Judy

[Guest guest]

[ Keep in mind those first shot sides will not continue! I sure

remember those chills. Felt like my teeth would shake right out of

my mouth! And they are REAL teeth! ]

I didn't get much in the way of chills at all, but all the basic initial

side-effects are still with me after 19 shots so far... the bad-bad

headaches left when I increased my water intake, but the rest, still got

'em...

[ My hubby shot me too for the first 3 months. He felt like yours,

afraid of hurting me. The interferon does sting and you may get a

red circle rash around the shot area too. That is normal. Remember

to trade off on your legs each shot. Be sure to let the drugs sit

out a bit, maybe 20 minutes. It won't be so cold then and won't

sting quite so badly either. ]

I have basically stuck with the left leg most of the time, as my right leg

doesn't seem to like them for some reason. I've not have any problem using

different thigh areas of one leg.

Princess

[Guest guest]

Leighann,

Why are my post not going through to the group?

Princess

Judy

Keep in mind those first shot sides will not continue! I sure

remember those chills. Felt like my teeth would shake right out of

my mouth! And they are REAL teeth!

My hubby shot me too for the first 3 months. He felt like yours,

afraid of hurting me. The interferon does sting and you may get a

red circle rash around the shot area too. That is normal. Remember

to trade off on your legs each shot. Be sure to let the drugs sit

out a bit, maybe 20 minutes. It won't be so cold then and won't

sting quite so badly either.

Drink TONS of water. The interferon can damage your kidneys so drink

more than you thought you could ever drink....every day. I used to

just carry around a big glass with me all the time.

If the headache persists, ask the Dr for something to help. I took

darvocet and believe me, one on shot night will not hurt your liver,

but WILL help get rid of that awful headache.

Dryness of the eyes, mouth and nose are a side effect and will

continue while you are on treatment. Some of the sides you had on

the first night will ease up and go away as your body gets used to

the drugs.

Good luck on your treatment and I hope you become UNDETECTED!!!

LeighAnn

http://www.geocities.com/1Leighann

[Guest guest]

Hi Judy,

I'm glad the info came through alright.

I'm so sorry you are having a problem with dehydration. The Be In Charge nurse

told me it was important to drink 1 oz. of fluid for every 2# of body weight.

Are you taking in enough fluids? I sure hope it isn't a kidney problem.

Wow, the shot doesn't sound like a pleasant trip. People say the first is the

worst, I hope this is true with you, too. I had a thought - when you said you

were too cold to stick your arm out of the bed to get to your water or nasal

spray. You could get one of those non-spill sippee cups that are used for

toddlers, so you could keep your water right in the bed with you, maybe right

above your pillow?. Hmmmm.......now about the nasal spray, maybe rubber-band it

to the sippee cup?

I hope you're feeling better soon.

Marilyn

Marilyn

Hi marilyn.......thanks for sending the information....I saved it and will

read it today......

The doctor I saw yesterday is willing to work with me.....I had to have

another unit of fluids in his office before they could draw blood....he said I

was dryer than a kite.....and to go home and get to drinking.......It kind of

concerns me that I have this problem with dehydrating so easily.....one of the

blood draws yesterday was to check kidney function so we'll see if anything is

going on there.....it took 5 different sticks to get blood yesterday......

I started the treatment last night.....Gene gave me my first shot....he was so

afraid of hurting me....I didn't even feel the shot, I felt a tiny sting when

the medicine went in.......I slept last night for a few hours and woke about 4am

with terrible fever and chills......I bet I lost weight with all the shaking I

did...LOL and I also had a headache I still have and so damn dry....my nose,

eyes and mouth.....there was no way I was sticking an arm out from under the

covers to get nasal spray or a drink.....LOL I am sore all over this morning,

muscle soreness....boy did I get a work out!!!!!

