AND THYROID

[Guest guest]

if after 2 weeks on 1.5 mg she is stable with her thyroid and does

not become hyper then she can go to 3 mg and to see again that she

does not become hyper.if she becomes hyper she can take less thyroid

medication.this is assuming she is hypothyroid.

>

> hi all,my cousin suffering with psoriatic artritis,started ldn

last

> week with dosage of 1,5 mg.the md told her to stay on thet dosage

and

> do not increase because of hers thyroid.she has thickened thyroid

and

> is taking a meds (i forgot the name )

> my opinion is that ldn could only help her for thyroid,but to be

more

> sure i ask your opinion.

> any suggestion will be greatly appreciated

> my best

> emiliano

>

[Guest guest]

yes she is hyper.

thanks for advices

emiliano

> >

> > hi all,my cousin suffering with psoriatic artritis,started ldn

> last

> > week with dosage of 1,5 mg.the md told her to stay on thet

dosage

> and

> > do not increase because of hers thyroid.she has thickened

thyroid

> and

> > is taking a meds (i forgot the name )

> > my opinion is that ldn could only help her for thyroid,but to be

> more

> > sure i ask your opinion.

> > any suggestion will be greatly appreciated

> > my best

> > emiliano

> >

>

[Guest guest]

if she is hyper then the best place to ask is

http://www.ahsta.com/

> > >

> > > hi all,my cousin suffering with psoriatic artritis,started ldn

> > last

> > > week with dosage of 1,5 mg.the md told her to stay on thet

> dosage

> > and

> > > do not increase because of hers thyroid.she has thickened

> thyroid

> > and

> > > is taking a meds (i forgot the name )

> > > my opinion is that ldn could only help her for thyroid,but to

be

> > more

> > > sure i ask your opinion.

> > > any suggestion will be greatly appreciated

> > > my best

> > > emiliano

> > >

> >

>

[Guest guest]

hi charlotte,i'm emiliano from itali,my cousin is taking ldn for

psoriatic arthritis,and considering that she is ipo with ashimoto

thyrod she gets at the same time eutirox.she started with a very low

dose of ldn,1,5 mg/day.that was the suggest i got.she does blood

test to evaluete if there is the risk to become iper if every thing

is ok step by step she will reduce the thyroid meds and encrease the

ldn dosage.for now(more or less 1.5 month on ldn)she is ok with

thyroid tests and most likely soon start to encrease ldn and reduce

eutirox

my best

emiliano

>

> Hi,

>

> I am new to the group and my name is Charlotte, looking forward to

learning

> what you have already have learned about LDN.

>

> I received my LDN pills on Friday and I took the first one that

night., which

> was the higher mg. Then Saturday morning I was looking for more

information

> about LDN and found a cautionary warning about LDN and thyroid.

This is what it

> said:

> 1. Those patients who are taking thyroid hormone replacement

for a

> diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to

begin LDN at the

> lowest range (1.5mg for an adult). Be aware that LDN may lead to a

prompt

> decrease in the autoimmune disorder, which then may require a rapid

reduction in

> the dose of thyroid hormone replacement in order to avoid symptoms

of

> hyperthyroidism.

> I do take a thyroid pill each morning and I had already taken it

before I

> found this warning. I decided to stop the LDN till I can talk to my

Doctor on

> Monday.

> Is there anyone else taking a thyroid pill and LDN together? If so,

would you

> please tell me all that you can about taking the two together.

>

> Thank you,

> Charlotte

> **************Inauguration '09: Get complete coverage from the

nation's

> capital.(http://www.aol.com?ncid=emlcntaolcom00000027)

>

[Guest guest]

I take both LDN and synthroid. I take the LDN at night and the synthroid in the am . I had to decrease my thyroid med because the LDN worked to improve my thyroid function. I just had to lower the mcg dose of the thyroid med. I knew I had too much thyroid meds because I was getting anxious, heart was palipitating. Lower the thyroid med made those symptoms disappear. My MD said I would need to have my thyroid levels monitored with blood tests and also how I felt feel and that determined what synthroid dose to take.  LizFrom: "cabwnana@..." <cabwnana@...>low dose naltrexone Sent: Sunday, January 18, 2009 8:02:22 AMSubject: [low dose naltrexone] LDN and Thyroid

Hi,

 

I am new to the group and my name is Charlotte, looking forward to learning what you have already have learned about LDN.

 

I received my LDN pills on Friday and I took the first one that night., which was the higher mg. Then Saturday morning I was looking for more information about LDN and found a cautionary warning about LDN and thyroid. This is what it said:

Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto¢s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism.

