Re: Re: Good article on bartonella / shows some MS patien...

[Guest guest]

My western blot was negative through my first two or three years of treatment. Then gradually, with each passing year, the antibodies began to show, and by the time of my last blot my LLMD said it was the most lit-up test he'd ever seen. It showed ten positive IgG bands with three or four showing +++, and five IgM bands with a couple +++. But had they gone with the first tests, and not treated, I may never have come up positive.

And this was with an acute onset. Still, no antibody response for years.

In a message dated 12/15/2008 11:31:13 A.M. Eastern Standard Time, alrightguy123@... writes:

My Fry Laboratories Lyme test indicated I had bartonella. It wasinconclusive about Lyme though. I don't think the neurologic Lymewill yield positive test results. The standard Infectious Disease Society of America (IDSA) is like 28days of an antibiotic like doxycycline. For my Lyme disease I'mlooking at 18 to 24 months of antibiotics.>> Hi everyone,> > Interesting article. Shows bartonella causing a host of chronic illness > symptoms, going mostly undetected. Although, they are all wet withtheir > treatment length.> > > > > _http://www.newsobserver.com/news/story/1333377-p3.html_ > (http://www.newsobserver.com/news/story/1333377-p3.html) > > > **************Make your life easier with all your friends, email, and > favorite sites in one place. Try it now. >(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010)> Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

[Guest guest]

Go to Lymenet.org, and go to flash discussion and choose the "Seeking a Doctor" discussion board. Someone there will help you find an LLMD.

In a message dated 12/15/2008 1:00:01 P.M. Eastern Standard Time, jacquie@... writes:

Hi, I've been on LDN for a couple of years now, it helps with MS symptoms I have, no diagnosis as such. It helps with chronic fatigue, fibro, numbness and tingling, muscle spasms, and with a boosted immune system, I rarely get sick.

But last fall I did get sick. I thought it was flu but it got so bad, I was in such intense pain, my husband took me to the emergency room and the dr. did a Lyme test, western blot, which came back positive. I had had several previously, suspecting Lyme, but never positive. This time they put me on doxycycline and all the pain I'd been living with for years, that I thought was due to arthritis, went almost entirely away and I felt reborn! It helped with other things too, irritated bowel syndrome, chronic sinus infection, an old ankle sprain that had never stopped hurting... I stayed on is for six weeks and the Dr. said I didn't need it any longer. In two weeks I was locked back in arthritis pain. I begged my dr. to let me stay on the doxycycline for the pain relief. She said it does have an anti-inflammatory effect. She reluctantly agreed, saying that she would have to change antibiotics occasionally, to keep them from becoming ineffective for me because I am allergic to penicillin and can't afford to lose another. I said, I am 70. There is such a thing as quality of life. It seems to me I should be able to make a choice here, to live pain free and take the risks of a possible untreated infection down the line. It's not like I have all that much time left. So, she refilled the two week prescription a few times, I stayed on it delighted to be living pain free, for about 3 months but now, she has decided she will no longer prescribe antibiotics to me. She says I should no longer need them.

So, I am waiting now, day two, to see if the pain returns, I hope she is right. If she is wrong, I need to seek a dr. who knows how to treat Lyme, because I think I've had it a long long time, undiagnosed, and I have no idea how to locate a dr. who knows what to do with long term Lyme. I feel like the hot potato being tossed around. My Dr. wanted to send me to a rheumatoid expert but I've been there and done that with no help at all. They x rayed me, said yes, you have arthritis, and prescribed a series of nsaids that didn't help until I hit celebrex, which gave me esophageal ulcers and caused me to be off of all nsaids for a year, and now I only take mobic. The pain relievers they prescribe do not help much, until they get into the narcotics and I don't like the way they make my brain slow down, I can't function like that. So, it was such a relief to me to find something that worked!

Any help or advice would be much appreciated. Thanks, Eve

Re: [low dose naltrexone] Re: Good article on bartonella / shows some MS patien...

My western blot was negative through my first two or three years of treatment. Then gradually, with each passing year, the antibodies began to show, and by the time of my last blot my LLMD said it was the most lit-up test he'd ever seen. It showed ten positive IgG bands with three or four showing +++, and five IgM bands with a couple +++. But had they gone with the first tests, and not treated, I may never have come up positive.