I'm going back to bed soon...just take it easy today......I hope you all have

a beautiful day.....love.....judy

[Guest guest]

Judy: It wasnt too long ago that my granddaughter said that I complained all

the time and that I never felt like doing anything. At first I took it

seriously, then a wise person here in the group wrote a little ditty that I

emailed to her and she has since then changed. I also told her that when I feel

good I feel really good, but then I can feel lousy in a flash, so for her to

expect extreme changes. I got my ID number and turned in my script, but I dont

know if Medi-Cal will pay for it, so it is another waiting game for me. Hang in

there, my prayers along with tons of others are with you. Try taking B12 to

help fight the fatigue. Remember that God loves you and so do I...and I am sure

many others too.

Love in His Light

Sandy

[Guest guest]

wouldlike to here that ditty!!

CAROL

GET TESTED FOR HEPATITISIS C.

8 Million in the US have HCV .

HCV can lead to fibrosis, necrosis.cirrhosis

and liver cancer. get it from transfusions and

blood products, IV drug use (even once) snorting drugs,

body percings, dailysis,Military vaccinations,

mancurisist equipment, unprotected sex, and any blood to blood contact.

[Guest guest]

I am so glad that you are doing better than expected. I only hope that I do as

well. It is a good thing that you went to the party and had a good time. God

is looking out for you. Take care and have a great day!

Love Ya!

Sandy

Judy M wrote:Just thought I'd report in and let you all know how I'm

doing.....the shot was Thursday night....yesterday I was tired but managed all

day without laying back down....went to the birthday party and really enjoyed

myself.......today, I'm feeling fine....still have the low grade temp and yes

I'm drinking plenty of fluids........this hasn't been near as bad as I thought

it would be.......everyone hang in there and have a fun day....love....judy

[Guest guest]

Judy: My prayers are with you and the Good Lord is going to help you with your

decisions. Just trust in Him.

As far as the treatments, I got my meds but have to wait until the 21st for my

doc appointment to see how to mix the stuff. My Medi-cal paid for the shots but

I didnt get the pills unless they come in the box with the shots. I am just

afraid that I wont be able to go to school and I am doing so well for the first

time in my life. I really like school. Take care and God bless.

Love in His Light

Sandy

[Guest guest]

Judy, you have been in my prayers and continue to be. I hope you made the

decision you needed to make and that you have peace in your heart about it.

Much love,

Marilyn

Dragonlady

I started the treatment tomorrow will be 2 weeks ago......I weighed 213 lbs at

my initial visit the day I took my first shot and pills......today I weigh 199

lbs.....our scales are right with the doctor scales. Also what may be affecting

my weight is....the doctor changed me from Celexa to Lexapro, the new

anti-depressant at the same time......it's put out by the same company that

makes celexa but is not suppose to have the side effects of celexa, weight

gain.....I gained almost 60 lbs with celexa over the last 3 years......

As far as how sick I am.....I'm accustomed to being sick so what side effects

I'm feeling is about the same as before starting treatment......yesterday the

headache and nausea was terrible all day long.....today...I'm still so nauseated

but no headache......I have no energy but do the same I always have done....I

push myself to do the things that must be done and rest when I can......I

recently realized that I have lived with this fatigue and forcing myself to keep

going for more than 25 years....I don't remember having energy to do something

because it might be fun to do......

I take 4 of the pills a day....800mg.......and 467 mcg of the shot.....that's

about 4.5 on the needle......and yes it is all based on your weight and mine

started out an amount for a little lower weight than I was.....why, I don't

know.....

I must go....I see the counselor this morning.

Please pray for me today as I have a very heavy heart concerning a painful

decision I must make......love....judy

[Guest guest]

I am praying for you too...please dont give up hope.....God loves you and so do

I.

Praying for you lots

Sandy

Judy M <tmckee@...> wrote:Here's praying you have an easy time all the

way through and go into

remission.....love....judy

[Guest guest]

The only allergy I'm sure of having is to Keflex....I am making an appt

to see the PCP and will ask for allergy tests....judy

[Guest guest]

I meant which version of the HCV treatment were you allergic to?

RE: Judy

The only allergy I'm sure of having is to Keflex....I am making an appt

to see the PCP and will ask for allergy tests....judy

[Guest guest]

Judy,

I am so sorry to hear of your loss. Your husband was obviously very lucky to have such a loving wife. I cannot imagine how hard it must be for you to lose him. Thank you for reminding us all just how fragile life is!

