MS progression while on LDN

[Guest guest]

Hello.

My brother-in-law has been taking LDN (4.5 mg every day) since

September 2007 but last month he had a relapse with the damage to his

hearing. Before that he was more or less stable - but no improvement.

He was diagnozed with MS last summer after he started having problems

in one of his eyes. Should he continue with LDN or is he one of those

people who will not get benefit from it? Also, is there anything else

he can take?

Thank you for any help

[Guest guest]

I would continue with LDN and try this idea:

What to do for an exacerbation instead of using steroids.

http://tinyurl.com/5h5ruo

Art

My MS/LDN Story:

http://tinyurl.com/5tcp6r

--

>

> Hello.

> My brother-in-law has been taking LDN (4.5 mg every day) since

> September 2007 but last month he had a relapse with the damage to his

> hearing. Before that he was more or less stable - but no

improvement.

> He was diagnozed with MS last summer after he started having problems

> in one of his eyes. Should he continue with LDN or is he one of

those

> people who will not get benefit from it? Also, is there anything

else

> he can take?

> Thank you for any help

>

[Guest guest]

Get tested for lyme. LDN works to help the immune system, will not kill the lyme

bacterium.Check out Marshall Protocol .com

Hello.

My brother-in-law has been taking LDN (4.5 mg every day) since

September 2007 but last month he had a relapse with the damage to his

hearing. Before that he was more or less stable - but no improvement.

He was diagnozed with MS last summer after he started having problems

in one of his eyes. Should he continue with LDN or is he one of those

people who will not get benefit from it? Also, is there anything else

he can take?

Thank you for any help

[Guest guest]

I took LDN for a little over a year, starting in October 2006, and

strictly followed the guidelines of starting at 1.5mg/day for a month

then went to 3.5mg/day for the rest of my time.

I did not have a " proper " exacerbation while taking the LDN. My

strength just gradually disappeared. Next I did intravenous EAP for a

little over a year, from May 2007 to Dec 2008 / started tapering down.

I had one good month in that time which was measured by enough energy

to go shopping at THREE places one day.

My right hand completely quit working in Aug 2007. That drove me to

question my two MS diagnoses. After much studying at the libraries I

felt my sickness might be Lyme disease.

In Dec 07 I got an appointment with a Lyme Literate Medical Doctor

(LLMD) and had my first appointment in March 08 and started antibiotics.

Finally, in November / December 08 I'm starting to see some

improvements in my strength. I staggered on my own, without canes,

between the kitchen and bathroom yesterday morning. It's not much,

but I'll take it.

My time on LDN was my " learning time " and my break from the

traditional MS diagnosis and MS drugs. As this LDN group was my

" break away " group, I feel like I should share some stories and data.

I have several posts about Lyme here on the LDN board. Luke used the

" Force " , we can use the " Search " .

Lyme video (help from fellow LDNer)

http://vimeo.com/2354218

List of symptoms (has a quiz too)

www.CanLyme.org (radio button in upper left hand corner)

>

> Hello.

> My brother-in-law has been taking LDN (4.5 mg every day) since

> September 2007 but last month he had a relapse with the damage to his

> hearing. Before that he was more or less stable - but no improvement.

> He was diagnozed with MS last summer after he started having problems

> in one of his eyes. Should he continue with LDN or is he one of those

> people who will not get benefit from it? Also, is there anything else

> he can take?

> Thank you for any help

>

[Guest guest]

NONE of the Lyme tests are accurate. If it was so simple as a blood

test, many of us would not be sick. I was tested for Lyme by my

family doc and the test was negative.

Lyme is a CLINICAL diagnosis. This is an extensive history, hands on

exam, and maybe an EKG. I had my clinical diagnosis by a Lyme

Literate Medical Doctor (LLMD) and started 100mg doxycycline twice per

day. Initially I had some strength improvements like being able to go

up steps like a normal human being.

THEN I learned what a Jarisch-Herxheimer reaction was. This is a lot

like being run over my a Mack truck! In fear I telephoned my LLMD,

who said that was the confirmation of the Lyme diagnosis. I think

that was good new?

>

>

>

>

>

> Get tested for lyme. LDN works to help the immune system, will not

kill the lyme bacterium.Check out Marshall Protocol .com

>

>

>

> Hello.

> My brother-in-law has been taking LDN (4.5 mg every day) since

> September 2007 but last month he had a relapse with the damage to his

> hearing. Before that he was more or less stable - but no improvement.

> He was diagnozed with MS last summer after he started having problems

> in one of his eyes. Should he continue with LDN or is he one of those

> people who will not get benefit from it? Also, is there anything else

> he can take?