And this was with an acute onset. Still, no antibody response for years.

In a message dated 12/15/2008 11:31:13 A.M. Eastern Standard Time, alrightguy123 writes:

My Fry Laboratories Lyme test indicated I had bartonella. It wasinconclusive about Lyme though. I don't think the neurologic Lymewill yield positive test results. The standard Infectious Disease Society of America (IDSA) is like 28days of an antibiotic like doxycycline. For my Lyme disease I'mlooking at 18 to 24 months of antibiotics.>> Hi everyone,> > Interesting article. Shows bartonella causing a host of chronic illness > symptoms, going mostly undetected. Although, they are all wet withtheir > treatment length.> > > > > _http://www.newsobserver.com/news/story/1333377-p3.html_ > (http://www.newsobserver.com/news/story/1333377-p3.html) > > > **************Make your life easier with all your friends, email, and > favorite sites in one place. Try it now. >(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010)>

Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

[Guest guest]

Hi, I've been on LDN for a couple of years now, it helps with MS symptoms I have, no diagnosis as such. It helps with chronic fatigue, fibro, numbness and tingling, muscle spasms, and with a boosted immune system, I rarely get sick.

But last fall I did get sick. I thought it was flu but it got so bad, I was in such intense pain, my husband took me to the emergency room and the dr. did a Lyme test, western blot, which came back positive. I had had several previously, suspecting Lyme, but never positive. This time they put me on doxycycline and all the pain I'd been living with for years, that I thought was due to arthritis, went almost entirely away and I felt reborn! It helped with other things too, irritated bowel syndrome, chronic sinus infection, an old ankle sprain that had never stopped hurting... I stayed on is for six weeks and the Dr. said I didn't need it any longer. In two weeks I was locked back in arthritis pain. I begged my dr. to let me stay on the doxycycline for the pain relief. She said it does have an anti-inflammatory effect. She reluctantly agreed, saying that she would have to change antibiotics occasionally, to keep them from becoming ineffective for me because I am allergic to penicillin and can't afford to lose another. I said, I am 70. There is such a thing as quality of life. It seems to me I should be able to make a choice here, to live pain free and take the risks of a possible untreated infection down the line. It's not like I have all that much time left. So, she refilled the two week prescription a few times, I stayed on it delighted to be living pain free, for about 3 months but now, she has decided she will no longer prescribe antibiotics to me. She says I should no longer need them.

So, I am waiting now, day two, to see if the pain returns, I hope she is right. If she is wrong, I need to seek a dr. who knows how to treat Lyme, because I think I've had it a long long time, undiagnosed, and I have no idea how to locate a dr. who knows what to do with long term Lyme. I feel like the hot potato being tossed around. My Dr. wanted to send me to a rheumatoid expert but I've been there and done that with no help at all. They x rayed me, said yes, you have arthritis, and prescribed a series of nsaids that didn't help until I hit celebrex, which gave me esophageal ulcers and caused me to be off of all nsaids for a year, and now I only take mobic. The pain relievers they prescribe do not help much, until they get into the narcotics and I don't like the way they make my brain slow down, I can't function like that. So, it was such a relief to me to find something that worked!

Any help or advice would be much appreciated. Thanks, Eve

Re: [low dose naltrexone] Re: Good article on bartonella / shows some MS patien...

My western blot was negative through my first two or three years of treatment. Then gradually, with each passing year, the antibodies began to show, and by the time of my last blot my LLMD said it was the most lit-up test he'd ever seen. It showed ten positive IgG bands with three or four showing +++, and five IgM bands with a couple +++. But had they gone with the first tests, and not treated, I may never have come up positive.

And this was with an acute onset. Still, no antibody response for years.

