Re: New LDN RX......pills vs. cream

[Guest guest]

Makes me so upset that Doctors act the way they do, not all but most!

The cream WOULD BE BEST for your daughter, as her doctor SHOULD KNOW

THIS.

And also, there is no reason to start lower than 4 !/2 mg.

My daughter started with the capsules but they didn't help her - BUT

when she switched to the cream she began to heal.

As time is of the essence, I think that starting with " cream " is most

important - at least that was my daughter's experience.

Don't worry about sleep / she may or may not have sleep disturbance -

my daughter didn't have any sleep problems.

I wish your daughter healing.

Take Care, ette

[low dose naltrexone] New LDN RX......pills vs. cream

Hello,

 

Just wanted to let everyone know my daughter got

her doctor to prescribe LDN thanks to all the input we got her. She

first

mentioned it to her Dr. at the consult just as an option and to plant

the seed,

but of course he didn't prescribe it. He first put her on Asacol for

her Crohn's

along with the prednisone and within a few days her condition was

worse. Next

was Pentasa which also made her symptoms worse so she wasn't tolerating

the

mesalamine in these20drugs. As soon as she stopped both her symptoms

improved

within a few days. She new the next drug would be Imuran so she printed

out all

the information on LDN found a pharmacy that mixed it and gave all this

info to

her doctor along with a letter letting him know she wanted to give it a

try. She

went back to see him a few days ago and he agreed to prescribe it, but

said she

was his first patient he ever has done this for. He wants her to

keep him posted on how she is doing as he is curious about the effects

of

LDN for Crohn's. She is on Prednisone 10 mg now and will be tapering to

5

mg once she starts the LDN.

 

Ok that was the great news now for the not so

great. The doctor would only prescribe the pill form to start her on

because he

feels it has a better absorption, and my daughter didn't want to push

him

anymore. We know by reading all the posts that the cream is much better

than

pills as the fillers in the capsules can flare up the Crohn's. He is

staring her

on 2.5 mg and will increase up to 4.5mg. A few questions does anyone

take the

pills and do ok with them? Do you have to titrate the dose up or do

some people

do ok on the lower dose? If you could please give us some ideas on side

effects,

we know it can affect sleep. I am worried about the loosing sleep as my

daughter

already has problems with sleep.20Does it always have to be taken at

night, or is

that only recommended for MS? One other thing she is on an

antidepressant which

is new to her since her diagnosis. I'm wondering if she will still need

to be on

this starting on the LDN? I would appreciate any info as we are

starting new on

the LDN.....Hurray! I do hope this works for her and want to go about

it

correctly and also make sure my daughter is well aware of what to

expect so she

doesn't get frustrated and not give it a fair chance. Problem is I seem

to have

to do all the leg work. I need to read all about LDN again since we are

starting

it. You notice I say " we " .

 

Wish us luck, and I will keep you posted on her

progress. Oh and we and the pharmacist are prepared to ask for the

cream if she

relapses, just don't want to push it too much as we feel lucky to get

the RX.

 

Concerned Mom