> Thank you for any help

>

[Guest guest]

Igenex, in Palo Alto Ca, is probably 90% accurate.I was negative on others, but

possitive on Igenex.

The MP is not specific, like LDN. Developed originally for Sarcodoisis. Worth a

try, if you herx on it, it probably will help. Helped me, I'm negative per

Igenex, and no symptoms. I went on LDN, after, 18 months on MP. Add some

residual joint pain, and psoriasis,lingering. All gone now,after 3-5 months of

LDN. Been on LDN, almost a year.

NONE of the Lyme tests are accurate. If it was so simple as a blood

test, many of us would not be sick. I was tested for Lyme by my

family doc and the test was negative.

Lyme is a CLINICAL diagnosis. This is an extensive history, hands on

exam, and maybe an EKG. I had my clinical diagnosis by a Lyme

Literate Medical Doctor (LLMD) and started 100mg doxycycline twice per

day. Initially I had some strength improvements like being able to go

up steps like a normal human being.

THEN I learned what a Jarisch-Herxheimer reaction was. This is a lot

like being run over my a Mack truck! In fear I telephoned my LLMD,

who said that was the confirmation of the Lyme diagnosis. I think

that was good new?

>

>

>

>

>

> Get tested for lyme. LDN works to help the immune system, will not

kill the lyme bacterium.Check out Marshall Protocol .com

>

>

>

> Hello.

> My brother-in-law has been taking LDN (4.5 mg every day) since

> September 2007 but last month he had a relapse with the damage to his

> hearing. Before that he was more or less stable - but no improvement.

> He was diagnozed with MS last summer after he started having problems

> in one of his eyes. Should he continue with LDN or is he one of those

> people who will not get benefit from it? Also, is there anything else

> he can take?

> Thank you for any help

>

[Guest guest]

>

> Hello.

> My brother-in-law has been taking LDN (4.5 mg every day) since

> September 2007 but last month he had a relapse with the damage to

his

> hearing. Before that he was more or less stable - but no

improvement.

> He was diagnozed with MS last summer after he started having

problems

> in one of his eyes. Sho

99a

uld he continue with LDN or is he one of those

> people who will not get benefit from it? Also, is there anything

else

> he can take?

> Thank you for any help

>

===========

The hearing loss so quickly after being diagnosed MS is a red flag,

get checked for lyme disease and candida yeast overgrowth as a just in

case. Lyme and yeast overgrowth affects hearing much more than MS.

Just to be on safe side check for candida yeast and see a Lyme

Literate doctor for an exam. AlrightGuy on this forum can help you on

the lyme.

LDN can bring an underlying lyme and or candida yeast infection to the

forefront and make you think you are having a relapse. If it is lyme,

it must be treated, if it's candida yeast it must be treated for LDN

to kick back in.

Make sure the LDN is being purchased from one of the relable

compounding pharmacists on the LDN website so the LDN will be top

quality.

[Guest guest]

Thanks to everybody who replied to my message. I will recommend my

brother-in-law to get tested for Lyme disease. I don't think he ever

got tested for it. He lives in Ukraine so not all options discussed

here can be applicable there.

About the source of his LDN - he buys Antaxone in powder form from a

reputable local pharmacy so I think he should be fine in that regard.

[Guest guest]

When my right hand quit working in Aug 07 I did one of these

supplement rounds to beat it back. Selenium and the whole lot. Spent

a bunch of money on the supplements

For me, it didn't work. Maybe if these things work of don't work is

related to whatever in the heck our illness is?

> >

> > Hello.

> > My brother-in-law has been taking LDN (4.5 mg every day) since

> > September 2007 but last month he had a relapse with the damage to his

> > hearing. Before that he was more or less stable - but no

> improvement.

> > He was diagnozed with MS last summer after he started having problems

> > in one of his eyes. Should he continue with LDN or is he one of

> those

> > people who will not get benefit from it? Also, is there anything

> else

> > he can take?

> > Thank you for any help

> >

>

[Guest guest]

>

> Thanks to everybody who replied to my message. I will recommend my

> brother-in-law to get tested for Lyme disease. I don't think he

ever

> got tested for it. He lives in Ukraine so not all options

discussed

> here can be applicable there.

>

>=====================

This may be of some assistance for lyme testing

MELISA test, different from the ELISA test.

A novel lymphocyte transformation test (LTT-MELISA®) for Lyme

borreliosis

http://www.melisa.org/borrelia-lyme-disease.php

MELISA Medica Foundation

http://www.melisa.org/order-melisa.php

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