In a message dated 12/15/2008 11:31:13 A.M. Eastern Standard Time, alrightguy123@... writes:

My Fry Laboratories Lyme test indicated I had bartonella. It wasinconclusive about Lyme though. I don't think the neurologic Lymewill yield positive test results. The standard Infectious Disease Society of America (IDSA) is like 28days of an antibiotic like doxycycline. For my Lyme disease I'mlooking at 18 to 24 months of antibiotics.>> Hi everyone,> > Interesting article. Shows bartonella causing a host of chronic illness > symptoms, going mostly undetected. Although, they are all wet withtheir > treatment length.> > > > > _http://www.newsobserver.com/news/story/1333377-p3.html_ > (http://www.newsobserver.com/news/story/1333377-p3.html) > > > **************Make your life easier with all your friends, email, and > favorite sites in one place. Try it now. >(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010)>

Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

[Guest guest]

Thanks for the fast response. Is the DVD "Under Our Skin," worth the investment, in your opinion? Eve

Re: [low dose naltrexone] Re: Good article on bartonella / shows some MS patien...

My western blot was negative through my first two or three years of treatment. Then gradually, with each passing year, the antibodies began to show, and by the time of my last blot my LLMD said it was the most lit-up test he'd ever seen. It showed ten positive IgG bands with three or four showing +++, and five IgM bands with a couple +++. But had they gone with the first tests, and not treated, I may never have come up positive.

And this was with an acute onset. Still, no antibody response for years.

In a message dated 12/15/2008 11:31:13 A.M. Eastern Standard Time, alrightguy123 writes:

My Fry Laboratories Lyme test indicated I had bartonella. It wasinconclusive about Lyme though. I don't think the neurologic Lymewill yield positive test results. The standard Infectious Disease Society of America (IDSA) is like 28days of an antibiotic like doxycycline. For my Lyme disease I'mlooking at 18 to 24 months of antibiotics.>> Hi everyone,> > Interesting article. Shows bartonella causing a host of chronic illness > symptoms, going mostly undetected. Although, they are all wet withtheir > treatment length.> > > > > _http://www.newsobserver.com/news/story/1333377-p3.html_ > (http://www.newsobserver.com/news/story/1333377-p3.html) > > > **************Make your life easier with all your friends, email, and > favorite sites in one place. Try it now. >(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010)>

Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

Make your life easier with all your friends, email, and favorite sites in one place. Try it now.

[Guest guest]

Thanks then, I will order it and begin searching. I'm about 6 hours from Mayo, 2 hours from Chicago or Milwaukee, 1 hour from Madison WI, 1 hour from La Crosse WI, any one have any suggestions or referrals in these areas?

I'm glad you no longer live over a landfill. Eve

[low dose naltrexone] Re: Good article on bartonella / shows some MS patien...

Yes, it's worth the money. The Lyme documentary "Under Our Skin" isabout $35 plus shipping. I'd quite "thrifty" and don't question mydecision to spend the money at all.Lyme is a very complex disease. A not so competent Lyme Doctor willget us dead, or worse. I put my dieing breath into finding my Lymephysician by doing the internet referrals AND interviewing Lymeawareness / education organizations. Many Lyme patients have to go to out-of-state Lyme physicians. My LLMDis about a 6 hour drive.Those shots do strange things to us. Something like getting ourcytoines (????) or something all a titter. For me, there is apossibility I had Lyme for a long time. when I lived on top of theold landfill, I noticed my early symptoms like my left eye quittingworking, were related to two (2) inch rain falls. Maybe as the groundwater increased the toxic vapors were pushed into the house???> >> > Hi everyone,> > > > Interesting article. Shows bartonella causing a host ofchronic > illness > > symptoms, going mostly undetected. Although, they are allwet with> their > > treatment length.> > > > > > > > > > _http://www.newsobserver.com/news/story/1333377-p3.html_ > > (http://www.newsobserver.com/news/story/1333377-p3.html) > > > > > > **************Make your life easier with all your friends,email, and > > favorite sites in one place. Try it now. > >> (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010)> >> > > > > > > > >----------------------------------------------------------------------------> Make your life easier with all your friends, email, and favoritesites in one place. Try it now.> > > > > > >------------------------------------------------------------------------------> Make your life easier with all your friends, email, and favoritesites in one place. Try it now.>------------------------------------

[Guest guest]

I did the Marshall protocol.com . It gor rid of my lyme, and now I'm only using

LDN, to keep my immune system up. I will do 2 weeks a year of MP,just in case.

