Aquagenic Pruritis (AP) and LDN

[Guest guest]

Does anyone else on this list suffer from aquagenic pruritis? For those of you

who have

never heard of it, this is an intense itching problem that comes on after

contact with water.

It's quite rare, but the group for this disorder has over 800 people on

it, so it's

definitely out there. Affected individuals have difficulty showering, swimming

etc. because

they start to itch really badly and it usually lasts for an hour or so. There's

no rash, no hives,

no outward sign that anything is wrong. It's agonizing and can really mess up

your life.

The reason I'm asking is that I've had it off and on over the years, and it's

been much better -

almost gone, in fact - since I went on LDN a year ago for my RA. I have since

unearthed an

article about Naltrexone in higher doses being used for this condition

successfully. The

sample size is small on that study because the condition is so rare, and it

occurred to me

that this LDN group has a lot of subscribers and we might be able to see if

anyone else is

getting relief from LDN. The researchers may not have thought to try such low

doses, and if

there are enough of us who have been helped, perhaps we can get them interested

in

pursuing it.

Judy