KNOWLEDGEABLE ADVICE PLEASE! Rheumatoid Arthritis and LDN

[Guest guest]

It is claimed LDN will help all those with an autoimmune disease.

RA is an autoimmune disease.

So is multiple sclerosis.

At least this is what " the experts " say.

I have had MS for 19 years. For most of that time I listened to and

trusted my doctors and took the medication they prescribed. The cost

to my insurance company was over $1,000.00 a month. My health went

downhill. I then learned about LDN and started it March 2005. I am

sorry I didn't hear about it sooner as I would have avoided the

neurological damage I now have. I have tried but cannot reverse the

damage. LDN has halted the disease from progressing.

If what your doctor is prescribing for your RA is not working then I

think your choice is clear. It takes a bit of courage and desperation

to take something for your health problem that is not approved by

some government agency and recommended by some all knowing doctor. I

tell everyone I know about LDN and in most cases it goes in one ear

and out the other. These are people with RA and cancer and Crohn's

and thyroid problems, ectc. It is their loss and unfortunately they

will probably be sorry they didn't listen. Pardon me for my arrogance.

The medical profession / pharmaceutical companies has cast a spell

over the people keeping them ignorant and full of fear, except for me

and most of the members here.

Art, who has knowledge through real life experience.

My MS/LDN Story:

http://tinyurl.com/5tcp6r

--

>

> From: peg44270 <jelens@...>

> Subject: [low dose naltrexone] Remicade/LDN - Sharon (was Re: flu'ish

like

> cold)

> low dose naltrexone

> Date: Friday, December 5, 2008, 4:31 PM

>

> I have a similar situation in which Remicade is not lasting the

full 8

> weeks. I'm going to wait until Remicade stops working and I start

> getting symptoms, then I'll start the LDN. This will give me

> positive, immediate feedback if the LDN works. If not, no harm done,

> as LDN has less side effects than aspirin.

>

> > According to Skip's Pharmacy, you should wait 50 days after a

Remicade

> > infusion before starting LDN; reason being they have opposite

effects

>

[Guest guest]

Ted,

I think I can help you. I’ve had RA for 16 years and been on LDN for one. Thank God I discovered LDN, because till then I was sinking fast. Your rheumatologist is hooked into the party line and is unlikely to change his tune. If you really want to treat your RA, there is much research you can do to educate yourself. My experience with physicians is that if they are not “up” on something, they are usually “down” on it. I encourage you to find out all you can about LDN and then find a supportive doctor if you decide to try it.

Right now you are suppressing your immune system (as I did for years) and that is the road to ruin, eventually. I used to believe what rheumatologists told me, but I learned to think for myself after I realized I was only going to continue deteriorating if I took their advice. In addition to LDN I’ve been on an antibiotic protocol since the end of July. I am off all my prior meds, which included Celebrex, Plaquenil, and a variety of other things. I never agreed to go the methotrexate/humira etc. route because it scared me too much, and now I’m glad. The LDN helps, and then it’s necessary to dig deeper and find the root causes of the problem if you really want to get well. For me – and my guess is for most other people with this condition – the cause is bacterial. It could be Lyme, or mycoplasma, or a variety of other bugs – alone or together. Check out roadback.org for more information, and read the book they recommend by Scammell. It will open your eyes as to why the practice of rheumatology took a wrong turn so many years ago. Antibiotic protocols (AP) and LDN work very well together. You should also investigate your candida situation, especially if you decide to go on AP.

As I look back on my 1 year on LDN and my 5 months on AP, I can definitely say I’m making progress. Things got off to a rocky start (flare ups, braing fog, Herxheimer reactions), but now my pain is way down, my fingers have shrunk down enough in size that I can actually wear my anniversary ring again, my knees aren’t swollen anymore, and I feel better in general. 13 months ago I was getting worse by the day.

Good luck!

Judy

[Guest guest]

Hi Ted,

I have psoriatic Arthritis and Psoriais. I got the PA in the spring

of 2005, searching the internet, I discovered AP or antibotic therpy.

I started taking 100mg of Minocin in Aug 2005 and 3 months later I was

about 90% pain free and after another 3 months 100 pain free.

I stayed that way until September 2008, when I had a flare, mostly

because I got sloppy with following a healthly diet and maintaining a

healtly weight. I since loss the extra weight and I am again

following a strict low glymeric diet. However AP is slow and while I

was improving, I knew it quite a few months before I recover, also I

might have to add addiontal antiobiotic beside the Minocin.

