prescription coming (newbie) for 9 y/o son with ASD

December 13, 2008

Dear and everyone,

I saw Aletha's email for requesting information, and I'd like to

request the same, please: A copy of the " welcome e-mail " , " what not to

take with LDN " and " beginning side effects with LDN. "

Our local DAN! doctor called in a prescription for LDN for my 9 year old

(weighs about 60 pounds) son for autism. He's been described as " streppy

glutamate kid " who is naturally high ammonia and sulphur (making

chelation with sulphurous chelators not a good idea). He still has too

much mercury, antimony, aluminum, and flouride from the

environment/vaccines, what have you. He has mitochrondrial dysfunction

(common for children with mercury poisoning), adrenal dysfunction, low

thyroid, and acid reflux (esophagitis). We've tried several things over

the years and are getting close to trying paxil or something, though I

really don't want to have to. So, trying LDN is one of our last-ditch

efforts. We tried it a few years ago but only for one day, as he started

doing a weird eye stim that scared us (Dr. Kartzinel, at the time, told

us to stop anything if we get a negative reaction). Lately we've been

thinking that we should have given it more time. Anyway, I'd appreciate

hearing about what to expect, avoid, etc. I don't know if is a

good candidate for it, he might be. It sounds like great stuff (Dr.

McCandless uses it a lot for children with ASD).

We've also considered IVIG, but his immune system test shows that the

two levels indicating need for it are normal (so insurance wouldn't

cover the $15,000 I hear it costs, plus I also hear it doesn't usually

work very well for children over 7). But our local DAN! thinks it might

help with the strep. He also has Epstein-Barr systemically, since he was

a toddler--someone at his preschool had mono.

I'd appreciate any and all information and anyone else would like

to share with me about this. I get the emails in digested form, so will

read through.

Thanks very much.

Sincerely,

Cate

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