Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 A lot of people think that LDN is going to take all their symptoms away and some think that LDN will take them back before they were diagnosed with MS or any other autoimmune disorder and cancer they have. Yes LDN stops or slows your progression but it’s not a cure and LDN affects everyone different as like anything else does. I was rereading through Anne Boyle Bradley’s book “Up the Creek with a Paddle” which I suggest you buy and read if you haven’t and in one section where was talking to Dr. Bihari about her husband’s MS, Dr Bihari insisted to that LDN is NOT A CURE for MS and he stated that LDN would Remove The Last 3 Months Worth Of Damage if Noel (’s husband) was lucky, but it seemed to be universal in Stopping Disease Progression. goes on to say that she tells Dr. Bihari about her uncle that has Parkinson’s disease. Dr Bihari told that although Parkinson’s was medically documented with unknown etiology, he believed that Parkinson’s was also an autoimmune disease. Dr. Bihari told that because of his success with HIV, Aids and MS, he started branching out in diseases. Dr. Bihari explained that he was very thankful for the internet because it made it possible for him to reach so many more people than ever before. Dr. Bihari was excited and told at that time he had 3 Parkinson’s patients on LDN for over a year and that although it was too early then for him to say for sure that it worked, he assured that it was too early then for him to say for sure that it worked and assured that it looked very promising. If nothing else, Dr. Bihari insisted LDN was worth a try for Parkinson’s based on the fact that there are No Side Effects and It Is A Very Inexpensive Therapy. Dr. Bihari explains that ANY Doctor could prescribe LDN for their patients and told that he was delighted to share his information with her and wished her well. Dr. Bihari just asked that the LDN be compounded as described on the LDN Website (www.ldninfo.org). Dr. Bihari assured that it was an easy thing to do and that any compounding pharmacy could do it IF instructed PROPERLY but it was important that it was compounded correctly for LDN to work!!! This is taken from Anne Boyle Bradley’s book “Up the Creek with a Paddle” (http://www.marybradleybooks.com/LDN%20Book.htm). I just don’t want people to get false hopes and think LDN is a quick fix because its not and it takes time for LDN to get into your system and work and the main purpose of LDN is to Stop the Progression and if you get any of the other Benefits from it then that is a Big Bonus…….Just my 2 cents….. May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/ LDN MySpace http://www.myspace.com/low dose naltrexone Cris - Case Health - Health Success Storieshttp://casehealth.com/case/about.html Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/ From: pramrama <pramacha@...>low dose naltrexone Sent: Sunday, December 28, 2008 6:24:59 AMSubject: [low dose naltrexone] Re: LDN 3 mg dosage - India Thank you so much for your kind advise. I have just placed an order and am so excited. Really hoping for some miracle.> >> > Hi. I sent an email to Allday Chemist to purchase 3mg LDN capsules > but > > they could only dispense it in 50 mg. > > > > I am a MS patient living in Singapore and am so grateful for > finding > > this site. > > > > I am a 35 year old female and diagnosed with MS 10 years ago in > > Vancouver. > > > > My local neurologist is not keen in prescribing LDN for MS and I > have > > not tried any GP as well. > > > > I am lost . > > > > Please assist.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I think the disclaimer should be even more broad than that. Not only is LDN not a cure for MS, it's not *proven* to stop or slow progression either. Yes, Dr Bihiri says he did not see any progression in something like 300 MS patients he has treated. However, that statement did not come from a statistically significant, placebo-controlled, clinician blinded, multi-site study of the drug. The only LDN studies I know of that are this well controlled have not shown *proven* results yet due to small sample sizes and lack of repeatable results. I hope this will not bring on any flame responses. Don't get me wrong; LDN *may* be quite helpful at symptom relief and/or preventing disease progression. There are important anecdotal data points in support of LDN use for MS (Dr Bihari's perhaps foremost among them). But as of this date, there are no scientifically/medically proven claims that can be made about LDN for the treatment of MS. Again, I am not a naysayer. I have MS and take LDN myself. I do so because there is considerable anecdotal evidence of the benefits of LDN and even better scientific/medical evidence that the drug is safe. So to me, it's no intellectual stretch to take an inexpensive and safe drug just based on the *hope* that it *might* do me some good. Wayne > > > > > > Hi. I sent an email to Allday Chemist to purchase 3mg LDN > capsules > > but > > > they could only dispense it in 50 mg. > > > > > > I am a MS patient living in Singapore and am so grateful for > > finding > > > this site. > > > > > > I am a 35 year old female and diagnosed with MS 10 years ago in > > > Vancouver. > > > > > > My local neurologist is not keen in prescribing LDN for MS and I > > have > > > not tried any GP as well. > > > > > > I am lost . > > > > > > Please assist. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 On Dr. Gluck's LDN website this is written on the LDN and Multiple Sclerosis (MS) page: It should be emphasized that in spite of the plentitude of clinical experience described above, in the absence of a formal clinical trial of LDN in MS, these results cannot be considered scientific, but rather anecdotal. A clinical trial, preferably by a pharmaceutical company with some experience with MS, is clearly needed to determine whether these results can be replicated. If they can be, they are likely to lead to widespread use of this extremely non-toxic drug in the treatment of MS. http://www.low dose naltrexone.org/ldn_and_ms.htm Art -- > > I think the disclaimer should be even more broad than that. Not only > is LDN not a cure for MS, it's not *proven* to stop or slow > progression either. Yes, Dr Bihiri says he did not see any > progression in something like 300 MS patients he has treated. > However, that statement did not come from a statistically significant, > placebo-controlled, clinician blinded, multi-site study of the drug. > The only LDN studies I know of that are this well controlled have not > shown *proven* results yet due to small sample sizes and lack of > repeatable results. > > I hope this will not bring on any flame responses. Don't get me > wrong; LDN *may* be quite helpful at symptom relief and/or preventing > disease progression. There are important anecdotal data points in > support of LDN use for MS (Dr Bihari's perhaps foremost among them). > But as of this date, there are no scientifically/medically proven > claims that can be made about LDN for the treatment of MS. > > Again, I am not a naysayer. I have MS and take LDN myself. I do so > because there is considerable anecdotal evidence of the benefits of > LDN and even better scientific/medical evidence that the drug is safe. > So to me, it's no intellectual stretch to take an inexpensive and > safe drug just based on the *hope* that it *might* do me some good. > > Wayne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 You know what? Screw the clinical trials! I am so sick of hearing that anecdotal evidence is not as important as clinical trials. I don't care what the drug companies or the FDA says. The whole point of us voting for change is to change the way drugs are dealt with in America. Does nobody get it? Do we have to keep listening to the same tune being pumped out over and over again? Stop paying the piper and start playing your own tunes. If I hear one more person repeating the die hard rhetoric, then I am out of here. We all know what we are up against. So please, don't keep repeating the same old crap. Nettie Quote Link to comment Share on other sites More sharing options...
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