But I discover the LDN on the web and found it could be taken with AP.

I started LDN on Nov 5, 2008 and things went like this.

The first day and the following two weeks I got a immediate drop in my

pain level from what I called painful join & muscles to aching joint

and mucles.

The second two weeks were petty much the same, but I developed a

headache and a mild sore throat, feeling like a cold was coming on.

On Dec 6, it stopped and since that time my process has been

remarkable. Each day I have noticed I significance decrease in my

aching joints and muscles where my discomfort level is down about

90-95% by this point.

Plus the LDN has cause my (skin) psoriais to clear up. AP never did

anything for clearing my skin of it's psoriais.

Lastly the LDN caused my no sleeping problems.

But I very happy to have found and used LDN.

Dan

[Guest guest]

Dear Ted,

You may find Weber's website of interest:

RHEUMATOID ARTHRITIS TREATMENT by POTASSIUM

URL ADDRESS: charles_w.tripod.com/arthritis.html

Potassium can build to toxic levels, so if you consider supplementing,

check with your doctor first - he/she will test your levels, and if

necessary, continue to monitor.

Kind regards,

Cris

2a. KNOWLEDGEABLE ADVICE PLEASE! Rheumatoid Arthritis and LDN

Posted by: " Albert T. Mason III " ted@...

Date: Sat Dec 13, 2008 5:07 pm ((PST))

PLEASE, KNOWLEDGEABLE ADVICE NEEDED..

I have rheumatoid arthritis and have been considering doing LDN but noticed

that on the list of drugs you cannot take if you start LDN . every vital

drug I

take to treat my RA is on that list: Methotrexate, Humira, Plaquenil, etc.

So, what does one do.. The main reason I want to do the LDN is to elevate

my

BETA ENDORPHINS.

I know my levels are anemic and know I need those endorphin levels in my

blood stream.

My Rheumatologist hated the idea when I mentioned it to her saying that the

last thing in the world I want to do is BOOST your IMMUNE SYSTEM . and said

I should know better.

I understand that all the treatment I have intentionally weakens the immune

system . and this is a completely new approach which if it works to

strengthen my immune system could cause my RA to really flare up.

I need someone knowledgeable to help answer my questions here . thank you.

Ted

[Guest guest]

Ted, I have lupus and Osteo arthritis - besides Lord knows what else, I was on plaquenil but stopped taking it as I wanted to start the LDN, I must say I have not had any flares whatsoever, but then, everyone is different. Most of what you hear will maybe be anecdotal, but that could be anecdotes from many hundreds of people who have good results - some maybe otherwise. Read as much as you can and then make sure you are informed and perhaps give it a go.............. I don't listen to the Doc's toooooo much!! I have a mind of my own and am intelligent enough to work things out, I challenge them, and try!! I just like to suprise them I guess......:-))

Celia

[Guest guest]

There's a section in the appendix of Google LDN! with the latest on

its effect on Rheumatoid Arthritis. You can read it for free in the

preview if you don't want to buy the book.

www.googleldn.com

Joe

>

> Ted, I have lupus and Osteo arthritis - besides Lord knows what

else, I was on plaquenil but stopped taking it as I wanted to start

the LDN, I must say I have not had any flares whatsoever, but then,

everyone is different. Most of what you hear will maybe be

anecdotal, but that could be anecdotes from many hundreds of people

who have good results - some maybe otherwise. Read as much as you

can and then make sure you are informed and perhaps give it a

go.............. I don't listen to the Doc's toooooo much!! I have a

mind of my own and am intelligent enough to work things out, I

challenge them, and try!! I just like to suprise them I guess......:-))

> Celia

>

[Guest guest]

There's a section in the appendix of Google LDN! with the latest on

its effect on Rheumatoid Arthritis. You can read it for free in the

preview if you don't want to buy the book.

www.googleldn.com

Joe

>

> Ted, I have lupus and Osteo arthritis - besides Lord knows what

else, I was on plaquenil but stopped taking it as I wanted to start

the LDN, I must say I have not had any flares whatsoever, but then,

everyone is different. Most of what you hear will maybe be

anecdotal, but that could be anecdotes from many hundreds of people

who have good results - some maybe otherwise. Read as much as you

can and then make sure you are informed and perhaps give it a

go.............. I don't listen to the Doc's toooooo much!! I have a

mind of my own and am intelligent enough to work things out, I

challenge them, and try!! I just like to suprise them I guess......:-))

> Celia

>