Re: Re: Starting LDN - side effects with Chron's?

[Guest guest]

Hi ,

I'm so happy to hear that you were able to get a prescription for LDN. I don't have Crohn's but quite a few people here do and I'm sure they will speak up and let you know what to expect and everything as far as Crohn's and LDN. I have Secondary Progressive MS and Transverse Myelitis.

May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm'>http://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/ Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts'>http://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/'>http://www.skipspharmacy.com/

From: massage sofla <massagesofla@...>low dose naltrexone Sent: Tuesday, November 25, 2008 8:53:51 PMSubject: [low dose naltrexone] Re: Starting LDN - side effects with Chron's?

Hi Crystal:

Hope all is going well with you. I last wrote to you early last week regarding the list of doctors in Florida. I did call all the doctors in South Florida. Last Thurs. I went to Palm Beach Gardens and saw a very nice doctor there. Was given a prescription for LDN and now have 1.5 mg capsules. Then I will bring it up to 3.mg. then 4.5mg. Skip's in Boca Raton filled the prescription.

Since I've had a bad cold I haven't started yet. I wanted to wait to get rid of the cold and get extra sleep etc. Since you wrote about side effects for MS what side effects might I expect having Chron's? Will I see any response to the drug at 1.5mg or 3.0mg. or have to wait to get to 4.5 mg to get any response? Any info you or people from the group that have experienced first hand using LDN for Chron's will be much appreciated.

Best,

From: Crystals MS TM LDN Website <angelindisguise67>Subject: Re: [low dose naltrexone] Starting LDN - side effects - what to do?low dose naltrexoneDate: Tuesday, November 25, 2008, 5:34 PM

Introductory Side-effects: There may be some initial transient, though temporary, increase in MS symptoms during the adaptive period when the LDN is first introduced. This usually lasts no more than one week but if symptoms are severe, or more prolonged, then the initial dose of 1.5 for a month, 3 for a month, then 4.5 until the anticipated improvements begin to develop.

Introductory symptoms, on starting this treatment, may include such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain.

Symptoms related to increased endorphins: These may include such as nausea or constipation. These symptoms diminish naturally as the body adjusts to the increased endorphin level. Symptoms related to previous Opiate use: On starting LDN the recent use of opiate analgesics will result in an opiate withdrawal syndrome, with increased pain, spasm, vomiting and diarrhea. These symptoms may be prevented by stopping all opiate analgesics at least two weeks before starting the LDN.

Introductory LDN Symptoms For those of you in the first 3 months of LDN therapy Dr. Bob Lawrence from the UK who has MS & uses LDN himself explains why the temporary increase in MS symptoms.When starting this LDN (Low Dose Naltrexone) therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms. Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not normally be expected to last more than seven to ten days.Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing

the body's sensitivity to pain. This temporary increase in symptoms may also perhaps be explained when we consider the manner in which this drug is expected to work.Initially, MS occurs due to a reduction in the activity of the controlling influence of the suppressor T-cells within the immune system. During an acute relapse, the overall number of T-cells is reduced, the normal balance of helper T-cells and suppressor T-cells is disrupted and the damaging helper (CD-4) T-cells tend to predominate. This is the situation most pronounced during an acute relapse but occurs similarly, but to a lesser extent, in chronic progressive MS. Under the influence of LDN there will be an expected increase in the overall numbers of T-cells but, because the CD-4, helper T-cells tend to predominate at this time, an increase in their numbers will expectedly tend to increase MS symptoms. It is only when the numbers of

suppressor T-cells effectively "catch up" that the normal balance is restored and symptoms once again diminish and improve. In addition, because LDN stimulates the immune system and many of the drugs routinely used by the NHS in the treatment of MS further suppress the immune system, LDN cannot be used in company with steroids, beta interferon, methotrexate, azathioprine or mitozantrone or any other immune suppressant drug. If there is any doubt, please submit a full list of the drugs you are presently taking so that their compatibility may be assessed. In addition, because LDN will also block the analgesic effects of any opiate drugs (includes codeine, dihydrocodeine, morphine, pethidine or diamorphine) presently being taken, the use of LDN will initially greatly increase the level of pain experienced. It is therefore advisable that any opiate-like drugs be discontinued at least two weeks before

this treatment is initiated. When starting the treatment it is essential that any untoward or adverse side-effects are reported immediately so that the treatment process can be further assessed and, if necessary, modified. Dr. M R Lawrence

