Re: Dr's and Prescribing LDN.....

[Guest guest]

Wow Crystal that REALLY sucks!

This middle finger is for that neurologist jerk.

Art

--

>

> I now know how everyone feels that has a hard time getting a Dr to

prescribe them LDN. I have been taking LDN for over 3 years now and

up until now I have not had any problems with any of the Neurologists

in Florida, Georgia and Maine prescribing LDN to me and saw how good

I was doing on LDN and didn't want me to change anything I have been

taking. The last Neuro in GA I was seeing I taught all about LDN and

she started prescribing it to other people and not just for MS. Thats

an open minded Dr and willing to see their patients get better.

>  

> I am the one that keeps the LDN Dr list but all the Dr's I have on

my list for TN which is where I recently moved too is 2-3 hours away

and there is so far only 4 on my list for TN. Here in TN the

Neurologists require you to go to your GP to get a refferal before

they will except you as a patient so I did all that and went to my

appointment to the Neurologist the end of last week. Well you know

what they say about first impressions? I got a really bad feeling

from him. He asked what I had been on and I told him the first 8

months after being diagnosed I was on Betaseron and it made me feel

really bad and I ended up with a Cellulitis infection in my right

upper thigh from the injections which put me in bed for 3 months then

I ended up in a powerchair. I even brought copies of all my MRI

reports.

>  

> I told him how I was and he saw and did an exam and said how good I

was doing. He had never heard of LDN but I brought in information for

him and he said he would look at it then call me back before he would

prescribe it. Then he wanted to take me off my Klonopin and put me on

the Primidone which I researched and found out the Primidone would of

Cancelled out All my other medications.

>  

> So he calls yesterday and wanted to take me off All the medications

I am on now including the LDN and take the Primidone and go back on

Betaseron that put me in a wheelchair then a powerchair and I told

him right where to go and he needed to be more openminded. He was a

total you know what and wanted me to do what he wanted and didn't

care about my health so I FIRED HIM and now looking for another

Neurologist.

>  

> What gets me is the Primidone is an Off Label drug and he didn't

hesitate to prescribe that but he didn't want to prescribe LDN

because there wasn't enough studies or proof for him. Well Look at me

I Am Proof because I've been on LDN now for over 3 years and he said

how good I was doing so what other proof should he need....???

>  

>

>  May there be a miracle in YOUR life today and may you have the

EYES to see it.

>

> From My Heart to Yours

> Love, Hugs & Blessings,

> Crystal

> LDN_Users Group Owner

>

> Diagnosed November 2004 with Secondary Progressive MS, Transverse

Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's

Pharmacy......No Relapses.....

>

>

> Crystal's MS,TM & LDN Website

> http://www.freewebs.com/crystalangel6267/index.htm

>

> LDN Website

> http://ww.ldninfo.org/

>

> Crystal's LDN Support Group

> LDN_Users/

>

> Crystal's LDN Gift Shop

> http://www.cafepress.com/crystalldngifts

>

> Skip's Compounding Pharmacy

> http://www.skipspharmacy.com/

>

[Guest guest]

-- so I FIRED HIM and now looking for another Neurologist.

Good for you Crystal !

[Guest guest]

Hello and thanks for your info.I am new to the group and I live in San

Diego Ca. my wife has cancer and i have read that they are having good

results with the low dose treatment with LDL.Do you or any other member

know any doctors that will prescribe the med. with out having to pay

their stupid office fee? I am involved in research, and I find it very

frustrating !!! when 99% of the medical industry is blantly ignorant

when it comes to healing the whole body and not addressing the cause of

any illiness. We are using alternative healing methods and have gotten

great results from the practice. I feel that LDL would be a great

supplement to the arsenal in combating this cureable illiness. Can you

get the naltrexone online with out a precription?

Sincerley,

Cypriano

>

> I now know how everyone feels that has a hard time getting a Dr to

prescribe them LDN. I have been taking LDN for over 3 years now and up

until now I have not had any problems with any of the Neurologists in

Florida, Georgia and Maine prescribing LDN to me and saw how good I was

doing on LDN and didn't want me to change anything I have been taking.

The last Neuro in GA I was seeing I taught all about LDN and she started

prescribing it to other people and not just for MS. Thats an open minded

Dr and willing to see their patients get better.

>

> I am the one that keeps the LDN Dr list but all the Dr's I have on my

list for TN which is where I recently moved too is 2-3 hours away and

there is so far only 4 on my list for TN. Here in TN the Neurologists

require you to go to your GP to get a refferal before they will except

you as a patient so I did all that and went to my appointment to the

Neurologist the end of last week. Well you know what they say about

first impressions? I got a really bad feeling from him. He asked what I

had been on and I told him the first 8 months after being diagnosed I

was on Betaseron and it made me feel really bad and I ended up with a

Cellulitis infection in my right upper thigh from the injections which

put me in bed for 3 months then I ended up in a powerchair. I even

brought copies of all my MRI reports.

>

> I told him how I was and he saw and did an exam and said how good I

was doing. He had never heard of LDN but I brought in information for

him and he said he would look at it then call me back before he would

prescribe it. Then he wanted to take me off my Klonopin and put me on

the Primidone which I researched and found out the Primidone would of

Cancelled out All my other medications.