I do take a thyroid pill each morning and I had already taken it before I found this warning. I decided to stop the LDN till I can talk to my Doctor on Monday.

Is there anyone else taking a thyroid pill and LDN together? If so, would you please tell me all that you can about taking the two together.

 

Thank you,

CharlotteInauguration '09: Get complete coverage from the nation's capital.

[Guest guest]

I take LDN and Armour thyroid for Hashimotos. However I'm still in my first two

weeks with LDN so I can't speak for long term use, but I started at 1.5 and

after a week I increased it to 3 and just last night to 4.5. I have an

appointment in a month and a half to get my thyroid checked so I don't have a

lot of time because if there isn't major improvement I won't get a LDN refill.

Here is what I have noticed

- I still take D-ribose for energy, without it, I still feel fatigued in the

middle of the day, but not quite as much as I used to

- I have major energy spurts and my house is now clean

- I have started losing weight (I was low carbing for about three weeks before I

started LDN with no weight loss)

- I had a very bad memory for about a week, worse than usual, but now I am

remembering things better than before LDN

- I have a better sense of smell and better breathing, which have nothing to do

with Hashi's

- I have an easier time adjusting Armour than synthroid, perhaps because of the

T3 in Armour, but I went through a 3 week adjustment period where Armour was

much worse than synthroid. (I switched because Armour was a lot cheaper than

synthroid and cytomel, and I almost switched back - but now I'm very thankful

that I stuck it out), and next week I expect to cut my dose

- I no longer feel a chocking sensation in my throat

- My knees no longer click when I walk (also nothing to do with Hashi's)

- I no longer feel stabbing pains in my back (again, nothing to do with Hashi's)

-I take vitamins in the AM including major amounts of B, thyroid in the

afternoon, and LDN after 9

Jill

Quote :

“ When I was 5 years old, my mom always told me that happiness was the key to

life.

When I went to school, they asked me what I wanted to be when I grew up. I wrote

down “happy.â€

They told me I didn’t understand the assignment and I told them they didn’t

understand life.

> Doctor on

> > Monday.

> > Is there anyone else taking a thyroid pill and LDN

> together? If so,

> would you

> > please tell me all that you can about taking the two

> together.

> >

[Guest guest]

>Sounds to me like you have already had several major improvements so I don't

understand what you are talking about when you say that if you don't have a

major

improvement you won't get a LDN refill.

I have fibro, CFS, hypothroidism, vilitago and touches of RA so I would be

beyond thrilled

to experience even half improvements you mentioned. Just now gathering info for

my Dr.

Barbara Lochner

> I take LDN and Armour thyroid for Hashimotos. However I'm still in my first

two weeks

with LDN so I can't speak for long term use, but I started at 1.5 and after a

week I

increased it to 3 and just last night to 4.5. I have an appointment in a month

and a half

to get my thyroid checked so I don't have a lot of time because if there isn't

major

improvement I won't get a LDN refill.

> Here is what I have noticed

> - I still take D-ribose for energy, without it, I still feel fatigued in the

middle of the

day, but not quite as much as I used to

> - I have major energy spurts and my house is now clean

> - I have started losing weight (I was low carbing for about three weeks before

I started

LDN with no weight loss)

> - I had a very bad memory for about a week, worse than usual, but now I am

remembering things better than before LDN

> - I have a better sense of smell and better breathing, which have nothing to

do with

Hashi's

> - I have an easier time adjusting Armour than synthroid, perhaps because of

the T3 in

Armour, but I went through a 3 week adjustment period where Armour was much

worse

than synthroid. (I switched because Armour was a lot cheaper than synthroid and

cytomel, and I almost switched back - but now I'm very thankful that I stuck it

out), and

next week I expect to cut my dose

> - I no longer feel a chocking sensation in my throat

> - My knees no longer click when I walk (also nothing to do with Hashi's)

> - I no longer feel stabbing pains in my back (again, nothing to do with

Hashi's)

> -I take vitamins in the AM including major amounts of B, thyroid in the

afternoon, and

LDN after 9

>

> Jill

>

>

> Quote :

> “ When I was 5 years old, my mom always told me that happiness was the key

to

life.

>

> When I went to school, they asked me what I wanted to be when I grew up. I

wrote

down “happy.â€

>

> They told me I didn’t understand the assignment and I told them they

didn’t

understand life.

>

>

>

> > Doctor on

> > > Monday.

> > > Is there anyone else taking a thyroid pill and LDN

> > together? If so,

> > would you

> > > please tell me all that you can about taking the two

> > together.

