Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 I new on this board and am looking to hear from anyone who is taking LDN and has Parkinson's or Lyme Disease. It's sounds like just what my husband and I need but I would love to hear from those who have tried it. Thank you! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Ann, I'm taking LDN, I've been using it for about 5 months, doing really well. From: Ann Prow <annprow@...>Subject: [low dose naltrexone] LDN and Parkinson'slow dose naltrexone Date: Tuesday, October 28, 2008, 10:33 PM I new on this board and am looking to hear from anyone who is taking LDN and has Parkinson's or Lyme Disease. It's sounds like just what my husband and I need but I would love to hear from those who have tried it. Thank you!Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 My dad, Bentley, started LDN October 2004. We felt that it was worth trying since the side effects were minimal and the cost was less than a $1.00 a day. Within days, the muscle tension that was affecting his breathing and causing tremendous stiffness and pain, started to dissipate and his breathing returned to normal. Within a year he was able to lower his PD meds by more than 60%. Prior to starting LDN, his daily medication for Parkinson’s was 10 Sinemet 25/100, 3 Permax .25mg, 2 Artane 2mg. Today his daily medication for Parkinson’s is 4 to 5 Sinemet 25/100, no Permax, 1 Artane and 4.5mg LDN.Destiny Ann Prow <annprow@...> wrote: I new on this board and am looking to hear from anyone who is taking LDN and has Parkinson's or Lyme Disease. It's sounds like just what my husband and I need but I would love to hear from those who have tried it. Thank you! Ann "O ye that dwell on earth! The religion of God is for love and unity; make it not the cause of enmity or dissension." -Baha'u'llah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Hello Ann, My DH has Parkinson's and has been taking LDN for 2-3 months. So far, we have not noticed any huge improvement (but he does not have a lot of stiffness like others who've tried it. Mostly, he has a strong tremor in his arm and lots of memory and speech problems. He has always slept very well, and seems to be getting more tired during the day.) But I can say for sure that the LDN has not had any noticeable bad effects of any sort. And I think that it may have improved his mood. Every morning he wakes up in a good mood. That started with the mucuna herb he started during the summer, but it may have improved with the more recent addition of LDN, too. Still, I am hoping that it is early, and that some of his main symptoms will still improve someday soon. Sea > > > > I new on this board and am looking to hear from anyone who is taking > LDN and has Parkinson's or Lyme Disease. > > It's sounds like just what my husband and I need but I would love to > hear from those who have tried it. > > Thank you! > Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Thank you Sea - I look forward to seeing how your DH feels after being on it longer. Does he feel any differences internally that he has mentioned? My husband could use something to help him get better sleep. We are going to ask his neurologist and will see what she has to say. Ann > > > > > > > > I new on this board and am looking to hear from anyone who is taking > > LDN and has Parkinson's or Lyme Disease. > > > > It's sounds like just what my husband and I need but I would love to > > hear from those who have tried it. > > > > Thank you! > > Ann > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Ann, Just to warn you that NONE of the THREE different New York neurologists we talked to would prescribe LDN. (One was a memory disorder specialist, the other a movement disorder specialist, and the other a general neurologist.) They ALL heard about LDN, but said they " didn't have any experience " with it, and so felt uncomfortable prescribing it. It was very frustrating. At the time, I didn't know that there are doctors that can prescribe this with a phone consult... We finally - and very easily! - got a prescription, no questions asked, from his general MD. She just asked us to be sure about the dosage, and wrote what we told her. I made sure to do my homework beforehand, and already knew where to get it compounded, etc. But to answer your question, my DH hasn't noticed anything with the LDN other than a more positive mood. That's worth a LOT, of course, but I wish there were more. I read a lot here about sleeping difficulties with LDN, but my DH sleeps, if anything, even more than before with LDN. (And he's been sleeping a lot.) I'm wondering if he needs a higher dose or not. He's on 4.5 mg, around 9 pm when he goes to bed. Oh, and no vivid dreams, either. But again, as I say, a vague, increased sense of balance and well-being. Good luck with it, and let us know the results! Sea > > > > > > > > > > > > I new on this board and am looking to hear from anyone who is > taking > > > LDN and has Parkinson's or Lyme Disease. > > > > > > It's sounds like just what my husband and I need but I would love > to > > > hear from those who have tried it. > > > > > > Thank you! > > > Ann > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Ann and Sea, My mom takes LDN. Right off she noticed a huge change in how much energy she had and a bit better in her balance. She has been on for over a year now. When she has gotten off for surgery once and then because she ran out of pills, each time she says she felt the difference. I would say however that she has progressed in regards to overall slowing down a bit and her steps. She also takes Miraplex and Sinmet (sorry I don't know the spellings). I hope that helps Aletha Quote Link to comment Share on other sites More sharing options...
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