Takes about a year for MP to get most all symptoms. I would do LDN, along with

MP.

Hi, I've been on LDN for a couple of years now, it helps with MS symptoms I

have, no diagnosis as such. It helps with chronic fatigue, fibro, numbness and

tingling, muscle spasms, and with a boosted immune system, I rarely get sick.

But last fall I did get sick. I thought it was flu but it got so bad, I was in

such intense pain, my husband took me to the emergency room and the dr. did a

Lyme test, western blot, which came back positive. I had had several

previously, suspecting Lyme, but never positive. This time they put me on

doxycycline and all the pain I'd been living with for years, that I thought was

due to arthritis, went almost entirely away and I felt reborn! It helped with

other things too, irritated bowel syndrome, chronic sinus infection, an old

ankle sprain that had never stopped hurting... I stayed on is for six weeks

and the Dr. said I didn't need it any longer. In two weeks I was locked back in

arthritis pain. I begged my dr. to let me stay on the doxycycline for the pain

relief. She said it does have an anti-inflammatory effect. She reluctantly

agreed, saying that she would have to change antibiotics occasionally, to keep

them from becoming ineffective for me because I am allergic to penicillin and

can't afford to lose another. I said, I am 70. There is such a thing as

quality of life. It seems to me I should be able to make a choice here, to

live pain free and take the risks of a possible untreated infection down the

line. It's not like I have all that much time left. So, she refilled the two

week prescription a few times, I stayed on it delighted to be living pain free,

for about 3 months but now, she has decided she will no longer prescribe

antibiotics to me. She says I should no longer need them.

So, I am waiting now, day two, to see if the pain returns, I hope she is right.

If she is wrong, I need to seek a dr. who knows how to treat Lyme, because I

think I've had it a long long time, undiagnosed, and I have no idea how to

locate a dr. who knows what to do with long term Lyme. I feel like the hot

potato being tossed around. My Dr. wanted to send me to a rheumatoid expert but

I've been there and done that with no help at all. They x rayed me, said yes,

you have arthritis, and prescribed a series of nsaids that didn't help until I

hit celebrex, which gave me esophageal ulcers and caused me to be off of all

nsaids for a year, and now I only take mobic. The pain relievers they prescribe

do not help much, until they get into the narcotics and I don't like the way

they make my brain slow down, I can't function like that. So, it was such a

relief to me to find something that worked!

Any help or advice would be much appreciated. Thanks, Eve

Re: [low dose naltrexone] Re: Good article on bartonella / shows some MS

patien...

My western blot was negative through my first two or three years of treatment.

Then gradually, with each passing year, the antibodies began to show, and by the

time of my last blot my LLMD said it was the most lit-up test he'd ever seen.

It showed ten positive IgG bands with three or four showing +++, and five IgM

bands with a couple +++. But had they gone with the first tests, and not

treated, I may never have come up positive.

And this was with an acute onset. Still, no antibody response for years.

In a message dated 12/15/2008 11:31:13 A.M. Eastern Standard Time,

alrightguy123@... writes:

My Fry Laboratories Lyme test indicated I had bartonella. It was

inconclusive about Lyme though. I don't think the neurologic Lyme

will yield positive test results.

The standard Infectious Disease Society of America (IDSA) is like 28

days of an antibiotic like doxycycline. For my Lyme disease I'm

looking at 18 to 24 months of antibiotics.

>

> Hi everyone,

>

> Interesting article. Shows bartonella causing a host of chronic

illness

> symptoms, going mostly undetected. Although, they are all wet with

their

> treatment length.

>

>

>

>

> _http://www.newsobserver.com/news/story/1333377-p3.html_

<http://www.newsobserver.com/news/story/1333377-p3.html_>

> (http://www.newsobserver.com/news/story/1333377-p3.html

<http://www.newsobserver.com/news/story/1333377-p3.html> )

>

>

> **************Make your life easier with all your friends, email, and

> favorite sites in one place. Try it now.

>

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010

<http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010>

)

>

________________________________

Make your life easier with all your friends, email, and favorite sites in one

place. Try it now

<http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010>

..