> > >

>

[Guest guest]

Hi Charlotte

I have Hashi's and just started taking LDN about 2 weeks ago. I

lowered my dose of thyroid meds a bit prior to starting just to be on

the safe side and took the 1.5 ml dose for the first ten days upped a

bit to 2.5 for the past 4 days.

I felt great the first week...but started noticing more and more

fatigue after the first seven days. I got my thyroid levels tested

around day 10 and sure enough I'm more hypo than I should be (my TSH

went from 1.69 to 4.17 (range .35-5) - but my FT3 was below range 3.4

(range 3.5-6.5). So I'll be upping my thyroid meds a bit over the next

few weeks.

Overall I feel loads better even being a bit hypo - more energy,

better digestion, normal blood pressure, less muscle aches and much

better mood (not so flat feeling). I expect it will take time to heal

and I may still have reduced thyroid function, but I'm hoping to feel

less symptomatic and more energetic...so far so good.

MM2

[Guest guest]

>

> > Doctor on

> > > Monday.

> > > Is there anyone else taking a thyroid pill and LDN

> > together? If so,

> > would you

> > > please tell me all that you can about taking the two

> > together.

> > >

>

I have an underactive thyroid (not thyroid disease), and take 1 gr a

day. I started taking LDN at night but after 6 months of tinkering with

the dosage settled on 4 mg. I stopped taking it at night as it

interfered with my sleep and now take it in the morning with no

problems. I used to take the LDN and the thyroid at different times of

the day but now take them together and it is fine. My doctor said I

could take them together.

PFox

[Guest guest]

Unless I show improvements in my throid antibody counts, although I suppose I

could probably argue tsh, free t3 or free t4. My endo is the one who gave me

the script so the other symptoms are subjective measures of improvement in

undocumented symptoms that could be due to placebo effect and he won't take them

into account (I wasn't even aware I had smell or breathing issues until they

improved). However, if it does work, I think he will try it on his cfs

patients.

Jill

Quote :

“ When I was 5 years old, my mom always told me that happiness was the key to

life.

When I went to school, they asked me what I wanted to be when I grew up. I wrote

down “happy.â€

They told me I didn’t understand the assignment and I told them they didn’t

understand life.

> From: blochner2001 <blochner2001@...>

> Subject: [low dose naltrexone] Re: LDN and Thyroid

> low dose naltrexone

> Date: Sunday, January 18, 2009, 2:40 PM

>

>

> >Sounds to me like you have already had several major

> improvements so I don't

> understand what you are talking about when you say that if

> you don't have a major

> improvement you won't get a LDN refill.

>

[Guest guest]

Hello All,

I am new to the group and have Hashimoto’s Thyroid, diagnosed

first in 1999. But based on crazy unexplained symptoms throughout the 90’s

was subclinical for years earlier. I had all but given up hope that I

would ever be able to get off of armour or synthroid until I found this LDN…

I am still skeptical and have had some major issues in the past by trying

various diets, juice fasts and the like to try to heal my disease and get off

of the meds. I have a couple of questions that maybe someone here can

answer:

Is there anyone who has

Hashimoto’s and has completely weaned off of synthroid or armour?

Does LDN need to be used

forever or is it just for a period of time?

I was told my body’s

immune system will eventually totally kill off my thyroid gland…

could it be too late to repair the damage?

How would I go about exploring

the use of LDN and are there any endo docs in south Florida who are working with LDN as a

form or therapy?

Ok that is it for starters… I do not want to get my

hopes up… and again am worried about messing with my very finely balanced

dosages… but if I can work with a doc who is open to this I would definitely

give it a go.

Thanx

Josh

[Guest guest]

Hi Charlotte,

I think the best advice is about starting out at a lower dose of

LDN...then while monitoring your BP/HR (ie; hyper-like symptoms)

continue to up your LDN dose to 4.5mg....continue to monitor your

BP/HR...and retest your thyroid levels to determine if you need to

lower your THR (thyroid hormone replacement).

Using LDN therapy is a little tricky with thyroid issues...but still

worth the effort.

....

I saw your response about your doctor probably NOT wanting to refill

your LDN prescription unless your antibody counts were being reduced.

It may take 3-4mos before that may happen...at least that was MY

experience and a few others that I know about.

Check out " AHSTA " -- Alternative Health Solutions for Thyroid

Autoimmunity if you haven't already. There are several thyroid folks

there using LDN therapy. http://www.ahsta.com

However, I have to comment that I think your doctor is missing other

important aspects of having thyroid disease -- aspects that can't be

measured with a blood test. ie; " Well Being " .

