My entry for the Dr. Oz show

November 26, 2008

Someone from a Deleware Lyme organization emailed and sent the links

and form for the Dr. Oz XM radio show. They had a 2000 character

limit for the entry. I put the following piece together and submitted

it. We'll see if they write back.

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I was diagnosed with optic neuritis in April 2000, then diagnosed with

MS in 2004 and started Rebif. The Rebif made me worse. Then I

started Copaxone, which was causing mini-exacerbations. Then I was

diagnosed with MS in 2006.

My sickness was moving at a blistering pace. A neuropsychiatrist was

shocked that I was planning on moving to an assisted living community.

He told me to ask my neurologist what my prognosis was. My

neurologist disregarded and or ignored my question.

I went to the local medical school library and found an article about

the average speed of MS progression. That article said it was

typically about 25 years from dx to use of a cane. For me, it was

about 2 or 3 years until I started using a cane. Now I walk with TWO

canes.

These neurologists were trying to kill me! I studied at the local

medical school library and felt my sickness might actually be Lyme.

Due to the complexity of Lyme disease, my remaining physical and

mental energies were poured into recruiting a Lyme Literate Medical

doctor. (LLMD). In March of 2008 I was diagnosed with Lyme disease

and started antibiotic treatment.

Here is a piece I wrote for an MS Internet group I'm on.

From WXYZ: " ARE YOU TELLING ME THAT YOU HAVE SUFFERED ALL OF THESE

YEARS AND FOR SURE DO NOT HAVE MS BUT LYMES DISEASE? WHAT MADE THEM

TEST YOU AGAIN. SO, SHOULD THESE ANTIBIOTICS BRING RELIEF,FIX WHAT

AILS YOU OR HAVE THEY WAITED TOO LONG TO DX YOU CORRECTLY? "

This illustrates a critical part of this story. " THEY " did not do any

testing for me. If I had stayed on the typical and accepted

medical-industrial-complex route, " THEY " would pump me full of cancer

drugs to decimate my immune system. I feel that by now I'd be laying

in a hospital bed, unable to move, with my mother crying beside me and

the " white coats " quietly shaking their heads saying " we've used the

strongest drugs we had.....There's nothing else to do. "

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