W

[Guest guest]

Judy I am so sorry please know I am praying for all of you.

You are so right in that with this disease we never know.

Thank you for writing to us.

the WV hillbilly

[Guest guest]

Judy:

I am so sorry to hear about your loss. I will pray that you have strength to get through this. I am surprized that this

happened so suddenly... You are in my thoughts and prayers. Hope your pain eases , each passing day.

Love, Gaynel

[Guest guest]

Judy,

I somehow missed your post regarding your husbands passing. I am so sorry for your loss. It must have come as a terrible shock to you. It sounds like you have a lot of close family and friends that will help you through this troubled time, but always know that we are here to support you also.

Again, I am so sorry for your loss.

[Guest guest]

Judy,

My mom and dad just turned 68 this summer (my mom on Saturday) and you are right. 67 is much too young to leave this earth in my opinion. I cannot even imagine not having my mom and dad, let alone my husband. thank you for sharing with us. I think we often get in the mode of overlooking things because it seems we are at the doctor so often with a chronic illness. I guess one thing to be learned from your husband's death is that when you are dealing with a chronic illness nothing should be overlooked. I am sorry that you had to lose your husband too soon (not that it would have been any easier even if he'd been older) but maybe your warning will end up saving the life of someone else. Thanks again for sharing with us. Please know that you are in my prayers.

W

[Guest guest]

hi judy you got through just fine will answer any questions you have.

I am not real knowledgeable but there are alot of people on here who are.

Welcome,

the WV hillbilly

[Guest guest]

, Thank you for keeping track of the group. I am beginning to recognize the regulars, and I appreciate that you keep track of all the newbees, and those who are having difficulties. Your encouragement is not only helpful but also very educational.

-------------- Original message -------------- hi judy you got through just fine will answer any questions you have. I am not real knowledgeable but there are alot of people on here who are. Welcome, the WV hillbilly

[Guest guest]

YOU'RE QUITE WELCOME JUDY. LIKE I SAID I DON'T HAVE ALOT OF ANSWERS BUT SOMEONE ON HERE CAN ALMOST ALWAYS HELP YOU.

AGAIN WELCOME,

BRENDA

[Guest guest]

Hi ,

Thank you, I'm sure I will have a lot of questions.

I've been posting on the SHHH message board for a few months. Some

time ago I signed up to a few of the other lists, this one included.

In the beginning I did not request them in digest form and was

inundated with messages. I switched to digest but was still

overwhelmed with information overload. Finally, I decided to just

store the digests until I could get a handle on the subject. Now that

I'm more familiar with the CI I've been reading past messages with a

more practiced eye. I'm certainly learning a lot.

Judy

PS If I may ask, why are you the Original?

On Aug 21, 2005, at 7:26 PM, wrote:

> Message: 19

> Date: Sun, 21 Aug 2005 18:32:57 -0400

> From: M Jansen <nucleus24@...>

> Subject: Judy

>

> Hi Judy,

> Don't recall seeing you post before, but GREAT that you've made an

> appt for a CI evaluation. That way you'll know if you are a

> candidate.

> Lots of folks waited around and after being implanted said their only

> regret was not doing it sooner.

> With the release of the Freedom implant system from Nucleus, you've

> got the cutting edge technology out there as one of your choices.

> Let us know if there are any questions you have.

> Good luck,

>

>

> The Original

>

> From: " Judy G. " <judy40@...>

> Subject: Re: At the movies

>

> , your story and many of the others that I've read over the past

> weeks are really inspiring to me. I have just made an appointment at

> Gainesville /Univ.Fla. for a CI evaluation on September 29. It took

> me a while to decide and now I face it with a great deal of

> excitement.

>

> Judy

> Jax, Fl.

>

>

[Guest guest]

Judy,

I'm so glad you are feeling more comfortable with your decision to

go ahead with the ci journey. it can indeed seem like an

overwhelming task when you first start. I'm thinking that by the

time you go for the actual ci surgery if you choose to do so, you

will be quite the expert on ci's if you stay with this group.