Best wishes,

Jann

[Guest guest]

Hi Josh,

> 1. Is there anyone who has Hashimoto's and has completely weaned off

off synthroid or armour?

I know of one other person who was using LDN therapy for over 3yrs who

no longer needs THR (thyroid hormone replacement).

> 2. Does LDN need to be used forever or is it just for a period of time?

Since there have been NO trials using LDN therapy for thyroid disease

there is NOT a definitive answer for this. I know SEVERAL thyroid

folk who plan to use LDN indefinitely.

> 3. I was told my body's immune system will eventually totally kill

off my thyroid gland. could it be too late to repair the damage?

Again...with NO LDN trials for thyroid disease there is NOT a

definitive answer to this question.

Consider that you've had thyroid disease for over 10+ years -- it's

VERY likely that your thyroid gland is irreparably damaged. However,

that does NOT mean that you still can't realize some IMPROVEMENT in

it's function. I know that I am...andI've had Hashi's for 10-15yrs

also. My antibodies are much lower since being on LDN since Feb 08.

And the most important benefit -- I just FEEL BETTER overall.

> 4. How would I go about exploring the use of LDN and are there any

endo docs in south Florida who are working with LDN as a form or therapy?

>

I'd suggest buying Elaine 's book; " The Promise of Low Dose

Naltrexone " ...reading it and then sharing it with your doctor. If

YOUR doctor is not comfortable using LDN therapy then find one that is.

Best wishes,

Jann

[Guest guest]

Hi Josh

I gave LDN a real good go for some 8 months.

I have hashimotos as well as a few other AI's.

First up LDN is not a fix all.

It did not bring down my Antibody levels, they actually increased

significantly (my dose 4.5mg)..other AI symptoms increased also.

I also had to increase my Thyroid Meds not decrease while using LDN.

For me LDN is a paradox..it may or may not work for you and others.

Monitor your bloods regularly.

It can make you feel better...I do wonder about the science behind

it...I mean we know endorphins are a feel good...but what do they do

for the immune system...it does have an effect on the immune system

(thats documented) but is that effect all good ..its not clear or

proven exactly what it's doing.(not enough research)

I do wonder if LDN is actually a two edged sword..with a fine balance

for better or worse.

It is essential that you are stable with thyroid meds before you

start.

Antibody counts do fluctuate.

Good Luck

>

> Hello All,

>

>

>

> I am new to the group and have Hashimoto's Thyroid, diagnosed first

in 1999.

> But based on crazy unexplained symptoms throughout the 90's was

subclinical

> for years earlier. I had all but given up hope that I would ever

be able to

> get off of armour or synthroid until I found this LDN. I am still

skeptical

> and have had some major issues in the past by trying various diets,

juice

> fasts and the like to try to heal my disease and get off of the

meds. I

> have a couple of questions that maybe someone here can answer:

>

>

>

> 1. Is there anyone who has Hashimoto's and has completely weaned

off of

> synthroid or armour?

> 2. Does LDN need to be used forever or is it just for a period

of time?

> 3. I was told my body's immune system will eventually totally

kill off

> my thyroid gland. could it be too late to repair the damage?

> 4. How would I go about exploring the use of LDN and are there

any endo

> docs in south Florida who are working with LDN as a form or therapy?

>

>

>

> Ok that is it for starters. I do not want to get my hopes up. and

again am

> worried about messing with my very finely balanced dosages. but if

I can

> work with a doc who is open to this I would definitely give it a go.

>

>

>

> Thanx

>

> Josh

>

[Guest guest]

Ironically, I've found this doctor to be more responsive than most - as long as

I've brought in supporting studies he is willing to try anything, and he is not

threatened by my research. I have been to several endos that refused to check

antibodies, told me I needed to diet and excersise, and wanted to put me on

statins, there are even some endos that refuse to treat Hashi when the TSH is in

normal range. AHSTA seems to be geared mostly to Graves disease. Maybe we need

an ldn thyroid group or something.

>

> I saw your response about your doctor probably NOT wanting

> to refill

> your LDN prescription unless your antibody counts were

> being reduced.

> It may take 3-4mos before that may happen...at least that

> was MY

> experience and a few others that I know about.

>

> Check out " AHSTA " -- Alternative Health Solutions

> for Thyroid

> Autoimmunity if you haven't already. There are several

> thyroid folks

> there using LDN therapy. http://www.ahsta.com

>

> However, I have to comment that I think your doctor is

> missing other

> important aspects of having thyroid disease -- aspects that

> can't be

> measured with a blood test. ie; " Well Being " .