>

> So he calls yesterday and wanted to take me off All the medications I

am on now including the LDN and take the Primidone and go back on

Betaseron that put me in a wheelchair then a powerchair and I told him

right where to go and he needed to be more openminded. He was a total

you know what and wanted me to do what he wanted and didn't care about

my health so I FIRED HIM and now looking for another Neurologist.

>

> What gets me is the Primidone is an Off Label drug and he didn't

hesitate to prescribe that but he didn't want to prescribe LDN because

there wasn't enough studies or proof for him. Well Look at me I Am Proof

because I've been on LDN now for over 3 years and he said how good I was

doing so what other proof should he need....???

>

>

> May there be a miracle in YOUR life today and may you have the EYES

to see it.

>

> From My Heart to Yours

> Love, Hugs & Blessings,

> Crystal

> LDN_Users Group Owner

>

> Diagnosed November 2004 with Secondary Progressive MS, Transverse

Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's

Pharmacy......No Relapses.....

>

>

> Crystal's MS,TM & LDN Website

> http://www.freewebs.com/crystalangel6267/index.htm

>

> LDN Website

> http://ww.ldninfo.org/

>

> Crystal's LDN Support Group

> LDN_Users/

>

> Crystal's LDN Gift Shop

> http://www.cafepress.com/crystalldngifts

>

> Skip's Compounding Pharmacy

> http://www.skipspharmacy.com/

>

[Guest guest]

Crystal I am sorry to hear of the close minded doctor that you went

to! My Aunt lives in TN and I will ask her if she knows of a good

doctor! She has Autoimmune issues, not MS but she probably knows a

good Neurologist.

Carole

[Guest guest]

I sent an email but I think they are gone this weekend for

Thanksgiving so it might be a few days:)

We'll find a good Dr!

Carole

[Guest guest]

Dear Crystal,

I never seize to be amazed at some doctors. I don't even think it is a matter of open mindedness. I think it is a matter of loosing the ability to think logically and on ones own and to keep a good moral code.

Where is the logic in prescribing something that did not work out before? Where is the logic in not seeing that you are doing well now as proof that it is working. And where is the logic in not prescribing one off label use drug, and yet wanting to prescribe another one?

In the appraisal business we are always worried about being sued. One of the best defenses is that we try and approach problems, and use terminology that other appraisers are doing, so we are "in the norm". We call that "doing as our piers would do". There is some safety in that, as if we are questioned in court we can explain that we are not alone in this. We go to classes, we go to dinner meetings and we read periodicals that all seem to mirror what the latest things or changes are and what terminology to use. Much like doctors we seem to say the same things as one another. The times that I break from this, is when it comes to morality and telling the truth. When I know I am right, or it makes good logical since and stands on its own merit, I will do what is right above what is typical.

So if the medical community as a whole is saying it is OK to use Primidone (off label use drug or not) then doctors may feel more comfortable in prescribing it because everyone else is too. The same goes for the excuses we hear all of the time. They all hear the same rhetoric and learn to say the same excuses.

I really think we should all send in a list of the excuses that we hear from doctors and save them on a master list. I can send the list out to people that are going to approach their doctors for the first time, so they will already know what excuses might be made, and the doctors may know that they are aware that this is just rhetoric and that they are following the heard rather than thinking for themselves and looking at logic.

Good for you for firing your doctor. He totally deserved that! If more of us had the same attitude about seeing through the excuses and seeing what is really working, or at least less harmful to use, then they could not get away with this any longer. We all need to stick up for ourselves, and I think the internet and chat sites are giving us the knowledge, shared experiences and the ability to do our own research in order to accomplish this. This may be why most doctors eyes seem to roll up into their heads when they heard you found something on the internet. Dam! he/she is thinking and researching for themselves. I am sure it has been one of the hot topics at the dinner meetings doctors go to.

Stay strong

Aletha

[Guest guest]

Hi,

and welcome to this group!

To learn more about LDN and cancer, look at the videos of Dr. Berkson

(Dr. Berkson is treating people with LDN and alpha lipoic acids):

http://www.skipspharmacy.com/sppress/?p=135

There's a group here at discussing LDN and cancer:

LDN_4_cancer/

That site belongs to Deidre Alejo. She also has another site:

http://www.ldn4cancer.com/

Yes, you make your own LDN and order LDN online:

