Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Hi Cliff Do you mind me asking why youre taking such a small amount of LDN? Have you just started and are moving up slowly? You need to try to get to 3mg or 4.5mg for most benefit. In low dose naltrexone , " Cliff Rainey " <csrainey@...> wrote: > > Is anyone taking LDN for CIDP? Chronic inflammatory demylenating > polyradical neuropathy, or essentially MS of the peripheral nervous > system WITHOUT MRI visible lesions. Also may be called peripheral > neuropathy by neurologists when they don't know what it is.... > > My symptoms include: poor balance, fatigue, cold/numb feet and hands, > poor bladder and bowel control, low appetite, and double vision. > Currently on 1.5 mg LDN at bedtime. I take B-1, B-6, methylcobalamin, > mult-B complex at night. > > Although far less debilitating than MS or Crohn's... it still has me > using a walker. I am only 55, and used to be quite active. > > Cliff Rainey > UC Berkeley, Class of 1977 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 I will take 3.0 mg LDN in two days, increasing from 1.5 mg, as suggested by Dr. M. Sullivan, 717 697-5050. Thanks for the reply. > > > > Is anyone taking LDN for CIDP? Chronic inflammatory demylenating > > polyradical neuropathy, or essentially MS of the peripheral nervous > > system WITHOUT MRI visible lesions. Also may be called peripheral > > neuropathy by neurologists when they don't know what it is.... > > > > My symptoms include: poor balance, fatigue, cold/numb feet and hands, > > poor bladder and bowel control, low appetite, and double vision. > > Currently on 1.5 mg LDN at bedtime. I take B-1, B-6, methylcobalamin, > > mult-B complex at night. > > > > Although far less debilitating than MS or Crohn's... it still has me > > using a walker. I am only 55, and used to be quite active. > > > > Cliff Rainey > > UC Berkeley, Class of 1977 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 HAVE YOU AND YOUR NEUROLOGIST THOUGHT ABOUT PROVIGIL? Quote Link to comment Share on other sites More sharing options...
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