May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.... .No Relapses.... .Crystal's MS,TM & LDN Websitehttp://www.freewebs .com/crystalange l6267/index. htm LDN Website http://ww.ldninfo. org/Crystal's LDN Support Grouphttp://health. groups.. com/group/ LDN_Users/ Crystal's LDN Gift Shophttp://www.cafepres s.com/crystalldn gifts Skip's Compounding Pharmacyhttp://www.skipspha rmacy.com/

From: renatatrawinski <rtrawinskitelus (DOT) net>low dose naltrexoneSent: Tuesday, November 25, 2008 1:37:11 PMSubject: [low dose naltrexone] Starting LDN - side effects - what to do?

Hello,I am new to this group and see a wealth of wisdom, so I am hoping you can help me a little as I journey into the LDN treatment. Thank you in advance for your time. I have undiagnosed neurological symptoms (4 years) with a high possibility of them to be MS. My neurologist wants to wait and see, but the symptoms are increasing and I would like to take an active approach and help myself asap. With that I have attended an LDN Conference in L.A. on October 11 and immediately following this conference, on Oct. 17 I have started with 1.5 mg of LDN. Had no side effects and no improvements. A month later, on Nov. 16, I have gone to 3 mg of LDN and four days after increasing my dose I began experiencing some symptoms which are not listed in the common side effects. I have had three nights of abdominal pain, nausea and cramps followed by a very loose stool and a great urgency to go to

the bathroom. Also some blood spotting and great urgency to urinate. Now my bowel is getting better, but the urgency to urinate is increasing. The abdominal pain, slight nausea and crapms come and go. I am not sure what to do. i get my LDN from Skip's Pharmacy with Avicel filler. Any advice would be greatly appreciated. Have you heard of these type of symptoms while starting LDN? Should I keep taking 3 mg and see what happens? Please help.Warmly,RT

[Guest guest]

I agree with Art on starting the LDN now so it will boost your immune system and get rid of that cold sooner.

May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/ Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/

From: Art Hansen <rtee54@...>low dose naltrexone Sent: Tuesday, November 25, 2008 10:15:16 PMSubject: [low dose naltrexone] Re: Starting LDN - side effects with Chron's?

Taking LDN now may help you get rid of your cold sooner. You should start tonight.Art-->> Hi Crystal:> > Hope all is going well with you. I last wrote to you early last week > regarding the list of doctors in Florida. I did call all the doctors > in South Florida. Last Thurs. I went to Palm Beach Gardens and saw a > very nice doctor there. Was given a prescription for LDN and now > have 1.5 mg capsules. Then I will bring it up to 3.mg. then 4.5mg. > Skip's in Boca Raton filled the prescription. > > Since I've had a bad cold I haven't started yet. I wanted to wait

to > get rid of the cold and get extra sleep etc. Since you wrote about > side effects for MS what side effects might I expect having Chron's? > Will I see any response to the drug at 1.5mg or 3.0mg. or have to > wait to get to 4.5 mg to get any response? Any info you or people > from the group that have experienced first hand using LDN for > Chron's will be much appreciated.> > Best,> >

[Guest guest]

Depending on where you are at in your disease state you may want to

ask to switch to the cream format afte you get thru the adjustment

phase (or if you aren't finding any benefit), many find the capsules

don't get absorbed if the GI issues are too bad! I did hear another

person sharing their absorbtion was much better if they opened up the

capsule and dumped the powed out on tounge then swallow w/o capsule...

near LAX

On 11/25/08, MassageSoFla <massagesofla@...> wrote:

> Hi Crystal:

>

> Hope all is going well with you. I last wrote to you early last week

> regarding the list of doctors in Florida. I did call all the doctors

> in South Florida. Last Thurs. I went to Palm Beach Gardens and saw a

> very nice doctor there. Was given a prescription for LDN and now

> have 1.5 mg capsules. Then I will bring it up to 3.mg. then 4.5mg.

> Skip's in Boca Raton filled the prescription.

