Re: Unusual reactions to LDN

[Guest guest]

>

do you use the cream

> Following Dr. Skip's recommendations, I did 30 days of 1.5 mg of

LDN,

> followed by 30 days of 3.0 mg, to be followed by trying 4.5 mg. We

> both agreed it was better to err on the side of caution, and I'm

> patient. I had no problems with 1.5 mg, and noted an increase in

> energy and decrease in pain the 1st week. I noted some slight

> increase in symptoms, plus mild side effects, on going up to 3 mg.

> Those levelled out after 8-10 days. Just at the point of trying

4.5

> mg, and BEFORE I did, the pancreatitis I first suffered horribly

with

> 9 months ago returned, along with severe colitis, which I've

> previously controlled successfully with diet for almost 20 years.

I'm

> confused, because I've read where LDN has been used with great

> success for pancreatic cancer. Numerous people have reported help

> with Crohn's, IBS, etc., on LDN, as well.

> Admittedly, I've been going through an extremely stressful period,

> with a death in the family, among other things. But this was

totally

> unexpected. Although I have a high pain threshhold (according to

> doctors), the excruciating pain from the pancreatitis necessitated

> stopping the LDN (temporarily, I hope) in order to better control

my

> pain.

> I'd really like some feedback on this, so I can better understand

and

> put it all in persepctive.

> Thanks, Group.

> Tarra

>

[Guest guest]

> >

> do you use the cream

No, I don't. It's not available where I live (outside Guadalajara,

Mexico.) I buy the capsules, then make the lower dosage myself, in

liquid form, which I drink followed by drinking liquid yoghurt.

Tarra

[Guest guest]

The following refers to those with MS but it may be helpful for you:

Why you may get increased symptoms in first three months on LDN -

http://tinyurl.com/5dkz2t

Art

--

>

> Following Dr. Skip's recommendations, I did 30 days of 1.5 mg of

LDN,

> followed by 30 days of 3.0 mg, to be followed by trying 4.5 mg. We

> both agreed it was better to err on the side of caution, and I'm

> patient. I had no problems with 1.5 mg, and noted an increase in

> energy and decrease in pain the 1st week. I noted some slight

> increase in symptoms, plus mild side effects, on going up to 3 mg.

> Those levelled out after 8-10 days. Just at the point of trying 4.5

> mg, and BEFORE I did, the pancreatitis I first suffered horribly

with

> 9 months ago returned, along with severe colitis, which I've

> previously controlled successfully with diet for almost 20 years.

I'm

> confused, because I've read where LDN has been used with great

> success for pancreatic cancer. Numerous people have reported help

> with Crohn's, IBS, etc., on LDN, as well.

> Admittedly, I've been going through an extremely stressful period,

> with a death in the family, among other things. But this was

totally

> unexpected. Although I have a high pain threshhold (according to

> doctors), the excruciating pain from the pancreatitis necessitated

> stopping the LDN (temporarily, I hope) in order to better control

my

> pain.

> I'd really like some feedback on this, so I can better understand

and

> put it all in persepctive.

> Thanks, Group.

> Tarra

>

[Guest guest]

>

> The following refers to those with MS but it may be helpful for you:

>

> Why you may get increased symptoms in first three months on LDN -

>

> http://tinyurl.com/5dkz2t

>

> Art

> --

Art: I DO have MS, have had it for almost 30 years (dx Jan. 1980). I

was unable to open the link. Would you e-mail it to me at

tmss16@...?

Thank you,

Tarra

[Guest guest]

Try this link:

http://tinyurl.com/3evp7x

Art

--

> Art: I DO have MS, have had it for almost 30 years (dx Jan. 1980). I

> was unable to open the link. Would you e-mail it to me at

> tmss16@...?

> Thank you,

> Tarra

>

[Guest guest]

>

> The following refers to those with MS but it may be helpful for you:

>

> Why you may get increased symptoms in first three months on LDN -

>

> http://tinyurl.com/5dkz2t

>

> Art

Art: Thank you for the link. Ironically, I just joined the LDN Forum,

where the link leads, about 15 minutes before your e-mail.

Unfortunately the information didn't help in my particular case. I've

never been able to take 99% of all opiates, which makes surgery

difficult (I've had 14 major surgeries). But it also means I'm

absolutely sure I had none in my system when I started LDN, nor

within the past 5 years.

The article also doesn't explain why I had no problems for the first

2 months, then suddenly had conditions return that have not bothered

me for some time.

For everyone else: my liver function tests are normal. I also take a

number of nutritional supplements and vitamins and minerals to

prevent and/or control other problems.

My body always reacts strangely to both prescription and natural

medicine, which is why I began this journey with caution and

preparation. Hopefully, someone out there will know something to help

me.

Thanks to all,

Tarra

[Guest guest]

Art,

Been trying to open the link and unable to do so. Please send the link (usable) again.

robert.delvillar@...

Have MS and about to start LDN. This will save a lot of questions to the doctor.

Bob

On Sat, Dec 6, 2008 at 5:40 PM, Tarra <tmss16@...> wrote:

>> The following refers to those with MS but it may be helpful for you:

> > Why you may get increased symptoms in first three months on LDN -> > http://tinyurl.com/5dkz2t> > Art> --Art: I DO have MS, have had it for almost 30 years (dx Jan. 1980). I

was unable to open the link. Would you e-mail it to me at tmss16@...?Thank you,Tarra

[Guest guest]

>

> Art,

> Been trying to open the link and unable to do so. Please send the

link

> (usable) again.

> robert.delvillar@...

> Have MS and about to start LDN. This will save a lot of questions

to

the

> doctor.

> Bob

For some reason links don't come through on site postings, only on

direct e-mails. Art shortened it because it's a long link. I'll give

the URL (NOT a link) below. For anyone interested, this information

plus a WHOLE LOT MORE I wish I'd had 2 months ago can be found on

both the LDN Forum site, and at Crystal's LDN Users site. To inform

ourselves, we obviously need to check out more than one site. Wish

I'd thought of that sooner!

Tarra

The URL on increasing symptoms in first 3 months on LDN:

http://ldn.proboards3.com/index.cgi?

board=forum & action=display & thread=148