There are so many helpful people here, all willing to answer any

question whatsover. No question is too silly to ask.. if it's

important to you, it's an important question and should be asked.

I'll take the liberty to answer as to why is the original

<smiles>

when this forum started there were so many 's that we had to

differintiate between them as it could often get confusing.

the Original was the first on the forum, therefore the name

which has stuck.. And.. an original she is too<Grin>

Now we come to my name.. Silly

Same story, different name. LOL Too many 's so I used the one

that fit best.

Please feel free to email me either on the forum or privately if you

have any questions or concerns too. I'm available just as and

many others are.. anytime..

Hope you really enjoy your time here and that we can be helpful to

you.

Hugs,

Silly MI

In , " Judy G. " <judy40@b...> wrote:

> Hi ,

>

> Thank you, I'm sure I will have a lot of questions.

>

> I've been posting on the SHHH message board for a few months.

Some

> time ago I signed up to a few of the other lists, this one

included.

> In the beginning I did not request them in digest form and was

> inundated with messages. I switched to digest but was still

> overwhelmed with information overload. Finally, I decided to

just

> store the digests until I could get a handle on the subject. Now

that

> I'm more familiar with the CI I've been reading past messages with

a

> more practiced eye. I'm certainly learning a lot.

>

> Judy

> PS If I may ask, why are you the Original?

>

>

> ]

[Guest guest]

Hi, Judy,

Good luck on your evaluation for the cochlear implant.

Many of us here still wear our hearing aids in our unimplanted ear

following CI surgery. Some of us even defy the audiologist's orders not to!

<gasp> LOL

I have an analogue aid and it has been a godsend to relearning to hear with

the new CI. I tried all of the latest and greatest digitals after

implantation, but none worked as well, for me, as my trusty 10 year old phonac

programmable analogue. If you have usable hearing in the unimplanted ear, you

may want

to upgrade your hearing aid just because " it's time " . Give yourself some time

following surgery to adjust first. Best wishes.

) Jackie

Implanted - right ear - Oct.2002 - Nucleus 24/3G

Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G

Implanted - left ear - coming soon! Sept.9,2005 - Nucleus-Freedom

[Guest guest]

Hi, Judy,

Congratulations and good luck on your upcoming CI surgery,

As for your upcoming music events, I would say not to give the tickets

away just yet. Perhaps the July 12 symphony might be a bit soon to sit through

it, but surely you'll be feeling well enough for the other dates in January.

(Barring complications which are RARE!). If you are enjoying music now with

your analog hearing aid, you will continue to do that, and even after hook-up

in combination. I wore my analog for the time before hook-up and with my CI

for 3 years before going bilateral. It was a godsend and allowed me time to

transition and adjust to the CI. Good luck!

) Jackie

Implanted - right ear - Oct.2002 - Nucleus 24/3G

Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G

Implanted - left ear - Sept.2005 - Nucleus-Freedom

[Guest guest]

Hi, Judy,

The popping you experienced is your punishment for talking with your

mouth full! Listen to your mother! LOL Teasing, of course. That is not

unusual. I'm sure someone else will write and tell us the physical reasons for

it,

but rest assured, there is nothing wrong. Continued good healing and great

activation.

) Jackie

Implanted - right ear - Oct.2002 - Nucleus 24/3G

Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G

Implanted - left ear - Sept.2005 - Nucleus-Freedom

[Guest guest]

Hi Judy,

Do you have TMJ? Larry

Re: Judy

> Hi, Judy,

> The popping you experienced is your punishment for talking with your

> mouth full! Listen to your mother! LOL Teasing, of course. That is not

> unusual. I'm sure someone else will write and tell us the physical

> reasons for it,

> but rest assured, there is nothing wrong. Continued good healing and

> great

> activation.

> ) Jackie

> Implanted - right ear - Oct.2002 - Nucleus 24/3G

> Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G

> Implanted - left ear - Sept.2005 - Nucleus-Freedom

>

>

>