>

> Since I've had a bad cold I haven't started yet. I wanted to wait to

> get rid of the cold and get extra sleep etc. Since you wrote about

> side effects for MS what side effects might I expect having Chron's?

> Will I see any response to the drug at 1.5mg or 3.0mg. or have to

> wait to get to 4.5 mg to get any response? Any info you or people

> from the group that have experienced first hand using LDN for

> Chron's will be much appreciated.

>

> Best,

>

>

>

>

>

>

>

>

>

>

>

>>

>> Introductory Side-effects:There may be some initial transient,

> though temporary, increase in MS symptoms during the adaptive period

> when the LDN is first introduced. This usually lasts no more than

> one week but if symptoms are severe, or more prolonged, then the

> initial dose of 1.5 for a month, 3 for a month, then 4.5until the

> anticipated improvements begin to develop.

>>

>> Introductory symptoms, on starting this treatment, may include such

> as disturbed sleep, occasionally with vivid, bizarre and disturbing

> dreams, tiredness, fatigue, spasm and pain.

>>

>> Symptoms related to increased endorphins:These may include such as

> nausea or constipation. These symptoms diminish naturally as the

> body adjusts to the increased endorphin level.

>>

>> Symptoms related to previous Opiate use:On starting LDN the recent

> use of opiate analgesics will result in an opiate withdrawal

> syndrome, with increased pain, spasm, vomiting and diarrhea. These

> symptoms may be prevented by stopping all opiate analgesics at least

> two weeks before starting the LDN.

>>

>>

>>

>>

>> Introductory LDN Symptoms

>>

>>

>> For those of you in the first 3 months of LDN therapy Dr. Bob

>> Lawrence from the UK who has MS & uses LDN himself explains why the

> temporary increase in MS symptoms.

>>

>> When starting this LDN (Low Dose Naltrexone) therapy in the

> treatment of MS, there may also be some initial transient, though

> temporary, increase in MS symptoms.

>>

>> Experience in using this method has demonstrated most commonly,

> such as disturbed sleep, occasionally with vivid, bizarre and

> disturbing

>> dreams, tiredness, fatigue, spasm and pain. These increased

> symptoms

>> would not normally be expected to last more than seven to ten days.

>>

>> Rarely, other transient symptoms have included more severe pain and

>> spasm, headache, diarrhea or vomiting. These additional symptoms

>> would appear to be associated with the previous frequent use of

>> strong analgesics, which effectively create an addiction and

>> dependency, thus increasing the body's sensitivity to pain. This

>> temporary increase in symptoms may also perhaps be explained when

> we consider the manner in which this drug is expected to work.

>>

>> Initially, MS occurs due to a reduction in the activity of the

>> controlling influence of the suppressor T-cells within the immune

>> system. During an acute relapse, the overall number of T-cells is

>> reduced, the normal balance of helper T-cells and suppressor T-

> cells

>> is disrupted and the damaging helper (CD-4) T-cells tend to

>> predominate. This is the situation most pronounced during an acute

>> relapse but occurs similarly, but to a lesser extent, in chronic

>> progressive MS. Under the influence of LDN there will be an

> expected

>> increase in the overall numbers of T-cells but, because the CD-4,

>> helper T-cells tend to predominate at this time, an increase in

> their

>> numbers will expectedly tend to increase MS symptoms. It is only

> when the numbers of suppressor T-cells effectively " catch up " that

> the

>> normal balance is restored and symptoms once again diminish and

>> improve.

>>

>> In addition, because LDN stimulates the immune system and many of

> the drugs routinely used by the NHS in the treatment of MS further

>> suppress the immune system, LDN cannot be used in company with

>> steroids, beta interferon, methotrexate, azathioprine or

> mitozantrone

>> or any other immune suppressant drug. If there is any doubt, please

>> submit a full list of the drugs you are presently taking so that

>> their compatibility may be assessed. In addition, because LDN will

>> also block the analgesic effects of any opiate drugs (includes

>> codeine, dihydrocodeine, morphine, pethidine or diamorphine)

>> presently being taken, the use of LDN will initially greatly

> increase

>> the level of pain experienced. It is therefore advisable that any

>> opiate-like drugs be discontinued at least two weeks before this

>> treatment is initiated. When starting the treatment it is essential

>> that any untoward or adverse side-effects are reported immediately

> so

>> that the treatment process can be further assessed and, if

> necessary,

>> modified.

