Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 you should join the group for autists with dr mccandless.i hope you ordered the ldn cream for him,thats works better when there are guts problem.diet of no sugar no gluten ,nosoy and no milk products is also part of the treatment. > > Dear and everyone, > > I saw Aletha's email for requesting information, and I'd like to > request the same, please: A copy of the " welcome e-mail " , " what not to > take with LDN " and " beginning side effects with LDN. " > > Our local DAN! doctor called in a prescription for LDN for my 9 year old > (weighs about 60 pounds) son for autism. He's been described as " streppy > glutamate kid " who is naturally high ammonia and sulphur (making > chelation with sulphurous chelators not a good idea). He still has too > much mercury, antimony, aluminum, and flouride from the > environment/vaccines, what have you. He has mitochrondrial dysfunction > (common for children with mercury poisoning), adrenal dysfunction, low > thyroid, and acid reflux (esophagitis). We've tried several things over > the years and are getting close to trying paxil or something, though I > really don't want to have to. So, trying LDN is one of our last- ditch > efforts. We tried it a few years ago but only for one day, as he started > doing a weird eye stim that scared us (Dr. Kartzinel, at the time, told > us to stop anything if we get a negative reaction). Lately we've been > thinking that we should have given it more time. Anyway, I'd appreciate > hearing about what to expect, avoid, etc. I don't know if is a > good candidate for it, he might be. It sounds like great stuff (Dr. > McCandless uses it a lot for children with ASD). > > We've also considered IVIG, but his immune system test shows that the > two levels indicating need for it are normal (so insurance wouldn't > cover the $15,000 I hear it costs, plus I also hear it doesn't usually > work very well for children over 7). But our local DAN! thinks it might > help with the strep. He also has Epstein-Barr systemically, since he was > a toddler--someone at his preschool had mono. > > I'd appreciate any and all information and anyone else would like > to share with me about this. I get the emails in digested form, so will > read through. > > Thanks very much. > Sincerely, > Cate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 You might want to consider joining this group for you questions and problems: This is a group for discussing and reporting treatment results with LDN (low dose naltrexone) in autism spectrum disorder. This is a new treatment and the goal is to get as much information as possible to help parents decide if this is an appropriate and safe treatment for their autistic child. Autism_LDN/ Art -- > > Dear and everyone, > > I saw Aletha's email for requesting information, and I'd like to > request the same, please: A copy of the " welcome e-mail " , " what not to > take with LDN " and " beginning side effects with LDN. " > > Our local DAN! doctor called in a prescription for LDN for my 9 year old > (weighs about 60 pounds) son for autism. He's been described as " streppy > glutamate kid " who is naturally high ammonia and sulphur (making > chelation with sulphurous chelators not a good idea). He still has too > much mercury, antimony, aluminum, and flouride from the > environment/vaccines, what have you. He has mitochrondrial dysfunction > (common for children with mercury poisoning), adrenal dysfunction, low > thyroid, and acid reflux (esophagitis). We've tried several things over > the years and are getting close to trying paxil or something, though I > really don't want to have to. So, trying LDN is one of our last- ditch > efforts. We tried it a few years ago but only for one day, as he started > doing a weird eye stim that scared us (Dr. Kartzinel, at the time, told > us to stop anything if we get a negative reaction). Lately we've been > thinking that we should have given it more time. Anyway, I'd appreciate > hearing about what to expect, avoid, etc. I don't know if is a > good candidate for it, he might be. It sounds like great stuff (Dr. > McCandless uses it a lot for children with ASD). > > We've also considered IVIG, but his immune system test shows that the > two levels indicating need for it are normal (so insurance wouldn't > cover the $15,000 I hear it costs, plus I also hear it doesn't usually > work very well for children over 7). But our local DAN! thinks it might > help with the strep. He also has Epstein-Barr systemically, since he was > a toddler--someone at his preschool had mono. > > I'd appreciate any and all information and anyone else would like > to share with me about this. I get the emails in digested form, so will > read through. > > Thanks very much. > Sincerely, > Cate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Cate... In addition to LDN....http://iodine4health.com. Iodine -- mainly lugol's or iodoral for your son's sluggish thyroid and a natural chelator of mercury, and fluoride. Although Magnascent or detoxified iodine might be gentler for him. http://www.magnascent.com/ http://www.iodinesource.com/ But ultimately, to reach total body saturation, he'll need potassium iodide as well as iodine, which is in lugols and iodoral. It's also being studied as a treatment for the autistic. Buiste, the owner of iodine4health.com has a group -- iodine, you should join. would also be a good source of advice for supporting his mitochondrial function. CoQ10 comes to mind. Also the amino acid ornithine cycles ammonia into urea. http://www..ch/en/products_devices/vitamins/aminoacids.php. I'm not sure what would help the sulfur. Do you know what stage of adrenal fatigue he is in? There are saliva cortisol tests that you can order (24 hr is best). If he's low cortisol, isocort or adrenal glandulars might be helpful. If he's high cortisol, then holy basil or phosphydital serine would be helpful in lowering it. http://stopthethyroidmadness.com is a good resource for thyroid and adrenal info. If he's truly hypothyroid, and if iodine, selenium and tyrosine aren't enough, then armour would be helpful. I assume that he's already on a gluten and msg free diet. There's also a diet for celiacs called the specific carbohydrate diet, http://www.breakingtheviciouscycle.info/ that might be helpful too. Lorie > > Dear and everyone, > > I saw Aletha's email for requesting information, and I'd like to > request the same, please: A copy of the " welcome e-mail " , " what not to > take with LDN " and " beginning side effects with LDN. " > > Our local DAN! doctor called in a prescription for LDN for my 9 year old > (weighs about 60 pounds) son for autism. He's been described as " streppy > glutamate kid " who is naturally high ammonia and sulphur (making > chelation with sulphurous chelators not a good idea). He still has too > much mercury, antimony, aluminum, and flouride from the > environment/vaccines, what have you. He has mitochrondrial dysfunction > (common for children with mercury poisoning), adrenal dysfunction, low > thyroid, and acid reflux (esophagitis). We've tried several things over > the years and are getting close to trying paxil or something, though I > really don't want to have to. So, trying LDN is one of our last-ditch > efforts. We tried it a few years ago but only for one day, as he started > doing a weird eye stim that scared us (Dr. Kartzinel, at the time, told > us to stop anything if we get a negative reaction). Lately we've been > thinking that we should have given it more time. Anyway, I'd appreciate > hearing about what to expect, avoid, etc. I don't know if is a > good candidate for it, he might be. It sounds like great stuff (Dr. > McCandless uses it a lot for children with ASD). > > We've also considered IVIG, but his immune system test shows that the > two levels indicating need for it are normal (so insurance wouldn't > cover the $15,000 I hear it costs, plus I also hear it doesn't usually > work very well for children over 7). But our local DAN! thinks it might > help with the strep. He also has Epstein-Barr systemically, since he was > a toddler--someone at his preschool had mono. > > I'd appreciate any and all information and anyone else would like > to share with me about this. I get the emails in digested form, so will > read through. > > Thanks very much. > Sincerely, > Cate > Quote Link to comment Share on other sites More sharing options...
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