>

> Best wishes,

> Jann

>

>

>

>

[Guest guest]

I was mildly hypothyroid (on a low level of levthyroxine) and since being on LDN, I was able to drop the medication and my TSH has been in the ok level ever since the last two or three years.

Kathie

Is there anyone who has Hashimoto’s and has completely weaned off of synthroid or armour?

Josh

____________________________________________________________

Prices, software, charts analysis. Click here to open your online FX trading account.

[Guest guest]

I would like to thank everyone for their comment and input

regarding Hashimoto’s and LDN. I will do some additioanl reseach and

talk with my endo doc to see if she will work with me on this.

Josh

[Guest guest]

Some of us with autoimmune thyroid disease have set up a thyroid and alternatives site, with advice from medical researcher Elaine , who's coauthored a book on LDN and is knowledgeable about thyroid disease. It's AHSTA.com.

Best,

, Graves' disease in remission

[Guest guest]

Hi,Akahaiani,

I have Grave's, and I will be starting LDN as soon as I receive my

prescription from Skip's Pharmacy. I am worried about going hyper

again myself. Right now, I am euthyroid.

Since there's not a lot of information about Grave's and LDN, I

ordered the book, " The Promise Of Low Dose Naltrexone Therapy:

Potential Benefits in Cancer, Autoimmune, Neurological and Infectious

Disorders " , by Elaine , from Amazon. Hopefully, I will learn

something that will help me.

I am going to keep a journal, and note anything that might occur when

I start taking LDN. I am thinking that I might have to up my PTU

dosage, if I start having Hyper symptoms again. I am also willing to

slowly go off the anti-thyroid drug, and just take Bugleweed, Lemon

Balm, and Magnesium. Whatever - I am willing to be a lab rat, in

order to help myself and others who have come down with this disease.

I will let you know what happens.

Love,

Pam

> >

> > Is there any info out there that anyone has about trying to

readjust

> > Thyroid levels after LDN usage?

> >

> > Is there someone I can speak to directly that has a lot of

experience

> > with this? Someone I can email?

> >

> > I feel my doctor is great she is awesome- I would just like

another

> > opinion and fresh eyes with someone that has a lot of experience

> > dealing with this.

> >

> > What is the normal protocol when it comes to LDN and Hashi

patients?

> > How do Thyroid meds get adjusted?

> >

> > I Must say I am feeling much better lately- with that said current

> > Thyroid levels have totally plummeted and hormone levels have

> > plummeted as well. Testosterone is very very low.

> >

> > Jodi

> >

>

[Guest guest]

Hi Jan,

I've had Hashi's for 6 years, taking compounded T4 and T3. I'm taking LDN for 3

days,

may be placebo but I feel more energetic, relaxed and stable mood. I'm

evaluating

autoimmune anitbody levels pre and post one month LDN at 1.5 mg dosage for now.

Would you mind sharing 1) your dosage, 2) how much your antibody titers changed?

Thanks,

Makarmala

>

> Hi Josh,

>

>

> > 1. Is there anyone who has Hashimoto's and has completely weaned off

> off synthroid or armour?

>

> I know of one other person who was using LDN therapy for over 3yrs who

> no longer needs THR (thyroid hormone replacement).

>

> > 2. Does LDN need to be used forever or is it just for a period of time?

>

> Since there have been NO trials using LDN therapy for thyroid disease

> there is NOT a definitive answer for this. I know SEVERAL thyroid

> folk who plan to use LDN indefinitely.

>

> > 3. I was told my body's immune system will eventually totally kill

> off my thyroid gland. could it be too late to repair the damage?

>

> Again...with NO LDN trials for thyroid disease there is NOT a

> definitive answer to this question.

>

> Consider that you've had thyroid disease for over 10+ years -- it's

> VERY likely that your thyroid gland is irreparably damaged. However,

> that does NOT mean that you still can't realize some IMPROVEMENT in

> it's function. I know that I am...andI've had Hashi's for 10-15yrs

> also. My antibodies are much lower since being on LDN since Feb 08.

> And the most important benefit -- I just FEEL BETTER overall.

>

>

> > 4. How would I go about exploring the use of LDN and are there any

> endo docs in south Florida who are working with LDN as a form or therapy?

> >

>

> I'd suggest buying Elaine 's book; " The Promise of Low Dose

> Naltrexone " ...reading it and then sharing it with your doctor. If

> YOUR doctor is not comfortable using LDN therapy then find one that is.

>

>

> Best wishes,

> Jann

>