Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Lyme is not a possessive word ('s). It's common for the Lyme tests to be negative. Lyme is a stealth disease. It goes through our tissues and can cloak itself in our own tissues. It can combine with our DNA. Not even our own immune systems can find it. How could a test find it? I tested negative by the standard Lyme test shortly after my optic neurits in April 2000. Apparently I tested negative and was still sick. My FIRST MS diagnosis was Apr 2004. In Dec 07 my IgeneX test was inconclusive. The Fry Laboratories test indicated I had bartonella spp. It took my Lyme Literate Medical Doctor (LLMD) to do the diagnosis. The confirmation of the diagnosis was my herxheimer reaction to the doxycycline (100mg twice per day). Initially I had marked improvement, then I felt like I had been run over by a semi-tractor trailer. Don't be afraid to switch Lyme docs. An incompetent Lyme doc will get us dead, or worse. This disease can turn into cysts in response to antibiotics. If we stop treatment, we are still sick. Be exceedingly cautious of any " alternative " treatments. I've spoken to Lyme patients that have spent their life savings on these treatments before hiring a competent LLMD and starting antibiotics, If we have a fatal infection, antibiotics aren't so bad. A couple of Lyme Links http://www.lymeinfo.net/lymefiles.html www.CanLyme.com > > Hi, > > I have a friend who was just diagnosed with Lyme's do you have any links you recommend I read? What if you have had the standard tests and they come up negative, but you still have signs of Lymes? > > Thank you, > > Destiny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Anyone know any Lyme literate doctors in Ontario, Canada ? > > > > Hi, > > > > I have a friend who was just diagnosed with Lyme's do you have any > links you recommend I read? What if you have had the standard tests > and they come up negative, but you still have signs of Lymes? > > > > Thank you, > > > > Destiny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 There is a Lyme group in Ontario I think. I saw a YouTube clip where some Canadian girls were chartering a small airplane and coming to the US for their Lyme physician. Then there is the Canadian Lyme association www.CanLyme.doc. The Internation Lyme and Associated Diseases Society board www.ILADAS.org The referral button is at the bottom of the page. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Support groups are a great resource for doc referrals. From http://www.lymenet.org/SupportGroups/Canada/Ontario.shtml Kathy in Guelph, email: lymeont@... Also at that website (lymenet.org) there is a Doc find link - you register (for free), fill in an online form, and the next screen contains 3 docs closest to you (not positive it works for Canada but probably does). Also cruise around www.canlyme.com just in case they have something similar. > > > > > > Hi, > > > > > > I have a friend who was just diagnosed with Lyme's do you have any > > links you recommend I read? What if you have had the standard tests > > and they come up negative, but you still have signs of Lymes? > > > > > > Thank you, > > > > > > Destiny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 > > Hi, > > I have a friend who was just diagnosed with Lyme's do you have any links you recommend I read? What if you have had the standard tests and they come up negative, but you still have signs of Lymes? > > Thank you, > > Destiny > ========= Go to link below and click on it and then look for the topic... " Lyme mimics so many autoimmune system illnesses " and click on it. Much info on lyme and tests there. Low Dose Naltrexone Forum - Important LDN Links & Bits & Pieces. http://ldn.proboards3.com/index.cgi?board=links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Here is a summary of the chapter from Dr Singleton's Lyme book where he talks about the role of LDN is battling Lyme http://www.lymebook.com/lyme-disease-low-dose-naltrexone-ldn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Myself and both of my daughters use LDN 4.5 mg as one of our medications in fighting Lyme Disease. I believe that it has helped boost our immune system. We are currently under the care of a LLMD, but I requested LDN after reading about its use in Dr. Singleton’s Lyme book. I was already familiar with LDN because I was first diagnosed with probable MS and then later on discovered that I had Lyme Disease. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 > > Myself and both of my daughters use LDN 4.5 mg as one of our medications in > fighting Lyme Disease. I believe that it has helped boost our immune > system. We are currently under the care of a LLMD, but I requested LDN > after reading about its use in Dr. Singleton's Lyme book. I was already > familiar with LDN because I was first diagnosed with probable MS and then > later on discovered that I had Lyme Disease. > > > > Regards, > > > > > This is the first post in which I read that you are using LDN as a therapy for Lyme desease. Is this allright ? Quote Link to comment Share on other sites More sharing options...
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