Re:New group started - http://health.groups..com/group/googleldn/

[Guest guest]

Congrats ph on the new book, and that is so wonderful that you are willing to share your story and to help others get the word out there.

Another way to spread the word in each our own little way, is to watch the videos on LDN through U-tub and make comments. I have made a few comments both on the LDN videos and on other MS videos and many people have e-mailed me back asking for information on what "LDN" is. In fact if people could briefly share their experiences in the comment boxes, that is a wonderful way to let others know this exists.

If anyone would like a copy of the "welcome e-mail" to be able to send to others, just let me know. Also, you are welcome to just give them my e-mail if that is easier. My e-mail is Aletha@...

All my best

Aletha

[Guest guest]

Thanks Aletha...

I've got a lot of the videos up at my site as well.

I want to start MAKING videos about this.

Any videographers out there willing to help?

Joe

>

> Congrats ph on the new book, and that is so wonderful that you

are willing to share your story and to help others get the word out

there.

>

> Another way to spread the word in each our own little way, is to

watch the videos on LDN through U-tub and make comments. I have made

a few comments both on the LDN videos and on other MS videos and many

people have e-mailed me back asking for information on what " LDN " is.

In fact if people could briefly share their experiences in the comment

boxes, that is a wonderful way to let others know this exists.

>

> If anyone would like a copy of the " welcome e-mail " to be able to

send to others, just let me know. Also, you are welcome to just give

them my e-mail if that is easier. My e-mail is Aletha@...

>

> All my best

> Aletha

>

[Guest guest]

joeas you know i have been following LDN for years now. I have taped all the conferences plus done a considerable amount of patient interviews. what I need a grant to help put it together. what would be great is if people have their own dv camera and they can film their story on a dv tape and send it to me -i can put it up on utube and also include it in the doc. any grant writers out their willing to work  on a commission?cyndi CCyndi Lenzclenz@...http://www.tdgr2productions.comhttp://www.goldenrescuesouthflorida.com"Is colainn gan cheann duine gan anam cara"The highest calling is to be a soul friend St Brigid On Dec 17, 2008, at 2:58 PM, joe wouk wrote:Thanks Aletha...I've got a lot of the videos up at my site as well.I want to start MAKING videos about this. Any videographers out there willing to help?Joe>> Congrats ph on the new book, and that is so wonderful that youare willing to share your story and to help others get the word outthere. > > Another way to spread the word in each our own little way, is towatch the videos on LDN through U-tub and make comments. I have madea few comments both on the LDN videos and on other MS videos and manypeople have e-mailed me back asking for information on what "LDN" is.In fact if people could briefly share their experiences in the commentboxes, that is a wonderful way to let others know this exists. > > If anyone would like a copy of the "welcome e-mail" to be able tosend to others, just let me know. Also, you are welcome to just givethem my e-mail if that is easier. My e-mail is Aletha@...> > All my best> Aletha>

[Guest guest]

Cyndi,

I am friends with a lady here in New York who has won awards writing

grants. Email me privately if interested in being put in touch with

her.

Art

-

>

> joe

> as you know i have been following LDN for years now. I have taped

all

> the conferences plus done a considerable amount of patient

> interviews. what I need a grant to help put it together. what

would

> be great is if people have their own dv camera and they can film

> their story on a dv tape and send it to me -i can put it up on

utube

> and also include it in the doc. any grant writers out their

willing

> to work on a commission?

> cyndi

>

> CCyndi Lenz

> clenz@...

> http://www.tdgr2productions.com

> http://www.goldenrescuesouthflorida.com

> " Is colainn gan cheann duine gan anam cara "

> The highest calling is to be a soul friend St Brigid

[Guest guest]

Perfect, Cyndi...

I was thinking the same. Practically everybody has digital these

days. Everyone should have their family film them telling their story.

Let's swamp youtube!

> > >

> > > Congrats ph on the new book, and that is so wonderful that you

> > are willing to share your story and to help others get the word out

> > there.

> > >

> > > Another way to spread the word in each our own little way, is to

> > watch the videos on LDN through U-tub and make comments. I have made

> > a few comments both on the LDN videos and on other MS videos and many

> > people have e-mailed me back asking for information on what " LDN " is.

> > In fact if people could briefly share their experiences in the comment

> > boxes, that is a wonderful way to let others know this exists.

> > >

> > > If anyone would like a copy of the " welcome e-mail " to be able to

> > send to others, just let me know. Also, you are welcome to just give

> > them my e-mail if that is easier. My e-mail is Aletha@

> > >

> > > All my best

> > > Aletha

> > >

> >

> >

> >

>

[Guest guest]

Art...

By all means, help Cyndi. She's proven herself over and over and could

really make a difference with a little moolah.

Gluck and I are starting to work out a strategy to go to

congress in the spring and force them to do something about this.

Do you think your grant writer could help us raise the money to do

this effectively?

It means worming our way into the right corridors which always

involves money, one way or another.

Nothing could be more important. I'm not sure who might give the

grant, but there are a lot of do-good foundations out there.

I've never written a grant, but WRITING is what I do.

If you think there might be something to this email me at:

joseph@... or you can call me at 831-44-8568

And thanks for standing up for me!

All the sheep over at patients like me just looked the other was as I

was libled over and over, called a " drug addict " because of my ADHD

meds, etc.

They can't get away with that crap in THIS newsgroup.

Cheers!

Joe

> >

> > joe

> > as you know i have been following LDN for years now. I have taped

> all

> > the conferences plus done a considerable amount of patient

> > interviews. what I need a grant to help put it together. what

> would

> > be great is if people have their own dv camera and they can film

> > their story on a dv tape and send it to me -i can put it up on

> utube

> > and also include it in the doc. any grant writers out their

> willing

> > to work on a commission?

> > cyndi

> >

> > CCyndi Lenz

> > clenz@

> > http://www.tdgr2productions.com

> > http://www.goldenrescuesouthflorida.com

> > " Is colainn gan cheann duine gan anam cara "

> > The highest calling is to be a soul friend St Brigid

>

[Guest guest]

Opps, sorry everyone I had left my e-mail for people to contact me for a copy of the welcome e-mail, but there was a typo in the address. It should be Aletha@...

Thanks to the many people that pointed that out. Your keeping me on my toes!!!

My best, Aletha

[Guest guest]

I will try to arrange this if Cyndi contacts me but I hope it doesn't

turn into another wild goose chase. A few months ago the guy my

girlfriend works for wanted a grant written and she spent a lot of

time researching, phone calls, etc. He decided to pull the plug on

the whole thing and she was left without one cent for her effort.

Turns out he was on some sort of ego trip and had no intention of

ever following through. She may or may not be as receptive this time

but I will ask and if Cyndi really wants this.

Art

--

> > >

> > > joe

> > > as you know i have been following LDN for years now. I have

taped

> > all

> > > the conferences plus done a considerable amount of patient

> > > interviews. what I need a grant to help put it together. what

> > would

> > > be great is if people have their own dv camera and they can

film

> > > their story on a dv tape and send it to me -i can put it up on

> > utube

> > > and also include it in the doc. any grant writers out their

> > willing

> > > to work on a commission?

> > > cyndi

> > >

> > > CCyndi Lenz

> > > clenz@

> > > http://www.tdgr2productions.com

> > > http://www.goldenrescuesouthflorida.com

> > > " Is colainn gan cheann duine gan anam cara "

> > > The highest calling is to be a soul friend St Brigid

> >

>