Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Amy, I myself am at that same crossroad although I haven't decided yet to switch from Tysabri (8 months now) to LDN. I'm somewhat afraid to go off Tysabri for it seems to be working well for me and I've never had any side effects from it. I really like the once a month infusion vs. shots of Rebif 3X per week. Although I've mostly heard great successes with LDN for other RRMS patients. But I am afraid to switch plus my neuro Doc doesn't condone the LDN treatment for his MS patients mainly because no official clinical trials with supporting data has been done by MS drug companies. I get why, because there's little money to be made by selling this inexpensive drug. For this reason he won't give me a prescription for LDN but I do have references for other Doc's who will prescribe it for me should I chose this route. I did agree to tell him if I do this. Is there anyone else in the group with RRMS who took Tysabri successfully and then stopped for LDN? Should I wait until Tysabri seems to no longer work for me? Chris Quote Link to comment Share on other sites More sharing options...
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