uestion

[Guest guest]

I was fine at night (some vivid dreams) had energy this morning and at

around 12pm I started feeling tired. Now I feel flu like and my body

is stiff like achey.

Is this due to LDN?

Will this go away? If so, what's the normal amount of time one

endures this?

Could this also be because I have Erlichiosis?

I am suspect for Lyme disease. Although, I don't know what to believe

anymore.

I did just get my period which are normally difficult for me and this

month it wasn't.

Totally willing to give LDN a try. I am not scared I just want to

know whats happening and what to expect.

Jodi

Crohn's/Colitis

[Guest guest]

It does seem like the medication brings out infections a bit or makes the body

more aware of them. I'm not sure why this happens, but it could be due to the

tick borne disease you mentioned. I would definitely follow up with Igenex

testing for Lymes.

As for feeling flu like, I remember when I first started the medication I felt

much more energy the next day! Because I had been so sick for so long, I wanted

to take advantage of this energy and wanted to get all of the cleaning and

little things done that I had let slide for so long. What I forgot was that my

body hadn't had time to really heal, and I did feel very flu like in the

evenings. I had to learn to go slow and gradually work up to more activity.

Just because we feel great immediately doesn't mean our bodies have had time to

repair from the years of damage we've faced with our diseases. I'm not sure if

this is what you are experiencing, but it's something I still have to keep in

mind a bit. I would consider this as a possibility - if you've done more today

because you had more energy than you have over the past several months - even

just cleaning a little more than usual - it may have taxed your system a bit.

Now I can do much more and

am almost how I was before the lupus became active, but if I have activities

scheduled every night after work and do home improvement projects all weekend,

it takes its toll and I am tired later. The sore joints and pain have gone over

time though.

Hope this helps,

Cami

Systemic Lupus Erythematosus

[Guest guest]

Thanks Cami..

It does help.

Jodi

>

> It does seem like the medication brings out infections a bit or

makes the body more aware of them. I'm not sure why this happens, but

it could be due to the tick borne disease you mentioned. I would

definitely follow up with Igenex testing for Lymes.

>

> As for feeling flu like, I remember when I first started the

medication I felt much more energy the next day! Because I had been

so sick for so long, I wanted to take advantage of this energy and

wanted to get all of the cleaning and little things done that I had

let slide for so long. What I forgot was that my body hadn't had time

to really heal, and I did feel very flu like in the evenings. I had

to learn to go slow and gradually work up to more activity. Just

because we feel great immediately doesn't mean our bodies have had

time to repair from the years of damage we've faced with our diseases.

I'm not sure if this is what you are experiencing, but it's something

I still have to keep in mind a bit. I would consider this as a

possibility - if you've done more today because you had more energy

than you have over the past several months - even just cleaning a

little more than usual - it may have taxed your system a bit. Now I

can do much more and

> am almost how I was before the lupus became active, but if I have

activities scheduled every night after work and do home improvement

projects all weekend, it takes its toll and I am tired later. The

sore joints and pain have gone over time though.

>

> Hope this helps,

>

> Cami

> Systemic Lupus Erythematosus

>