1. How to make your own LDN:

http://goodshape.net/HomemadeLDN.html

2. How To Obtain Low Dose Naltrexone (LDN)

http://www.webspawner.com/users/howtoobtainldn/index.html

All the best fromIngrid

From: aguerriaandassociates <caguerria@...>low dose naltrexone Sent: Wednesday, November 26, 2008 9:59:52 PMSubject: [low dose naltrexone] Re: Dr's and Prescribing LDN.....Hello and thanks for your info.I am new to the group and I live in SanDiego Ca. my wife has cancer and i have read that they are having goodresults with the low dose treatment with LDL.Do you or any other memberknow any doctors that will prescribe the med. with out having to paytheir stupid office fee? I am involved in research, and I find it veryfrustrating !!! when 99% of the medical industry is blantly ignorantwhen it comes to healing the whole body and not addressing the cause ofany illiness. We are using

alternative healing methods and have gottengreat results from the practice. I feel that LDL would be a greatsupplement to the arsenal in combating this cureable illiness. Can youget the naltrexone online with out a precription?Sincerley,Cypriano>> I now know how everyone feels that has a hard time getting a Dr toprescribe them LDN. I have been taking LDN for over 3 years now and upuntil now I have not had any problems with any of the Neurologists inFlorida, Georgia and Maine prescribing LDN to me and saw how good I wasdoing on LDN and didn't want me to change anything I have been taking.The last Neuro in GA I was seeing I taught all about LDN and she

startedprescribing it to other people and not just for MS. Thats an open mindedDr and willing to see their patients get better.>> I am the one that keeps the LDN Dr list but all the Dr's I have on mylist for TN which is where I recently moved too is 2-3 hours away andthere is so far only 4 on my list for TN. Here in TN the Neurologistsrequire you to go to your GP to get a refferal before they will exceptyou as a patient so I did all that and went to my appointment to theNeurologist the end of last week. Well you know what they say aboutfirst impressions? I got a really bad feeling from him. He asked what Ihad been on and I told him the first 8 months after being diagnosed Iwas on Betaseron and it made me feel really bad and I ended up with aCellulitis infection in my right upper thigh from the injections whichput me in bed for 3 months then I ended up in a powerchair. I evenbrought copies

of all my MRI reports.>> I told him how I was and he saw and did an exam and said how good Iwas doing. He had never heard of LDN but I brought in information forhim and he said he would look at it then call me back before he wouldprescribe it. Then he wanted to take me off my Klonopin and put me onthe Primidone which I researched and found out the Primidone would ofCancelled out All my other medications.>> So he calls yesterday and wanted to take me off All the medications Iam on now including the LDN and take the Primidone and go back onBetaseron that put me in a wheelchair then a powerchair and I told himright where to go and he needed to be more openminded. He was a totalyou know what and wanted me to do what he wanted and didn't care aboutmy health so I FIRED HIM and now looking for another Neurologist.>> What gets me is the Primidone is an Off Label drug and he

didn'thesitate to prescribe that but he didn't want to prescribe LDN becausethere wasn't enough studies or proof for him. Well Look at me I Am Proofbecause I've been on LDN now for over 3 years and he said how good I wasdoing so what other proof should he need....???>>> May there be a miracle in YOUR life today and may you have the EYESto see it.>> From My Heart to Yours> Love, Hugs & Blessings,> Crystal> LDN_Users Group Owner>> Diagnosed November 2004 with Secondary Progressive MS, TransverseMyelitis and an Advocate for LDN!! 3 years on LDN with Skip'sPharmacy......No Relapses.....>>> Crystal's MS,TM & LDN Website> http://www.freewebs.com/crystalangel6267/index.htm>> LDN Website> http://ww.ldninfo.org/>> Crystal's LDN Support Group> LDN_Users/>> Crystal's LDN Gift Shop> http://www.cafepress.com/crystalldngifts>> Skip's Compounding Pharmacy> http://www.skipspharmacy.com/>------------------------------------

[Guest guest]

Hello Aletha, My name is Suzanne and I just joined this group to learn as much as I can about LDN. I address my question to you as I watched the U tube video from the conference MS and have tried everthing with out stopping progression. My neuro surprised me and you have been smart and kind enough to keep all of the conversations and info. I have yesterday with a yes on getting a LDN perscrip(she said no 2 yrs ago). I want to start immediately to see what success I my have so I may not have to put a $15,000 curved stair chair into my house as I can't get upstairs lately. I need to have my gallbladder removed. Can I have that done while taking LDN? or should I wait on taking LDN and have the surgery? Thanks, Suzanne

[Guest guest]

From: Suzanne Tinen <suzannejewelry@...>Subject: Re: Dr's and Prescribing LDN.....low dose naltrexone Date: Friday, November 28, 2008, 3:04 PM

Let's try this message again.

Hello Aletha, My name is Suzanne and I just joined this group to learn as much as I can about LDN. I address my question to you as I watched the U tube video from the conference and you have been smart and kind enough to keep all of the conversations and info. I have MS and have tried everthing with out stopping progression. My neuro surprised me and yesterday with a yes on getting a LDN perscrip(she said no 2 yrs ago). I want to start immediately to see what success I my have so I may not have to put a $15,000 curved stair chair into my house as I can't get upstairs lately. I need to have my gallbladder removed. Can I have that done while taking LDN? or should I wait on taking LDN and have the surgery? Thanks, Suzanne

[Guest guest]

Hi Crystal,

Sorry to hear of your disappointing consult with this neurologist.

I'm beginning to think that some of these doctors are just plain

lazy...that they don't want to take the time to so the PROPER research

-- which would include maybe CALLING and talking to other doctors

about their experiences. Yea...studies would be nice but clinical

experience shouldn't be ignored either.

I wish you the best as you try to find a new doctor.

Jann