Hi Ginny - hi I am new to this group

[Guest guest]

Hi Ginny,

I just started LDN only few days ago, and I also felt like throwing

in the towel after only one dose - what a wimp i am !! But i reduced

the dose and kept on it for a day or two, still feeling crappy even

with a little bit. Then i stopped using it for a few days. I was

going to throw the bottle of LDN out the window, but even after a few

days of not taking it, i noticed a small increment of improvement in

my arthritis, so i thought what the heck, might as well stick with

it. I still feel dreadful from the LDN side effects, but i'm getting

accustomed to it now. One thing i noticed is that my bowel movements

have normalised (won't go into the gory details) so maybe it does

help the intestines. I sure hope so since i have gut dysbiosis.

I still take pain meds even tho i'm on LDN, so i don't see why you

can't do the same. If you need pain relief, then use it. There are

some meds you can take and some you can't with LDN. Maybe someone

else on the group can post the list of allowed meds. I take

paracetamol. Which pain meds do you have ?

I read that DMSO (Dimethylsulfoxide)is an approved and effective

treatment for Interstitial Cystitis. What treatment do you get for it

currently ?

hope you can stick with it...

Leonie

>

> I wanted to jump in and introduct myself. My name is Ginny and I am

> married with two children. (sounds like a great TV show)I am

located

> in San , CA. I started LDN a week and a half ago. My conditions

> are IBS, Diverticulosis/itis, fibromyalgia, interstitial cystitis,

> osteoarthritis and a few other things thrown in for good measure.

>

> The worst of the worst is the IBS and Diverticulosis and I was

> wondering if anyone has any advice. I am taking 4.5mg of LDN in

> capsule form. My primary doctor didn't hesitate to prescribe me LDN

> so that is good. Prior to starting this med. I was living on pain

> meds. (stopped 16 days prior to starting LND)

>

> I have noticed more flexibilty in the morning with the fibro and

> arthritis which I haven't had before. However the IBS seems worse

but

> that could just be a coincidence as I have major bouts. (ibs is

> diarrhea predominate)

>

> Currently I have a torn meniscus and because of that sciatica.

Today

> I want to just throw in the towel and go back to taking pain meds

but

> I have high hopes for the LDN.

>

> Can anyone give some words of encouragement. I think I read

somewhere

> that it takes a few months for LDN to work on intestinal issues.

>

> Also I might be facing surgery for the knee. How many days does one

> need to be off ldn for surgery?

>

> It was nice to find this group and know that I do not suffer alone.

>

> Ginny

>

[Guest guest]

Leonie,

Thank you for sharing. The pain meds I was taking are opiods which I

understand cannot be taken with LDN. A list of " approved " pain meds

would be great.

I have had IC for a very long time and used to get DMSO treatments.

Now I just manage with stress reduction, watching what I ingest and

drinking lots of water.

From what I read LDN doesn't have side effects. Its tough to tell

what is happening because I went off all my meds the same day and

waited 16 days before starting LDN. My symptoms could be due to

having no depressants (opiods) in my system, my immune system kicking

in and purging toxins or who knows. My osteoarthritis and fibro feel

better, my IC feels under control but the intestines are attacking

me. MISERABLE!!!MISERABLE!!!MISERABLE!!!!

I did start drinking water with rice flour tonight and I am cutting

out all sugar. My family knows this is serious for me to give up

sugar but for me it is a matter of life or death. I know sugar is so

bad for you but some things are tough to break. At this point it has

been very easy as that is how bad my insides feel.

I will be sticking with LDN for the long term as I think that to see

results especially with the intestines you have to be on it awhile.

Besides some people who take it get smooth skin, thick hair and lose

weight. I am waiting for those side effects. LOL

Ginny

> >

> > I wanted to jump in and introduct myself. My name is Ginny and I

am

> > married with two children. (sounds like a great TV show)I am

> located

> > in San , CA. I started LDN a week and a half ago. My

conditions

> > are IBS, Diverticulosis/itis, fibromyalgia, interstitial

cystitis,

> > osteoarthritis and a few other things thrown in for good measure.

> >

> > The worst of the worst is the IBS and Diverticulosis and I was

> > wondering if anyone has any advice. I am taking 4.5mg of LDN in

> > capsule form. My primary doctor didn't hesitate to prescribe me

LDN

> > so that is good. Prior to starting this med. I was living on pain

> > meds. (stopped 16 days prior to starting LND)

> >

> > I have noticed more flexibilty in the morning with the fibro and

> > arthritis which I haven't had before. However the IBS seems worse

> but

> > that could just be a coincidence as I have major bouts. (ibs is

> > diarrhea predominate)

> >

> > Currently I have a torn meniscus and because of that sciatica.

> Today

> > I want to just throw in the towel and go back to taking pain meds

> but

> > I have high hopes for the LDN.

> >

> > Can anyone give some words of encouragement. I think I read

> somewhere

> > that it takes a few months for LDN to work on intestinal issues.

> >

> > Also I might be facing surgery for the knee. How many days does

one

> > need to be off ldn for surgery?

> >

> > It was nice to find this group and know that I do not suffer

alone.

> >

> > Ginny

> >

>