Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Hi everyone, i have been looking into LDN for several mo now. I have been on Tysabri for a little over a year. Up until a few mo. ago, this was a wonder drug for me as i also have Crohn's disease. it changed my life for the last yr. A few mo. ago 2 days after my infusions, i would feel as tho a train had hit me. every muscle and joint and even my bones hurt something terrible. i also began getting different infections that i just cant kick. My nuero and i decided yesterday to stop the Ty, let it get out of my body and ti start LDN. He has one patient with MS on LDN at her request and she has done well on it for years.I have been scared to stop the TY as it has made such a difference in my quality of life but that seems to have changed. Any suggestions on getting off Tysabri( i have a feeling this wont be easy ) how long do i need to be off before starting LDN. i think 4 to 6 weeks is about right but really not sure, my Doc is trying to find out for sure as well. any input would be appreciated... thanks Amy Quote Link to comment Share on other sites More sharing options...
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