Re: Re: Tysabri moving to LDN

[Guest guest]

Amy—

Not sure what help I can offer, but I too

was on Tysabri (for about 9 months) and thought it was having a positive

effect. I started on LDN one week

after my last Tysabri injection, not expecting to see positives for a month or

two because of residual Ty in my system. However I saw immediate improvement

followed a month or two later by further improvement. Would it have been good for me to

wait? Maybe, but I was just glad to

get off of Tysabri and start on something with a WHOLE lot less potential

danger (like, none). Do what you

feel is best, and good luck.

Deb

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of aimster1967

Sent: Saturday, November 22, 2008

9:53 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

Tysabri moving to LDN

>

> Hi everyone,

> i have been looking into LDN for several mo now. I have been on

> Tysabri for a little over a year. Up until a few mo. ago, this was a

> wonder drug for me as i also have Crohn's disease. it changed my life

> for the last yr. A few mo. ago 2 days after my infusions, i would feel

> as tho a train had hit me. every muscle and joint and even my bones

> hurt something terrible. i also began getting different infections

> that i just cant kick. My nuero and i decided yesterday to stop the

> Ty, let it get out of my body and ti start LDN. He has one patient

> with MS on LDN at her request and she has done well on it for years.I

> have been scared to stop the TY as it has made such a difference in my

> quality of life but that seems to have changed. Any suggestions on

> getting off Tysabri( i have a feeling this wont be easy ) how long do

> i need to be off before starting LDN. i think 4 to 6 weeks is about

> right but really not sure, my Doc is trying to find out for sure as

well.

> any input would be appreciated...

>

> thanks

> Amy

>

sorry, to be clear .... i have had MS for 5 yrs and Crohn's for 7 or

so yrs.

[Guest guest]

Hi deb, Thank you so much. That is helpful. I am excited to start LDN and are what it can do for me. Sent from my BlackBerryFrom: "Deb Bosserman" <debosserman@...>Date: Sun, 23 Nov 2008 10:35:41 -0700<low dose naltrexone >Subject: RE: [low dose naltrexone] Re: Tysabri moving to LDN Amy— Not sure what help I can offer, but I too was on Tysabri (for about 9 months) and thought it was having a positive effect. I started on LDN one week after my last Tysabri injection, not expecting to see positives for a month or two because of residual Ty in my system. However I saw immediate improvement followed a month or two later by further improvement. Would it have been good for me to wait? Maybe, but I was just glad to get off of Tysabri and start on something with a WHOLE lot less potential danger (like, none). Do what you feel is best, and good luck. Deb From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of aimster1967Sent: Saturday, November 22, 2008 9:53 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Tysabri moving to LDN > > Hi everyone, > i have been looking into LDN for several mo now. I have been on > Tysabri for a little over a year. Up until a few mo. ago, this was a > wonder drug for me as i also have Crohn's disease. it changed my life > for the last yr. A few mo. ago 2 days after my infusions, i would feel > as tho a train had hit me. every muscle and joint and even my bones > hurt something terrible. i also began getting different infections > that i just cant kick. My nuero and i decided yesterday to stop the > Ty, let it get out of my body and ti start LDN. He has one patient > with MS on LDN at her request and she has done well on it for years.I > have been scared to stop the TY as it has made such a difference in my > quality of life but that seems to have changed. Any suggestions on > getting off Tysabri( i have a feeling this wont be easy ) how long do > i need to be off before starting LDN. i think 4 to 6 weeks is about > right but really not sure, my Doc is trying to find out for sure as well. > any input would be appreciated... > > thanks > Amy > sorry, to be clear .... i have had MS for 5 yrs and Crohn's for 7 or so yrs.