>>

>> Dr. M R Lawrence

>>

>>

>> May there be a miracle in YOUR life today and may you have the

> EYES to see it.

>>

>> From My Heart to Yours

>> Love, Hugs & Blessings,

>> Crystal

>> LDN_Users Group Owner

>>

>> Diagnosed November 2004 with Secondary Progressive MS, Transverse

> Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's

> Pharmacy.....No Relapses.....

>>

>>

>> Crystal's MS,TM & LDN Website

>> http://www.freewebs.com/crystalangel6267/index.htm

>>

>> LDN Website

>> http://ww.ldninfo.org/

>>

>> Crystal's LDN Support Group

>> LDN_Users/

>>

>> Crystal's LDN Gift Shop

>> http://www.cafepress.com/crystalldngifts

>>

>> Skip's Compounding Pharmacy

>> http://www.skipspharmacy.com/

>>

>>

>>

>>

>>

>> ________________________________

>> From: renatatrawinski <rtrawinski@...>

>> low dose naltrexone

>> Sent: Tuesday, November 25, 2008 1:37:11 PM

>> Subject: [low dose naltrexone] Starting LDN - side effects - what to

> do?

>>

>>

>> Hello,

>>

>> I am new to this group and see a wealth of wisdom, so I am hoping

>> you can help me a little as I journey into the LDN treatment. Thank

>> you in advance for your time.

>>

>> I have undiagnosed neurological symptoms (4 years) with a high

>> possibility of them to be MS. My neurologist wants to wait and see,

>> but the symptoms are increasing and I would like to take an active

>> approach and help myself asap. With that I have attended an LDN

>> Conference in L.A. on October 11 and immediately following this

>> conference, on Oct. 17 I have started with 1.5 mg of LDN.. Had no

>> side effects and no improvements. A month later, on Nov. 16, I have

>> gone to 3 mg of LDN and four days after increasing my dose I began

>> experiencing some symptoms which are not listed in the common side

>> effects. I have had three nights of abdominal pain, nausea and

>> cramps followed by a very loose stool and a great urgency to go to

>> the bathroom. Also some blood spotting and great urgency to

> urinate.

>> Now my bowel is getting better, but the urgency to urinate is

>> increasing. The abdominal pain, slight nausea and crapms come and

>> go. I am not sure what to do. i get my LDN from Skip's Pharmacy

> with

>> Avicel filler. Any advice would be greatly appreciated. Have you

>> heard of these type of symptoms while starting LDN? Should I keep

>> taking 3 mg and see what happens? Please help.

>>

>> Warmly,

>> RT

>>

>

>

>

[Guest guest]

I agree. I started getting a cold some days ago. Sore throat and nose issues. It lasted 1 day. Now: perfectly well again.

This is how all my colds have been since I started using LDN. (Prior LDN: my colds lasted 3-4 weeks). ........And I live in a cold, arctic climate. Ingrid

From: Art Hansen <rtee54@...>low dose naltrexone Sent: Wednesday, November 26, 2008 4:15:16 AMSubject: [low dose naltrexone] Re: Starting LDN - side effects with Chron's?Taking LDN now may help you get rid of your cold sooner. You should start tonight.Art-->> Hi Crystal:> > Hope all is going well with you. I last wrote to you early last week > regarding the list of doctors in Florida. I did call all the doctors > in South Florida. Last

Thurs. I went to Palm Beach Gardens and saw a > very nice doctor there. Was given a prescription for LDN and now > have 1.5 mg capsules. Then I will bring it up to 3.mg. then 4.5mg. > Skip's in Boca Raton filled the prescription. > > Since I've had a bad cold I haven't started yet. I wanted to wait to > get rid of the cold and get extra sleep etc. Since you wrote about > side effects for MS what side effects might I expect having Chron's? > Will I see any response to the drug at 1.5mg or 3.0mg. or have to > wait to get to 4.5 mg to get any response? Any info you or people > from the group that have experienced first hand using LDN for > Chron's will be much appreciated.> > Best,> > ------------------------------------

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