Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 > > Hi everyone, > i have been looking into LDN for several mo now. I have been on > Tysabri for a little over a year. Up until a few mo. ago, this was a > wonder drug for me as i also have Crohn's disease. it changed my life > for the last yr. A few mo. ago 2 days after my infusions, i would feel > as tho a train had hit me. every muscle and joint and even my bones > hurt something terrible. i also began getting different infections > that i just cant kick. My nuero and i decided yesterday to stop the > Ty, let it get out of my body and ti start LDN. He has one patient > with MS on LDN at her request and she has done well on it for years.I > have been scared to stop the TY as it has made such a difference in my > quality of life but that seems to have changed. Any suggestions on > getting off Tysabri( i have a feeling this wont be easy ) how long do > i need to be off before starting LDN. i think 4 to 6 weeks is about > right but really not sure, my Doc is trying to find out for sure as well. > any input would be appreciated... > > thanks > Amy > sorry, to be clear .... i have had MS for 5 yrs and Crohn's for 7 or so yrs. Quote Link to comment Share on other sites More sharing options...
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